Life histories as counter-narratives against dominant and negative stereotypes about people with intellectual disabilities

The history of intellectual disabilities is largely a story of discrimination and social exclusion portraying people with intellectual disability as abnormal and inferior. This article describes a particular methodological approach to inclusive life history research with a small group of women with intellectual disabilities in Iceland. The article documents how, through a four-year collaborative research process, the life histories became counter-narratives to dominant historical beliefs and stereotypes. In addition to the personal empowerment of the women and the construction of a collective memory, this project has also resulted in public sharing of their stories through speaking up and giving presentations, and thus potentially also changing the historical memory.     

Telling stories for a politics of hope

This paper is about listening to voices from an excluded past. The oral history of disabled people challenges accepted, formal history, the history from dominant voices well established in unequal power relations. The paper draws on an oral history project conducted with over 60 visually impaired people who gave detailed accounts, telling stories of their experiences of education. This oral history research was carried out through the medium of the interview. The analysis covers school life, focusing on the recurring themes of abuse and friendships. The paper then turnd to relationships with family and community, and how participants placed schooling within the broader context of their lives. These stories are a small part of the history of disabled individuals' exclusion within which, as we hope to demonstrate, the chinks of collective light were born.     

Challenging perceptions of disability through performance poetry methods: the ‘Seen but Seldom Heard’ project

This paper considers performance poetry as a method to explore lived experiences of disability. We discuss how poetic inquiry used within a participatory arts-based research framework can enable young people to collectively question society’s attitudes and actions towards disability. Poetry will be considered as a means to develop a more accessible and effective arena in which young people with direct experience of disability can be empowered to develop new skills that enable them to tell their own stories. Discussion of how this can challenge audiences to critically reflect upon their own perceptions of disability will also be developed.     

Liberating voices through narrative methods: the case for an interpretive research approach

This article argues the case for employing narrative methods when undertaking research with people with profound learning difficulties and people who lack verbal articulacy. It considers the foundations of life history research and the transformative position of the researcher since the 1930s. The article then examines the requisite skills for eliciting life stories and interviewing, followed by the form of the interview. It questions the logic in rigidly following qualitative interviewing as the main tool for eliciting information. The author argues that the skills and experiences of the researcher become important during challenging interview situations and that moving away from traditional qualitative interviewing means attempting to include people with profound learning difficulties in the process of researching their lives and experiences.     

Stuck in the land of disability? The intersection of learning difficulties,class, gender and religion

This article discusses the discrepancy between formal rights to full social inclusion and the lived experiences of young adults with learning difficulties. It draws on inclusive life history research in Iceland and employs intersectional theory to study the social participation of young adults with learning difficulties. In an attempt to understand the complex political, economic and ideological forces that hinder the actualisation of their formal rights the intersection of disability, class, gender and religion in the production and reproduction of existing social hierarchies is examined. The article demonstrates how the research collaborators resisted their devalued social construction and attempted to create and affirm themselves as competent social actors.     

Struggles with Time: the careers of parents with adult sons and daughters with learning disabilities

The experiences of parents with adult offspring with learning disability and the meanings their parental careers have for them, has been the subject of very little empirical research. In this paper we describe and examine some of the features that gave shape and meaning to the day to day lives of parents of 33 co-resident adults with learning disabilities. Their accounts of their situations revealed that 'time' was a factor of some importance. Participants suggested that socialisation into the parental role was one that continued over the life course. In addition, they also felt that the services they received were based upon an inadequate and too narrow an understanding of how they experienced 'time'. The data reveal that both 'over time' and 'in time', parents struggled to maintain a set of aspirations for a typical life. The data show that for many parents there was a slow accommodation to the constraints of service provision and, as a result, their needs for service support became less extensive.     

Masculinities and fathering

There is a developing body of research regarding fathering, in the UK, but the experiences of African-Caribbean and white working-class fathers, and how their experiences are mediated by gender and ethnicity have been neglected. The purpose of this paper is to address this gap in research by reporting on the similarities and differences within the stories of African-Caribbean and white working-class men about fathering, and to examine the personal and structural dimensions to these experiences using Connell's theoretical framework for understanding masculinities (1995, 2005). Qualitative, semi-structured individual interviews were undertaken with seven white and six African-Caribbean fathers. Findings indicate that African-Caribbean fathers, specifically, their associated practices, regarding children's ‘behaviour’ and learning, with experiences of racism that they anticipated their children may encounter in the future. Both groups of men's stories demonstrated limited reflexivity about the unequal distribution of domestic labour within the home. The study also found that fathers’ experiences were associated with contradictory and differing forms of masculinity. The fathers’ stories provide evidence of changing forms of masculinity, for example, in ways in which fathers conceptualised fathering as enjoyable involvement with children, and the ways fathers negotiated and resisted the constraints of paid work in order to be involved with children. Findings also reinforce the importance of health and social care services reorienting their priorities to engage with fathers, and opportunities for future research, regarding the experiences of African-Caribbean fathers in particular, are also identified.     

