Research with American Indian communities: The value of authentic partnerships

Developing evidence for practice is particularly difficult when attempting to accurately capture the experiences of diverse communities. In American Indian communities, the lack of communication between researchers and their subjects has been increasingly recognized. Recent adjustments to research methods, such as community-based participatory research (CBPR) have attempted to emphasize the importance of recognizing the needs and wishes of those studied. Yet, perhaps due to imperfect application, they may fall short in promoting participation and yielding accurate results. A number of fallacies can hinder successful use of the model including the assumption that ‘cultural sensitivity’ or even locating a project in the community of interest will open the door to successful engagement. Reality-based research was conceived to address these potential deficiencies. It builds on CBPR and is proposed as a means to more effectively develop a connection between American Indians who might benefit from the research relationship and the researchers themselves. An example of a reality-based research project on tobacco use is provided and steps for adopting this approach in child welfare are outlined. These steps set this article apart from other works seeking to address this issue and provide concrete practical assistance to researchers in the field.     

Looking back,moving forward: A review and reflection of the organization-public relationship (OPR) research

Organization-Public Relationship (OPR), as a key concept addressed in the field of public relations has attracted wide attention in the past three decades. This study presents a comprehensive review of 156 relevant studies from 1998 to 2016 and categorizes them into five main clusters, which include the outcomes, antecedents, mediation, process, and structure of OPR. Findings also identify five gaps in current OPR research such as idealized propositions based on mutual benefits, a lack of research on multi-party relationships, problematic “trust” as the measurement, unilateral self-reported research data, and dominated cross-sectional methods By drawing contingency theory of accommodation and the relationship management theory, this study proposes the concept of contingent organization-public relationship (COPR) for future studies that seek to explore variations of OPR longitudinally.     

Reflexive Research Ethics for Environmental Health and Justice: Academics and Movement-Building

Community-engaged research on environmental problems has reshaped researcher-participant relationships, academic-community interaction, and the role of community partners in human subjects protection and ethical oversight. We draw on our own and others' research collaborations with environmental health and justice social movement organizations to discuss the ethical concerns that emerge in community-engaged research. In this paper we introduce the concept of reflexive research ethics: ethical guidelines and decision-making principles that depend on continual reflexivity concerning the relationships between researchers and participants. Seeing ethics in this way can help scientists conduct research that simultaneously achieves a high level of professional conduct and protects the rights, well-being, and autonomy of both researchers and the multiple publics affected by research. We highlight our research with community-based organizations in Massachusetts, California, and Alaska, and discuss the potential impacts of the community or social movement on the research process and the potential impacts of research on community or social movement goals. We conclude by discussing ways in which the ethical concerns that surface in community-engaged research have led to advances in ethical research practices. This type of work raises ethical questions whose answers are broadly relevant for social movement, environmental, and public health scholars.     

A Case Study Using Photovoice to Explore Racial and Social Identity Among Young Black Men: Implications for Social Work Research and Practice

This article describes an exploratory qualitative case study using a research method novel to social work known as Photovoice. This case study of the Photovoice process assesses its value as a community-based participatory research (CBPR) method with marginalized communities within social work research. Photovoice was used to engage young Black men as researchers into their own lived experience. Through a photographic and group participatory project, participants discussed how intersections of race, gender, and sexuality affect their lives and health. While this methodology has proliferated within public health literature, little research exists within social work. Photovoice represents a research well-aligned with core social work values of empowerment and social justice. This method offers our profession a participatory, action-oriented tool to inform practice and policy and does so in the voices of communities who often go unheard.     

Using developmental evaluation and community-based participatory research to develop a model of supportive housing

Community-based participatory research (CBPR) and developmental evaluation (DE) have emerged over recent decades as separate approaches for addressing complex social issues. Current literature offers little with respect to the use of CBPR and DE in combination, although the two approaches are complementary. Through the current paper, we outline how CBPR and DE were used to develop a model of supportive housing for teen families. More specifically, we describe the structures and processes that contributed to this development, including (1) our partnership approach, (2) pooled resources, (3) regular opportunities for collaboration and reflection, (4) integration of multiple data sources, (5) ongoing feedback and knowledge dissemination, and (6) adjustments to program practices. We end by providing insights into the lessons that we learned through this project. Through this paper, we describe how researchers and community partners can collaboratively use CBPR and DE to develop a program model in complex community settings. Insights are offered that will be important for researchers, evaluators, and practitioners seeking to develop programming in response to complex community issues.     

