A personal validation of the social nature of disability: different environments,different experiences

There is neither a unified definition of disability nor a unique experience of disability across the world. The present paper aims to explore the lived experiences of disability in three different countries – Turkey, England and the USA – to evaluate the continued value of the social model of disability in those contexts. A comparison between these countries is provided through the lens of my personal experiences in each country as a disabled student and an academician. As can be seen in each example, whilst impairment does not change, the role of disabling barriers did change depending on the physical, social and psychological nature of the respective environments. We can therefore reasonably refer to the extent to which environments are disabling or non-disabling aspects of each setting. The paper provides a personal validation of the social nature of disability.     

Children's experiences of disability: pointers to a social model of childhood disability

The social model of disability has paid little attention to disabled children, with few attempts to explore how far it provides an adequate explanatory framework for their experiences. This paper reports findings from a two-year study exploring the lived experiences of 26 disabled children aged 7-15. They experienced disability in four ways—in terms of impairment, difference, other people's behaviour towards them, and material barriers. Most young people presented themselves as similar to non-disabled children: it is suggested they may have lacked a positive language with which to discuss difference. It is further argued that Thomas's (1999) social relational model of disability can help inform understandings of children's experiences, with 'barriers to being' having particular significance.     

Gender and Disability in Male‐Dominated Occupations: A Social Relational Model

Evidence from male‐dominated sectors points to high levels of disability and the disabling nature of working environments. However, research of this nature assumes a medical model of disability that does not account for the social construction of disability or the lived experiences of disabled employees. Using data from seven focus groups (n = 44) and semi‐structured interviews with professional transport employees with life‐long hidden ‘impairments’, including dyslexia, dyscalculia, dyspraxia, ADD/ADHD and Asperger syndrome (n = 22), this paper explores the lived experiences of men and women working in a sector traditionally dominated by men, the transport industry. Key themes include homosociality, public–private divide and the impact of changing work practices. Further, the data revealed how those with hidden ‘impairments’ in part construct their identities in relation to both non‐disabled colleagues and those considered stereotypically representing disability (wheelchair users). This study furthers understandings of the relationality of gender and disability in the workplace, and the lived experiences of disabled employees.     

Women with disabilities in the North West province of Cameroon: resilient and deserving of greater attention

Cameroonian women living with disabilities face three‐fold discrimination as a result of their sex, perceived inability and low socio‐economic status. A needs assessment using focus groups (two focus groups, n = 24) and key participant interviews (n = 12) was conducted to explore the experiences of women with disabilities in the North West province in both urban and rural areas. The findings show that women faced both physical and attitudinal barriers, lived in poverty and felt that they lacked opportunities for gaining an education, finding employment and forming meaningful social ties. There was significant complexity of relationships, marriage and children in their lives. Participants generated ideas on changes that needed to be made for the betterment of their lives. Aspirations included increasing empowerment and education, gaining support from family and friends, increasing public awareness, adapting the physical environment and finding allies.     

Barriers to employment: voices of physically disabled rural women in Thailand

Employment is an essential activity that can generate income for people with disabilities, but very little is known about the interplay between disabled women, family and paid jobs. This article, therefore, sets forth a qualitative method for examining barriers that affect the employment opportunities of physically disabled women. Findings drawn from face-to-face interviews with 20 physically disabled women who live in rural poverty in Thailand clearly indicate that physical barriers from built environment, personal limitations; attitudinal barriers from the non-disabled community, especially employers; and over-protection from families limit their employment opportunities. Despite showing their interests in the labour market, these women are still left behind and trapped in rural poverty. The author argues that this situation is due to the non-disabled community ignoring the potential of these women. The author also recommends that the government of Thailand, NGOs and disability organisations should introduce strong tailored interventions and a multifaceted approach to address the medical, social and legal aspects of restricted participation in the labour market in order to improve the employment prospects of women with physical disabilities.     

Competencies of disabled entrepreneurs in Iran: implications for learning and development

This qualitative research set out to explore competencies of disabled entrepreneurs by presenting their lived experiences in developing their capabilities to create and manage their own business. The research also aimed to identify the dimensions and components of entrepreneurial competencies of disabled entrepreneurs. The participants were 16 entrepreneurs with physical and mobility disabilities, four educational managers of disabled vocational education and rehabilitation centers, and four entrepreneurship academics. Our findings suggested that the disabled entrepreneurs possess specific personal and functional entrepreneurial competencies. Personal competencies include attitudinal competencies, entrepreneurial self-efficacy and entrepreneurship learning self-efficacy. Functional competencies encompass entrepreneurial competencies, commitment and social competencies.     

Hearing the voices of disabled students in higher education

Since the return of the Labour government to power in the UK in 1997 issues of social inclusion have risen up the political and statutory agenda within higher education (HE). This study reports the findings of disabled students lived experiences and views of transition from induction through to employability within one HE institution. The study examined the perspectives of disabled students via a questionnaire and face‐to‐face interviews. It found that there was still much work to be done in levelling HE experiences for disabled students and identified five key issues that should be addressed in order to enable access and entitlement to HE. These are pre‐course induction support, commitment by HE institutions to facilitating barrier free curricula, consultation with disabled students, institutional commitment to develop support services and embedding of personal development planning.     

