“生命之美”:疾痛视域中的乳癌小组工作探索

乳癌是一种特别的慢性疾痛。疾痛视域中"生命之美"的乳癌小组工作,在组织病患对疾病了解的基础上,特别强调对疾痛的理解来建构积极的自我,有别于医学长期主导的疾病治疗康复模式。"生命之美"小组以"从疾病了解、疾痛理解到美之发现"为主线,既有知识讲解、技巧传递,又有疾痛的自由表达和经验分享。研究发现:小组为组员提供了较好的情绪支持,减轻了对乳癌的恐惧,增进了自我认同,提升了生活质量。同时,疾痛理解和生命之美的讨论关涉生命意义的探寻,是一个颇富内涵的深刻话题,对带领者要求甚高,在保持小组工作结构完整的同时,更需要对小组内涵(诸如痛、难、命、美)的深度挖掘。

Beauty of life: The Illness Perspective in Breast Cancer Support Group

As a special chronic illness,breast cancer is different from general disease."Beauty of Life" support group is based on how to recognize disease,especially understand illness,which aims to construct a positive self-image.This group focuses on explaining knowledge and skills,giving the freedom of expression and experience sharing.Research shows that the group provides good emotional support for all the members,reduces the misunderstanding of breast cancer,increases the self-identity,and improves the quality of life.However,the understanding of illness and life is a rather profound connotation,so we need to research pain,distress,life,beauty and so on.