The Ethical Issues in Uranium Mining Research in the Navajo Nation∗

We explore the experience of Navajo communities living under the shadow of nuclear age fallout who were subjects of five decades of research. In this historical analysis of public health (epidemiological) research conducted in the Navajo lands since the inception of uranium mining from the 1950s untill the end of the 20th century, we analyze the successes and failures in the research initiatives conducted on Navajo lands, the ethical breaches, and the harms and benefits that this research has brought about to the community. We discuss how scientific and moral uncertainty, lack of full stakeholder participation and community wide outreach and education can impact ethical decisions made in research.     

Gender‐Sensitive Research in a Chinese Community

The aim of this article is to foster an awareness of the need for gender‐sensitive research in the context of the methodological and ethical challenges posed by such research. We trace the development of gender sensitivity and masculinity in social work practice and research and connect this to an overview of the issues posed by research on sensitive topics. Reflecting on a research project involving Chinese male sexual abuse survivors, we draw conclusions illustrating and proposing a range of methodological practices and ethical safeguards. We underscore the importance of gender‐sensitivity in performing research on sensitive topics with men in a Chinese community.     

Indigenous people policing indigenous people: the potential psychological and cultural costs

This research reports on the link between feelings of spirituality and how Navajo police officers tend to enforce European-based law. Previous research suggests that a link exists between the officers’ depth of feeling of spirituality and the officers’ attitude toward the effectiveness traditional methods of social control; however, this research goes a step further and examines the impact of cultural dissonance on the stressors faced by Navajo police officers. The enforcement behavior of the Navajo officers was used as a proxy for the intensity of their feelings concerning the usefulness of traditional versus European-based forces of social control; the underlying assumption being tested is that self-determination is not only a state of law but a state of psychological being. A snowball method of sample development was used to select officers for intensive interviews. The findings suggest that the officers’ feeling of spiritual connectedness to his/her culture is inversely related to the strictness of the enforcement of European-based laws. In other words, the more spiritual the officer, the less likely the officer is to rely solely on European-based laws, and the greater the reliance on other methods of problems solving. The finding also suggest that in addition to the stressors normally encounter by all police officers, Navajo officers faced additional stressors that are specific to indigenous officers policing in indigenous communities.     

Research on environmental health interventions: ethical problems and solutions

This article reviews a variety of ethical issues one must consider when conducting research on environmental health interventions on human subjects. The paper uses the Kennedy Krieger Institute lead abatement study as well as a hypothetical asthma study to discuss questions concerning benefits and risks, risk minimization, safety monitoring, the duty to warn, the duty to report, the use of control groups, informed consent, equitable subject selection, privacy, conflicts of interest, and community consultation. Research on environmental health interventions can make an important contribution to our understanding of human health and disease prevention, provided it is conducted in a manner that meets prevailing scientific, ethical, and legal standards for research on human subjects.     

Research on Environmental Health Interventions: Ethical Problems and Solutions

This article reviews a variety of ethical issues one must consider when conducting research on environmental health interventions on human subjects. The paper uses the Kennedy Krieger Institute lead abatement study as well as a hypothetical asthma study to discuss questions concerning benefits and risks, risk minimization, safety monitoring, the duty to warn, the duty to report, the use of control groups, informed consent, equitable subject selection, privacy, conflicts of interest, and community consultation. Research on environmental health interventions can make an important contribution to our understanding of human health and disease prevention, provided it is conducted in a manner that meets prevailing scientific, ethical, and legal standards for research on human subjects.     

More on plurality and authorship in science: A reply to Tang

Understanding the “political economy” of the research environment is at the core of getting clear on the ethical aspects of authorship. Questions about who should be an author on a scientific paper are complicated by the fact that authorship is used to determine credit inside science and by outside institutions whose interests and standards often differ dramatically. Much of the research ethics community seeks to impose an elite ethical consensus on scientific fields. I argue that this approach undermines the scientific autonomy of research communities. In contrast, we should develop bottom-up strategies that empower local communities and associations.     

