Family Life With Children With Disabilities: The Key Role of Rehabilitation

This study examines the effects of children's medical impairments and functional disabilities and the use of medical care and rehabilitation on three family consequences (job changes, severe financial problems, and sleep disruptions). We use a life course perspective on the interlinked lives of family members, countertransitions, and career contingencies to understand the family impact of child disability. Using data from the 1994 and 1995 National Health Interview Surveys (N= 3,446), we find that the rehabilitation services that children receive account for (mediate) a large part of the observed association of children's medical impairments and disabilities on these family outcomes. Assistance in obtaining rehabilitation for children with disabilities could reduce the family costs and disruptive countertransitions associated with raising children with disabilities.     

A Commentary on What Social Workers Need to Know About the Individuals with Disability Education Act (IDEA) and the Americans with Disabilities Act (ADA)

Abstract

The Individuals With Disabilities Education Act (IDEA) and the Americans With Disabilities Act (ADA) offer important legal protections for school age children. This commentary outlines those protections for special needs children in both public and private schools. Social workers need to be aware of the rights children with disabilities have under each law. This information is particularly helpful for those practitioners who wish to advocate for the educational needs of children with disabilities.     

Blue-Ribbon Babies and Labors of Love: Race,Class, and Gender in U.S. Adoption Practice by Christine Ward Gailey

ABSTRACT

We investigated the adjustment of differing sized adoptive families rearing children with developmental disabilities. Families of 5 or more children (large: n = 54) were compared with families of 4 or fewer children (conventional: n = 69) on a variety of demographic and outcome variables measuring family strengths, family disharmony, marital adjustment, and adjustment to the adopted child. Analyses of covariance on the outcome variables demonstrated that parents of large families were functioning as well or better than parents of conventional-sized families. We concluded that adoption placement practice should not exhibit bias against the placement of multiple children with developmental disabilities in the same family.     

A Youth Perspective on Life with a Disability

Abstract

A momentous piece of legislation, the Americans With Disabilities Act (ADA) of 1990 provided for the elimination of discrimination against individuals with disabilities and more significantly is aimed toward improving their employment opportunities. There is, however, evidence that the ADA implementation has not moved fast enough in increasing employment opportunities for persons with disabilities. This article reviews the literature on disability and employment barriers, federal statutes, societal attitudes and biases, and human relations misconceptions associated with disabilities. It discusses social work roles, advocacy for social justice, implications for rehabilitation counselors, and issues related to disabilities and employment.     

A rights-based conceptual framework for the social inclusion of children and young persons with an intellectual disability

There is a basic principle that all children and young persons with intellectual disabilities should be able to enjoy citizenship on an equal basis with others. This includes enjoying personal dignity and exercising choice, control and freedom in social, community and cultural life, in keeping with their individual lifestyle preferences and aspirations. There is a need for a stronger human rights narrative to achieve this. This article identifies a conceptual framework for a rights-based approach to the integration of children and young persons with disabilities. Seven components of such a framework are identified: citizenship and social inclusion; recognition; agency; voice; capabilities; equality; and self-realisation. This framework was developed as part of an Irish case study involving consultation with young persons with intellectual disabilities, their parents or guardians and professional staff delivering support services. The rights of children/young persons with intellectual disabilities are essentially those of children generally. While this principle may be obvious in many respects, its implementation presents significant challenges. The need for a transformative narrative and its components are outlined.     

Using a logic model to evaluate the Kids Together early education inclusion program for children with disabilities and additional needs

Despite clear evidence that learning and social opportunities for children with disabilities and special needs are more effective in inclusive not segregated settings, there are few known effective inclusion programs available to children with disabilities, their families or teachers in the early years within Australia. The Kids Together program was developed to support children with disabilities/additional needs aged 0–8 years attending mainstream early learning environments. Using a key worker transdisciplinary team model, the program aligns with the individualised package approach of the National Disability Insurance Scheme (NDIS).AimThis paper reports on the use of a logic model to underpin the process, outcomes and impact evaluation of the Kids Together program.MethodsThe research team worked across 15 Early Childhood Education and Care (ECEC) centres and in home and community settings. A realist evaluation using mixed methods was undertaken to understand what works, for whom and in what contexts. The development of a logic model provided a structured way to explore how the program was implemented and achieved short, medium and long term outcomes within a complex community setting.Discussion and conclusionKids Together was shown to be a highly effective and innovative model for supporting the inclusion of children with disabilities/additional needs in a range of environments central for early childhood learning and development. The use of a logic model provided a visual representation of the Kids Together model and its component parts and enabled a theory of change to be inferred, showing how a coordinated and collaborative approached can work across multiple environments.     

