Telephone Support Groups for Caregivers of Persons with AIDS

Caregivers of persons with AIDS experience numerous stressors in their caregiver role and could benefit from support groups. However, caregiving responsibilities make it difficult for many to attend face-to-face groups. This article describes experience with a telephone support group pilot project for this population. The time-limited, semi-structured groups used conference call technology; the eight session group protocol war designed to meet caregiver needs for information about resources and coping skills. Pilot data from interviews with group members from the first two completed groups on this project indicated that participants valued the group experience highly.     

Relationship Formation on the Internet: What's the Big Attraction?

We hypothesized that people who can better disclose their "true" or inner self to others on the Internet than in face-to-face settings will be more likely to form close relationships on-line and will tend to bring those virtual relationships into their "real" lives. Study 1, a survey of randomly selected Internet newsgroup posters, showed that those who better express their true self over the Internet were more likely than others to have formed close on-line relationships and moved these friendships to a face-to-face basis. Study 2 revealed that the majority of these close Internet relationships were still intact 2 years later. Finally, a laboratory experiment found that undergraduates liked each other more following an Internet compared to a face-to-face initial meeting.     

Patients with Keloids

ABSTRACT

A great deal has been written about the possible patho-genesis and treatment of keloids. However, the psychological effects these often disfiguring lesions have on affected individuals remains largely unexplored. During face-to-face and telephone interviews, patients were asked how keloids and keloid therapy may have affected their personal and social lives. This preliminary inquiry suggests that careful counseling may prove worthwhile for such patients.     

Vital Conversations with Family in the Nursing Home: Preparation for End-Stage Dementia Care

Family members of persons with advanced dementia may be asked to make complex treatment decisions without having adequate knowledge regarding the risks and benefits. This 6-month, prospective, randomized trial tested the effect of an intervention consisting of a face-to-face, structured conversation about end-of-life care options with family members of nursing home residents with advanced dementia. A comparison group received only social contact via telephone. Structured conversations between a palliative care team and intervention group family members included goals of care and how best to achieve those goals, and provision of psychosocial support. Psychosocial support was also provided via telephone at three 2-month intervals. Family members participated in three telephone interviews: baseline, 3, and 6 months. Specific advance directives for persons with dementia were extracted from medical records. Results showed that intervention families had higher satisfaction with care than comparison families at the 6-month time point, and they were more likely to have decided on medical options listed in residents' advance directives (Do Not Resuscitate, Intubate, Hospitalize) over time. Study findings reinforce the need for increased education and support for families around issues of end-of-life care decisions for advanced dementia.     

Social Workers' Experiences of Virtual Psychotherapeutic Caregivers Groups for Alzheimer's,Parkinson's,Stroke, Frontotemporal Dementia,and Traumatic Brain Injury

ABSTRACT

The objective of this study was to examine the challenges for social workers who transition from facilitating face-to-face psychotherapeutic groups to online web-based video groups with family caregivers of persons with chronic disease. Study data consisted of survey responses of a group of therapists who had facilitated a series of web-based video-conferencing caregiver groups over a period of 4 years. All therapists were trained using an intervention training manual and weekly supervision. They received minimal training with regard to using technology (computers, Internet, web cams, and headsets). Despite reported challenges in how the technology affected the group process, therapists described overall positive experiences transitioning from face-to-face to working online. All therapists reported that group interactions and client outcomes in the Internet environment were overall comparable to those that occur in face-to-face groups.     

Social Service Outreach Programs Using Elderly Korean Immigrants' Church Ties

ABSTRACT

This study examined how Protestant Korean-American churches and their pastors can serve as ties between Korean seniors and agencies that offer social services. Working in partnership with the North Central Texas Area Agency on Aging (NCTAAA) and 2-1-1 services at United Way, the researcher asked 53 Korean pastors in two counties in North Central Texas to participate in the study. Each was asked about his willingness to host an outreach program. Thirty telephone surveys and 11 face-to-face interviews inquired about current services and pastor willingness to serve as gatekeepers for seniors. Translation and transportation were the top social service needs. All pastors in the study agreed that their churches should be a vehicle to provide social service information to seniors. Indeed, five churches accommodated program outreach offered by the NCTAAA and 2-1-1 services. The host churches tended to have highly structured, regularly scheduled programs (e.g., ethnic senior schools) already in place. A total of 405 Korean seniors participated in the outreach events, and 28 seniors were assisted in benefit counseling by telephone. Altogether, the results suggest that social service agencies can use the church ties of Korean seniors for program outreach.     

