Experiences of Caregivers in a Dementia Simulation Program

Abstract

Objectives: Simulation-based training has been used in health care to increase clinical knowledge and skills and understanding the experience of others. There is a lack of research in exploring experiences of caregivers of people with dementia in a dementia simulation program and its potential benefits on caregivers. The purpose of this qualitative study was to explore experiences of caregivers of people with dementia who participated in a dementia simulation program, called Dementia Live?.

Methods: Fourteen caregivers were interviewed after participation in DL, and thematic analysis using NVivo 11 software was used.

Results: Three themes emerged, including: (i) the Dementia Live? as an eye-opening experience; (ii) the perceived benefits of the Dementia Live? on themselves; and (iii) recommendation of the Dementia Live? to other caregivers.

Conclusions: Dementia simulation programs such as the Dementia Live? may help caregivers to have more empathy, understand better about the behaviors and feelings of people with dementia, and to use strategies that can help when working with people with dementia. Further experimental research is needed to examine effectiveness of the dementia simulation program on caregivers and people with dementia.     

The Relationship between Social Networks and Volunteerism among Seniors

ABSTRACT

The aim of this article was to examine the role of social networks in the fostering of volunteering as a social activity among older adults. Two different data sources were used. First, a secondary analysis was conducted of 2,057 Spanish respondents to the Survey of Health, Ageing and Retirement in Europe, previously published in 2013. The features of the social networks of volunteers and non-volunteers (network structure, interaction and quality) were analyzed. Second, a questionnaire was administered to 152 older volunteers in Spain to determine the role played by social networks in the recruitment of older people to volunteer work by looking at which network members had suggested volunteering, among other variables. The analysis of the two datasets found that the low participation of older Spanish people in volunteering is related to the structure of their social networks. While the social networks of older Spanish people are mostly comprised of family members, recruitment to volunteering tends to happen through relationships with friends and acquaintances rather than relatives. Future research in this area should consider the impact of gender on the uptake of volunteering and address other issues such as the role of social networks in the benefits that people get from volunteering.     

Who volunteers?

Summary The 1990 NHS and Community Care Act outlined an extended rolefor volunteers and voluntary organizations in the provisionof services for disabled adults and older people. In broad terms,the Act assumed an untapped pool of volunteers, ready to contributeat little additional cost to the provision of care. More recentpolicy developments, including Millennium Volunteers (ScottishOffice 1997) have made similar assumptions. For organizationswhich involve volunteers, the expectations of their increaseduse in service provision present considerable challenges, notleast in attracting new recruits and retaining existing volunteers.The research presented in this paper builds on previous workto explore the current practice and organization of volunteeringand to examine critically how far the reality matches the politicalrhetoric about the role of volunteers in the mixed economy ofcare. The paper begins with a critical review of recent policyand practice in volunteering to set the context which providedour key questions. The research methodology is briefly describedand the findings from a survey of 117 active volunteers workingwith adults with learning difficulties, mental health problemsand physical disabilities, and with older people in the Northof Scotland are presented. The research examines the demographyand personality profiles of the volunteers. It examines theirperceptions of volunteering as these relate to motivation, recruitment,selection, training, support, rewards and reasons for leaving.Finally, it examines volunteers' perceptions of the organizationof volunteering. The results are reviewed in relation to thepolicy assumptions about volunteering in the mixed economy ofcare.     

Job Satisfaction Among Volunteers With Personal Cancer Experience

ABSTRACT

This study explored job satisfaction among 753 cancer-experienced volunteers from hospital, palliative care, and community-based oncology settings in nine provinces across Canada. Based on a conceptual framework including three components of volunteering—antecedents, experiences, and consequences—a mixed-methods design to explore job satisfaction was used. Findings from the quantitative and qualitative inquiries indicated that the level of job satisfaction was high and stress was not reported as a major concern. The four themes related to job satisfaction from the volunteers’ responses included learning, personal growth, challenge, and giving back related to their own experience with cancer. Future research should further investigate the important role of job satisfaction for social service professionals for training, marketing, and recruiting, plus the need to explore supports to sustain oncology volunteers in this most challenging environment.     

Citizenship, Volunteering and Active Ageing

Many voluntary organizations depend greatly on the unpaid services of older volunteers, a significant number of whom are women. At the same time, shifts in welfare policy have been towards emphasizing individual economic autonomy and self-provisioning, often to the detriment of older, more vulnerable members of society. Using data from an organization working for and with older people in the North-East of England and through in-depth qualitative interviews, our study found that volunteering is an expression of citizenship for older people. In our analysis, we identify two strands in the meanings of citizenship for older people: volunteering as leisure and work, and volunteering as care and civic consciousness. These correspond with liberal conceptualizations of citizenship and republican models of citizenship. Data from our in-depth interviews demonstrate a strong commitment to society and fellow citizens among older people that counterbalances individualistic and instrumental reasons for volunteering promoted by the state and market. Our findings suggest that government views of volunteering as a route to paid work, as a panacea for society and therefore needing to be more 'work-like', are discordant with the perspectives of older volunteers. Rather than the neo-liberal views of the 'citizen-worker' or 'citizen-consumer', citizenship that is based on the 'common good' and feminist perspectives of 'caring citizenship' are arguably more beneficial to society. Finally, we describe the pressures and constraints facing older people that could discourage formal volunteering in the future.     

