Staff responses to age‐related health changes in people with an intellectual disability in group homes

The purpose of this study was to explore how supervisors in group homes caring for people with intellectual disability responded to the development of age‐related health changes in their residents. Ten group home supervisors working in the disability sector were interviewed once. Data were analysed using Dimensional Analysis. The study identified several factors related to whether a resident could stay ‘at home’ or would need to be moved to residential aged care (nursing home) including: nature and extent of group home resources, group home staff comfort with residents’ health changes, staff skill at navigating the intersection between the disability and ageing sectors, and the supervisor’s philosophy of care. The ability of older people with an intellectual disability to ‘age in place’ is affected by staff knowledge about and comfort with age‐related illnesses, staff skills at navigating formal services, staffing flexibility, and the philosophy of group home supervisors. Despite the growing international concern for the rights of people with disability, particularly in relation to decision making, questions about the older person’s choice of residence and participation in decision making about what was best for them, were almost nonexistent. Rather, decisions were made based on what was considered to be in ‘the best interest’.     

Narratives of ‘mixed race’ youth in South Korea: racial order and in-betweenness

South Korea has long been regarded as a country with a single ethnicity. Honhyeol, which literally means ‘mixed blood’ in Korean, exemplifies this orientation. In recent years, the number of ‘mixed race’ children in the country has been on the rise due to the increase in international marriages, particularly between Korean men and foreign women. Drawing on the personal narratives of 56 youths (aged between 9 and 17) obtained from three essay contests, this article examines how, why, and in which contexts the racial hierarchies of ‘mixed race’ children in Korea are constructed. Narratives of ‘mixed race’ children and their peers show that a ‘hierarchical racial order’ – characterized by a color-coding system that simultaneously operates along the lines of national origin – is channeled into ‘mixed race’ people’s everyday lives, thus shaping their identity constructions.     

In search of disability: a critical discourse analysis of a Key Stage 1 guided reading scheme

This paper employs critical discourse analysis to examine the representation of disability in the children’s Oxford Reading Tree Series Read with Biff, Chip and Kipper. The representation is found to influence self-identity and social attitudes towards disability, for it grants ‘normalcy’ a status of idolatry. Such elevation of normalcy elicits ‘normate’ culture, which, in turn, can generate ‘aesthetic nervousness’. This hegemonic tradition therefore produces a replicative process that is consequential to the production of future texts, social justice and an inclusive society.     

‘Birds of a feather stick together’? Negotiating community,family and intimate relationships between ‘established’ and ‘newcomer’ Caribbean migrants in Britain

This article explores the ‘invisible’ boundary separating and informing social relations among ‘established’ and ‘newcomer’ Caribbean migrant communities in Britain. To briefly note, ‘established’ migrants are characterised in the analysis as those Caribbean migrants who settled in Britain from the 1940s, their offspring and subsequent generations. In contrast, the ‘newcomer’ represents a new influx of Caribbean that arrived and settled in Britain from the late 1990s onwards, either with a legal or illegal resident status. The common assumption is that ‘established’ and ‘newcomer’ groups are bonded together through shared cultural and ethnic background. Therefore any differences that exist between the two groups tend to be ignored because it is assumed that the newcomers are automatically absorbed into existing Caribbean communities. However, this empirical study of Caribbean families suggests that inherent differences exist between these two groups. To discuss issues of intra-ethnic diversity the analysis is guided by a social capital approach. It also draws on the views and perspectives of Caribbean people to highlight the social hierarchies and cultural stereotypes that exist between ‘established’ and ‘newcomer’ migrants. Concentrating on the ‘invisible’ and intra-ethnic boundaries between the ‘established’ and ‘newcomer’ migrants, the discussion explores issues of change and continuity, and also problems and opportunities that emerge within Caribbean family networks and their intimate relationships.     

The making of Jamaica’s ‘National Policy for Persons with Disabilities 2000’: macro,meso and micro factors

This paper summarises the findings of my doctoral thesis on the development of Jamaica’s first rights‐based disability policy: The National Policy for Persons with Disabilities 2000. The research had two main aims. First through conducting a retrospective case study, was to construct a history of the national policy’s development, which was made possible by a series of events. Second, was to explore through using Easton’s thesis, that policy is developed within an extra‐ and intra‐ societal environment in order to investigate how macro, meso and micro factors have influenced the policy‐making process. The thesis synthesises Easton’s systems approach to policy‐making with Lasswell’s classic stagist approach as a tool for discussing the policy‐making process in Jamaica. I argue that a combination of macro, meso and micro factors created an ‘opportunity’ for the national policy’s development, which represents a paradigm shift in Jamaican disability policy.     