Researching Homelessness and Rough Sleeping in the Scottish Context

This paper offers some reflections on a number of methodological and personal issues associated with researching homelessness, particularly in the Scottish context. It opens with an examination of the political and social construction of statistics on homelessness. It highlights the limitations of official data sources, and outlines the problems in quantifying (or even estimating) the extent of one of the most extreme manifestations of homelessness—rough sleeping. It identifies some other practical difficulties in conducting research amongst homeless people, such as setting and meeting interview targets, and questions the perceived level of risk in conducting face-to-face work with street homeless people. The second part of the paper considers a range of ethical tensions, posing a series of dilemmas which can arise for an academic researching homelessness. It is suggested that these issues and concerns could be widely applied to social policy research, and are therefore of equal relevance to academic researchers involved with any groups affected by poverty and social exclusion. Drawing on recent controversial practice debates, the paper questions the role of the researcher in perpetuating the so-called 'homelessness industry'. Finally, the paper argues that the researcher should seek opportunities to enhance user-involvement policy development as well as research. The paper suggests that researchers in the field of homelessness occupy a privileged position, providing a link between homeless people, agencies responsible for policy and practice, and politicians. It concludes that research can make a real contribution to understanding and alleviating homelessness. This, it argues, is the only valid justification for making a living out of homelessness research.     

Connection,connectivity and choice: Learning during COVID-19 restrictions across mainstream schools and Flexible Learning Programmes in Australia

The COVID-19 pandemic and associated school closures may have constrained educational participation particularly for students in disadvantaged circumstances. We explore how 30 disadvantaged students in secondary school (14 mainstream/16 Flexible Learning Programme) from Queensland, New South Wales and Tasmania experienced home learning during the first wave of COVID-19, teasing out nuances across two educational models. Drawing on semi-structured interviews with these students, our analysis revealed three interconnected themes inflecting their learning: connection, connectivity and choice. Connection captures the desire for belonging and practices that facilitated meeting this desire during system-wide disruptions to school routines and face-to-face learning. Connectivity captures the impact of digitally facilitated learning at home on students' ability to engage with curriculum content and with their learning community. Choice captures the availability of viable options to overcome barriers students encountered in their learning and possibilities to flexibly accommodate student preferences and learning needs. Students from Flexible Learning Programmes appeared generally better supported to exercise agency within the scope of their lived experience of home-based learning. Findings indicate a need for strengthening student-centred policy and practices aimed at leveraging the affordances of information technology, balancing self-directed and structured learning and providing holistic support to enable meaningful student choice.     

Connecting and engaging with health and social care: Exploring the core components of a telephone and web-mediated family navigation prevention service

Early engagement with health care, mental health care, and social services can promote the well-being of children and families. How practitioners can best support family engagement with these services however remains largely unknown. To address this gap in knowledge, data from a voluntary 12-week telephone and web-mediated family navigation preventive intervention called Navigate Your Way were subject to mixed-methods analysis. Twenty-nine caregivers and five family navigators contributed data to the study. Thematic analysis of weekly navigator check-ins, participant closing interviews, navigator discharge notes, and lab meeting notes was conducted and followed by quantitative analysis of navigator effort across project activities. Results were then mixed to illuminate the essential conditions for supporting family connection to health care, mental health care, and social services. Qualitative analysis identified themes related to empathic engagement and person-centred navigation as central to connecting families to needed services. Quantitative analysis of navigator effort identified participant outreach, weekly check-ins, service identification, and ongoing supervision as essential navigation activities. Together, providing an environment that is supportive, consistent, flexible, person-centred and tailored to families' specific needs are important for connecting to health and social care.     