The case for critical social gerontology in social work education and older women1

This article argues the case for the application of critical social gerontological theory and research to social work education and older women, both as a way of heightening student social workers' awareness and understanding of the complex and diverse experiences of older women who make use of personal social services AND to develop anti‐ageist and anti‐sexist practice. In presenting this ‘case for social gerontology’, the paper will draw on findings from the author's recent research with older widows.     

INTERACTIONS AMONG ‘OTHER WOMEN’: CREATING PERSONAL AND SOCIAL MEANING

This article examines the experiences of the ‘other women’, non‐academic women, who have created spaces of dialogue in which they are building networks and transforming their lives. It offers an analysis of the psychological and educational barriers they overcome in order to create personal and social change. It shows how dialogic and egalitarian learning and associative settings allow the other women to express their voices and build new proposals for the present and future. This has the potential to present new avenues for social workers and educators in their work with women in general and marginalised women in particular, pointing to more dialogic and egalitarian relationships and dynamics.     

Experiences of student veterans with social anxiety and avoidance: A qualitative study

Eight-to-ten percent of returning combat veterans report symptoms of Posttraumatic Stress Disorder (PTSD), of which 7–13% also report symptoms of Social Anxiety Disorder. Both disorders are characterized by maladaptive patterns of social functioning, which can have significant effects on the lives of returning combat veterans and increase suicidal risk. The objective of the present study was to identify elements of the lived experience of college student veterans experiencing social anxiety and avoidance. Twelve student veterans with post-9/11 active duty service were interviewed about their lived experiences with social anxiety/avoidance within the framework of phenomenological theory. Data was analyzed using multilevel coding and theme analysis. Analysis of interview themes (n = 12) clarified university campus environments that induce social anxiety/avoidance and the impact on personal and professional relationships, learning, and navigation of physical space. Implications of this study include addressing student veterans’ needs through clinical intervention and further representative research on prevalence rates of these risk factors in various university and community college settings.     

Navigating healthcare: gateways to cancer screening

This article is the first phase in the Gateways to Cancer Screening project – a user‐driven participatory research project that examines barriers and facilitators to preventive cancer screening for women with physical mobility disabilities. Through a systematic review of the existing literature on this subject we discover that, despite the fact that women with disabilities have the same biological risk of developing cancer as non‐disabled women, women with mobility impairments face systemic, architectural, procedural and attitudinal barriers to preventive cancer screening. Our goals are to identify barriers and facilitators to screening, identify the gaps in the existing literature related to issues of diversity and ultimately set the stage for disabled women to effect change through the telling of their own stories.     

Getting to know reality and breaking stereotypes: the experience of two generations of working disabled women

This paper sets out the results of a Spanish study of the experience and meaning of work among disabled women of two generations, with three types of disability (physical, visual and hearing). Performing a socially recognised activity such as a job is a source of emotional welfare and self‐esteem. Moreover, it confers a certain social status. For the participants in this study the kind of work involved, whether productive, paid and ‘extra‐domestic’ or ‘reproductive’, unpaid and done at home, acquires different meanings, since for disabled women, sexist stereotypes – already more or less accentuated in the culture – social attitudes towards disability and personal factors introduce relevant differences, while leading to conflicts and dilemmas that these women have to solve. At any rate, their sense of responsibility in performing all types of work should be emphasised as evidence of their sense of independence and personal competence, forming a keystone in their construction of a sense of identity and social integration.     

What It Feels Like for a Whore: The Body Politics of Women Performing Erotic Labour in Hong Kong

This article seeks to investigate the complexity of the working experiences of female prostitutes in Hong Kong, using an oral history approach. Based on 13 in‐depth interviews, I depict my respondents as performing the skilled emotional labour of sex in exchange for their clients’ money. Looking at the ways in which the women manage the job, the self and the business, I argue that their major problem is not with the commercial transaction (that is, the content of the work itself), nor with the ‘conflict’ between their personal and work selves, but with the social stigma, surveillance and dangers at their workplaces. Inspired by a post‐structuralist conception of power and identity formation, I propose a women‐centred lived‐experience feminist approach in the hope of filling the gap between the bipolar imageries of ‘sexual slavery’ or ‘sex radical’ that have been thrown up in the feminist debate over the meaning of prostitution. This approach emphasizes the inter‐relationships among women’s lived experiences, the micro‐sites of social surveillance and the macro‐condition of wider society. Although Hong Kong female prostitutes are not ‘political’ in fighting for their rights and benefits, they have tended to take the path of micro‐resistance in combating societal domination. They negotiate an identity of the ‘prostitute’ that is sensitive and flexible to different institutional areas that seems to jeopardize the neat binaries of madonna/whore, good girl/bad girl, victim/warrior, conformist/radical. This allows them to create their own space to work and survive.     