Jia’s The Chinese Version

Abstract

The Chinese Character Simplification Programme of 1955–1957 that remains a national standard by force of law in the People’s Republic of China, not only degraded the aesthetic properties of the Chinese written character, but also hindered literacy by means of a haphazard formal reduction of the number of strokes, and by eliminating two-thirds of characters from the lexicon of those allowed for publication. In The Chinese Version painting series by Jia (b.1979), the artist arranges Chinese characters according to formal rather than semantic criteria, in order to generate by means of their juxtaposition, abstract or figurative patterns. Each character may retain its individual meaning, but not its function as a sequential syntagm. This strategy invests the characters with a formal aspect to ‘return’ that which was mutilated by the Simplification Programme. As the Simplification Programme’s formal changes ended characters’ role as image-signs, the artist’s choice to present each work as a painting alludes to their lost image capacity while appearing to imitate the outward aspect of printed characters, thereby implicitly turning against itself the pretext of character simplification for the sake of efficiency.     

‘Some kids climb up; some kids climb down’: culturally constructed play-worlds of children with impairments

In this paper, the author explores how children with impairments can act as self-monitoring, autonomous individuals in their play in a community playground. In addition, the notion of children with impairments as creative agents in their play is examined. The evidence presented in this paper is derived from the views and perspectives of children with impairments as playground users, and was collected from the children’s photographic scrapbooks and the researcher’s own observations of children’s play in a naturalistic playground setting. The theoretical perspective for this paper draws on the emerging ‘social model of childhood disability’ and provides scope to attempt to understand the culturally constructed play-worlds of children with impairments.     

Making the familiar strange and making the strange familiar: understanding Korean children’s experiences of living with an autistic sibling

Based on the findings of a small‐scale study using visual ethnographic techniques with nine South Korean children, this article explores the role of culture in understanding autism. While autism is embedded within the ‘strange’ and ‘unfamiliar’, linked to exclusion and discrimination in Korean society, the children focussed on reframing their experiences of living with autism as ‘ordinary’. Despite the limitations of the small sample, the richness and depth of data generated by children themselves offers new insights into children’s interpretations and experiences of autism and raises interesting questions for cross cultural research in the field of disability.     

The ‘gong beat’ against the ‘uncultured’: contested notions of culture and civilization in Mongolia

This article explores the Mongolian concept of ‘culture’ (soyol) and its transformation in the state socialist and post-socialist eras. The notion of culture and those without it – the soyolgui or ‘uncultured’ – played enormously important parts in the construction of the new society of the Mongolian People’s Republic. The history of the twentieth century shows a transformation of this highly normative concept from a category associated with teachings, doctrine, ethics and nurturing to one linked to modernist notions of hygiene, secular education, urbanism and cosmopolitanism. In addition, however, it became a category that included a set of historical styles and works thought of as national ‘cultural heritage’ (soyolyn öv). This was the result of a movement that in the late socialist period led to the critical re-evaluation of earlier Eurocentric uses of the ‘culture’ concept, and that sought new applications of the notion of ‘civilization’ – in particular by popularizing the metaphorical term ‘nomadic civilization’ (nüüdliin soyol irgenshil). I argue that these strands of thought have become central to the new nationalist politics of post-socialist Mongolia and form the basis of what remains by way of political orthodoxy, following the collapse of Soviet ideology.     

Work-based learning in social work education: the challenges and opportunities for the identities of work-based learners on university-based programs

This article explores the experiences of work-based learners undertaking social work degrees in the UK. The article is based on research of work-based learners on undergraduate social work degrees based in two universities, a local face-to-face university and a national distance learning university. Based on narrative inquiry methods for data collection, the article presents two case studies from the wider study which provide narratives of ‘becoming’ and ‘being’ a student. Drawing on identity theory, the article analyses how identity is an important concept in understanding the challenges and opportunities for this group of students on their journeys into and through higher education. The paper concludes by considering the implications for current provision of social work education.     

