Qualitative inquiry of sibling relationships: reinforcement of disability devaluation through the exclusion of voices

People with disabilities share a history and culture of marginalization and oppression. In disability studies, disability has been re-defined as an inability or limitation in performance of the roles and tasks expected of individuals within society which excludes people from becoming full participants in social, cultural, and political affairs. Disability research has traditionally been ‘on’ rather than ‘with’ people with disabilities. This article examines how qualitative sibling disability research has been conducted, with a particular focus on the exclusion of people with disabilities.     

Troubling constructions of Canada as a ‘land of opportunity’ for immigrants: a critical disability lens

This article presents the findings of a critical discourse analysis study of the constructions of people with disabilities within the Canadian immigration system and how this shapes the immigration experiences of people with disabilities, especially those from countries in the Global South. Findings suggest that dominant discourses of opportunities not only construct Canada as a ‘land of dreams’ for immigrants and newcomers but are also used to hide, justify, normalize and facilitate the operation of ableist, racist and colonial discourses that immigrants and newcomers with disabilities experience during their immigration. Recommendations for settlement workers involved in facilitating the settlement and integration process for immigrants and newcomers with disabilities are also presented. The article concludes by emphasizing the actual and potential contributions of postcolonial and critical disability lenses for a social justice-oriented practice at the intersection of disability and immigration.     

Social work field education: believing in supervisors who are living with disabilities

Much of what is written by non-disabled authors about living with disabilities does not mirror people’s experiences or opportunities. Literature is often written about people’s abilities (or disabilities) rather than by or with people. Discourse about supervision of social work students can risk assuming that supervisors are people who do not identify as living with disabilities. This research is a co-operative inquiry into the experience of being an Australian social work student supervisor who is living with disabilities. The article extends the literature about being a social work field educator to include ability, and values the practice wisdom of experienced social workers including a current student supervisor who is living with a disability.     

Embracing the new disability rights paradigm: the importance of the Convention on the Rights of Persons with Disabilities

In 2008 the United Nations Convention on the Rights of Persons with Disabilities (CRPD) commenced operation. The CRPD has created a dynamic new disability rights paradigm that empowers disability people’s organizations and creates a new paradigm for disability scholars. This paper analyses the impact of the CRPD and provides practical guidance as to how this convention can be used to drive change. Prior to this convention, persons with disabilities were protected by a range of general human rights conventions. Despite receiving nominal protection under general human rights conventions, persons with disabilities have had many of their human rights denied to them. The CRPD goes further than merely re-stating rights. It creates a new rights discourse, empowers civil society and renders human rights more obtainable for person with disabilities than any time in history.     

Understanding pre-service teachers' construct of disability: a metacognitive process

This study identified pre-service teachers' understanding of disability as it relates to students they might teach and people they might meet in public, and determined the development of their understanding. Participants' voices were elicited through semi-structured interviews. Themes uncovered included: (a) many people with disabilities were 'hidden away'; (b) participants were afraid of people with disabilities; (c) participants lacked self-efficacy in teaching people with disabilities; (d) participants believed that people with disabilities lacked the ability to learn the same syllabus as typical students; and (e) participants also felt people with disabilities belonged and had rights in society. Conclusions drawn include the fact that in this Asian context, having a close relative with a disability did not presume that the participants would have a positive outlook on people with disabilities. Furthermore, there is a need for acceptance of people with disabilities in daily life activities, including in schools and other recreational activities.     

Are persons with disabilities included in the Colombian peace process?

This article follows on from our previous one about the armed conflict in Colombia and its relationship with disability. We seek here to explore the ways in which people with disabilities are starting to be involved in the peace process with the Revolutionary Armed Forces of Colombia – People’s Army (FARC-EP), and the avenues there are for representative organizations of disabled people to have a louder voice in Colombia. Currently, while legal and human rights approaches are important, people with disabilities in Colombia do not generally have the resources to fight for their own rights. However, there could be opportunities in the negotiations currently with the National Liberation Army (ELN) to include a specific focus on the rights of people with disabilities.     

‘I am bodied’. ‘I am sexual’. ‘I am human’. Experiencing deafness and gayness: a story of a young man

This paper examines experiences of Deaf gay people through the eyes of a young Deaf man growing up in the predominantly hearing and heterosexual society of the Czech Republic. In the current disability and gender studies discourse there are several personal accounts of people with disabilities who also identify as gay or lesbian, but narratives about Deafness and gayness are rare or missing. To ‘queer’ the issue of Deafness and disability a little further, most Deaf people claim to be a linguistic and cultural minority, not disabled. Being Deaf and gay suggests a double identity and quite often exclusion from the majority hearing and heterosexual society. The story of 24‐year‐old Jan illustrates the struggle and challenges of a minority within a minority.     