Community-Based Participatory Research (CBPR) needs assessment of parenting support programs for fathers

This study reports the results of a Community-Based Participatory Research (CBPR) needs assessment of programs, services, and support systems for fathers in the City of Detroit, Michigan. The goal of this needs assessment was to assess the availability of parenting support services to men through multiple perspectives. To enact a CBPR approach, the research team collected qualitative data through interviews with service providers and community dialogues with fathers and consulted a community advisory board for further guidance on the research efforts. The research team engaged in member checking to improve the accuracy and credibility of study findings. Results indicated that both service providers and fathers agreed that very few parenting support services are available to fathers, particularly young African American fathers, and they also largely agreed in establishing priorities to address community fathers' parenting needs. Practice implications include the need for greater collaboration across service sectors and for greater outreach, possibly through technology, to young fathers.     

Maculate Conceptions: Power,Process, and Creativity in Participatory Research

Justifiably concerned about power dynamics between researchers and participants in participatory research, much of the literature proposes guidelines for including participant voices at every step of the research process. We find these guidelines insufficient for dealing with constraints set up by the social organizational structures in which researchers and participants find themselves. We argue that the process of building relationships between scientists and farmers is unavoidably imperfect, but nonetheless necessary and rewarding. We contend that the potential problems of participatory research originate more from the social organizational structures in which it takes place than in failure to follow particular rules. By acknowledging these structures and the resultant interests of participant and researcher we can make room for the messy reality of negotiating participatory relationships. We suggest that transformative engagement can be born of what we term the “maculate conceptions” of dialogic process and the building of mutual trust.     

“We’re Who We’ve Been Waiting For”: Intergenerational Community Organizing for a Healthy Community

This study, guided by principles of community-based participatory research (CBPR), presents the processes, challenges, and effects of intergenerational community organizing practice of a local grassroots organization to promote community health in multiracial and historically marginalized communities. Three major lessons emerged: (1) the central role of experiential communal learning and critical analysis in collective knowledge creation, (2) development of collective efficacy through a genuine sense of connection and mutual affirmation, and 3) the importance of a co-learner stance in fostering intergenerational leadership. The interconnection between process and product is emphasized as the central tenet in both community organizing and CBPR processes.     

Revisiting organization–public relations research over the past decade: Theoretical concepts,measures, methodologies and challenges

This paper develops a better understanding of organization–public relationships (OPR) by analyzing empirical studies published in academic periodicals from 2000 to early 2011. A clear trend in the early years of the past decade was a greater focus on scale development, whereas in the latter half of the decade the emphasis was on scale application. Two main streams of OPR research reflect distinct clusters of authorship and research foci. In addition to providing a research summary, this study consolidates the lessons learned from OPR scholarship and provides suggestions for future research.     

Public Sociology and the Democratization of Technology: Drawing on User -led Research to Achieve Mutual Education

In an effort to further advance public sociology and its relationship with technology, this paper looks at a democratic model of collaboration within the technological sciences. We draw on the concept of user- led research to demonstrate how sociologists, scientists and various stakeholders within the public sphere can achieve reciprocal, meaningful and sustained knowledge translation. Furthermore, we argue that by acknowledging participants’ technological needs and reducing unnecessary complexity, the user -led method advances Burawoy’s “dialogue as mutual education” within public sociology.     