Perceived Usefulness and Easiness of Information and Communication Technologies and Volunteering among Older Adults

ABSTRACT

This study investigates the association between older adults’ perception of usefulness and easiness (PUE) of Information Communication and Technologies (ICTs) and volunteering, and if this association differs across their income status. Data were obtained from the 2012 wave of the Health and Retirement Study (HRS), and the sample was restricted to respondents aged between 60 and 84 (N = 901) and who completed the 2012 HRS technology module. Multinomial logistic regression was employed to examine the independent and joint influence of PUE of ICTs and of low-income status on volunteering. The results show that only people with high PUE engaged in more than 100 hours of volunteering among older adults after controlling for covariates. The positive effect of high PUE was found to be more significant in the low-income group. This is the first known research to investigate the PUE of ICTs and volunteering among older adults. This study expands the knowledge of volunteering among older adults by exploring ICTs which can be considered as one of the most influential macrosocial changes in the current society. Moreover, our findings provide some insights and an empirical foundation in volunteering programs for older adults of different PUE levels.     

A Study of Older Chinese in Hong Kong

Abstract

Objective: We extended the volunteer process model (Omoto & Snyder, 1995) to identify factors influencing the persistence of volunteer activities in older Chinese.

Method: We individually interviewed 318 older Chinese volunteers about their demographic information, history of volunteer activities, subjective health status, perceived social support, motivation for volunteering, integration into volunteer group, satisfaction from volunteer work, and intention to continue volunteering in the coming year.

Results: Bivariate correlation analyses generally supported the volunteer process model. In particular, intention to continue volunteering was related to antecedent factors of high educational attainment, mental well-being, social support, and fulfillment of altruistic and self-oriented motives as well as volunteer experiences of integration into the volunteer group and satisfaction with volunteer work. Results of a multiple regression analysis indicated that fulfillment of self-oriented motives was the most salient factor in predicting the persistence of volunteer activities when shared variances of various factors were also considered.

Discussion: Research and practical implications were discussed to facilitate the retention of older Chinese volunteers.     

Challenges to Successful Community-based Integrated Approach to Dementia: A Qualitative Study

The aim of this study is to identify key challenges to successful community-based integrated team approach to the management of older adults with dementia. A nationwide community-based qualitative research strategy was applied. We purposively recruited 24 health-care providers and 13 family caregivers from selected 8 prefectures among 47 prefectures. Face to face interviews were conducted from May to September 2017. Qualitative content analysis was used to analyze the qualitative data. Ten themes regarding the challenges were emerged: Ignored wishes, Family caregivers’ full responsibilities, Encouragement, Practical and easy-to-understand information, Essential skills of dementia diagnosis and assessment, Gratitude by helping others, Difference between being kind and overly-kind, Legal barrier against information sharing, Coordination between volunteers and clients, and Conflict avoidance in multidisciplinary collaboration. The findings highlight the need to provide practical and easy-to-understand information for family caregivers, educate physicians in dementia diagnosis and assessment, share personal dementia care information among health-care providers, promote platforms which aim to match dementia care volunteers with older adults with dementia and their families in need of help, and raise awareness of advance care planning among both older individuals and health-care providers.     

Implementing reverse mentoring to address social isolation among older adults

ABSTRACT

Reverse mentoring is a means to address the social work Grand Challenge of social isolation. Among older adults, reverse mentoring can improve social connection by increasing the digital competence of older adults so they can use technology for social benefit, and by facilitating intergenerational connections with young adult mentors. In this paper, reverse mentoring is examined within an intergenerational program that serves older adults and utilizes the native technological knowledge and skills of young adults who mentor older adult participants. Qualitative data were collected through young adult mentor logs of each session, and through open-ended questions on the post-surveys collected from older adults and young adult mentors. Qualitative analysis revealed three themes related to social connection: (1) an increased sense of self-efficacy for older adults as they build confidence in technological use, and for young adults as they develop leadership skills through mentoring, (2) the breaking down of age-related stereotypes, and (3) intergenerational engagement and connection. The findings demonstrate that reverse mentoring can be used in various settings to decrease the social isolation of older adults by developing intergenerational connections and increasing older adult usage of technology.     