Romanian approach to media portrayals of disability

There is a wide range of media representations of disability, but not just because of the societal stigma. They are a function of norms of journalism as well as biases among people with disabilities themselves. This article is a contribution to the issue of social representation of persons with disabilities from a Romanian perspective, which will help to witness the transformation of the general perception of persons with disabilities by seeing the evolution of the terms used to name disability in crucial years of the socio‐political development of Romania (1989, 1990 and 2003). The existence of different categories of representations will reveal the evolution of society, which switched from a culture of protection to a culture of promotion for people with disabilities.     

Ten years of the CRPD’s adoption in China: challenges and opportunities

This article examines the challenges and opportunities of implementing the CRPD's rights-based model in China, especially the effects of the diminishing space for civil society on the nascent disability rights movement. A disability rights movement emerged as a direct result of the CRPD’s adoption in 2008. Two recent restrictive civil society legislations, however, undermined this process. While the diminishing space of civil society has posed great challenges to the movement by marginalizing the rights advocacy approach, it has created an opportunity for service-oriented disability associations to thrive. While service-oriented associations are often ignored by disability studies scholarship and the disability rights movement, I argue that, through these organizations, persons with disabilities in China have done critical identity work and substantively increased their level of independence in their daily lives. As a result, a disability rights consciousness continues to be built in China, despite governmental hostility to political advocacy.     

Institutional woes of participation: Bulgarian disabled people’s organisations and policy‐making

This paper presents a critical study of the participation of Bulgarian disabled people’s organisations in the policy‐making process on a national level. It describes how the ‘representatives’ of disabled Bulgarians become depoliticised and even depersonalised when their participation becomes institutionalised through the National Council on Integration of People with Disabilities. It is argued that such an instance of ‘participation’ actually sustains the status quo of underdevelopment and dependency. A parallel is drawn with the concerns of the British disability movement. The paper ends by suggesting some tentative solutions to the highlighted problems.     

Poverty and disabled households in the People’s Republic of China: experiences with a new rural health insurance scheme

This article discusses what in international literature has commonly been termed the ‘vicious circle’ of poverty and disability. Our aim is to shed light on recent policies that attempt to break the vicious circle in rural areas in the People’s Republic of China. Drawing on data produced from fieldwork conducted in the Inner Mongolia Autonomous Region, People’s Republic of China, our approach is to explore experiences that households with people with disabilities have had with a newly implemented rural health insurance reform. The introduction of this reform is significant as lack of insurance and high healthcare expenses are currently perceived as crucial to causing poverty in rural China. We show that people with disabilities have been able to access this new insurance. At the same time, as currently practised, the new insurance does not prevent poor households from sinking deeper into poverty when using healthcare services as healthcare expenses increase.     

残疾污名的研究进展与展望

残疾污名是针对残疾人负面的刻板印象而引发的偏见和歧视,其消极影响渗透残疾人个人生活和社会参与的诸多方面。现有研究对其成因的解释越来越注重社会文化背景因素。公众污名和自我感知污名是污名测量的主要内容,使用的方法以外显态度测量和内隐社会认知方法为主。当下残疾污名干预的研究主要围绕增加群际接触来改变公众对残疾群体的偏见,采用积极心理干预改变个体自我认知,通过融合教育塑造包容、共享的社会文化三个方面来进行。未来研究可以围绕污名影响的保护机制、残疾人内化污名的差异、残疾污名测量的优化、污名干预效果的评估及干预方式的改进等方面进行。     

The grace of motherhood: disabled women contending with societal denial of intimacy,pregnancy, and motherhood in Ethiopia

This study aimed to provide better understanding of intimacy and marriage, pregnancy, birth, and motherhood experiences of women with disability in Ethiopia. Qualitative, in-depth, and semi-structured interviews along with personal observations were used to explore the full experiences of participants, as told in their own words. The result of the interviews indicated that relationships and motherhood proved a very rewarding option for women with disabilities. They also expressed their need for intimacy regardless of society’s denial. Challenges identified include negative societal attitudes toward women with disabilities regarding relationship, pregnancy, and child-rearing. Accessibility of health centers in addition to the ignorance and negative attitudes of the physicians are also reported to be major challenges for the interviewees. This study highlights how rewarding the experience of motherhood was for the interviewees and also shows that women with disabilities face challenges at every step of their experiences, because of society’s prejudices toward disability.     