Racialisation and the afterlife of colonial divide and rule: a response to Avtar Brah

In this response to Avtar Brah’s review of Race Otherwise (2017) I briefly clarify the relationship between the concepts ‘racism’, ‘race’ and ‘racialisation’. I expand my framing of the book as less about racism and more about specific processes of racialisation. To this end I draw on material from and beyond the book to illustrate the value of the concept ‘racialisation’ for understanding the afterlife of colonial divide and rule in South Africa and other former British colonies in Africa. I show the ways in which re-articulations of the ‘signification-action complex’ at the heart of processes of racialisation in post-1994 South Africa produce a politics of evasion as well as tensions between struggles for recognition on the one hand and on the other, struggles for justice and freedom. With these re-articulations come varying convergences - of claims of culture, belonging and victimhood, genomic science, jurisprudence and global discourse on indigenous rights – that reify notions of ‘race’ and ‘tribe’.     

Living with dying and disabilism: death and disabled children

This paper explores the ‘offensive presence’ death has sometimes represented in disability studies. The paper focuses on interviews with three mothers of children with the label of life‐limiting and life‐threatening impairments and positions their experiences within the current policy context for disabled children in England. The narratives are part of a wider on‐going study funded by the Economic and Social Research Council ‘Does Every Child Matter, post‐Blair? The interconnections of disabled childhoods’ (RES‐062‐23‐1138). Findings include: (i) families experience social isolation and poverty; (ii) support from services is lacking and/or inappropriate; (iii) families worry about the future and the (physical, social and emotional) costs of care. The paper concludes by suggesting that social oppression theories of disability have much to offer in terms of challenging the disadvantage disabled children and their families’ experience during life and in death.     

Children’s conceptions of the word ‘disabled’: a phenomenographic study

The aim of this study was to investigate the qualitative differences in children’s conceptions of the word ‘disabled’. Two hundred and thirty children, aged 7–12 years of age, were instructed to make a drawing of what came into their minds when they heard the word ‘disabled’. A brief written commentary on their drawing was also requested. The drawings and comments showed that the children had a positive attitude towards the word ‘disabled’. They drew and commented that a disability had medical causes, a technical device was a prerequisite for disabled people, a disability had social consequences and that a disabled person needed support. The children also explained that there were obstacles which impaired disabled people’s performance of activities. Access to some environments and being an active part of society was limited for some disabled people.     

The Principles and Ethics of Including Children with Disability in Child Research

This paper provides a set of principles and ethics, developed in collaboration between Pacific‐ and Australian‐based researchers, to guide research practice in a project enabling the self‐reporting of children with disability in Vanuatu and Papua New Guinea (PNG). The paper presents both a summary of academic literature relating to these principles and ethics, as well as their succinct ‘translation’ into a set of action statements for researchers working with children with disability. The paper offers a base for further development by others to guide research practice and foster the autonomous participation of children with disability in developing countries.     

(Visual) Disability – from exclusive perspectives to inclusive differences

By introducing the concept ‘inclusive differences’ of disability this paper suggests that disability is the outcome of historically specific, embodied human and non‐human configurations fabricated within the conduct of everyday life. Inclusive differences question the attempt given by exclusive perspectives that try to divide analytically, conceptually or politically ‘disability’ a priori into an individual (natural) bodily impairment or a purely socio‐cultural attributed disability. Applying the concept of inclusive differences, neither the domain of ‘nature’ nor ‘society’ can function as a disability’s self‐explanatory force. Rather, inclusive differences highlight the connection between human and non‐human relations that make up the different enabling and/or disabling scenarios of societal realities. Drawing on the practices of blind people in a visual culture this paper discusses related specificities of inclusive differences.     

