Mothers of disabled children: in mourning or on the march?

A traditional psychoanalytic view of parenting a disabled child emphasises responses of shock, grief and depression. Parent activists and social model disability authors dismiss such accounts as destructive and prejudiced, foregrounding structural barriers to accessing services and resources. Further, psychoanalysis is criticised for its anachronistic, ideologically uncritical discourse. Each position brings valuable insights as well as silences. This paper seeks to overcome an assumption of mutual exclusivity by creating a new synthesis, drawing on the work of Winnicott and Kittay. Conclusions are that it is both possible and necessary to allow for ambivalent feelings within parents, while attending to the external, material realities of contextual factors.     

Ableism in academia: where are the disabled and ill academics?

Recent coverage in higher education newspapers and social media platforms implies that chronic conditions, illnesses and disabilities are becoming more prominent amongst academics. Changes to funding structures, increased globalisation, marketisation and bureaucratisation of higher education have resulted in a performance-driven working environment where teaching workload and pressures to publish are further intensified due to excellence exercises in teaching and research. The result is low morale and an ever-rising number of reported mental health issues, burnout and stress-related illnesses within academia. This article explores some of these issues in the context of higher education institutions in the United Kingdom. We draw on our research and our experiences as speakers regarding ableism in academia to provide food for thought, stimulate a debate and raise awareness of those academics experiencing chronic illness, disability or neurodiversity, whose voices are not heard.     

‘Inching’ towards interculturalism: ambiguities and tensions in teachers’ ideologies and practices in the context of Cyprus

ABSTRACT

This research examines teachers’ conceptualisations of diversity and intercultural education. It also investigates the teaching approaches adopted by teachers within their culturally diverse classrooms. More specifically, the current project investigates the following research questions: how do teachers define and understand the concept of intercultural education; what practices do they adopt (or not) to promote intercultural education in their classrooms; what barriers do they perceive in their efforts to teach in more intercultural ways; what are their suggestions for implementing intercultural education in more successful ways? Observations and interviews took place with twenty teachers from ten schools in Cyprus. Our data shows that two ideological positions co-existed in teachers’ discourses, namely: the monocultural approach (cultural-deficiency perspective), and the multicultural approach (cultural-celebratory perspective). We also examined how the ambiguities and contradictions in teachers’ ideologies influenced their teaching and practices. In their daily routines, teachers seemed to adopt a teaching-as-usual approach, while occasionally engaging in ‘intercultural moments’, which included their rare attempts to differentiate or add cultural content to their teaching.     

Choice: what,when and why? Exploring the importance of choice to disabled people

Extending choice and control over public services is central to current policies in England. Such policies have immense potential for independence and well‐being. However, it is still not clear how disabled people conceptualise choices, what choices are important, for which groups of people, in what areas of life and why. This paper presents findings from the first phase of a longitudinal qualitative study of choice and control over the life‐course. Semi‐structured interviews were carried out with 111 participants including disabled young people with progressive conditions; their parents; adults and older people with fluctuating support needs and those experiencing sudden deterioration in health. The findings suggest that while most people across all study groups wanted to be able to make choices in all areas of their lives, there are significant differences in the importance they attach to specific choices. The findings have implications for service reforms and identify some policy and practice issues that need to be addressed.     

The politics of fear and empathy: emotional ambivalence in ‘host’ children and youth discourses about migrants in Cyprus

This article looks at the emotion discourses among 30 Greek-Cypriot children and youth interviewees when they describe their feelings about migrants in Cyprus. It looks at how migrant representations and narratives are highly emotional constructions that children and youth utilize to make sense of their views about how migrants are different or similar to themselves. In particular, the article focuses on the simultaneous contradictory positions and feelings of fear and empathy. Two important implications for intercultural education are discussed. First, it is suggested that it is valuable to acknowledge that the emotion work required from ‘host’ children and youth in their interactions with migrants should not be taken for granted. Second, rather than painting a ‘negative’ or ‘positive’ image of children and youth’s responses to migrants – which categorizes children and youth in simplistic ways – it might be more productive to examine how their emotions are linked to ambivalent discourses and inform actions in negotiating the presence of the other and one’s sense of belonging.     

