Narrating Childhood in Elena Chizhova’s Vremya zhenshchin

ABSTRACT

This article discusses the representation of the Soviet past through the figure of a child in Elena Chizhova’s novel Vremja ?en??in [Vremya zhenshchin] (2009). The concept of the vulnerable subject is applied to conceptualize the narrative’s ‘access’ to the past. Vremja ?en??in [Vremya zhenshchin] tells the story of a mute girl raised by her mother and three ‘grandmothers’ in 1960s Leningrad. The women decide to keep her muteness as a secret in order to protect her from being sent to a state institution for disabled children, and to raise her at home. The child figure is situated on the verge of two value systems: the collective, secular, and modern value system, represented by the outside world of home; and the private, spiritual, and traditional value system represented by the community of three old women. The position of the vulnerable child figure on the margins of society enables the representation of a ‘lost’ past and its alternative values. The article suggests that the vulnerable child figure can be seen to stand for a feeling of loss and abandonment in more general terms in contemporary Russia, and as representing a search for a lost inheritance.     

Representations of vulnerability,innocence and evil in the murder of a disabled person

Abstract

This article uses the murder of a young man with learning disabilities as a case study to comment on the representations used in the reporting of crime against disabled people. It uses social representations theory as a theoretical lens to assist us to see that portrayals of both victim and perpetrators by the media and others serves to distance them from each other, and from mainstream society. It highlights how this process of ‘othering’ serves to disadvantage disabled people and places a disproportionate emphasis on individual characteristics.     

An Approach to Childhood Stealing with Evaluation of 45 Cases

Childhood stealing is a distressing problem for families and may have wider community costs since childhood stealers often become adult criminals: This paper describes a therapeutic ‘map’ that emphasises direct engagement of the child, along with his/her family, in regrading the child from ‘stealer’ to ‘honest person’. Analysis of therapy with 45 children revealed a high level of family engagement and initial behaviour change. Furthermore, a follow-up telephone call made 6–12 months after completion of therapy sessions revealed that 81% of the children had not been stealing at all or had substantially reduced rates of stealing.     

Disabled children’s childhood studies: a distinct approach?

This paper suggests that the emergence of disabled children’s childhood studies as an area of study offers a distinct approach to inquiry; it represents a significant shift away from the long-standing deficit discourses of disabled childhoods that have dominated western culture and its reaches. On the one hand, contemporary childhood studies contest normative, Eurocentric mantras around the ‘standard child’; while on the other, disability studies critique the medical discourses and the scope of its authority. However, while drawing on these two approaches, disabled children’s childhood studies provide more than this combined critique. In disabled children’s childhood studies, disabled children are not viewed as necessarily having problems or being problems, but as having childhoods.     

Technological sensibilities and the cyberpolitics of gender: Donna haraway's postmodern feminism

In this article, I discuss the far reaching implications of Donna Haraway's cyborg feminism for social and cultural theory. I argue that it allows us to re‐think the collapse of modernity not so much as the death of the social and the death of the subject, but as the eclipse of ‘Modern Man’ as the ‘natural’ anchorage of views from nowhere. Highlighting the inevitable particularism of embodiment, her notion of the cyborg marks the possibility of differential politics which combine critique with agonistique. Such an alliance could serve as particularly effective way of working through the challenge of postmodernity without either surrendering to ‘anything goes’ liberal pluralism or the romantic desperation of nihilistic fatalism.     

Saying the ‘F word … in the nicest possible way’: augmentative communication and discourses of disability

This paper examines a case study of a severely physically disabled man, Ralph, in terms of his interaction with his carers. He communicates using various systems of augmentative and alternative communication (AAC, such as symbol boards and high-tech devices), the vocabulary for which has mostly been selected for him by others. The starting point of the paper is the assumption that disabled people have traditionally held a disempowered position in society (relative to non-disabled people), and the question asked is to what extent is Ralph further disempowered by the limited vocabulary available to him in his AAC systems, and in the way others interact with him. The paper draws on the work of Bourdieu, according to whom ‘Language is not only an instrument of communication or even of knowledge, but also an instrument of power’ (1977, 648). I consider the tensions between the drive towards the empowerment of disabled individuals, as exemplified by the provision of AAC, and opposition to allowing access to certain types of vocabulary (especially expletives such as ‘the F word’), unless it is expressed in ‘the nicest possible way’.     