Experiences of Stigma and Spirituality of Older Black Men Living with HIV

Abstract

Previous research on HIV stigma and the use of spirituality by people living with HIV/AIDS is scarce. Moreover, the research with older Black men who have sex with men is scant. This study aimed to investigate experiences of HIV stigma and the use of spirituality among older HIV positive Black men who sleep with men. In-depth interviews were conducted with a sample of ten men. Data were analyzed utilizing to the modified van Kaam data analysis method. Three major themes were identified that explores the participants lived experiences with HIV stigma and use of spirituality: experiences of stigma reinforcing the use of spirituality; defining spirituality as a functional concept; and self-empowerment through the use of spirituality. The findings could guide social workers and other helping professionals in developing informed assessments and interventions regarding HIV stigma and the use of spirituality. Future qualitative and quantitative research is needed to achieve generalizable knowledge about the relationship between stigma on the use of spirituality.     

A Regression Analysis of Motivations for Saudi University Male Student Volunteers

Abstract

As a major national asset for promoting social development, volunteer groups have grown rapidly worldwide and have brought significant benefits to individuals, communities, and society in general. Volunteering is encouraged and common among Muslims in the Middle East, but there is rare study on why they volunteer. This study used multiple regression to explore what motivates Saudi male university students to volunteer with a sample of 223 subjects. The results show that all predictor variables such as pro-social personality, values function, career function, social function, enhancement function, protective function, and learning function of volunteering, community identity, institutional facilitation, and Islamic cultural motivation, are statistically significantly correlated to students’ volunteering intentions, but these factors contribute to the ordinary least square regression model at different levels. Only career (B?=?0.217), social (B?=?0.212), learning (B?=?0.280), and enhancement functions (B?=?0.230) of volunteering have statistically significant influence on Saudi university male students’ volunteering intention. Findings highlight a need for a focus on instrumental needs of volunteers by government and NGOs. In regards to future research, gender and educational impacts on volunteers’ motive should be explored.     

Measuring Volunteerability and the Capacity to Volunteer among Non‐volunteers: Implications for Social Policy

As volunteering and its benefits gain global recognition, social policymakers can sustain and increase volunteering through social policy, legislation and other types of involvement. A key performance practice is to measure the rate of volunteering based on the percentage of the population that volunteer or the number of hours donated. The focus of this article, however, is on the capacity to volunteer by non‐volunteers as well as by volunteers. The concept and theory of volunteerability (an individual's ability to overcome related obstacles and volunteer, based on his or her willingness, capability and availability) offers a richer understanding of how people can be assisted to overcome barriers to maximize their volunteer potential and thus increase volunteering. The article details the definitions and benefits of volunteering and covers examples of related social policy, as well as explaining the concept of volunteerability and how it can be measured using existing and new scales. Based on a mixed methods study in Australia, the article offers specific measures to examine the concept of volunteerability and reveals important differences between volunteers and non‐volunteers. The article also details major barriers to volunteering and how social policies can be developed to overcome them.     

How do low-income older women experience living in congregate housing? A qualitative study of housing welfare intervention for older adults living alone in South Korea

The purpose of this study was to refine the understanding of the experiences of low-income older women living in congregate housing. Congregate housing refers to small-scale communal living arrangements for low-income older adults intended to reduce their social isolation and financial burden. Interviews with 12 older women and field notes were analysed using thematic analysis. Four themes were identified: (1) these older women chose congregate housing because they had no better option; (2) they gradually grew accustomed to communal living by being alert, mindful, and considerate; (3) their range of activities and interactions with the outside decreased as they aged; and (4) they came to require further care as senility progressed. Based on these findings, the meaning of housing welfare for older adults and the importance of providing additional supportive services are discussed. It is also asserted that housing welfare intervention should include protection of older adults’ housing rights.     

Gerontological Social Work Student-Delivered Respite: A Community-University Partnership Pilot Program

ABSTRACT

This study describes a community-university partnership to support a gerontological social work student-delivered respite program, the Houseguest Program (Houseguest). Houseguest was designed using a community-engaged scholarship model of integrating research, teaching, and service. Houseguest was piloted with a small group of community-dwelling, coresiding dementia caregivers and care recipients. We examined caregivers’ experiences with student-delivered respite using qualitative data analysis. Thematic analysis produced 8 themes: (a) respite from full time caregiving role, (b) information on caregiving strategies, (c) no-cost supportive services, (d) opportunity for care recipients to socialize, (e) tailored activities for care recipients, (f) rapport-building between students and family dyad, (g) reciprocity between students and family dyad, and (h) program continuation. We conclude with a proposed community-engaged scholarship model for dementia caregiving. Through a community-university partnership, Houseguest reduced the impact of caregiver burden and created an opportunity for students to serve families affected by dementia through respite and tailored activities.     

