Independent lives and the relevance of lifetime homes

A problem for disabled people, particularly individuals dependent on the use of a wheelchair, is housing that is not easily usable due to physical barriers. A proposed solution by government is the adoption of lifetime homes (LTH) standards that are likely to become mandatory for all newly constructed dwellings in the private sector in England by 2008. It is, therefore, an appropriate time to take stock of LTH standards, and to evaluate to what extent they are able to address the problems for disabled people caused by physically inaccessible housing. In doing so, the article provides a critique of LTH standards, and suggests that while they are, in some respects, a positive development, they are not, in and of themselves, a panacea in relation to rectifying the shortfall of accessible dwellings.     

Possibilities for change toward universal design: Japanese housing policy for seniors at the crossroads

Japanese government policies for seniors have long assumed that informal care by their families exists for them. The rapid aging of Japan is eroding the basis for this assumption. It is now necessary to include barrier-free design concepts in the basic requirements for dwellings to be used by everyone, not just seniors, to support independent living. Essential requirements in proposed guidelines are already in effect in the design and construction of publicly operated rental housing. But at this time, only the schemes of the Housing Loan Corporation of Japan for additional loans are being used, in cases where some design requirements for senior users are being met. The Housing Loan Corporation's loan system has long been seen as a policy on the part of government to boost the economy, particularly during recessions, but assistance for construction of higher quality dwellings has been lacking. This article discusses the basic philosophy of design guidelines and practical ideas to be considered in dwelling design and the merit of model dwellings constructed by housing manufacturers in Japan. It also discusses potential strategies to implement the basic ideas of design guidelines. It then proposes some possible methods to realize life-span dwellings, or dwellings designed for everybody.     

Possibilities for Change Toward Universal Design

Japanese government policies for seniors have long assumed that informal care by their families exists for them. The rapid aging of Japan is eroding the basis for this assumption. It is now necessary to include barrier-free design concepts in the basic requirements for dwellings to be used by everyone, not just seniors, to support independent living. Essential requirements in proposed guidelines are already in effect in the design and construction of publicly operated rental housing. But at this time, only the schemes of the Housing Loan Corporation of Japan for additional loans are being used, in cases where some design requirements for senior users are being met. The Housing Loan Corporation's loan system has long been seen as a policy on the part of government to boost the economy, particularly during recessions, but assistance for construction of higher quality dwellings has been lacking. This article discusses the basic philosophy of design guidelines and practical ideas to be considered in dwelling design and the merit of model dwellings constructed by housing manufacturers in Japan. It also discusses potential strategies to implement the basic ideas of design guidelines. It then proposes some possible methods to realize life-span dwellings, or dwellings designed for everybody.     

Disabling Homes: a study of the housing needs of disabled people in Cornwall

This research was carried out between January and July 1993. The study was an evaluation of housing need of disabled people who were wheelchair users through a process of consumer consultation. It was concerned to find out the extent and nature of that need whilst also testing out consultation through the use of research methods in comparison with a non-consultative approach taken by the local authorities. The nature of need was found to be qualitatively different to that found through the study of normative needs. A significant number of disabled people were being made more dependent by their housing and this was being reinforced by the agencies that were intended to help them. In particular, the failure to consult disabled people was leading the local authorities to make inappropriate plans for new build housing while the major need for adaptations was being undermined by their operation of the Disabled Facilities Grant. The findings support the call from other writers that the solutions to housing problems will only come through viewing disability as a civil rights issue.     

Chinese disability independent living policy

Despite strong statements on disability rights in Chinese legislation since 1990, independent living policy as experienced by disabled people falls short of the social inclusion goals expected from such a policy commitment. Analysis of empirical research about disabled people's experiences shows that responsibility for independent living rests primarily with disabled people and their families. Only when they have no family does the government provide support, in the form of institutional care. Very little personal assistance or community-based housing is available. Minimum income support and the introduction of social services are slowly addressing the social exclusion of disabled people in China.     

The changing landscape of public service delivery systems for disabled people in China: a Shanghai case study

This article will consider the current development of an emerging contract culture for the delivery of social services and its impact on disabled people in China. The discussion is based on an original qualitative study in Shanghai. The past 30 years have seen dramatic changes in China, which in parts have led to improvements in the lives of disabled people. The China Disabled Persons’ Federation (CDPF) became a key player in delivering these changes with the government. However, the CDPF is being criticized by disabled people for being too bureaucratic and not being effective enough in its delivery of services. One of its responses is to work with newly emerging not-for-profit organizations (NPOs) of and for disabled people. The CDPF has now begun to contract the delivery of some services to such NPOs. It is hoped that this may improve their effectiveness but the development of a contract culture in the delivery of services for disabled people may also be seen to pose a threat.     