Towards an assessment for organizational participatory research health partnerships: A systematic mixed studies review with framework synthesis

Within the health sciences, organizational participatory research (OPR) is defined as a blend of research and action, in which academic researchers partner with health organization members. OPR is based on a sound partnership between all stakeholders to improve organizational practices. However, little research on the evaluation of OPR health partnership exists. This systematic mixed studies review sought to produce a new theoretical model that structures the evaluation of the OPR processes and related outcomes of OPR health partnerships. Six bibliographic databases were searched together with grey literature sources for OPR health partnership evaluation questionnaires. Six questionnaires were included, from which a pool of 95 OPR health partnership evaluation items were derived. The included questionnaires were appraised for the quality of their origin, development and measurement properties. A framework synthesis was performed using an existing OPR framework by organizing questionnaire items in a matrix using a hybrid thematic analysis. This led to our proposed Organizational Participatory Research Evaluation Model (OPREM) that includes three axes, Trust, Collective Learning and Sustainability (with specific dimensions) and 95 items. This model provides information to help stakeholders comprehensively structure the evaluation of their partnerships and subsequent improvement; thus, potentially helping to improve health organization practices.     

Reflections on doing participatory research in health: participation,method and power

The author has reflected on her experience in facilitating three participatory research (PR) projects to identify key issues surrounding participation, method and power. The three PR projects in health, all undertaken in the same region in southeast Australia, assessed the needs of women who have experienced breast cancer, evaluated an Indigenous healthy lifestyle programme and developed and documented a model of coordinated care by a consumer group. In particular, the three participatory projects suggested that participants do not always want to maximise their own participation and may prefer external researcher involvement – relationships, confidentiality, anonymity and time‐impacted perspectives of participation. In one study, quantitative methods were selected and time and previous knowledge of research shaped participants' selection of method. In the projects, power relations were complex and issues of negotiation, inclusion, quality of research, agendas, roles and integrity are discussed. The lessons learned here are that participatory researchers can be open to differing levels of participation and methods while also comfortable with sharing decision‐making in research, even if it alters the research outcome.     

Ethical challenges of community based participatory research: exploring researchers’ experience

Community-Based Participatory Research (CBPR) has been proposed as an equitable, empowering partnership approach to collaborative research. International literature about the ethical implications of CBPR suggests a continuing strong interest in the topic. However, there is a notable lack of research that captures the experience of ethical challenges of researchers from different countries who engage in CBPR. The aim of this research was to address this lack of evidence by exploring researchers’ experience of ethical challenges in CBPR at an international level. An innovative data collection method was designed utilising a purpose-built blog. Balancing participant protection and autonomy, partnership tensions, and enduring impacts of the researcher role emerged as the main themes. These findings illustrate the specific conflicts faced by researchers engaged in CBPR. This is largely as a result of the complexities of CBPR coupled with rigid ethics committee review that does not always take into account the more fluid nature of the approach.     

‘It's a magnifying glass for your relationship’: a thematic analysis of motivations,benefits, and challenges in consensually non-monogamous relationships

The last decade has seen an increase in public and academic interest in consensual non-monogamy (CNM). CNM involves sexual and/or romantic relationships between multiple partners, with the consent of all individuals involved. Engagement in CNM is estimated at 5% of the general population, although due to stigma with the strong idealisation of monogamy in many cultures, it is a hidden population. This qualitative study explores the motivations, benefits, and challenges experienced in CNM relationships, an area that has been understudied despite the resurgence of interest in it. While previous research has mainly focused on comparisons between CNM and monogamy or individual types of CNM such as polyamory, this study seeks to provide a broader understanding of CNM relationships. We employ a critical realist framework and thematically analyse semi-structured interviews with eight participants. The results identify three overarching themes: mononormativity and cultural norms; growth and responsibility; and diversity and complexity; each has several subthemes. These findings suggest that CNM provides opportunities for greater diversification of needs and increased community and individual growth. The study also highlights the challenges experienced in CNM relationships and the strategies used to manage them, such as personal responsibility for managing difficult emotions and temporarily closing a relationship at times for relationship security. A novel finding in this study is that some individuals involved in CNM have internalised cultural norms and the idealisation of monogamy and need to unlearn these norms. This study adds to the existing knowledge on CNM and is expected to be of interest to clinicians and researchers seeking to understand its motivations, benefits, and challenges. Relationship therapists will benefit from increased knowledge of how to work with clients interested or engaged in CNM relationships. Overall, this study supports previous findings that CNM is a viable, enjoyable, yet sometimes challenging type of relationship.     

