Characterizing the systems of support for families of children with disabilities: A review of the literature

ABSTRACT

During early childhood, children require major support that is tailored toward their specific needs. For children with disabilities, families play a crucial part in providing the needed services. However, families often lack the knowledge, resources, and skills that would help them in overcoming challenges that arise while raising a child with disability. Although much research has focused on defining the needs of families with children with disabilities and the impact of disability on the family system, many questions remain. A comprehensive perspective is needed to identify the types of support families provide to the child with a disability, the impact of providing that support on family members, the support systems that are available to families, and the impact of support on society. This review consolidates the empirical research to date on family support during early childhood and outlines areas of research that need further exploration.     

Family group conferences: from Maori culture to decision-making model in work with late modern families in Norway†

Models and methods within social work and child protection services are disseminated across cultural and national borders. The family group conference (FGC), with its origins in traditional Maori culture, is one example of this. The application of this model presupposes an ‘extended family’. Based on sociological theory, we highlight and problematise the explicit inattention to relevant cultural differences. The assumed existence of the extended family is implied in the direct translation of the term. The family in late modern society is often described as diversified, elective and shifting. We argue that FGC is relevant to such families. In our conclusion, we point out that despite changes, the family remains associated with traditional family values as solidarity and joint obligations, responsibilities and continuity. FGC vitalise traditional family values and facilitate for modern families performing traditional family practices. From our exploration of discourses and analyses on how FGC may be transformed from supporting Maori traditional culture to become a decision model in a CPS of a society such as Norway, we find there is a compliance with two fundamental factors: the late modern family's negotiating practices and the revitalisation of traditional family values.     

COLAGE

Abstract

COLAGE (Children of Lesbians and Gays Everywhere) is a national, non-profit organization run by and for children who have one or more gay, lesbian, bisexual, and/or transgender (GLBT) parents. Our mission is to engage, connect, and empower people to make the world a better place for children of GLBT parents and families. This article chronicles COLAGE's work within the context of the larger GLBT-family movement. A review is made of the emotional and socio-political challenges that children of GLBT parents face, as well as the benefits and unique perspectives gained from growing up in a family outside of the social norm. Finally, COLAGE is conceptualized in terms of its prominence as a community based intervention for building networks, empowering youth, and ensuring society recognizes, validates, and celebrates all families.     

Russian lesbian mothers: Between “traditional values” and human rights

Abstract

Contemporary Russian state ideology has turned towards instituting “traditional family values,” an official turn that increased legal and social discrimination against queer families. The concept of “traditional family values” in the contemporary Russian state discourse refers to the “naturalness” of the heterosexual family, consisting of two parents and their biological offspring. This discourse eliminates the possibility of public lesbian parenting. Following the idea of the conceptualizations of queer temporalities in different geo-cultural contexts, I examine the impact of recent oppressive legal changes in Russia on reproductive choices, everyday parenting strategies, and social interactions among lesbian mothers. In this work, I seek to show more than the obvious harm caused by the “anti-gay law” in terms of its effects on lesbian-headed families. To do so, I analyze the strategies applied by Russian lesbian mothers to tackle the rapidly changing state ideologies and legislative landscapes. I do this by discussing the ways in which lesbian mothers in Russia “manipulate” their social status to avoid possible official or unofficial homophobic actions directed towards them and their children. For example, they may come out selectively, carefully choosing the people to whom they openly present their identity. I argue that to adhere to “ordinary” or “normal” family life, lesbian mothers in Russia use several survival strategies. One of these strategies relates to speculation about immigration to the “West.” That is, some lesbian families prepare all of the necessary documentation, secure valid visas, and attend special workshops where they receive legal and informational support on asylum seeking and emigration from Russia. Another set of strategies for maintaining family identity relies on the decision to come out as a co-mother during interactions with official institutions or to choose other identities; for example, godmother or sister of the birth mother of a child. An additional important strategy for lesbian mothers relies on drafting documents that maintain their rights in severe circumstances. This set of actions focuses on legally supporting the parental rights through the use of loopholes in the Russian legislation and drafting documents that maintain their rights to child custody and their partner’s property.     

Canada and Family Life

Abstract

Important Canadian factors are discussed to obtain a profile of this country, its communities, and family trends. The challenges for Canadian families are presented and include the sandwich generation, seniors, effects of divorce and remarriage, and same-sex marriages. A review of existing studies related to the strengths of Canadian families is included. The need for families to be strengthened has led to a variety of social supports available to the families of Canada.     