Belonging: women living with intellectual disabilities and experiences of domestic violence

Women with an intellectual disability are under-represented in domestic violence research, yet they are one of the most vulnerable groups who are at risk of violence and abuse. This article aims to contribute to the domestic violence field by reporting on a narrative dialogic performative study, which utilised a feminist poststructural perspective to explore significant relationships and the concept of belonging in the lives of women with a mild intellectual disability. Four in-depth narrative interviews were conducted. The study found that the women shared similar stories of devaluation and rejection in childhood and hence the women’s search for belonging contributed to their vulnerability to exploitation and abuse in domestic violence relationships. The paper argues that gendered discourses and constructions of intellectual disability regulate domestic violence as a personal problem or way of life for women with intellectual disabilities.     

Men with learning difficulties doing research: challenging views of learning difficulties

This paper explores the views of men with learning difficulties living in a secure environment. Reflecting findings from a doctoral thesis based upon a research project where the participants looked at the processes and concepts of research, the dialogues within the study were analysed using critical discourse analysis. Thesis aims relevant here include investigating given ‘truths’ about the positives of having a learning disability. The men are not only categorised as having a learning difficulty, but also have the added stigma of being offenders, and commonly having mental health issues which expose them to the worst of myths surrounding learning difficulty. Despite this, the findings suggest that the men are very positive about their lives – reporting that they have many attributes and talents – and view having a learning difficulty as an advantage at times. This affirms Foucauldian ideas on the way that dominant knowledge may be challenged.     

The “Our Homes,Not Nursing Homes” Project

ABSTRACT

The voices of non-elderly adults with disabilities who currently-or used to-reside in nursing homes are rarely heard. A grassroots disability advocacy organization conducts participatory action research in the form of a writing workshop in collaboration with a local community-college. Participants with disabilities describe their lives and their experiences in nursing homes with the help of volunteer scribes. The information provided in their accounts will help strengthen community-organizing efforts of the disability advocacy organization. And participants have been empowered by the realization that their life stories are helping others to leave nursing homes and join community settings.     

'Working at Disability': a qualitative study of the meaning of health and disability for women with physical impairments

Seven women with cerebral palsy and one woman with a spinal cord injury were interviewed about the meaning of health and disability in their lives. The most compelling feature of their narratives was the pressure to define their health by able-bodied standards. These women 'worked at' fitting their bodies and experiences into the limited societal understanding of a body. Paradoxically, the women seemed to come to a deeper personal understanding of disability and themselves through this work. The women's stories of health, impairment and disability, as told in the interviews, blended into rich chapters of their life stories.     

Rethinking Partnerships Between Parents and Professionals

SUMMARY: The declaration by the United Nations of 1994 as the International Year of the Family provides a good opportunity to make a fresh start in re-examining policy and practice from first principles. The time seems ripe for a wholesale reappraisal of relationships between families and professionals in the field of intellectual (learning) disability. Members of an International Year of the Family Task Force established by the International League of Societies for Persons with Mental Handicap (Inclusion International) collected around 100 family stories from families around the world who had a relative with an intellectual disability. These family stories indicated that families are not satisfied with the information they are given, the attitudes of professionals, service planners and providers or with the nature and quality of support which they are receiving. Families are asserting their rights as citizens and consumers and they want to see changes. This paper summarises some directions for change.     

The American Revolutionary Period

The United States is currently experiencing the largest wave of immigration in its history. This contemporary immigration is unprecedented in its diversity of ethnicity, class, and countries of origin, and large urban areas are no longer alone in absorbing arrivals. The author reviews children's picture books about dilemmas that immigrant children face, such as being different, coping with great and small changes, responding to one's name, learning a new language, relating to previous generations and traditions, maintaining ties with distant relatives, and visiting their homelands. Classroom materials relevant to the social and cultural experiences of children generate interest in and enthusiasm about learning. When teachers include books about the negotiation of another culture in the curriculum, children learn through reading that stories can be about people like them, that stories of their experiences are worthy of being in a book, and that other children have felt the way they do.     