Too old to test? Prevalence and correlates of HIV testing among sexually active older adults

ABSTRACT

Older adults account for 17% of new HIV diagnoses in the US and are more likely to be diagnosed with HIV later in the course of the disease compared to younger people. We calculated the prevalence and associated factors of having ever been tested for HIV among sexually active older adults. We analyzed data from the 2008–2016 General Social Survey Limited to respondents ≥65 years of age who reported more than one sex partner(s) in past 12 months (n = 757). HIV testing prevalence, prevalence ratios, and 95% confidence intervals were calculated by demographic variables and HIV-related risk behaviors. An estimated 16.3% of sexually active older adults have tested for HIV, and 15.9% were at increased risk for HIV infection (reported injection drug and/or crack–cocaine use, exchanging money for sex, more than three sex partners in the past year, or men who reported having sex with another man). In the adjusted model, adults aged 65–70, not married, self-identified as gay/bisexual, and at increased risk for HIV infection were more likely to have tested for HIV. An estimated 83.7% of sexually active older adults never tested for HIV. Strategies are needed to increase HIV awareness and testing among potentially high-risk older adults.     

Formal volunteering as a protector of health in the context of social losses

This study aims to examine the effect of the death of a family member or friend on psychological well-being, specifically the moderating effects of first-time volunteering and social network. With the sample of 354 volunteers from the Experience Corps® (EC) programs, Analysis of covariance (ANCOVA) estimated the differences in psychological well-being. Among volunteers who had experienced the death of a family member or friend, new volunteers showed significant improvement in positive affect compared to experienced volunteers. EC members gained additional social contacts through volunteering. Formal volunteering has a salutatory effect on older adults' health after the loss of family members.     

Silver Alerts: A Notification System for Communities with Missing Adults

ABSTRACT

As the U.S. population ages, the prevalence of dementia will grow and communities will face the problem of older adults wandering or becoming lost. Silver Alert systems are programs designed to locate missing older adults with dementia or other mental disabilities. Such programs have been initiated in all but five states. Data collection for these programs is often minimal or incomplete. Social workers should be involved in prevention, follow up and education with caregivers, community members and law enforcement officers. When reviewing Silver Alert policy, special attention must be given to ethical concerns and protection of older adults‘ civil rights.     

Being with a Person in Our Care: Person-Centered Social Work Practice that is Authentically Person-Centered

ABSTRACT

Person-centered care (PCC) has emerged over the last several decades as the benchmark for providing quality care for diverse populations, including older adults with multiple chronic conditions that affect daily life. This article critiques current conceptualizations of PCC, including the social work competencies recently developed by the Council on Social Work Education, finding that they do not fully incorporate certain key elements that would make them authentically person-centered. In addition to integrating traditional social work values and practice, social work’s PCC should be grounded in the principles of classical Rogerian person-centered counseling and an expanded conceptualization of personhood that incorporates Kitwood’s concepts for working with persons with dementia. Critically important in such a model of care is the relationship between the caring professional and the care recipient. This article recommends new social work competencies that incorporate both the relationship-building attitudes and skills needed to provide PCC that is authentically person-centered.     

Race and Place: Exploring the Intersection of Inequity and Volunteerism Among Older Black and White Adults

Although the historical impact of racial segregation and ongoing health and economic inequities between older Black and White adults is well documented, little is known about the relationships among race, individual- and neighborhood-resources, and formal volunteering in later life. This study explores this intersection. Individual-level data from 268 respondents aged 55+ were collected in the St. Louis metropolitan area through paper-based mail surveys. Objective neighborhood data were obtained at the zip code level from secondary sources and matched with respondents. Using exploratory factor analysis, we constructed a 14-item environmental scale with 3 neighborhood dimensions (economic, social, and built environment). Older Black adults had lower levels of education; had fewer financial assets; lived in neighborhoods with less economic resources and lower built environment scores; and fewer formally volunteered when compared to older White adults. Individual resources (financial assets, health) and neighborhood resources (social and built environment) were positively associated with formal volunteering among older Black adults. Only individual resources (age, marital status, financial assets, health) were associated with formal volunteering among older White adults. A coherent set of policies that bolsters individual and environmental capacities may increase the rate of volunteerism among older black adults.     

Advance care planning throughout the end-of-life: focusing the lens for social work practice

Advance care planning throughout the end-of-life is an increasingly important aspect of professional practice with older adults and their families. As the nation's population continues to live longer, more and more people will experience years of functional and cognitive decline prior to death. This article discusses the growing importance of advance care planning using a long-range, holistic perspective of examining care needs throughout the end of life. End-of-life care is conceptualized by three trajectories of decline leading to death, with about two-thirds of all older adults succumbing to four key conditions: congestive heart failure, emphysema, frailty, and dementia. Research regarding the advance care planning needs of older adults with the key conditions is presented. Further research is needed to enhance social work practice in this area.