Systemic Therapeutic Approaches with Sexual Minorities and Their Families

Abstract

GLBTQ families encompass very diverse forms, all of which are interwoven with other differences such as class, race, ethnicity, religious and spiritual beliefs. This article will familiarize the reader with some challenges faced by families of sexual minorities and how different family therapy approaches might be applied. Training issues for therapists are identified and future areas for development are discussed.     

Genograms Redrawn

Abstract

One of the challenges faced by GLBT families is defining and representing family relationships in a way that is not constrained by heterosexist notions of family. This study explores the usefulness of asking lesbian couples to depict family relationships by adapting the genogram (family tree) techniques used in family therapy. Six lesbian couples were asked to construct their own family tree and to comment on the process. Genograms were found to be useful but needed to be redrawn, for example, with tiers and circles rather than traditional symbols. Drawing and redrawing genograms highlighted the importance of acceptance and affirmation versus homophobia and heterosexism in defining family relationships for the lesbian couples interviewed.     

Understanding Care Leavers in Russia: Young People's Experiences of Institutionalisation

Abstract

Care leavers in Russia represent one of the most disadvantaged groups in society. However, they have rarely been the focus of welfare policy debate and they receive little or no support in their independent living. This paper presents the findings of a survey of Russian care leavers. The emphasis is on care leavers' experiences of the Russian institutional care system, and the issues that impacted on their postcare transition to adulthood. A number of factors were found to influence the wellbeing of care leavers, including placement instability, institutional isolation, poor education, stigmatisation of care leavers, relationships with “houseparents”, and supportive and often challenging friendships. Findings are discussed in relation to debates about the degree and nature of institutional care of children in Russia and elsewhere.     

Lesbian-Headed Stepfamilies

Abstract

This paper examines the lesbian stepfamily. It considers the family structure, parenting roles, gender composition of the couple, the distribution of family labor, and the impact of familial and community support. It discusses some of the challenges facing lesbian-headed stepfamilies, their strengths, capacities and competencies, and the strategies these families use for coping with stigma and intolerance. The paper concludes with implications for policy and practice with lesbian stepfamilies.     

Being neither Pollyanna nor Henny Penny: Responding to McDonald and Jones

Abstract

This paper provides an account of the earliest contributions to family theory and practice by social workers, beginning in the late nineteenth century. The paper argues that the first widespread practice of ‘family work’ by the helping professions was carried out by social workers, primarily women, despite this being rarely acknowledged in the family therapy literature. An analysis of gender and its place in the development of professional status and the ownership of ideas is provided.

Summary

This paper has traced the place of the family in social work theory and practice since the beginnings of the profession, with a particular focus on theoretical developments in social work in the United States. A number of points have been argued. Firstly, there is significant historical evidence that social workers, most of them women, pioneered family work many decades before the term ‘family therapy’ was invented. This directly challenges the claim made by a number of family therapy historians that work with families was pioneered by psychiatrists in the 1950s and 1960s. It is argued here that this discrepancy is largely a result of differences in professional power and gender status.

Secondly, it is argued that the impact of psychoanalytic theory on social work was profound, not only in terms of how it might have distracted the profession from further developing its early family systems focus, but also in how its multidisciplinary practice tended to place social workers, again mostly women, in somewhat limited and prescribed positions.

In addition, it is argued that social work's emphasis on the family and family intervention has waxed and waned due to these concepts not appearing to fit neatly into divisions between fields of practice, such as casework, group work and Community development. While social work struggled with finding a place for the further development of family social work theory, the rapidly growing domain of family therapy quickly colonised this field of practice, giving little credit to the ground already laid by social workers.     

Meeting Families Where There Are

SUMMARY

This article focuses on families in general, both those we as social workers and other mental health professionals work with and those within which we live. Specifically, the focus is on ways that growth may be facilitated as family members operate according to the principles of acknowledging connectedness, suspending judgment, trusting the universe, creating realities, and walking the path with heart. The ramifications for individuals, families and society of the choice to pursue soul healing, or to undertake consciously a journey toward wholeness, also is discussed.     