Reporting disability in the age of austerity: the changing face of media representation of disability and disabled people in the United Kingdom and the creation of new ‘folk devils’

Following its election in 2010 the UK’s Coalition Government has sought to implement radical restructuring of disability-related benefits justified by reference to the financial crises of 2007/08. In this article we examine how these changes have impacted on coverage of disability in the UK media comparing and contrasting coverage of disability in newspapers in 2010/11 with a similar period in 2004/05. Our analysis suggests that disabled people have become a ‘folk devil’ and that there has been a significant change in the way that disability is reported. Newspaper coverage in 2010/11 was less sympathetic and there was an increase in articles that focused on disability benefit and fraud, and an increase in the use of pejorative language to describe disabled people. An audience reception study suggests that this coverage is having an impact on the way that people think about disabled people.     

Refocusing on the Parent: What are the social issues of concern for parents of disabled children?

A questionnaire was constructed to analyse the efficacy of service provision for disabled children from the parents' perspective, as well as the needs and issues pertinent to parents (Middleton, 1998, 1992). The familial and personal data identified deep parental concerns and fears regarding professional attitudes and dominance, neglect of parental knowledge, lack of counselling and therapy, coping in the future, support, and the child's aesthetics and body (Brown, 1998). Results indicate that professionals continue to control the parent-professional relationship, assuming the role of 'expert', rather than integrating and consulting parents in a negotiate decision-making process. Parental needs and issues are prescribed by professionals (Oliver & Barnes, 1998), thus marginalising and disempowering the parent (Appleton & Minchom 1991), and reducing opportunity for parental involvement and participation in an equitable 'partnership' relationship with professionals (Dale, 1996).     

Facilitating and hindering factors in the realization of disabled children’s agency in institutional contexts: literature review

Disabled children’s opportunity to act as agents may be compromised because adults have the power to choose who are entitled to express agency. Disabled children spend much time in institutions and with professionals of different fields. The aim of this literature review was to find out which factors facilitate or hinder the realization of disabled children’s agency in institutional contexts. As data we used 19 research articles and analysed them with inductive content analysis. Key factors relate to professionals’ attitudes towards diversity, children and themselves as well as professionals’ communication skills and institutional factors that enable the child to have an influence or prevent it and which give or do not give room for children’s peer relationships. Rethinking the child and adult view and learning dialogical communication are recommended in the education of all fields that work with disabled children.     

Personal assistance: what happens to the arrangement when the number of users increases and new user groups are included?

Using data from two representative surveys among the users of personal assistance in Norway carried out in 2002 and 2010, this paper examines developments and consequences of a strong increase of users and an extension of the target group. Users with mobility impairments still dominate, but the proportion of people with intellectual impairments, brain injuries, and sensory impairments have increased. The ‘new' users seem to be allocated fewer hours compared with those who received personal assistance at the early stages of the arrangement. Still, most users experience an increase in their welfare arrangements, as compared with the situation before they received personal assistance. The user control of the arrangement seems to be preserved, but it takes more different forms. For a higher proportion of users, one of their relatives or a guardian acts as a manager of the assistance.     

‘The language is disgusting and they refer to my disability’: the cyberharassment of disabled people

Disabled people face hostility and harassment in their socio-cultural environment. The use of electronic communications creates an online context that further reshapes this discrimination. We explored the experiences of 19 disabled victims of cyberharassment. Five themes emerged from the study: disability and health consequences, family involvement, misrepresentation of self, perceived complexity, and lack of awareness and expertise. Cyberharassment incidents against disabled people were influenced by the pre-existing impairment, perceived hate-targeting, and perpetrators faking disability to get closer to victims online. Our findings highlight a growing issue requiring action and proper support.     