‘Stuck In The Middle With You’: Towards Enabling Social Work with Disabled People

This article explores progress to date in embedding enabling social work understandings and practices with disabled people by reviewing the UK social work curriculum. Based on these observations and the ideas from UK disability studies, it will offer possible solutions or at least better pathways to enabling practice with disabled people. As Meekosha has pointed out in a global context, to date social work has been experienced as an ambivalent practice [Meekosha, H. & Dowse, L. (2007) ‘Integrating critical disability studies into social work education and practice: an Australian perspective’, Practice, vol. 19, no. 3, pp. 59–72], often both enabling and disabling; an intervention that can both lock and unlock resources, and challenge and reaffirm traditional notions of the ‘disability problem’ [Finkelstein, V. (1993) ‘Disability: A Social Challenge or an Administrative Responsibility?’, in Disabiling Barriers ‐ Enabling Environments, eds J. Swain, V. Finkelstein, S. French and M. Oliver, Sage Publications in association with the Open University, London]. Social work also has the potential to both challenge, but also be an (inadvertent) apologist for contemporary social support and welfare systems. Indeed it is clear that social work as a profession and social care as a policy area have been the poor relations of healthcare and health professions [King's Fund (2011) Social Care Funding and the NHS: An Impending Crisis?, King's Fund, London]. Viewed anthropologically, social work remains a largely non-disabled workforce ‘ministering’ to disabled clients (BCODP, 1997). This might reinforce the perception of ‘us and them’ in some social work encounters. As Paul Longmore questioned, can we begin to go ‘beyond affliction’ (2003) in our work with disabled people? Can social work help support the collective struggles of disabled people or is their role inevitably to reinforce that of individual(ised) clients?

The development of the personalisation agenda and self-directed support is clearly welcome in this context [DoH (2006) Our Health, Our Care, Our Say: A New Direction for Community Services, Department of Health, London; DoH (2007) Independence, Choice and Risk: A Guide to Best Practice in Supported Decision-Making, Department of Health, London; DoH (2009) Personalisation of Social Care Services, Department of Health, London]. Such developments reflect the changing service user–professional relationship. The temptation to see these developments as the icing on the social support cake needs, however, to be resisted. Arguably, with the increased rationing of social support, the continued role of social workers in assessment and monitoring of support could be seen to require a yet more reflexive and enabling professional education and training in an age of austerity, one where previously supported disabled people are being told that their needs can no longer be met.     

Wounded/monstrous/abject: a critique of the disabled body in the sociological imaginary

Contemporary sociology has made sense of bodily difference by mobilising a number of tropes. ‘Wounded’ (or vulnerable), ‘monstrous’ and ‘abject’ stand out by virtue of their ubiquity though they do not exhaust the repertoire. These categories highlight the conceptual tensions between the sociology of the body and Disability Studies. In this paper, I will examine the value of these tropes to Disability Studies and suggest that while they can help to clarify the processes that bring about the misrecognition of disabled people, understanding the nature and scope of the lives of disabled people in modernity requires a more embodied language rather than one that has been generated from a sociological imaginary that is strongly influenced by a non‐disabled subject position in which repulsion for the other – which one must become – is never fully resolved. Disability has had little impact on sociological theories of the body and when sociology ventures into disability it has tended to conflate it with an ontology of human frailty or gloss it with tropes that may be instructive about the generic or gendered modernist structure of exclusion but it tells us little about the specific forms of invalidation experienced by disabled people.     

Child abuse prevention: Blending research and practice

For over two decades, child abuse interventions have been plagued by poor definitions of what (or who) exactly is being treated, what constitutes ‘success’, and how services can be delivered in such a way as to minimize the harm to the child and to his/her family. Most recently, intervention/prevention programmes reflect the growing recognition that child maltreatment is the product of the interaction between the parent's abilities and resources and the child's emerging behavioural and emotional characteristics (i.e. the parent–child relationship), and place less emphasis on individual psychopathology. Accordingly, ways to strengthen this relationship offer considerably more promise than those aimed at correcting only one component (i.e. the parent) or treating only the visible symptoms of conflict. In an attempt to focus greater effort on prevention and early intervention, this paper reviews prominent risk factors that have been linked to physical abuse and neglect of children and their consequences. Major intervention targets are identified from this literature and discussed in reference to: (a) problems related to the family context; (b) child treatment needs; and (c) parent/caregiver treatment needs. The paper concludes with a discussion of promising developments in early intervention that are beginning to address problems in the early formation of the parent–child relationship (i.e. the pre-natal and infancy periods of development) and problems associated with parental competency and family support. Most notably, preventive efforts have been associated with more positive parenting knowledge, attitudes, skills, and behaviour, as well as fewer child injuries, emergency room visits, and reports to protective agencies among at-risk parents and children. Further evaluation and expansion of these programmes appears to be warranted by these data.     