Children with disabilities in Swedish child welfare – a differentiating and disabling practice

ABSTRACT

Research shows that children with disabilities are victims of violence and abuse to a higher extent than other children and thus need support from social services. In Sweden, cooperation between two different social services units is required to support children with disabilities in socially vulnerable families. In this study, we have examined the intersection between children and disability in a Swedish social services context from the perspective of childhood studies and disability studies. The reasoning of the two units including the child perspective emerged during focus group interviews based on two vignettes. The results show two different rationalities, which has consequences for the disabled child. In spite of a social policy where the ‘best interests of the child’ are meant to prevail and disabilities are meant to be interpreted as barriers in society, children with disabilities seem to be reduced to individuals who are lacking in ability and competency and who are profoundly victimised by power structures that favour the adult perspective in social services.     

Successful Vocational Rehabilitation for Individuals with Significant Mental Disabilities

ABSTRACT

Individuals with significant mental disabilities (SMD) frequently have scattered work histories (Finch, 1997; Tan, 1996). Often the SMD consumer is unable to find competitive employment or, if a job is secured, termination repeatedly ensues because of impaired interpersonal skills, faulty behaviors such as the inability to interact with coworkers, inadequate follow-through such as not reporting to work, and poor hygiene (Tan, 1996). The services provided to SMD consumers in this study were designed to address a cadre of support needs that would foster job retention and increase the number of successful employment closures. This cross-sectional exploratory study sampled 211 SMD consumers who received vocational rehabilitation support services through a vocational rehabilitation center in Columbus, Ohio. The SMD consumers sampled experienced both successful and unsuccessful employment closures.     

Successful Adoption of Children with Down Syndrome and Other Developmental Disabilities

Abstract

Children with many types of developmental disabilities have been successfully adopted. Nonetheless, there appears to be a belief among both adopters and some adoption workers that children with Down syndrome are especially easy to rear. The current paper uses different methodological strategies, including case-by-case matching and regression techniques, to test hypotheses relating to better outcomes for parents and families who have adopted children with Down syndrome in comparison to children with other developmental disabilities. The results demonstrated successful functioning for parents and families on a variety of measures, regardless of whether the adopted children had Down syndrome or other developmental disabilities. The positive stereotype for Down syndrome was not supported.     

One’s Enough for Now: Children,Disability, and the Subsequent Childbearing of Mothers

This mixed‐methods study explores the subsequent childbearing of mothers whose firstborn children have disabilities. I make use of matched data from the 1993 NHIS ‐ 1995 NSFG (N = 4,468) to determine the effects of child disability on the hazard of a second birth and draw on a series of 24 in‐depth interviews that explore the lived experience of raising children with disabilities. My findings suggest that mothers whose firstborn children are disabled have a lower hazard of a second birth. This reduction stems from mothers’ recognition that children with disabilities have extensive needs and that, in order to meet those needs and maximize their potential, they need to make strategic choices such as delaying subsequent childbearing.     

Theory,practice, and perspectives: Disability Studies and parenting children with disabilities

Abstract

In this process-oriented article, the authors weave short personal narratives with theoretical reflections to examine the relationship between Disability Studies scholarship and parenting children with disabilities. The authors present three findings: first, their position as parent-teacher-scholars informs their work in Disability Studies. Second, the work of Disability Studies scholars has the potential to positively influence parents’ understandings of disability; consequently, Disability Studies-informed parenting can influence parent advocacy for their children. Third, parent-scholars have the potential to create research that can positively impact parents, practitioners, and the field of Disability Studies. The authors conclude by arguing that there is a need for Disability Studies scholarship for and by parents. This work is significant because it challenges divisions between theory and practice, and articulates a need and responsibility for parents to grapple with alternative understandings of disability and alternative (collective) ways to create better social conditions for their children.     