Polanyi’s two transformations revisited: a ‘bottom up’ perspective

ABSTRACT

In The Great Transformation, Karl Polanyi offers a ‘top-down’ analysis of the rise and demise of Europe’s unregulated market system. He assumes that changes in the organization of the international economy provide particular kinds of opportunities for states to act which, in turn, shapes the extent to which social forces will be able to influence state policy. Consequently, his analysis focuses, first, on the international institutions created by the self-regulating market system; then on the ‘liberal state’ which these made possible; and finally on how the system impacts ‘society as a whole’. The account which this analysis produces systematically underplays the social struggles which propelled and emerged from the rise of Europe’s nineteenth century system and which ultimately led to its demise. In revisiting the two periods that are the focus of Polanyi’s analysis, this article assumes that states and interstate systems reflect the interests of powerful social forces. Thus, working from the ‘bottom up’, it focuses on the class interests that produced Europe’s market system, the state and international structures which reflected and supported them, and the social struggles that ultimately brought about the collapse of the system. What this ‘bottom up’ account reveals is the centrality of a ‘double movement’, not of market expansion and a protective countermove on the part of ‘society as a whole’, but of dominant classes monopolizing economic opportunities from global expansion, and a rising ‘red tide’ of disaffected workers. This double movement, it argues, better explains the demise of the system and the changes that ensued from it.     

Do self‐assessment and self‐directed support undermine traditional social work with disabled people?

In recent years, self‐assessment and self‐directed support have become mainstream options within disability services. The Disabled People’s Movement has advocated the need for such change for a long time but this has been persistently resisted by many social workers. In this article, it will be argued that both self‐assessment and self‐directed support undermine traditional social work and that social workers need to begin to work alongside disabled people, rather than ‘for’ disabled people, in order to achieve substantial system change.     

Towards a ‘Harmonious Society’? a brief case study of the post-Liberation settlement in Beijing of Uyghur intellectuals and their relations with the majority society

Currently, the construction of a ‘Harmonious Society’ is an important yet challenging official project in the People's Republic of China. Under Chinese Communist Party supervision, the government has undertaken some measures to achieve this goal. In the country's capital, Beijing, the majority society (‘social majority’) is composed of peoples considered to be Han Chinese (), but the population there also includes representatives from 55 recognised minority society groups (). Many such latter groups, especially Uyghurs and Tibetans, have long maintained distinctive cultural traditions, practices, languages, and ‘memories’ from those of the majority society – and are ‘different’ in physical appearance, customary dress and other features. Officially, however, all are ‘Chinese citizens’ (). Recently, some negative and disharmonious trends have appeared in majority-minority relations. Based on academic fieldwork research, this essay focuses on ‘Uyghur intellectuals’ in Beijing, analytically discussing their relationships with the majority society there, identifying issues and problems in those relationships, and offering informed, constructive suggestions to achieve a more ‘Harmonious Society’ in China.     

Cursed creatives: alienation,sublimation, and the plight of contemporary creative work

ABSTRACT

This paper connects the critical discourse on the ‘creative class’ with a longstanding lineage of thought on creativity in psychoanalysis, demonstrating their combined value in understanding worker subjectivity and exposing the perils of contemporary creative work. Drawing upon object relations theorizing in particular, the argument is made that the ‘objects’ of contemporary creative work coupled with its surrounding ‘potential space’ prove severely impoverished, giving rise to a newfound experience of alienation. Accounts of creative workers are presented to further elucidate alienation’s unconscious correlates, as well as to suggest ways of mitigating creativity’s compromised expression through the process of ‘sublimation’ – a concept central to the psychoanalytic theorizing on creativity, yet wholly absent from the contemporary discourse. Implications for the critical study of the ‘creative class’ are discussed.     

‘Access and achievement or social exclusion?’ are the government's policies working for disabled children and their families?

The past decade has seen significant developments in policy and practice for disabled children and their families. In particular there is a new focus upon access and inclusion, with increasing awareness of the need to see disabled children and families as active partners within policy development and implementation. There is growing awareness of the implications of disability discrimination legislation across children's services and of the importance of improving arrangements for early identification and intervention to maximise disabled children's participation within mainstream services. The National Service Framework, the advent of Children's Trusts and a new Special Education Needs (SEN) Action Programme, together with the introduction of direct payments, give encouraging messages about multi‐agency working and a strategic and ‘joined up’ approach to childhood disability. However, many disabled children and their families continue to experience discrimination, poverty and social exclusion. The challenge for the Government is to ensure that disabled children are ‘mainstreamed’ across all policy initiatives and to recognise the talents and ambitions of disabled children and their families in service design and implementation. Copyright © 2003 John Wiley & Sons, Ltd.