The resale of right to buy dwellings: a case study of migration and social change in rural England

Drawing on data relating to some 500 households, taken from local government records and questionnaire surveys, this paper examines the processes of migration and social change associated with the resale of former local authority dwellings in a rural part of the East Midlands, England, UK. Legislative change principally stemming from the Housing Act (1980) has given tenants a `right to buy’ their rented dwelling from the local authority landlord. By focussing on the longer term impact of this process the findings of this study reveal a radical discontinuity with the past, as new households with contrasting characteristics to previous occupants move in when these dwellings are resold on the open market. The study shows that the relative affordability of the dwellings in a highly competitive rural housing market is creating an opportunity for comparatively young, dual-career and largely urban families to move to the countryside. Their movement into former local authority dwellings has important implications for the future provision of local needs housing in rural areas.     

Excluding exceptions: Housing non-affordability and the oppression of environmental sustainability?

This paper explores the provision of homes for less wealthy households in rural England. By allowing ‘exceptions’ to UK planning law to provide low-income housing for local residents, the national government seeks to secure dwellings for the less wealthy and so sustain socially mixed rural villages. This paper explores how the production of homes through the exception policy is not conducive to the construction of many new houses. The particular emphasis in the paper is on how responsible agents are discouraged from being more active in erecting new village homes for low-income households. Empirically, the paper draws on documents, interviews and a social survey in the counties of Bedfordshire, Cambridgeshire and Norfolk to investigate the process of delivering rural exception homes. It is concluded that, despite Government assertions that a socially mixed countryside is desirable, the decision-making criteria that dominate the worldviews of agents in social housing provision work against this outcome.     

Out of touch: local government and disabled people's employment needs

In autumn 2003 we contracted to undertake a study in two district council areas of ways in which they could meet their Local Public Service Agreement (LPSA) targets in respect of disabled people returning to work. We undertook a literature review of barriers to work, interviewed a number of people involved in working with unemployed people and a number of disabled people in these areas. All the employment organisations we had contact with were working to an individual model of disability and the need to change their orientation became the central recommendation of the first phase of this study. This was rejected by those funding the study. At the end of the first year none of the organisations active in this area was able to identify a single disabled person who had returned to work as a result of their help. We conclude that central government policies are doing little to change the perception of the employment needs of disabled people within local government.     

The Impact of the Housing Environment upon the Ability of Disabled People to Live Independently

The independent living (IL) paradigm proposes that the presence of environmental barriers affects critically the level of independence of people with disabilities. This study refines the IL paradigm and evaluates empirically the role that the environment plays in independent living, especially the influence of home adaptations and other housing variables on disabled people and their families. The results of this research indicate that housing adaptations have a variety of impacts upon the productivity of disabled people. Other housing issues are very important to individuals with disabilities, particularly tenants. This paper concludes by presenting implications for theoretical development and recommendations for housing policies which are responsive to the needs of disabled people.     

Taking a risk? The mortgage industry and perceptions of disabled people

This paper examines a relatively overlooked force within disability; the appraisal of risk, with a specific focus on disability and housing. In this context the paper explores how risk can operate against disabled people, using a case study of mortgage industry responses to disabled people in the mortgage application process. Given the recent downward shift in the buoyancy of the housing market this is a timely focus. The events in the USA, which led to the sub‐prime market ‘collapse’, and the consequent impact on the UK have meant that lenders have become even more risk averse, withdrawing numerous mortgage products and reducing loan amounts. This has left many people unable to access the owner‐occupier sector, but for disabled people this can be even more difficult. The role of risk in ‘the disabling process’ is therefore of great importance, and is illustrated here through the practice of risk assessment.     

Adoption of technology by the low-income population segment: The low-cost hot water heater case

The employment of means for efficient use of water and energy are being increasingly incentivized, in relation to the sustainability of buildings. In Brazil, there is much concern regarding the difficulty of getting low-income segments of the population to adopt energy-saving technologies. This study provides guidelines for the inclusion of manufactured, low-cost solar water heaters (LCSWH) in low-income housing in combination with environmental education of this segment of the population. Therefore, a group of dwellings located in a low-income community in Campinas SP, Brazil, was selected for installation of LCSWHs, which were assembled and installed by the study population itself, who also participated in environmental awareness workshops. Particularly apparent in the results obtained, was a tendency to reduce energy consumption by using the LCSWH, attributable in part to behavioral changes from environmental awareness; and that the planning, application or organized systematization of knowledge is feasible in low-income housing, provided it is not promoted solely by dependency culture, since the objective is to provide an instrument for self-discovery, mobilization and participation by the population.     