Agency in the twenty-first century: the emperor’s new clothes

Ideas about people with disabilities have evolved dramatically since the 1950s – from individuals ‘suffering from illness’ and dependent on others, to today’s credo stressing participation and social inclusion. People with a disability are considered to have capacities and bear responsibility to achieve active citizenship, which is positive in that a person’s capacities are addressed rather than their limitations. The focus on capacities stems from the Independent Living Movement that originated in the 1960s in the USA, advocating self-determination, self-respect and equal opportunities for people with disabilities. They demanded equal access to both the public domain and they requested assistance to enable their participation. As such, their early effort was to strive for agency. This article will explore changing and competing constructions of agency, participation and citizenship.     

Disability advocacy in Kinshasa,Democratic Republic of the Congo

This article frames a discussion of disability advocacy in Kinshasa by arguing the importance of disability rights legislation for the quality of life of people with disabilities and by outlining the Democratic Republic of the Congo’s situation as a nation characterized by conflict. The author provides an overview of the recent positive steps the government has taken to affirm the rights of its citizens with disabilities, discusses the strong disability advocacy movement based in the capital city of Kinshasa, and identifies some of the challenges to Congolese disability rights legislation.     

‘I’m not an activist’: an exploratory investigation into retired British Paralympic athletes’ views on the relationship between the Paralympic games and disability equality in the United Kingdom

One claim of the UK Government’s Department for Culture, Media and Sport is that the London 2012 Paralympic Games ‘improved attitudes to disability and provided new opportunities for disabled people to participate in society’. In addition, the International Paralympic Committee’s strategic plan suggests that the Paralympic Games is a vehicle for achieving ‘a more equitable society’. The aim of this study was to examine the reflections of a group of retired British Paralympic athletes on the relationship between the Paralympic Games and disability equality in the United Kingdom. Narrative interviews were conducted with five male retired British Paralympians and one female retired British Paralympian who had participated in a total of 22 Summer Paralympic Games events. I will argue that some Paralympic athletes who are not obvious ‘activists’ can still contribute to equality for disabled people.     

西方残障身份发展理论述评及本土化思考

积极的残障身份认同对残障者本身具有重要意义,残障身份发展是残障者实现身份认同的路径,理解残障身份发展的过程也可以让残疾人工作者更好地为残障者提供教育、康复等相关服务。本文通过梳理较为典型的西方残障身份发展理论,结合国内残障身份相关研究及本土社会文化背景展开讨论。文章认为,在西方残障身份发展理论框架下,残障者形成积极身份认同的关键在于认同并融入一套在残障社区内共享的残障文化,而在我国社会文化背景下,目前并没有一套成体系的残障文化,残障者也难以体会残障的文化身份感,国内残障者的身份认同缺少本土残障文化依靠。     

Barriers to inclusive education in Greece,Spain and Lithuania: results from emancipatory disability research

Inclusive education is a key aspect of the European Disability Strategy 2010–2020. The aim of this study is to give voice to three local organisations of people with disability and for people with disability in Spain, Lithuania and Greece, discussing the EU policy for inclusive education in relation to personal experiences and national policies, as part of the Able’20 European project. The points of view of 58 young people with disabilities were collected through the ‘theatre of the oppressed’ approach as an emancipatory disability research tool, aiming at the empowerment of young people with disabilities and their organisations. The voices of young people show the presence of physical barriers alongside more challenging cultural and institutional barriers, which strongly limit access to inclusive education, showing an opposite trend to the EU policy, and overshadowing the social model of disability.     

How context influences the ideologies and strategies of disabled people’s organisations: a case study from Cambodia

Abstract

Studies of disability movements have centred on exploring how movements have emerged and how their strategies have been devised to effectively advocate for the rights of the people with disabilities they represent. However, little attention has been focused on examining their organisational contexts and how they shape ideologies and choice of strategies, which have implications for the success of their advocacy endeavours. This article seeks to contribute to knowledge in this area by studying the case of a disabled people’s organisation in Cambodia. The resource dependency of disabled people’s organisations on international development partners results in their ideologies and strategies being driven by the latter. This has not only fragmented their resources, but also made their endeavours less relevant to the needs of people with disabilities. This may act to prevent such organisations from building a common ground for collective action, and from effectively pressing for social change.