‘Eyesight to the Blind’: Secular and Religious Dialogue in the ‘Devil's Music’

I adopt a dialogic approach to refute Paul Oliver’s claim that there is no challenge to the authority of the black Church or religion in the segregated ‘race records’ of the first half of the 20th century in the United States. I dismiss the claims of some black theologians that the presence of biblical imagery in the blues means that performers were essentially religious. I show that the dialogue between secular song and religious sermons on record involved mutual parody, satire, and polemic in a common speech genre. Attacks on the Church, its members, clergy, and doctrines were common. Recorded sermons spoke back in defense. Mikhail Bakhtin's concepts offer purchase on the relations between secular and religious recordings in an ongoing struggle for hegemony in black cultural production.     

‘Me too!’: individual empowerment of disabled women in the #MeToo movement in China

This study examines the role of disabled women in the #MeToo movement by analyzing their voices in the movement. Through online participatory observation, we discovered that the movement has individually empowered disabled women on three levels: as women, as disabled people, and as resisters. These disabled women described two ways in which they were empowered at each level, a total of six ways: they realized that they were not guilty, not ashamed, not stereotyped, not going to tolerate abuse, awakened, and united. However, the empowerment of the #MeToo movement only works at an individual level for some disabled women with higher economic and social status through online platforms, with few offline actions being taken and few responses from society to their appeals. There is thus still a long way for disabled women to go in order to be fully included in society.     

‘A frog in a well’: the exclusion of disabled people from work in Cambodia

Based on ethnographic research conducted in north‐west Cambodia in 2000–2001, this paper examines why disabled people experience systematic marginalisation in the labour market. Although there are no official data on the relationship between disability and employment status in Cambodia, this research suggests that disabled people are more likely than their able‐bodied counterparts to be unemployed, in low status occupations, earn less or be out of the labour market altogether. Consequently, disabled people are more likely to live in poverty, experience social isolation and poor mental health. I argue that disabled people’s social status effectively shapes their work patterns through (mis)conceptions that associate ‘disability’ with ‘inability’ to work and to be employable. This paper illustrates how geographical processes fix disabled people in their socio‐spatial place, which together with ideological and structural inequalities distinguish and entrench their poverty from that of other social groups.     

Social work in the public and non-profit sectors in Italy: what are the differences?

Professional social work in non-profit organisations is still little studied, despite the increased number of social workers in such organisations. The article presents the results of a survey conducted on the differences in working conditions between social workers in the public and non-profit sectors in Italy, and shows the factors that influence those working conditions. The article also furnishes empirical indications on how the training of social workers could be reorganised, and the image of social work reconceptualised, in a period when welfare systems are being restructured.     

Rural development and women: what are the best approaches to communicating information?

The project reported in this article aimed to discover how well the needs of women were being met with respect to rural development and to identify the best approaches to communicating information to farmers in Tanzania. Semi-structured interviews of male and female respondents in selected 200 households in Shinyanga, northwestern Tanzania, were conducted. The interviews were conducted in order to record data on gender differences in farming and herding with the aim of determining how to communicate information on development. Findings showed that women continued to be the poorest group in the community. Use of introduced technology was mostly associated with men's work. The activities of Hifadhi Ardhi Shinyanga conducted through communication channels were also more accessible to men than women. The improved stoves specifically aimed at women also failed because of ineffective communication strategies. It is difficult to approach women because they tend to be tied far more closely to the area of their homes. Thus, training through village workshops would encourage the active participation of women. This would enable information to be shared with, and between, as many women as possible.     

‘Us’ and ‘them’: the limits and possibilities of a ‘politics of neurodiversity’ in neoliberal times

The neurodiversity movement claims that there are neurological differences in the human population, and that autism is a natural variation among humans – not a disease or a disorder, just ‘a difference’. A ‘politics of neurodiversity’ is based on the claim that the ‘neurodiverse’ population constitutes a political grouping comparable with those of class, gender, sexuality or race. This paper considers the limits and possibilities of neurodiverse political activism, and concludes by calling for a politics of identity that does not depend on a politics of ‘us’ and ‘them’.     