Issues Related to the Use of Short-Term Groups for Adjustment to Divorce

Programs for divorce adjustment which utilize short-term groups provide a viable treatment intervention for meeting the needs of divorced clients. Through a comparison of such programs, this article identifies and discusses some of the issues and gaps in our present knowledge about the use of short-term groups for adjustment to divorce. Guidelines are provided for practitioners and agencies interested in developing divorce adjustment group programs or modifying existing ones.     

When Are Net Effects Gross Products? Communication

The rush to judgment about the social effects of the new communications media has branded them as positive and negative in equal measure. Alienation from "real world" relationships coupled with a lack of social regulation within the medium is balanced by liberation from the influences, inequalities, and identities to which people are subjected in face-to-face interaction. We argue that such general conclusions may in fact be turned upside down and propose that these media may actually strengthen social bonds but also reinforce power inequalities. Reviewing evidence of our research with university students, employing the social identity model of deindividuation effects, we show how these technologies can often be more "social," and socially regulated, than face-to-face interaction.     

Community older adults’ attitude towards the use of assistive devices

This study investigates how older adults’ attitude patterns affect assistive devices’ (AD) use in a small-household context of Singapore. Community older adults with physical limitations (n = 481) completed face-to-face interviews for 90 min. Latent Profile Analysis analysed multiple indicators of attitudes towards ADs. Three groups were classified: positive attitude group (PAG); negative attitude group (NAG); and unwillingness to pay for ADs (UPG). PAG was most likely to use ADs, while UPG was least likely to use ADs. The findings are expected to help older adults age in place by improving equal distribution of technology resources that assist with daily tasks and activities.     

Responsibility,scale and the valuation of rail safety

We report the results of two stated-preference surveys (one conducted using face-to-face interviews, the other via the internet) which examined how the values people place on preventing fatalities from rail accidents are affected by the extent to which victims are responsible for their death, and the scale of the accident. The results showed that respondents placed a premium on preventing deaths which involved a failure of the rail system, rather than the irresponsible behaviour of an adult victim, though this differential was less marked when the person behaving irresponsibly was a child, rather than an adult. However, the prevention of a death in a multiple-fatality accident was not accorded a significantly higher value than the prevention of death in the single-fatality case. As far as the overall results are concerned, there was an encouragingly close correspondence between the findings of the face-to-face and internet surveys.     

Planned telephone support for disadvantaged parents in North Wales: perceptions of service users

This paper draws on the findings of a qualitative evaluation to examine user perceptions of a planned telephone support intervention based in a disadvantaged area in North Wales. Telephone support services are tailored differentially to offer information, advice and/or counselling on a crisis‐led or planned‐intervention basis. Research focusing on telephone support, for the most part (and particularly in the UK) has examined crisis‐led as opposed to planned support services. The findings of our study resonate with earlier research findings about telephone support that suggest provision of non‐visual support in social care can overcome some practical and financial difficulties for users with little discernible loss to their experience of satisfaction with the service. In addition, the paper suggests that planned support may provide a valuable service to users who are most disadvantaged and marginalized and who have found traditional forms of support unsatisfactory. For such users, planned telephone support can offer one‐to‐one communication tailored to specific client needs. Moreover, it can enable the development of user trust in the service which empowers users to operationalize strategies in the context of a reliable, sustained, unthreatening (and thus minimal risk) relationship.     

Can You See the Real Me? Activation and Expression of the "True Self" on the Internet

Those who feel better able to express their "true selves" in Internet rather than face-to-face interaction settings are more likely to form close relationships with people met on the Internet (McKenna, Green, & Gleason, this issue). Building on these correlational findings from survey data, we conducted three laboratory experiments to directly test the hypothesized causal role of differential self-expression in Internet relationship formation. Experiments 1 and 2, using a reaction time task, found that for university undergraduates, the true-self concept is more accessible in memory during Internet interactions, and the actual self more accessible during face-to-face interactions. Experiment 3 confirmed that people randomly assigned to interact over the Internet (vs. face to face) were better able to express their true-self qualities to their partners.     