Disabled people and dirty work

Based on a longitudinal case study of the work offered by a Swedish sheltered work organization that can be regarded as ‘dirty’, in the sense that it stigmatizes those people that do it, in this paper I analyze how ‘dirty work’ can be seen as an important yet so far neglected source of the social construction of disability. Specifically, the aim of the paper is to suggest how an individual can become a ‘disabled person’ by doing dirty work. By working on ‘tainted tasks’ people (irrespective of their mental or physical condition) may come to be regarded and even officially labeled as ‘disabled’, i.e. incapacitated and impaired for any ‘normal’ and ‘clean’ character of work.     

What’s disability got to do with it? Changing constructions of Oscar Pistorius before and after the death of Reeva Steenkamp

Traditionally disability has been viewed in the popular imagination as either a highly positive or highly negative phenomenon. Disability and disabled people deserve to be seen in an integrated, holistic way and to have recognised as much diversity as characterises the human condition. The recent case of Oscar Pistorius fatally shooting Reeva Steenkamp has highlighted this tendency. Before this incident, Pistorius’ disability was viewed in a predominantly positive light. He had been described as a ‘supercrip’ who had, despite his physical impairments, ‘overcome’ his mobility limitations and was consequently attributed heroic status by some. However, after this fatal incident, the portrayal of Pistorius’ disability has, perhaps inevitably, shifted. This paper will offer possible psychosocial reasons for this tendency to view disability in a binary way.     

Housing and transport: access issues for disabled international students in British universities

This article explores two disabled people’s ‘Seven Needs’ to independent living, those of ‘housing’ and ‘transport’ issues, in relation to disabled international students in British universities. Firstly, students’ living arrangements, including issues related to the suitability of university accommodation to their disability-related needs, have been identified. Secondly, the choice and accessibility of transport used is examined. A range of barriers that this group of students encounter based on their double or multiple identities as ‘disabled’, ‘international’ and sometimes ‘mature’ or ‘postgraduate’ students has thus been identified and discussed. The article highlights the barriers that are reinforced and exacerbated by the interplay of students’ different identities, proposing ways of removing these difficulties.     

Social policy and transitions to training and work for disabled young people in the United Kingdom: neo-liberalism for better and for worse?

Although New Labour distanced itself from the neo-liberal ‘underclass’ discourses of its predecessors, its approach to disabled young people maintained key aspects of neo-liberalism, particularly an emphasis on individuals’ human capital, aspirations and self-investments as causes of and solutions to disabled young people’s unemployment. This is also apparent in early Coalition government statements. Since the 1990s, policies have focused on providing individually-tailored advice, developing individuals’ skills, and motivating appropriate self-investment. We examine recent evidence that highlights a number of problems with this focus. Notably, it entails a simplistic and individualised notion of ‘barriers’ to employment that cannot account for the complex impacts of disablement and inequality; moves towards open-market models of training and work support create perverse incentives that divert support away from those most in need; employment success is dependent on unpredictable local opportunity structures; and the focus on paid employment undermines other social contributions made by disabled young people.     

Radicalising ‘disability’ in conflict and post-conflict situations

In this article, a radical social model of disability lens is taken to illustrate what counts as ‘disability’ within a neoliberal mindset. The South African and disabled activist Vic Finkelstein describes both an ‘outside-in approach’ that looks at the material conditions of how ‘disability’ is constructed and an ‘idealist’ ‘inside-out’ approach, or how people describe experiences of inequality and disablement. The ‘outside-in’ approach is where the focus of a social model of disability should be in terms of trying to understand how global capitalism or neoliberalism is (dis)ablest and creating impairment. The ‘inside-out’ approach is ‘idealist’ and where the other ‘components’ of the model such as ‘rights’ are located. This article begins with an overview of the relationship between disability and conflict. The article then moves to an inside-out framework to examine how disability is still viewed and created through a medical humanitarianism. Using an outside-in framework, I illustrate how states become disabled through neoliberalism. Lastly, I discuss how ensuring greater participation and rethinking neoliberalism in terms of sustainability may provide us with a way forward in a humanitarian setting and rethinking of disability.     

Everyday utopianism: Lefebvre and his critics

The strategy of sociocultural critique through the ‘problematization’ or ‘defamiliarization’ of the habitualized character of everyday life is one that is well-established in the literature, especially for adherents of various neo-Marxisms. However, in recent years, several prominent critics have taken issue with the concept of defamiliarization, arguing that the habit-bound, ‘distracted’ and routinized character of the everyday cannot be easily contrasted with, or superceded by, the exceptional or the extraordinary. Such a position, it is suggested, both denigrates the integrity of daily life and promotes a kind of incipient transcendentalism. The work of Henri Lefebvre is often taken to be representative in this regard, and various phenomenologies or pragmatisms are promoted in his stead. In this article, I take issue with such critics, by analyzing Lefebvre’s writings on such key points as his treatment of routine in everyday life, as well as his concepts of totality, dialectics and critique. I end up asserting that, contrary to what is often said, Lefebvre does not promote a dualistic transcendentalism in which daily life is denigrated, but rather an ‘everyday utopianism’ in which routine and creativity, the trivial and the extraordinary, are viewed as productively intertwined rather than opposed. As such, I seek to defend the notion of ‘critique’ vis-à-vis the everyday, and to demonstrate the on-going relevance of Lefebvre’s work, as well as that of the ‘counter-tradition’ that is loosely associated with his name.     