Belonging to the library: humanising the space for social work education

Abstract

This article describes the running of four Living Libraries on a UK postgraduate social work course. A Living Library is a metaphoric remodelling of a conventional library where people, as authors of their experiences, provide specialist knowledge based on authorial areas of expertise. In the Living Libraries discussed here, ‘Living Books’ carried stories of social work—their narratives were of lived experiences as people using social care services; as carers in personal relationships with others who use social care services; or, as social work practitioners. The focus of this article is on those Living Libraries involving the participation of the first two of these groups. Drawing on social psychology, phenomenology and human geography, we propose that a Living Library can act as a connective space within social work education by engendering a discursive forum where all participants—people with experiences of services, students, practitioners and social work educators—are given both the freedom and obligation to talk openly about their differential experiences, fears and hopes for social work. Through this process, opportunities are created to consider how improvements that meet all stakeholders’ interests may be achieved.     

Disabled students’ narratives about their schooling experiences

An ongoing interest in disabled learners’ voices has been reflected in a number of studies that explore students’ experiences of schooling, as part of the quest to understand how inclusive education can be achieved. These studies, however, have been conducted mainly in industrially developed countries, while very few studies exist from industrially developing countries such as Greece in which disabled people’s voices are under-represented not only in political processes but in research as well. The aim of this study was to investigate disabled students’ educational experience, their social interactions with peers and teachers, the choice of school and the support they received for responding to curricular demands and complexities. The results of the study confirmed that disabled students can provide invaluable information on matters involving their education, and showed how personal experiences of disability are influenced by the socio-cultural experiences lived in different social arenas, such as that of education.     

The work of disabled identities in intimate relationships

This article details a thematic analysis of disabled men and women’s accounts of past and present intimate relationships. Drawing upon the sexual stories of 25 disabled people, informants’ intimate relationships are explored as a site of emotional work, and as a site of other forms of (gendered) work. This article critically questions the work carried out by informants and considers the ways in which it was shaped by their lived experiences of gender, sexuality, impairment and disability. The article concludes that the requirement to carry out forms of work within intimate and sexual life constituted a form of psycho-emotional disablism.     

Domestic violence and women with disabilities: locating the issue on the periphery of social movements

Women with disabilities, like non‐disabled women, are at risk of experiencing abuse perpetrated by those closest to them. This paper reviews what is known about the domestic abuse of disabled women, explores some of the dynamics of that abuse and considers why this issue has not been high on the agenda of either the movement against domestic violence or the disabled people’s movement in the UK, taking into consideration several points that disabled women have raised. In doing so it focuses on the concept of compound oppressions as a potential explanation for the failure of this problem to have widespread recognition as a social issue.     

Understanding the social exclusion and stalled welfare of citizens with learning disabilities

Despite the UK’s recent history of promoting the social inclusion and equality of men and women with learning disabilities they remain a significantly disadvantaged group. Compared with their non‐disabled peers they are more likely to be unemployed, less likely to own their own homes and are at a significantly greater risk of physical and mental ill health. The first part of this paper discusses the welfare rights of citizens with learning disabilities in terms of New Labour’s welfare to work policies. The second part discusses the UK’s mixed welfare economy and its impact upon services for men and women with learning disabilities. The paper concludes by considering whether the social inclusion of men and women with learning disabilities can be promoted solely through policies that emphasise inclusion through work and the personalisation of welfare services.     

How is a sense of well-being and belonging constructed in the accounts of autistic adults?

This small-scale exploratory study sought to develop an understanding of the meaning of well-being and social belonging as represented within the narratives of adults on the autism spectrum. Employing an interpretivist approach facilitated the investigation of potential contributory factors to these lived experiences in order to inform further research regarding both this topic, and service provision for adults on the autism spectrum. The project involved a thematic analysis of issues of the magazine Asperger United (AU). Four broad main themes were identified: meeting personal needs, living with the consequences of an ‘othered’ identity, connection and recognition, and relationships and advocacy. Autistic adults reported many barriers to feeling that they belonged in a number of social spaces and the detrimental effect this had on their wellbeing. Fundamental to positive narratives of wellbeing, were feelings of connection and recognition from others and positive accepting relationships, with autistic-led spaces, particularly the Autscape conference, being frequently cited as of central significance in increasing feelings of wellbeing and belonging. This study has demonstrated a need for less focus on remediation and more on limiting the social isolation of autistic people.     

'All Doors are Closed to Us': a social model analysis of the experiences of disabled refugees and asylum seekers in Britain

In this article we undertake a social model analysis of the experiences of disabled refugees and asylum seekers, who are among the most socially and economically disadvantaged members of society in the UK today. The statuses of disability, refugee and minority ethnic group are each linked to discrimination and oppression (Oliver, M. (1990) The Politics of Disablement (London, Macmillan Press); Robinson, V. (1999) Journal of Refugee Studies, 12(1), pp. 78-87; Vernon, A. (1996) in: J. Morris (Ed.) Disability Studies: past, present and future (London, Womens Press), yet little consideration has been paid to the particular cumulative constellation of oppressions experienced by disabled refugees and asylum seekers.

In this article, several models are presented that demonstrate that disabled refugees and asylum seekers experience barriers to health and safety in their country of origin, such as impairment-creation through torture and war. Once in the UK barriers to social services, benefits and social contact prove similarly insurmountable.