The Changing Conditions of Social Work Research

Summary This paper seeks to make a contribution to the current debateabout the changing nature and purpose of social work research.It identifies several approaches to social work research evidentin the UK and further afield and, in particular, examines differentways of engaging with research participants in the researchprocess. The changing role and relations of research arisingfrom the use of more inclusive practices are then considered;first in terms of the relevance of research for practice, andsecondly, in relation to knowledge claims in the developmentof social work theory and practice. With the ever-growing developmentsin information and communication technologies, where Westernideas and initiatives continue to dominate in relation to bothmodels of social work and research approaches, an argument ismade for dialogue throughout the research process, the centralityof negotiating skills and reflexivity, and a more creative useof conventional research skills. Dialogue, in the form outlinedhere, provides a means of encouraging a ‘connectedness’between research, practice and theory, at all levels—theparticular location where the research takes place, the widernational context and the international or global stage.     

Practitioner Research: Evidence or Critique?

In this paper, I revisit some of the origins and more recentdirections in practitioner research in social work, seeing itas a phenomenon that—rather than being special or narrowlyassociated with social work—manifests a pervasive clusterof concerns about good professional practice in contemporarysociety. Drawing on some general conclusions of a recent studyof practitioner inquiry, I indicate ways in which the widersystems of which it is a part frequently hamstring the potentialof such research to operate as more than a fringe operation—a‘street market’ version of mainstream research.I outline four ways in which social workers, service users,agency managers, academics, government departments and universitiesshould work to a transformative agenda for practitioner research—transformativefor both practice and research. This will involve refashioningthe interface between the methodology and methods of practiceand research; generating practitioner research capacity; recognizingthe subtlety and critical potential of a genuinely ‘practical’agenda in practitioner research; and rescuing practitioner researchfrom a simply technical information-providing function, thatby-passes the challenge to promoting critical practice.     

Emphasizing the experiences of researchers after RCR instructions: Introduction to Responsible Conduct of Research (RCR) in Malaysia

The purpose of this study is to highlight the experiences of individuals who participate in the Responsible Conduct of Research (RCR) training program held at various universities in Malaysia. In response to a mailing request sent to 40 individuals who had undertaken a RCR training program, 15 participants agreed to be interviewed. The results of the study showed that the three main reasons for participating in the training were as follows: anticipation for knowledge gained; personal experience with research misconduct; and establishing a new network of researchers. In terms of the positive effects gained from undertaking the training, the participants highlighted an increased awareness of the issues and problems related to research misconduct; the need to promote integrity in research conduct; a change in the way they conduct their research; and a change in the way they confront and address misconduct. The findings of this study should be valuable for policy makers and those involved in the management of research programs and ethics, as it demonstrated the importance of RCR training in equipping researchers with the necessary knowledge to conduct research responsibly, and to avoid research misconduct.     

The Research Environment Norm Inventory (RENI): a study of integrity in research administrative systems

University research administrators have been generally ignored in basic studies of research integrity. Hensley noted that research administrators are "essential... to the achievement of the specific missions of postsecondary institutions... and to science and the academic infrastructure". The following study sought to extend the scope of research on research integrity to research administrative structures with a new instrument called the Research Environment Norm Inventory or RENI. University research administrators and their professional association were targeted for data collection. Evidence suggested that research administration in the United States supports integrity in the research environment through: (1) respect for community; (2) respect for institutional boundaries; (3) professionalism; (4) respect for authority structures; (5) sensitivity to system conflicts. The study suggested that integrity structures are dictated largely by the institutional settings and environments.     

Person-oriented research ethics: integrating relational and everyday ethics in research

Research ethics is often understood by researchers primarily through the regulatory framework reflected in the research ethics review process. This regulatory understanding does not encompass the range of ethical considerations in research, notably those associated with the relational and everyday aspects of human subject research. In order to support researchers in their effort to adopt a broader lens, this article presents a “person-oriented research ethics” approach. Five practical guideposts of person-oriented research ethics are identified, as follows: (1) respect for holistic personhood; (2) acknowledgement of lived world; (3) individualization; (4) focus on researcher-participant relationships; and (5) empowerment in decision-making. These guideposts are defined and illustrated with respect to different aspects of the research process (e.g., research design, recruitment, data collection). The person-oriented research ethics approach provides a toolkit to individual researchers, research groups, and research institutions in both biomedical and social science research wishing to expand their commitment to ethics in research.     

Moving Toward Medicare Home Health Coverage for Persons with Alzheimer's Disease

ABSTRACT

Medicare home health care policy does not incorporate research evidence of effective palliative home care interventions for Alzheimer's disease and dementia patients and caregivers. This article examines the dissonance between the needs and burdens of Alzheimer's disease patients and caregivers, research results on medical and palliative care interventions, and medicalized public policy in the Medicare home health benefit. The article asserts existing research establishes a prima facie case exists for the federal government to fund a Medicare Palliative Home Care for Alzheimer's disease demonstration project. The article cites the success of the Medicare Hospice Demonstration project and Hospice Medicare Benefit in reducing costs and improving client quality of life as precedent and a model for Alzheimer's disease. Other research implications are identified.     

