Dignity in dementia: Person-centered care in community |
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Authors: | Maura McIntyre |
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Affiliation: | Department of Adult Education, Community Development and Counselling Psychology (AECDCP), Ontario Institute for Studies in Education, University of Toronto, 7th Floor, 252 Bloor Street West, Toronto, Ontario M5S 1V6, Canada |
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Abstract: | Drawing on Kitwood's [Ageing Soc. 13 (1993) 51] theory of person-centered care and the interpersonal process of caregiving, this article offers an alternative to the image of the family caregiver as victim through an exploration of the lived experience of caring for a person with dementia in community. Extending care beyond coping, the act of giving care is promoted as a worthy activity and reciprocal social opportunity. Three nonfamily caregiver “portraits” are offered in an arts-informed representational form. The relational processes of caregiving are explored from the vantage point of personal experience and theoretical knowledge. Dignity emerges as the resonant quality, essential value, and guiding principle in an ethic of dementia care. Implications about the direction of research about care and caregiving and research accessibility and usefulness are explored. |
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Keywords: | Dementia Alzheimer's disease Caregiving Dignity Person-centered care |
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