Computer Assisted Clinical Decision Making

The Databank of Program Evaluations (DOPE) is an experimental, on-line, telephone accessible, computerized system for acquiring citations and abstracts of treatment evaluation studies that are catalogued by type of client, type of setting, and type of treatment. Though DOPE has been helpful to clinicians for locating evaluation studies of immediate practical application, it is only one of many databases. The study reported here measures the effectiveness of DOPE on the quantity, quality, appropriateness, and time spent to locate evaluation studies. In four social work fieldwork methods sections, where students had been randomly assigned to DOPE/no-DOPE groups, the only statistically significant differences between the two groups was a substantial saving in time to locate evaluation studies. DOPE is not on-line at this time, but it may become available again soon.     

Impact of support groups on well-being of older women

The goal of this study was to determine whether differences in incidence of depression and level of well-being are manifested between older women, aged 60 and older, who attend either (a) a peer-run support group, (b) a staff-run support group, or (c) a comparison group (i.e., who do not attend a support group). Thirty-six women participating in peer-run and staff-run support groups and 9 women receiving nongroup support were administered the Geriatric Depression Scale and the Philadelphia Geriatric Center Morale Scale. Separate analyses of variance were employed on each scale to determine the significance of differences in scores according to facilitator type (i.e., peer-run vs. staff-run vs. comparison group). Analysis of scores on the Geriatric Depression Scale indicated significant differences between women in the peer-run groups and women in the comparison group, but no significant differences between women in the peer-run groups and women in the staff-run groups or between women in the staff-run groups and women in the comparison group. Analysis of scores on the Philadelphia Geriatric Center Morale Scale did not indicate any significant differences between women based on facilitator type. Results of this study have implications for those who run face-to-face support groups for older adults, for those who train peer group facilitators, and for community agencies that desire to initiate a support group system for their clientele.     

Impact of Community on Personal Well-Being in Urban China

ABSTRACT

As the work-unit system fell after economic reform in China, neighborhoods replaced work units as the primary provider of vital social services for the urban population and became a new social space for enhancing the quality of people's well-being. This study examined the neighborhood characteristics that influenced personal well-being of residents. Drawn by multistage sampling and administered by face-to-face interviews, the survey included a sample of 976 participants from 31 neighborhoods in urban Shanghai. Results indicate that neighboring behaviors enhanced subjective well-being of the young and middle-aged residents but had no impact on older people. Sense of community, on the other hand, was found to contribute to well-being of all age groups and was particularly strong among older people in more deprived neighborhoods. Findings inform development of community practice strategies for vitalizing community efficacy and fostering individual well-being in urban China. Recommendations for future research are made using the results of this study.     

Impact of Support Groups on Well-Being of Older Women

ABSTRACT

The goal of this study was to determine whether differences in incidence of depression and level of well-being are manifested between older women, aged 60 and older, who attend either (a) a peer-run support group, (b) a staff-run support group, or (c) a comparison group (i.e., who do not attend a support group).

Thirty-six women participating in peer-run and staff-run support groups and 9 women receiving nongroup support were administered the Geriatric Depression Scale and the Philadelphia Geriatric Center Morale Scale. Separate analyses of variance were employed on each scale to determine the significance of differences in scores according to facilitator type (i.e., peer-run vs. staff-run vs. comparison group).

Analysis of scores on the Geriatric Depression Scale indicated significant differences between women in the peer-run groups and women in the comparison group, but no significant differences between women in the peer-run groups and women in the staff-run groups or between women in the staff-run groups and women in the comparison group. Analysis of scores on the Philadelphia Geriatric Center Morale Scale did not indicate any significant differences between women based on facilitator type.

Results of this study have implications for those who run face-to-face support groups for older adults, for those who train peer group facilitators, and for community agencies that desire to initiate a support group system for their clientele.