A Critical Analysis of the Social Work Literature on Disabilities

Abstract

The principles of empowerment and demedicalization have been central to the formulations of rehabilitation and social service practices as well as case management, a core community support service provided to people with psychiatric disabilities. This study describes empowering and demedicalized practices in mental health case management. Semi-structured interviews were conducted with thirty leaders in the mental health consumer movement and five professionals. Twenty-five categories of such practices were developed and are presented. Findings have implications for both the nature of the interaction between case manager and client and for program structures, activities, and missions.     

Challenges,Barriers, and Opportunities: Social Workers With Disabilities and Experiences in Field Education

ABSTRACT

The purpose of this study was to explore the experiences of social work students with disabilities in field education. This qualitative inquiry used semistructured interviews exploring inclusion and accommodations in field education. The 15 participants were graduates of accredited BSW or MSW programs and reported one to five disabilities each. Four themes emerged: different experiences with visible versus invisible disability, confusion about accommodation, field as a learning opportunity regarding disability, and a sense of isolation being a social worker with a disability. This study provides information valuable to social work educators and field instructors regarding strategies for improving opportunities for students with disabilities as future social workers, aligning with the mission and values of the social work profession.     

Strategies to Foster the Career Development of People with Disabilities

Abstract

This paper addresses career development strategy within the context of social work practice in rehabilitation and disability. The author outlines the career development needs of people with disabilities and identifies contemporary ways of thinking about career development. Four specific career development tactics are discussed involving the provision of vicarious experiences, identification and appreciation of performance accomplishments, verbal persuasion to support appropriate risk-taking, and emotional arousal that facilitates the expression of feelings and the motivation to act. These tactics are promising avenues for strengthening vocational and career self-efficacy with the aim of helping people with disabilities to augment their career maturity and increase their personal flexibility.     

Social Work Strategies and Tactics in the Workplace

Abstract

Those social workers who offer employment services can frame job development and placement as a process of workplace socialization in which they facilitate the inclusion of people with disabilities in mainstream work settings. This paper examines the construct of workplace socialization and offers five specific strategies and related tactics for its facilitation in the context of social work practice in disability and rehabilitation.     

How Rehabilitation Professionals Define the Concepts of Spirituality and Religion When Working with Individuals with Disabilities

ABSTRACT

Recently, some helping professionals have called for the inclusion of spirituality and religion in practice. This has created an important debate. As a result, it has become apparent that individual educators and practitioners are unclear about what is meant by these concepts as they relate to practice. This study utilized in-depth interviews to understand the essential meanings that fifteen rehabilitation professionals assigned to the concepts of spirituality and religion in their practices with individuals with disabilities. Two essential themes developed for spirituality, and three developed for religion. Implications for the future use of these concepts in practice are discussed.     

Inclusion of children with disabilities in mainstream child development research

This study investigated whether children with disabilities are excluded from mainstream child development research. Fifteen per cent of 533 articles from Child Development and Developmental Psychology (1996–2010) were randomly selected. The exclusion rate was 89.9% when no mention of participants with disabilities was interpreted as exclusion and 66.7% when only studies mentioning disabilities were surveyed; 74% of studies did not provide justification for exclusion. Most studies could have included children with disabilities. Inclusion could be increased by adopting universal design principles and accommodations so that more children with disabilities can gain equal access to research opportunities and the benefits that accrue.     

An Exploration of Violence Among Homeless Women with Emotional Disabilities

Abstract

This research found a high incidence of violence among homeless women with emotional disabilities. The study reports that 82 percent of the homeless women with emotional disabilities had a history of violence in their lives. The most common form of violence was physical; the least common was sexual abuse. The practice and policy implications for these findings are discussed. It is suggested that the Olmstead v. L. C. (1998) ruling under the Americans With Disabilities Act might force states to provide better services to homeless women with a history of violence and emotional disabilities.     

Transracial Adoption of Children with Developmental Disabilities

ABSTRACT

This study investigated the transracial adoption of children with developmental disabilities. Thirty-four families who had adopted a child transracially were compared with 63 families who had adopted a child inracially; additionally, we compared adoptions in 13 families who had adopted both transracially and inracially. The adjustment of mothers and fathers was gauged separately at three time points using measures of depression, stress, family strengths, and subjective well-being. Results indicated few differences in functioning between transracial and inracial adoptive parents. Mothers in both conditions maintained low depression scores and comparable means on all other outcome variables. Fathers also revealed similar adjustment patterns despite adoption type. Thus, parents experience both short- and long-term positive outcomes from the transracial adoption of children with developmental disabilities.