The ‘affective security curriculum’: breeding JBs through the marriage of the academic and the jingoistic

How does the US recruit its citizen spies used to maintain and proliferate coercive power? I use an interdisciplinary approach and a framework of affect theory to argue that there is an ‘affective security curriculum’ (ASC) that assists in explaining the tendencies towards jingoism used in the recruitment and indoctrination of students – as future security workers – in certain academic disciplines. The ASC is precisely the phenomenon that works to construct this expert class and is produced by order words, the most crucial of which is ‘terrorism’, as well as larger cultural norms linked to neoliberalism that have achieved near total dominance since the 1980s. The ASC works by intensifying the (in)ability to act for those in its domain. The necessity of linguistically proficient security workers to the US’ hegemonic project makes this a question of considerable political importance. The ASC is a different approach to answering questions of how US hegemony is maintained. Whereas positivist research agendas, such as content analysis, and postpositivist approaches, such as critical discourse analysis, certainly have their uses (and to which my notion of ASC is indebted), paradigms such as these fail to focus on the engendering processes at work vis-à-vis the expert class, without which the discursive frames such methodologies analyse would simply dissipate. My overarching purpose in this paper is to develop the concept of the ASC, its quiddity, and to present at least an incipient methodology for analysing its critical duties. As my primary intent is to introduce and conceptualize the theoretical framework of the affective security curriculum, the applied segment of this endeavour will be relatively brief – and is designed as a primer for further research.     

From Christianity to paganism: The new middle ages and the values of ‘medieval’ masculinity

Abstract

In the context of the upsurge of interest in all things medieval, this essay examines the promotion in popular culture of ‘medieval’ masculine role models. It begins with an assessment of the 19th century's creation of a version of medieval masculinity which was essentially Christian and chivalric. It traces the transfer of this image from literature to cinema in the 20th century. It argues that the image remained dominant until the 1960s when it was eclipsed by a new version of medieval masculinity, a violent pagan ‘Dark Age’ model. This new image triumphed because of changes in society and in the structure and strategies of the cinema industry and its audience. The essay concludes by examining possible medieval alternatives to the pagan ‘Dark Age’ image: the revived chivalric knight, the eco‐warrior and the transplanted modern rationalist. The evidence suggests that they have not yet dented the dominance of the pagan image.     

From Russian to Ukrainian Eurasianism: the new ‘historical’ friends and enemies

Eurasianism is a popular creed in post-Soviet Russia. Its supporters believe Russia is a unique blend of Slavic and non-Slavic, mostly Muslim Turkic people. With the rise of Russian nationalism, Muslims were transformed into enemies. It has been a different story in Ukraine, where Russians – ‘the old brothers’ – became an alien force and Turkic people an acceptable minority. This trend has held for the last 20 years regardless of all vacillations in Ukrainian political/cultural development.     

Who are the active and central actors in the ‘rising civil society’ in Mexico?

The debate about the rise of civil society in Mexico suggests that the processes of political and economic liberalization are multiple and uneven and, thus, have different and contradictory effects on different social groups. This study takes such arguments into account and examines the nature of collective identities and social networks that are more likely to be mobilized in the rising civil society. Who, with what types of social networks and identities, are the active actors in this rising civil society in Mexico? This study also attempts to identify the central actors who take an active part in multi-sector coalitions. As such a broad coalition often leaves profound effects on politics and society, it is vital to ask which actors are likely to take an important step toward multi-sector coalition making. Using a catalog of 1797 protest campaigns collected from three Mexican newspapers between 1964 and 2000, event frequency analysis is employed to find active actors and social network analysis – blockmodel method and degree centrality measure – is applied to uncover central actors. The analyses reveal that while workers, peasants, or students continue to be very active, the centrality of these actors in contentious networks and coalitions has not increased. New central actors in the rising civil society turn out to be civic associations and NGOs formed around single issues, such as environment, retirement, and human rights. When a multi-sector coalition occurs in contemporary Mexico, NGOs and civic associations are likely to play a crucial role in it.