Perceptions of research integrity and the Chinese situation: In-depth interviews with Chinese biomedical researchers in Europe

ABSTRACT

Research misconduct has been a threat to Chinese biomedical research. Despite many publications dealing with research integrity in China, little empirical data is available concerning Chinese biomedical researchers’ perceptions of research integrity and misconduct. To learn more about this issue, we interviewed Chinese biomedical researchers in Europe to investigate their perceptions of this issue. Semi-structured interviews were conducted with 25 participants until data saturation was reached. The findings indicate that certain aspects of research integrity need elaboration among Chinese biomedical researchers. Participants had a vague understanding of general concepts related to research integrity. Data fabrication, data falsification and plagiarism were perceived as the most severe deviance. Inappropriate authorship (especially gift authorship) and ghost writing were regarded as the most prevalent types of research misconduct in Chinese biomedical research. The harms of certain practices, such as inappropriate authorship, salami publication and multiple submission, were not well recognized. Attitudes toward research misconduct were divided. The current scientific evaluation system, pressures of promotion, motives for fame and other factors were perceived as the main reasons for research misconduct. Participants suggested various measures in addition to existing safeguards to improve research integrity in Chinese biomedical research.     

The place of research in social work education

Summary This paper argues for a stronger emphasis on research in socialwork education and the recognition of a triangular and dynamicrelationship between social work research, education and practice.The focus here is on the particular relationship between thefirst two of this triad. The paper locates the discussion inan examination of the literature on the nature of knowledgeand ideas about professional education, and proceeds to a considerationof the place of research in disciplinary development. This includesa brief mention of changing paradigms reflected in social workresearch in the past century. Empirical data from research carriedout in the mid-1990s is used to illustrate the place of researchin social work education currently, and to support the argumentthat social work educators have responsibility for knowledgecreation (through research), as well as using research in theirteaching, and in devising curricula which develop knowledgeabout and skills in research among social workers at differentstages of training. Developing the research and knowledge baseis seen as an essential role for social work academics, in theface of uncertainties about future directions for professionaltraining and the complexity of the task for which social workersare being educated.     

“Koe wai hoki koe?!”, or “Who are you?!”: Issues of trust in cross‐cultural collaborative research

Abstract

Cross‐cultural research designs are increasingly employed in the New Zealand context to investigate a range of complex social and environmental issues. However, there is little guidance for researchers who work for mainstream organisations and hapū (subtribe(s)) and iwi (tribe(s)) on how to undertake cross‐cultural collaborative research. Trust is a key issue that makes cross‐cultural research possible and it is surprising that issues relating to trust have not featured widely in the literature. In this paper, we reflect on our experiences working cross‐culturally and collaboratively with a hapū in Northland, New Zealand. We discuss how a mainstream research organisation worked with a community health trust and developed a working relationship with a hapū, forming the basis of a community‐driven collaborative evaluation of a central government‐funded project. Key findings were the establishment of a tuākana‐tēina relationship (where teacher and learner are interchangeable) between the members of the collaborative research team and the employment of appropriate research methods to develop a research agenda that ensured everyone would benefit from the research.     

Using Evaluative Research to Support Practitioners and Service Users in Undertaking Reflective Writing for Public Dissemination

Outputs of research are mainly reports, in a variety of formatsfor different audiences: web-based materials, conference presentationsand articles. Usually, these are the researchers’ products,with different levels of input by research participants, dependantupon the participative methods adopted. Two strands of discoursein relation to research allow for inclusion of other potentialoutputs for research: service user involvement in research andthe notion of the research-informed or aware practitioner. Thisarticle focuses upon the experience of using evaluative researchprojects to generate practitioner and user writing for publicdissemination, drawing upon these two themes.     

Parallel processes in researching and assessing potential carers

This paper proposes a model for assessing potential parents, based on our research and practice in which we examined current methods of assessment in the light of anti-oppressive principles and methods. We participated in and observed the work of two differing fostering and adoption agencies, and have drawn from our experiences and analysis to produce a pattern for assessment which critically draws on best practices. The paper also draws on previously published papers which discuss theories of research and assessment (Clifford 1992–93; Clifford 1994; Clifford 1995; Clifford & Cropper 1994), and draws a parallel between the processes of research and those of assessment. Our view is that research methods provide a foundation for assessment methods in various ways, mutually illuminating oppressive and anti-oppressive processes.     

AIDS Exceptionalism: On the Social Psychology of HIV Prevention Research

The current analysis considers the  human immunodeficiency virus (HIV)  prevention research record in the social sciences. We do so with special reference to what has been termed "AIDS Exceptionalism"—departures from standard public health practice and prevention research priorities in favor of alternative approaches to prevention that, it has been argued, emphasize individual rights at the expense of public health protection. In considering this issue, we review the historical context of the HIV epidemic; empirically demonstrate a pattern of prevention research characterized by systematic neglect of prevention interventions for HIV-infected persons; and articulate a rationale for "Prevention for Positives," supportive prevention efforts tailored to the needs of HIV+ individuals. We then propose a social psychological conceptualization of processes that appear to have influenced developments in HIV prevention research and directed its focus to particular target populations. Our concluding section considers whether there are social and research policy lessons to be learned from the record of HIV prevention research that might improve our ability to address effectively, equitably, and in timely fashion future epidemics that play out, as HIV does, at the junction of biology and behavior.     