Understanding Intergenerational Relationships in India

ABSTRACT

This paper makes an attempt to describe the status and role of elderly within the family and community institutions as a source of wisdom and knowledge, particularly to have an understanding of the intergenerational relationships in the Indian context. As the countries and areas of Asia develop economically and become more heavily urban, the familial support of the elderly has eroded. There are a number of reasons to think that traditional systems of familial care for the elderly in Asia have started to reflect this changing scenario in terms of increasing problems for the elderly. The Indian subcontinent too has experienced these transitional changes. But despite the changes in the structures and functions of Indian societies, families do preserve the norms of social hierarchy (of which the elderly are an important part), cultural styles and mode of living. At the same time elderly who are regarded as the sources of wisdom and knowledge are given due respect and place in the society within the ambit of the family and community contexts.     

Work–family conflict: comparing the experiences of Turkish and native Belgian women

ABSTRACT

While research has focused on a number of dimensions of work–family conflict (WFC), hardly any literature exists that analyses how differences in family systems might help to explain variations in WFC experiences. By employing Reher’s typology of strong and weak family ties to integrate existing research and identify unaddressed features, this study finds that researchers have generally understudied the role of structural family ties on WFC. Qualitative data gathered from interviews with highly educated native Belgian and Turkish immigrant women living in Belgium are used to analyse variation in the WFC experiences and coping strategies of these two groups. The results suggest that a number of interconnected factors related to family systems – including internalisation of gender roles, division of family-related responsibilities, support mechanisms and external pressures from family and society, and socialisation processes of minority women in both family structures – are highly significant in explaining variations in women’s WFC experiences.     

EDITORIAL

Abstract

Alzheimers Disease is a form of progressive dementia associated with diffuse degeneration of the brain, and has become more common in Hong Kong as the population has aged. Individuals with Alzheimers Disease may experience symptoms such as memory loss, poor judgement, and incontinence. They generally lack selfcare ability and require considerable care as their illness progresses. As the traditional caring function of Chinese families has been eroded, individuals with the disease pose new challenges to their family caregivers. Research using an intensive interview method revealed that family caregivers of people with Alzheimers Disease suffer heavy psychosocial, financial, and physical burdens.     

Family preservation and child protection: The reality of Children's Court decision-making

Abstract

Ainsworth and Maluccio (Australian Social Work, December 1998) drew attention to the increased use of kinship care for children who need care away from their parents. This paper discusses the aim of family preservation, on which kinship care is predicated, and the challenges for legal decision-makers to meet this aim when children are before the courts in need of care and protection. It draws from findings of a study of magistrates' decision-making in child protection cases (Sheehan 1999). The paper provides examples of family situations that typically confront the Children's Court in Victoria and the court's response to them as it attempts to balance the importance of family ties and the reality of risk for a child; a reality that challenges valued beliefs about families and their ability to always care for their children.     

Chapter 11. Caregivers of Children with Cancer

SUMMARY

When a child is diagnosed with cancer, families experience a devastating life event with immediate and long-term impact on quality of life, actvities of daily living, family dynamics, self identity, parental role, and sense of meaning in the world. However, despite the trauma, more recent studies are highlighting the resilience and functioning of families facing cancer in childhood. This chapter explores these family dynamics.     

Fatherless Families

Abstract

In Discourse on the Origin of Inequality and Emile or On Education, the eighteenth century political philosopher Jean-Jacques Rousseau raises several questions concerning the relationship of men to families. He claims that families in the state of nature lacked fathers and suggests that attaching men to the more primary mother-child unit continues to be a problem in civil society. I argue that Rousseau's model of the sentimental family grew out of his concern with integrating men into families. In comparing Rousseau with two contemporary authors, David Blankenhorn and David Popenoe, I show that both eighteenth- and late-twentieth-century strategies for resolving the problem of fatherless families require a gendered division of labor that preserves and promotes gender inequality. While contemporary advocates of the gender-structured family, such as Blankenhorn and Popenoe, make some concessions to the feminist demand for greater gender equality, they are in truth part of a long tradition that bases its ideal of family on the subordination of women to men.     

The Hetero-Gay Family

Abstract

The hetero-gay family is a relatively new family configuration that is headed by a heterosexual mother and gay father who conceive and raise children together, although residing separately. This article presents the unique characteristics of hetero-gay families and the potential implications for child development of growing up in a het-ero-gay family. Recent research on non-marital motherhood and fatherhood among gay men is used to inform the debate. Comparisons of hetero-gay families to other family configurations help highlight central issues and offer directions for future research.