Margaret Atwood’s Straddling Environmentalism

Abstract

“Margaret Atwood’s Straddling Environmentalism” asks why Atwood crosses the Canada-US border in her dystopian fiction. It takes Atwood’s 2004 comments that The Handmaid’s Tale (1985) partly grew out of her ‘irritation when people say “it can’t happen here”’ and her claim that she decided to set the novel in Cambridge, Massachusetts as being related to that irritation—’”It can’t happen here,” she explained, “should be placed in the most extreme ‘here”’—as a prompt. Focusing on Oryx and Crake (2003), this article argues that one of Atwood’s motivations for crossing the Canada-US border in this novel is to provoke us to develop what Giovanna Di Chiro has termed ‘a scale-crossing environmental consciousness.’ Oryx and Crake challenges us to think about environmentalism in relation to local, embodied experiences as well as on a global, transnational scale.     

Managing manipulation: tools and challenges in creative collaborations with intellectually-disabled people

There has long been an ‘us’ and ‘them’ mentality when it comes to the production of disability narratives on screen, driven by an assumption that non-disabled people cannot accurately interpret the disabled experience. Given the appalling history of representations by non-disabled filmmakers, it is easy to understand why many academics and members of the disability community favour the complete control of disability content by disabled people. But this approach has failed the many compelling ‘disabled voices’ that go unheard because they do not reach audiences. The most practical solution is to forge new models of creative collaboration between disabled and non-disabled people, something I attempted to do with my PhD film, a comedy feature entitled Down Under Mystery Tour. I discovered that the most important tool in such collaborations is the utilisation and management of manipulation, one that prioritises skill and experience and best expresses the unique perspective of intellectually-disabled collaborators.     

BANALITY FOR CULTURAL STUDIES

In her 1990 essay, ‘Banality in Cultural Studies,’ Meaghan Morris raises very serious concerns about the relatively unexamined role that banality plays in cultural studies' work. Taking up her challenge, this essay endeavors to unlock some of the ways that banality might be, as Morris suggests, ‘empowering’ and ‘enabling’ for cultural studies and, thus, not merely banality as something that is left behind after it has been exorcised or redeemed in the movements of cultural analysis itself. Beginning with a few of Morris' own critical coordinates (such as Michel de Certeau and Maurice Blanchot), this essay, then, looks to how banality enters into the triadic philosophical conceptualizations of Henri Lefebvre on ‘everyday life’ particularly through his concept of ‘everydayness’. Most of all, this essay investigates the ways that this often-undertheorized concept from Lefebvre might be brought to ‘life’ (in the widest sense imaginable) in the writings of Gilles Deleuze and Felix Guattari on ‘the virtual.’ The virtual is, in one sense, a means of grasping what lies beyond the realm of cognition a more diffuse view of the real that would include the incorporeal, the inorganic, and all points in-between (including a more broadly drawn version of consciousness). It will be argued that, through ‘the virtual,’ everyday life becomes available to cultural studies' accounts as a radically ‘open totality’ or Outside and, as such, the movements, as well as the politics, of critique take on a different sort of tone and trajectory.     

Claiming loss in disability

Pervasive representations of disability carry associations with the idea of loss. These have been strongly rejected by the social model movement as stereotyping, which may perpetuate views of disabled people as ‘incomplete’, ‘vulnerable’ or needing rehabilitation. Discourses of ‘loss’, ‘acceptance’ and ‘denial’ remain a lens through which disabled persons are misknown. It is posited that ascribed notions of ‘loss’ serve to maintain feelings of control and mastery within the observer, quieting the destablising psychic threat which disability poses. Further, disabled people positioned as having to ‘deny’ imputed loss may be at risk of suffering self‐alienation relating to a mode of being which is (necessarily, understandably) preoccupied with ‘not being’ the personification of stereotype, at the expense of exploring aspects of identity and self; such an orientation embodies unstable foundations for an entitled, articulate disability movement. Conceptual ideas are based on the author’s experience as a disabled group psychotherapist working with severely physically impaired adults.