Children with severe learning disabilities: needs,services and costs

This study looks at how services are used by children with severe learning disabilities living at home and explores the associated total and component costs. Multivariate and bivariate analyses are employed and the results interpreted alongside information on parents' perceptions of their children's needs for healthcare. There is some evidence to suggest costs were associated with greater needs but there is also evidence of under‐provision of formal care supports, particularly mental health services. Copyright © 2002 John Wiley & Sons, Ltd.     

Children with emotional disabilities: Perceptions of siblings

This paper reports the process and findings of a study of siblings of children with emotional disabilities. The intent of the research was to engage in an exploratory study through the use of a focus group to gain a preliminary understanding of the perceptions siblings have of a brother or sister with an emotional disability and the service system. Recommendations are given to mental health professionals for working with families and siblings of children with emotional disabilities. Ideas for including siblings in working with family systems are presented.     

Children with disabilities in out-of-home care: Perspectives on organisational collaborations

Many contemporary support services for children and young people (CYP) in out-of-home-care have adopted a collaborative approach to service provision in order to best meet the complex needs of clients. The purpose of this study was to gain a better understanding of the perceptions of Evolve Behaviour Support Services (EBSS) frontline and managerial staff delivering services to CYP in out-of-home-care with disability and complex behaviours regarding interagency/stakeholder collaboration. Views about the number and nature of collaborative partnerships, factors which facilitate or hinder effective relationships and advantages (including unintended benefits) of collaboration were sought. Qualitative interviews with 21 participants highlighted issues around: (1) general and agency/stakeholder specific issues and barriers, and (2) benefits of collaboration. The collaborative approach to service provision was seen as greatly enhancing the effectiveness of EBSS' response and ability to meet the range of CYP's complex needs, as well as having benefits for carers and service providers. Nevertheless, difficulties with collaboration were also encountered. Frequently identified challenges included reduced stakeholder engagement, differences in professional backgrounds and practice frameworks, unequal initiation of contact and follow-up, organisational disparities, communication and information sharing problems, frequent stakeholder turnover and geographical barriers in rural/remote areas.     

Adoptive parents to children with severe developmental disabilities: A profile

A sample of 16 women and men who accompanied their adopted children with severe developmental disabilities to a medical appointment at Henry Ford Hospital's Multidisciplinary Care Clinic during the one-year period beginning July 1, 1988 are described in the context of their parental role vis-a-vis these children. Results of the study are presented through use of a six-part organizational scheme: demographic and social traits of the parents and their adopted children, the adopted children in family context, life satisfactions of the parents, adoption motives, adoption satisfactions, and humanization of the children.     

Children with developmental disabilities in the child welfare system: a national survey

A survey of state agencies responsible for developmental disabilities/mental retardation and child welfare investigated the coordination of services for children with developmental disabilities. Recommendations are offered with regard to further research and model program development.     

Children with disabilities and chronic conditions and longer-term parental health

This paper uses panel data from the Statistics Canada National Longitudinal Survey of Children and Youth (1994–2000) to study the implications of parenting a child with a disability or chronic condition for subjective assessments of parental health. We find mother's health to be negatively affected, particularly if the disability is longer-term. Within families, the wife's health deteriorates relative to her husband's when they are parenting a child with a disability. These results are consistent with Akerlof and Kranton's [Akerlof, G., Kranton, R., 2000. Economics and identity. The Quarterly Journal of Economics 105(3), 715–753] arguments that ‘identity’ is an important determinant of both behaviour and well-being. For parents of children with disabilities, the behaviour associated with a traditional ‘good mother’ identity (e.g., care-giving) appears to have more adverse health consequences than the behaviour associated with a ‘good father’ identity (e.g., breadwinning).     

Children with cognitive disabilities in a Swedish educational context: reflections from a case study

The present study analyses the experience of parents of children with cognitive disabilities attending compulsory school in regular classes or in special units. It relates this experience to the arguments presented by the staff of special education services in a Swedish municipality, their administrative decisions and the organization of special education services. The parents had different standpoints: some defended the existence of special units and the resources available to them, while some fought to have their children accepted in regular classes, while other parents accepted the special units but were critical of certain aspects of their functioning. The situation presented here seems likely to generate conflicts between parents and educational administrators, and even among parents.     

Building employer capacity to support employees with severe disabilities in the workplace

Vocational rehabilitation has increasingly emphasized individualized community employment for individuals with severe disabilities. Early approaches were highly controlled by rehabilitation professionals, but research has shown that high levels of professional support can be intrusive, and that businesses are more able to participate in the support process than was initially assumed. This article summarizes recent developments leading to a new generation of partnership approaches that support and build the capacity of employers to successfully employ individuals with severe disabilities. Four innovative approaches--a consultation model of employer support, the development of business consortia, expanding diversity programs, and directing service funding to employers or coworkers--are described and the implications for rehabilitation services are outlined.     