The Gudaga Research Program: A Case Study in Undertaking Research with an Urban Aboriginal Community

This paper presents the Gudaga Research Program as a case study describing the practice principles used to implement a successful research partnership with an urban Aboriginal community in south-western Sydney. This is one of few papers that address research issues unique to working with urban Aboriginal communities, in which the Aboriginal culture of the community is not homogenous. The authors argue that the relationships between the researchers and key community members and research participants underpin the research success. Throughout, the authors show that ongoing processes to nurture and reaffirm these relationships are important and require ongoing investment. A proposed practice framework demonstrates the relationship between knowledge and understanding of Aboriginal history and culture, the underpinning values including trust, respect, and reciprocity, and shared skills and communication. Examples of how these were built into the research are provided. These are important skills that have application beyond the research process.     

Building Capacity for Local Governance: An Application of Interactional Theory to Developing a Community of Interest*

Abstract The Emory‐Obed Watershed in Tennessee, like many other rural areas throughout the United States, is experiencing changes in economic activities and social values associated with natural resources. Informed by the interactional approach to community development, this effort strove to build community capacity so community members could more fully govern their life according to their values and interests. We utilized key informant and focus group interviews to gain information about the watershed and to obtain different perspectives on resource‐related issues. Data from key informant interviews led to the selection of a geographic community in which a community of interest was nurtured throughout a year involving monthly meetings, a community assessment and submission of a development grant application. It was found that gaining entry into the community and building trust among participants, and between participants and researchers, were critical in this in‐place participatory community research. Lessons drawn from this experience applicable to similar efforts are discussed.     

Using a Community Participatory Research Approach to Understand Satisfaction with Psychopharmacology Among Families of Children with Psychiatric Co-Morbidities

How do parents of children with psychiatric co-morbidities perceive their children’s use of psychiatric medications? To learn more, the Parent/Professional Advocacy League of Massachusetts (PAL), representing families of children with mental health needs, collaborated with researchers on a community-based participatory research (CBPR) study. A questionnaire assessed satisfaction with psychiatric medication as it pertained to children with psychiatric co-morbidities (n = 212). Satisfied parents were likely to employ alternative therapies and feel that prescribers had informed them about medication use and side effects. Results reinforce the need for prescribers to discuss psychopharmacology with families. CBPR improved study relevance and supported PAL’s advocacy efforts.     

Homelessness and Mental Disorder: Policy Considerations

Abstract

‘Photovoice’ is a photographic method that is used for several purposes (e.g. storytelling, building awareness, enhancing personal discovery), including conducting community-based participatory research (CBPR). Since its creation, photovoice has been used as a method for implementing health-related CBPR projects with people experiencing homelessness. As such, this article presents an overview of seven peer-reviewed publications regarding photovoice projects that were conducted with participants who are homeless. The goal of the review is to provide health professionals with a practical summary of the lessons learned from each photovoice project's methods and findings. Based on the literature, the review's major suggestion is that health professionals should plan and implement future projects according to the fundamental aspects of photovoice (e.g. empowerment of participants to document their community, facilitation of group discussions of photos, concerted efforts to reach policymakers).     

Status of organization–public relationship research from an analysis of published articles, 1985–2004

This study analyzes trends and patterns of research about organization-public relationships (OPR) through a content analysis of articles published between 1985 and 2004. The current status of OPR studies suggests that we have made progress in OPR research over the past two decades but need to explicate, replicate and extend the existing studies and cumulate the research trend.     

Application of mixed-methods design in community-engaged research: Lessons learned from an evidence-based intervention for Latinos with chronic illness and minor depression

The purpose of this paper is to share lessons learned from a collaborative, community-informed mixed-methods approach to adapting an evidence-based intervention to meet the needs of Latinos with chronic disease and minor depression and their family members. Mixed-methods informed by community-based participatory research (CBPR) were employed to triangulate multiple stakeholders’ perceptions of facilitators and barriers of implementing the adapted intervention in community settings. Community partners provided an insider perspective to overcome methodological challenges. The study’s community informed mixed-methods: research approach offered advantages to a single research methodology by expanding or confirming research findings and engaging multiple stakeholders in data collection. This approach also allowed community partners to collaborate with academic partners in key research decisions.