Culturally Competent Approaches for Counseling Urban Appalachian Clients: An Exploratory Case Study

ABSTRACT

The authors examine the application of a strengths-based empowerment approach to working with an urban Appalachian woman and her family. The purpose of this article is to start the research process by utilizing the lessons learned to assist health and human service practitioners. Key points are identified in developing awareness and intervention skills when working with clients who have an Appalachian cultural heritage. This case study utilizes a culturally competent framework for assessing and intervening with Appalachian clients that emphasizes the strengths and empowerment literature. As the foundation for further research, this case study provides a rationale for starting evidence-based practice incorporating a strengths-based empowerment theme. Case study research is limited by its focus on one individual within a specific span of time and cultural context; findings cannot always be generalized to a similar population. Suggestions for further research in this area are provided.     

Resolving Beecher's Paradox: Getting beyond IRB reform

Protection of persons participating as research subjects is an essential element of ethical research conduct. There is growing concern that the existing system of institutional review boards (IRBs) and informed consent may not be adequate and is in need of reform. When science and medicine are “merged”; in clinical research, confusion of roles and conflicts of interests arise in relationships between patient‐subjects and physician‐investigators. IRBs have always had a primary role in protection of research participants. Their efforts to protect research subjects may make it more difficult for investigators to conduct research. This tension has lead to the development of an adversarial relationship between IRBs and investigators. Investigators and IRBs are also subject to external pressures that could impact efforts to protect research subjects. Efforts are underway to address these concerns. IRB reform, while needed, is not likely to be sufficient. Adoption of a new paradigm in which IRBs, investigators and research sponsors collectively accept protection of research subjects as their primary and shared responsibility may provide a more effective and efficient model that will be better able to deal with difficult ethical and social issues in clinical research.     

Ethical Beliefs of Social Work Researchers

Abstract

The purpose of this study is to examine the beliefs of social work researchers about ethical practices. Surveys were mailed to a random sample of 240 members of the Society for Social Work and Research (SSWR) to elicit their views about ethical practices in social work research. Responses from 160 members (67% response rate) yielded information regarding the appropriateness of dual relationships, authorship practices, informed consent procedures, and other conduct in social work research. Age, gender, educational level, years of social work research experience, and current teaching of social work research were related to respondents' ethical views about practices with students and sexual relationships with research subjects. The need for additional resources on ethics in social work research is highlighted.     

An agenda for future research regarding the mental health of young people with care experience

Young people who are currently or were previously in state care have consistently been found to have much higher rates of mental health and neurodevelopmental difficulties than the general youth population. While a number of high-quality reviews highlight what research has been undertaken in relation to the mental health of young people with care experience and the gaps in our knowledge and understanding, there is, until now, no consensus, so far as we aware, as to where our collective research efforts should be directed with this important group. Through a series of UK wide workshops, we undertook a consultative process to identify an agreed research agenda between those with lived experience of being in care (n = 15), practitioners, policy makers and researchers (n = 59), for future research regarding the mental health of young people with care experience, including those who are neurodiverse/have a neurodevelopmental difficulty. This consensus statement identified 21 foci within four broad categories: how we conceptualize mental health; under-studied populations; under-studied topics; and underused methodologies. We hope that those who commission, fund and undertake research will engage in this discussion about the future agenda for research regarding the mental health of young people with care experience.     

Guinea Pigs on the payroll: The ethics of paying research subjects

Regulatory bodies and scholars have traditionally conceptualized biomedical research on healthy subjects in the same way as research on patients. Guidelines and regulations have portrayed payment to a healthy subject as a potential constraint, or “undue influence,”; on the subject's free consent. In this essay we suggest an alternative way of conceptualizing research on healthy subjects, which sees the basic issue not as one of undue influence but as one of justice. Healthy subjects generally enroll in research protocols not for humanitarian reasons but for the money they will receive. Many of these protocols are conducted by profit‐driven corporations. Yet current guidelines and regulations prohibit subjects from negotiating for fair payment for the risks, discomforts and inconveniences they undergo, and IRBs are not staffed adequately to monitor the subject's safety. We propose to remedy the situation by regulating payment to healthy subjects as a labor relation.     

Research,Macro Practice and Aging in the Social Work Education Curriculum

Summary

This paper presents a model that used a macro emphasis for teaching research using older adults. Faculty developed the teaching model to address three key areas of concern in the education of Bachelor of Social Work (BSW) students for generalist practice: (1) research, (2) macro-level practice, and (3) aging. The paper explores the nature of these concerns and draws upon previous literature to delineate a teaching model designed to strengthen these areas of generalist practice by integrating content on macro-level concerns and aging into the curriculum of a research course. The development and evaluation of the research course within the context of a community and college project are described, as are the benefits for students, the social work program and the community. Preliminary findings indicate some support for the use of such a model.