Theory of mind: are there wider implications from working with d/Deaf people?

An exploratory teaching approach was inspired by the communicative experiences of d/Deaf students in tertiary education. ‘Theory of Mind’ has been used by some to describe the capacity to appreciate that views of others may be different from our own, a concept that could provide a different way for students and educators to understand the barriers identified. An adapted assessment highlighted challenges faced and a communication group provided opportunities for extending personal understandings of social settings. Emerging ideas to inform practice and potential implications for inclusion have relevance for other contexts.     

Implants and ethnocide: learning from the cochlear implant controversy

This paper uses the fictional case of the ‘Babel fish’ to explore and illustrate the issues involved in the controversy about the use of cochlear implants in prelinguistically deaf children. Analysis of this controversy suggests that the development of genetic tests for deafness poses a serious threat to the continued flourishing of Deaf culture. I argue that the relationships between Deaf and hearing cultures that are revealed and constructed in debates about genetic testing are themselves deserving of ethical evaluation. Making good policy about genetic testing for deafness will require addressing questions in political philosophy and anthropology about the value of culture and also thinking hard about what sorts of experiences and achievements make a human life worthwhile.     

The roller-coaster of experiences: becoming the parent of a deaf child

When early testing indicates a hearing loss, parents find themselves on a roller-coaster of experiences leaving little time or space for reflection. This study is based on interviews with families in the Flemish region of Belgium, one of the earliest in the world to introduce universal neonatal screening for hearing loss. Starting from a phenomenological approach, we explore parents’ accounts of their experiences in order to uncover the meanings of early parenting of a child identified with a label. Soon after birth, these parents encounter a different world in which intertwined discourses construct parenthood with a deaf child. During the process of becoming a parent, representations of deafness as impairment were omnipresent. In contrast to a medical and technological perspective that insists on the need to intervene as fast as possible, it is argued that the private and social implications of rapid intervention require explicit consideration.     

Technological socialities: The impact of information and communication technologies on belonging among deaf and hard-of-hearing people

This review article examines how different types of communication technologies, from the specialized medical to generic social devices, influence belonging and sociality among deaf and hard-of-hearing (DHH) people. The emphasis is on DHH adolescents and young adults who may be impacted differently across countries, given state-specific policies regarding the status of sign language and deaf education, and based on different availability, affordability, and accessibility of communication technologies. We introduce different perspectives on deafness, ranging from pathological to cultural, a heuristic on which we build to explore DHH socialities as complex and evolving. We then analytically review ethnographic research on how cochlear implants impact DHH people's belonging to the “deaf world” and/or the “hearing world,” and how they navigate between these worlds. Then we move on to technologies such as text messages and social media, which enable DHH people to extend their socialities beyond local communities. Belonging is a fluid phenomenon, and technologies which are in a constant process of innovation and development may influence it in complex ways. We argue that to explore questions of belonging, identity, and sociality among DHH people, and how they are shaped by technologies, (visual) ethnographic methods are particularly productive.     

Adjustment to Disability

Abstract

This article will focus on the biopsychosocial challenges encountered when an individual is disabled at an early age as well as when an individual acquires a disability later in life. Two case examples will focus on the adaptations/life choices that are necessary to adequately meet psycho/social/developmental needs and enhance individual self esteem. The case of Rita, a woman who lost her hearing at age two, highlights the importance of integrating a biopsychosocial approach to understand the multiple challenges and adaptations of individuals who are disabled at an early age. Laureen, a woman who acquired a spinal cord injury during her late teen years, described her struggles as a young adult adapting to a physical disability. Both cases highlight the importance of integrating an ecological/systems framework focusing on a biopsychosocial perspective, emphasizing the interrelationship between biological, psychological, social, technological, cultural and political factors.     

THE WORK OF (CREATING) ART

While engaging the process of artistic creation at the Creative Growth Art Center (CGAC) in San Francisco, California, Judith Scott produced numerous enigmatic three-dimensional fiber and mixed media sculpture pieces that subsequently received international attention. Approaching Scott's life and art from the perspective of Disability Studies – understood as an expressly political project – takes us beyond the limitations of the label of Art Brut/Outsider Art and of questions of artistic communication to properly situate her activities at the CGAC as work in both a social and economic sense. Judith's story – and her representation in a recent Spanish documentary film by directors Lola Barrera and Iñaki Peñafiel – suggests that in aspiring to achieve greater social and economic inclusion for such marginalized populations we must challenge the pervasive clinical paradigm that frames disability as lack and go further by cultivating sustainable, meaningful work experiences, such as that offered by the CGAC to people with developmental disabilities. Ultimately, creating art has the potential to be such a form of meaningful work.     

Mapping Invisible Work: Conceptual Tools for Social Justice Projects

Feminist scholars developed the concept of “invisible work” in the 1980s to bring sociological attention to work that was unpaid, unrecognized, or undervalued. Since then, it has become clear that the “generous” concept of work can be applied more broadly and that bringing invisible work into view may help to advance projects of social justice and inclusion. Drawing on the example of healthcare access for deaf patients, this article explores strategies for deploying the generous concept of work in institutional analysis.     

Through the eyes of a deaf architect: reconsidering conventional critiques of vision-centered architecture

Critics point to an excessive visual emphasis in Western architecture bringing about a weakened sense of belonging, and a disconnection from places and from other people. Architects’ visual way of knowing and working is further criticized for contributing to an alienating “architecture of the eye.” This article seeks to challenge this critique by offering a more nuanced understanding of vision and its connecting potential. To this end, it engages with how a d/Deaf architect, George Balsley, uses and attaches meaning to vision, partially prompted by the highly visual and spatial dynamics inherent to sign language. It relies on several interviews, observations, and a guided tour through a building he helped design, the Sorenson Language and Communication Center (SLCC) in Washington, DC. The article looks specifically into the building’s vision-centered features in relation to George’s d/Deaf ways of being. His way of seeing is reflected in distinct characteristics of the SLCC that sustain (sign) language, mediate interpersonal communication, and facilitate connection to and understanding of spaces – features that are relevant for but also beyond the d/Deaf community. The architecture that issues from George’s d/Deaf ways of seeing thus challenges the critique that vision-centered architecture by definition disconnects.