Disability, social exclusion and the consequential experience of justiciable problems

In this article, we examine the situation of disabled people in England and Wales with regard to one specific aspect of social exclusion—experience of justiciable problems, and the potential effects such problems can have on their lives. Having defined 'disability', we examine how this fits within the wider dialogue on social exclusion issues. By analysing the results of the Legal Services Research Centre's (LSRC) periodic survey of justiciable problems, we find that disabled respondents were not only more likely to experience a problem, they also experienced more problems. Increased likelihood of a problem was observed in the majority of problem categories and particularly those relating to issues of social exclusion, such as housing and welfare benefits. This propensity to experience multiple problems can lead to a negative impact on the lives of long-term ill and disabled people.     

Rights discourses in relation to education of people with intellectual disability: towards an ethics of care that enables participation

In this paper we argue that human rights approaches for intellectually disabled people have failed to recognise the complexity of rights claims made by and on behalf of this group. Drawing on a research project into discourses of education for intellectually disabled people in the Eastern Cape, South Africa we discern three rights discourses; namely, rights to full participation, rights to special services and rights to protection. These draw off a social model, a medical model and a protective model, respectively. We note that these discourses may be set up in contestation with each other. However, we argue that they can be seen as complementary if viewed within an ethics of care that enables participation. Within this conceptualisation, participation is viewed within relations of care but is subject to a critique that examines the role of context and disciplinary power in constructing dependency.     

How context influences the ideologies and strategies of disabled people’s organisations: a case study from Cambodia

Abstract

Studies of disability movements have centred on exploring how movements have emerged and how their strategies have been devised to effectively advocate for the rights of the people with disabilities they represent. However, little attention has been focused on examining their organisational contexts and how they shape ideologies and choice of strategies, which have implications for the success of their advocacy endeavours. This article seeks to contribute to knowledge in this area by studying the case of a disabled people’s organisation in Cambodia. The resource dependency of disabled people’s organisations on international development partners results in their ideologies and strategies being driven by the latter. This has not only fragmented their resources, but also made their endeavours less relevant to the needs of people with disabilities. This may act to prevent such organisations from building a common ground for collective action, and from effectively pressing for social change.     

Knowledge, Power and the Disability Discrimination Bill

This article compares the social model of disability with the individual model upon which the Government's Disability Discrimination Bill is based. It uses Foucault's concepts of Power \ Knowledge and Governance, to develop an analysis which illustrates how both models of disability can impact on the identities of disabled people and local government practices. It suggests that, in order to assist disabled people to 'fashion a purpose', those disabled people and their allies working in local government need to operationalise the social model.     

Young, Gifted and Disabled: Entering the Employment Market

This article identifies the way systems and services are designed to help disabled people simply act to increase dependency. It argues that unless service provision is based upon our needs as we interpret them then we will continue to be excluded from the labour market. It is the summary of presentation given Simon Brisenden at an employment conference organised by Southampton Centre for Independent Living.     

Autonomy in long‐term care: a need,a right or a luxury?

Doyal and Gough’s theory of human need highlighted that personal autonomy is a universal need and human right, essential for well‐being. In applying their theory to older disabled people in the UK the author suggests that their ‘minimally autonomous’ threshold would exclude some older people in long‐term care who still have a fundamental need for autonomy or, alternatively, extant autonomy. The disability movement has highlighted that independent living is fundamental to achieving self‐determination for disabled people and debate on equality and caregiving emphasises the autonomy of carers. However, there is a lack of recognition in both academic research and government policy of autonomy as a need and right of older disabled people. The author argues that autonomy is a human right of older people living in long‐term care settings, but that social rights are necessary to facilitate their autonomy.     

Developing a model of disability that focuses on the actions of disabled people

Disabled people, writers on disability and disability activists stress the importance of disabled people being included in all aspects of society. I argue that a major omission from this inclusiveness is that no current model of disability focuses on the impact of the actions of disabled people on disability. Disabled people are not passive bystanders, powerless to reduce the restrictions of disability. On the contrary, we are central to actively limiting its constraints. I develop a model of disability, called ‘active’, which focuses on the effects on disability of the individual and collective actions of disabled people. I describe published findings which indicate that engaging in self-help, using support groups and deploying assistive technology can all reduce the limitations of disability. Recent increases in the number of disability support groups and developments in assistive technology have substantially augmented the potential for disabled people to combat the effects of disability.     

A review of the participation of disabled persons in the labour force: the Kenyan context

This paper presents a review of the challenges that disabled people experience in participating in the Kenyan labour market. It draws on existing literature and on a narrative of the experiences of one disabled academic in a Kenyan university to highlight some of the forms of discrimination that disabled people have to cope with in their workplaces. The goal is to further our understanding of the nature of barriers that disabled people face in the work environment in Kenya, with a view of exploring ways of addressing those barriers and developing some recommendations for improvement. It is clear from the interview with a disabled academic that, despite strides made by the Kenyan government in terms of enacting the Disability Act, which aims at boosting disabled people’s participation in employment, there is still a big gap between the law and its implementation. What is needed is constitutional change and implementation of the existing law at all levels, as well as provision of resources to support this change.