Negotiating belonging in Australia through storytelling and encounter

From 2010 to 2012 a diverse group of young people participated in an oral history theatre project, Chronicles, which aimed to support them to claim a personally meaningful Australian identity. Oral history theatre was used to facilitate a process whereby the young people were able to reconnect with their personal family histories, encounter Aboriginal young people and stories, and together interview Aboriginal Elders. Through this process, they could develop new understandings of their own social identities, and meanings of and possibilities for belonging. ‘Centring diverse lives, decentring whiteness’ and ‘a different starting point: Aboriginal ways of knowing’, were the two key outcomes that we report on. Bringing people from diverse cultural and social backgrounds together to share stories of history, culture and identity, offers a unique vantage point from which to rupture dominant narratives about belonging/non-belonging and show up whiteness, and together forge a new Australian identity reflective of everyday multiculturalism.     

Science,Invention and Society

Social studies teacher educators highlight the importance of oral stories and histories in the social studies classroom, leading social studies learners to seek multiple perspectives and encourage historical thinking in the classroom. However, preservice teachers are given few opportunities to internalize this idea. In this article, the author examines the collection of oral stories and creation of performances in a social studies methods course. The process involves preservice teachers conducting oral history interviews, choosing material to explore, creating and performing stories, and sharing their representations with peers. As preservice teachers become storytellers of someone's history, they are made aware of their own subjectivity.     

A culture of silence: modes of objectification and the silencing of disabled bodies

Throughout history different practices have attempted to silence the experiences of disabled people. In this paper we explore some of these practices including the medical, familial, and self-subjugating practices English-speaking Canadian polio survivors experienced throughout their lives. We analyze participant’s experiences of silence and silencing through a Foucauldian lens, drawing on the three modes of objectification to explain the institutional and cultural discourses around polio subjects that acted upon and through the polio body to silence it. Participants’ oral history accounts demonstrate how sociocultural and medical practices effectively silenced survivors from speaking about their polio experiences. However, the trope of silence is also uprooted within oral history traditions. We will demonstrate how participants broke their silence and shifted their perspectives on polio and disability, and how this process contributed to their resistance of hegemonic conceptualizations of disability as defective.     

Understanding the Impact of Using Oral Histories in the Classroom

Oral histories are a powerful pedagogical tool in developing historical understanding and important learning skills simultaneously. Teachers use firsthand accounts of historical time periods and/or events to help develop students' sense of history. In addition to gaining historical understanding, students are able to bring history alive by capturing personal stories and connecting with individuals to better understand their experiences and point of view. The purpose of this interpretive case study was to explore in depth how classroom teachers can develop knowledge of the social studies by engaging students in collecting oral histories of local residents. In addition, this case study explores how these strategies impact students' perception of learning social studies and their historical understanding.     

Life History and the Critique of American Sociological Practice

This paper is a contribution to the uses of life histories and the dialogue regarding the "standards" for their use. Through a meta-analysis of life histories in the United States since the publication of the Polish Peasant , we develop a typology to critically evaluate their methodological/theoretical practices in sociology. We find a broad range of uses of life histories in the areas of substantive focus, analysis, relationship of oral history and the subject, relationship of oral/life history to other materials, purpose of the research, and relationship of oral/life history to other phenomena. We conclude that life history methods have not had the transformative effect on sociology that they have had in other disciplines. By and large, the actual production of life histories continues to be a historical, to be characterized by abstract empiricism, to extinguish subjects, and to ignore the link between biography and history.     

Family, Community and the 'Idiot' in Mid-nineteenth Century North Wales

In mid-nineteenth century north Wales, and indeed in Wales generally, 'community care' of persons with learning disabilities aided by the Poor Law survived longer than in England, where institutionalisation in the workhouse or asylum became the norm. This prehistory of community care has been largely unexplored, largely because of the difficulties of obtaining data. After discussing the methodology, and discussing the Lunacy and Poor Law documents used as sources, this paper seeks to advance understanding by using longitudinal histories of individuals with learning disability to explore their varied experiences in the community. It examines the attitudes of officialdom, and the role of family and community, and concludes by suggesting key factors in determining individual life stories included the presence of family, the ability to work, the degree of 'difficulty' or 'dangerousness' they presented.     

In Defense of Socialized Procedures

Teachers of history (like all teachers) have a tool kit that holds all their methods and techniques and that allows them to construct a proper history lesson. This article proposes putting a tool into this kit that is generally missing from its contents. This tool supposedly belongs to the tool kit of a different subject teacher: the teacher of literature. It proposes that history teachers adopt theories and practices from the realm of literature studies and add them to their toolboxes. These will help them to tell interesting history stories in the classroom if they so choose. The article offers two stories, one written by a historian, and the second, told by a historian in class. The two historical stories are analyzed to reveal a range of literary techniques that were enlisted by their authors to create interest among their readers or listeners.