Children with disabilities in Swedish child welfare – a differentiating and disabling practice

ABSTRACT

Research shows that children with disabilities are victims of violence and abuse to a higher extent than other children and thus need support from social services. In Sweden, cooperation between two different social services units is required to support children with disabilities in socially vulnerable families. In this study, we have examined the intersection between children and disability in a Swedish social services context from the perspective of childhood studies and disability studies. The reasoning of the two units including the child perspective emerged during focus group interviews based on two vignettes. The results show two different rationalities, which has consequences for the disabled child. In spite of a social policy where the ‘best interests of the child’ are meant to prevail and disabilities are meant to be interpreted as barriers in society, children with disabilities seem to be reduced to individuals who are lacking in ability and competency and who are profoundly victimised by power structures that favour the adult perspective in social services.     

Clinical social work with chicanos: Some unwarranted assumptions

Generally the literature of social work conveys a negative attitude toward the use of clinical social work with Chicanos. These attitudes result from assumptions that have not been empirically tested. Nevertheless these assumptions have been accepted as valid. This paper identifies and discusses these assumptions in the light of the nature of clinical social work and its objectives. The conclusion reached is that clinical social work is not alien to the needs of Chicanos and can be used successfully with them when the therapist has an understanding of the cultural system and can provide therapy within its framework.     

Critical factors in the design of a service delivery system for students-in-transition with severe disabilities

Although there has been tremendous growth in secondary school programs for students with severe disabilities, many of these students continue to “graduate” or “age out” without adequate preparation for community-integrated employment and increased independent living in the community. Competitive employment and independence will remain an illusion for many students with severe disabilities unless there is strong commitment by the public and private sectors to the development of post-secondary options and the establishment of effective processes to coordinate and integrate services and programs. The purpose of this article is to present some of the critical factors in the organization and delivery of services and programs for students-in-transition with severe to profound mental retardation. First, the extent of need for transition services and programs is briefly reviewed. Second, a framework for transition case management in Philadelphia is described. And last, three interrelated factors — communications, capability, and disposition — contributing to successful planned intervention are examined in relation to Philadelphia's initiative in establishing a service delivery system for students-in-transition with severe to profound mental retardation.     

Community-based arts research for people with learning disabilities: challenging misconceptions about learning disabilities

This article presents some of the community-based artwork of a group of men with learning disabilities, who aimed to challenge some of the misconceptions associated with learning disabilities. People with learning disabilities regularly face many forms of direct and indirect stigma. The consequences of such negative perceptions may affect individuals’ social relationships and ensure that barriers are strengthened which prevent their full inclusion. The men in this project used a series of visual and creative methods to challenge some of these misconceptions by telling stories through art, demonstrating skill through photography, using poetry to talk about sexual identity and improvising drama and filmmaking to challenge stigma, and through sculpture expressed their voices. Thus, by doing so, they were able to challenge some of the stigma associated with learning disabilities, indicating that community-based arts research is a valuable way in which to promote the voices of people with learning disabilities.     

Stigmatized Identities: Too Muslim to Be American,Too American to Be Muslim

In the United States today, Muslim identity is highly stigmatized. Much of this can be attributed to an increasing climate of Islamophobia. The current study finds that some Muslim Americans are confronted with another source of stigma: other Muslims. Using interview data with 23 Muslim Americans in and around Houston, TX, this study examines the intersection of religious out‐group and in‐group stigma in the lives of Muslim Americans. Findings suggest that stigma comes not only from non‐Muslims, but also from other Muslims. Some Muslim Americans are especially vulnerable to religious in‐group stigma. Those who are most acculturated to non‐Muslim, Western culture often face criticism from Muslim communities, be they inside or outside the United States. These Muslim Americans find that they are not perceived as fully Muslim or fully American, and therefore denied the full benefits of either status while simultaneously bearing the burden of both. This paper articulates the multiple dimensions of stigma faced by Muslims in America.     

在婚姻中成长

Society expects children regardless of their gender -- to get married when they grow up. How, ever, for some people, marriage is not the ultimate goal, It is also not a safe haven, just because two people exchange vows, it certainly does not mean that they will be protected from problems, And there is no such thing as a smooth journey in marriage. Many couples end up filing for divorce, and those who manage to stay together until old age must all cope with friction and difficulties along the way.