Contrasting perspectives of parents and service providers on respite care in Queensland,Australia

Abstract

Parent-carers need support to continue to care for their child with significant disability in their home. There has, however, been little evidence that respite interventions have consistent or enduring beneficial effects on carer well-being. This article reports the findings of a qualitative study which adopted an Appreciative Inquiry philosophy to interview parent-carers of children with significant intellectual and/or developmental disabilities on how formal support services have helped them maintain their health and well-being, and disability support staff on how they help such parent-carers foster their health and well-being. We conclude that better communication and collaboration between service providers and users, more targeted training of workers, and embracing a person-centred and family-centred approach to respite services are needed. In addition, clearer definition and communication of the scope of respite services are required to best support families of children with significant disability in their home.     

市场优先原则在知识产权领域中的应用

市场优先原则是一种处理市场力量与国家干预关系的原则。在这一原则的指导下，国家对于经济活动的干预应当具有谦抑性。国家干预应当以市场失灵为界限和尺度。知识产权制度是一种由国家权力建构的特殊财产权。在知识产权制度的设计过程中，应当以市场优先原则为指导，以便于知识产品的市场交易为原则界定知识产权。在知识产权的行使中，应在最大程度上依靠市场的力量进行知识产权的权利分配。对于知识产权的限制，应当与市场失灵的规模与原因相适应。当国家力量干预知识产权的市场交易时，应基于更有效的判断。     

A Network Therapy Clinic for Clients with Intellectual Disability

Over the past 30 years a systemic approach has been applied to complex cases involving intellectual disability and behaviours of concern. This paper describes a model that draws on systemic family therapy and network therapy as well as the use of a reflective team. A single session intervention was provided for families of people with intellectual disability. A systemic consultation was used as a pre‐session meeting for professionals working with the family. The systemic consultation and single session therapy allowed the family and the professional network to gain insight. Involving the professionals in the therapy session also enhanced the alliance between professionals and family. This approach assists everyone involved in the case to find a way to progress.     

在四月里如何谈论衰老--西川《一个人老了》细读

《一个人老了》写于1991年4月，彼时作者的生理年龄与诗中感悟分别处于跨度相距较远的不同生命时段，由此在形成诗歌内在张力的同时，也使阅读必须面对在“四月”与“衰老”之间存在的强烈反差，问题由此被提出。对这种反差的成因分析是从文本的抒情节奏、抒情肌理以及价值立场与生命观等方面的异质特征切入，解读其在诗歌渊源上与博尔赫斯、聂鲁达等世界诗人之间的互文关系，进而追溯至作者西川所代表的“知识分子写作”对阅读经验的习惯性倚重。     

Intellectual disability and faith communities: perspectives of Catholic religious leaders

Faith communities create community and are important to many individuals with intellectual disability. However, relatively little is known about how intellectual disability is construed among faith leaders and the inclusion of people with intellectual disability in faith communities. To address these gaps in knowledge, we interviewed 12 Catholic priests, parochial vicars, and deacons to explore: their experiences with individuals with intellectual disability; their beliefs towards the involvement of individuals with intellectual disability within faith communities; and how religion informs their understanding of intellectual disability. We identified five religiously-anchored narratives of intellectual disability, and explore implications for individuals with intellectual disability and faith communities.     

‘More time for what?’ Exploring intersecting notions of gender,work, age and leisure time among people with cognitive disabilities

This article explores intersecting notions of leisure among middle‐aged people with intellectual disabilities in the setting of the Swedish welfare state. The participants are recipients of long‐term disability services and have experienced the changing ideological frameworks of the welfare effort, which has recently focused on normalisation, inclusion and participation. Structured activities are arranged by disability services in order to normalise living conditions and provide recreation for disabled people. However, the range of activities is constrained by financial resources, by notions of gender and age and by an institutionalised emphasis on the work ethic – leading to constructions of leisure partly as ‘time beside’ where ‘free time’ activities should not interfere with the duties of the working week. The participants' limited resources and their lack of a strong voice limit their ability to demand their legal rights and leave many of them with ‘too much time with too little to do’. Key Practitioner Message: ● A common idea of leisure is the relationship between social and physical activities, well‐being and health; ● People with disabilities, regardless of age, engage in fewer leisure activities than the general population due to a lack of resources; ● Even with legal rights, the lack of a strong voice as well as institutional constraints limit their leisure opportunities.     

人工智能生成物的著作权保护路径探析——兼评人工智能生成物著作权第一案

人工智能技术的发展对传统著作权制度带来了显著的冲击。以人工智能生成物著作权第一案为例，通过审视作品构成要件判断标准发现，独创性始终贯彻以人类作者为中心的评价标准，同时，智力成果要件则是认定人工智能生成物构成著作权法意义上作品与否的重要标准。从人类是否实际参与作品的创作过程来看，多数人工智能生成物不构成作品，而保护人工智能生成物的价值追求与邻接权制度的基本理念相适应，且邻接权制度的扩张趋势也为把人工智能生成物纳入其保护范畴创造了机会。建议立法通过扩张邻接权制度的权利内容与客体类型以对人工智能生成物提供必要保护。而在当前阶段，反不正当竞争法可以为人工智能生成物相关利益主体提供一定限度的过渡保护。     

环境管制、知识产权保护与区域创新能力——基于我国省际面板数据的实证研究

文章基于政府主导视角,利用2006—2015年我国30个省级面板数据,构建多元回归模型,分析变量之间的关系.其结果显示,环境管制、知识产权保护与区域创新能力之间呈非线性关系,环境管制与知识产权保护同时实施对区域创新能力有显著的促进作用,且具有区域异质性.从企业生存角度出发,提出门槛效应假说,采用Hansen面板门槛回归模型进行检验.结果表明,在环境管制与知识产权保护共同发挥作用时,环境管制必须控制在合理的范围内.最后采用门槛效应回归方法找到了环境管制与知识产权保护对区域创新能力影响的门槛值,并提出相应的政策建议.     

高校理工类研究生层面的知识产权教育探讨

根据知识产权研究课题的调查结果和教学实践,就目前高校理工类研究生层面知识产权的教育状况进行了分析,探讨了对理工类研究生进行知识产权教育的必要性,提出了具体的对策建议,旨在推动我国高校理工类研究生层面知识产权教育的快速发展。