社会工作研究中的价值介入与社会研究伦理考量

社会工作研究在研究方法、研究手段等方面都受到社会研究多种方法论范式的影响,社会工作研究者无论选择何种社会研究范式进行研究,都会在选题、分析、总结等过程中有不同程度的价值介入,而源于价值观的社会研究伦理又将直接影响研究者的研究选题、方法和结论。本文从社会研究中的价值介入问题入手,探讨社会工作研究中的价值与伦理问题带来的思考。     

Ethical Sharing and Reuse of Qualitative Data

The objective of this paper is to attempt to move beyond the impasse of ethical objections to reusing qualitative data. In doing so, there is no intention of dismissing the importance of ethical debates, in fact, quite the opposite. The debate about ethical reuse needs to be deepened and broadened. First, the current terrain of research ethics will be summarised and situated in the context of broader philosophical ethical frameworks. In contrast, the debates around ethics of archiving have often been narrowly focused on participants' rights. The framework of debate should be broadened first by recognising other entities traditionally deemed within the scope of research ethics, namely the scholarly community and the public. The second useful broadening of the framework is provided by a deontological ethical stance with its focus on duties. In the final section, this expanded framework will be used to rebut several common ethical arguments against archiving qualitative data: archiving violates confidentiality; informed consent for reusing data is impossible; reusing data violates trust between researcher and participant; and, archiving creates an unacceptably high risk of data misrepresentation. If a more general philosophical debate on ethics has something to contribute, the central message must be that no single ethical claim is incontestable. The conclusion will position these debates in a wider context by asking what is at stake when the boundaries of ethical discourse about sharing data are drawn too narrowly.     

MEASURING COMMUNITY DEVELOPMENT: PERSPECTIVES FROM LOCAL GOVERNMENT IN WESTERN AUSTRALIA

Local government in Australia has become an important site for discussions about community development and community well being, as increasing numbers of community services are being devolved to this level. Pressures towards greater accountability and demonstration of competitiveness, stemming from the implementation of National Competition Policy have led to attempts to better measure community development activities. In this paper we report on research conducted among management, elected members and community workers at five Western Australian Local Government Authorities which explored the nature and appropriateness of community development measurement. We found workers at all levels of employment struggling, not simply with notions of measurement, but also with fundamental understandings of community development.     

International research: Ethical imperialism or ethical pluralism? 1

Conflicts have arisen in international research when countries in which research is being carried out lack the ethical rules or mechanisms for review employed in the United States and Europe. It is objected that a requirement to adhere to regulations promulgated by the US government constitutes “ethical imperialism.”; But if researchers in some countries need not be bound by ethical standards widely accepted in the conduct of research, it could open the door to an ethical relativism allowing virtually any standard a country desires to accept. One example is the variations in informed consent, especially in countries that accord lesser importance to the individual than do the US and Europe. A recent controversy centered on a series of placebo‐controlled, HIV/AIDS trials sponsored by the United States and conducted in several developing countries. These trials could not ethically be carried out in the United States because a proven effective treatment exists. Attempts to avoid similar controversies in forthcoming HIV/AIDS vaccine trials have been initiated by the joint United Nations AIDS program, with a process of regional consultations in the countries where the research will be conducted.     

Statistics,ethics, and research: An agenda for education and reform

This essay argues that the research community needs to pay more attention to the appropriate use of statistical methods in discussions of research ethics, and proposes some strategies for enhancing discussions of the ethical uses of statistics within investigational, educational, and organizational settings. The essay supports its position by 1) explaining why statistics plays such a key role in research integrity, 2) describing how some common misuses of statistics in research violate ethical standards pertaining to honesty and error avoidance, and 3) reviewing evidence which suggests that the misuse of statistics is more prevalent (and perhaps more significant) than research misconduct (narrowly defined as “fabrication, falsification, or plagiarism").     

浅析社会工作伦理价值在社区矫正中的运用

随着社会工作在我国的蓬勃发展,社会工作伦理价值在社区矫正等领域的运用也逐步受到重视。在社会工作专业的发展历程中。价值和伦理问题始终是其重要议题。本文从分析社会工作与社区矫正的融合之处出发,分析了社会工作伦理价值在社区矫正中的运用,并对社区矫正中社会工作的伦理困境进行了探讨。     

The role of bears and bear ceremonialism in Navajo Orthodox traditional lifeway

The Navajos, who now number over 200,000 in population, are the largest, and one of the most culturally intact Indian tribes in North America. Reigning over a reservation of some 25,000 square miles in size, the Navajos, like many other tribal people have long respected and honored bears as being fellow “being” with whom they share the land. Because of the bears power, intelligence, acute senses, and physical features which closely resemble that of a human, they have also played a major role in Navajo tribal legends and ceremonialism. The purpose of this article is to briefly examine the place of bears and bear ceremonialism within the structure of traditional Navajo beliefs and religious practices.     

Addressing procedural challenges of ethical review system: Towards a better ethical quality of clinical trials review in Malaysia

The review of clinical trials with human participants in Malaysia is governed by a decentralized control system. The clinical trial protocols are reviewed by 13 registered research ethics committees (RECs) in Malaysia. A governmental body, the National Pharmaceutical Control Bureau, is responsible for the inspection and oversight of these registered RECs to ensure that they comply with the regulatory requirements. However, this study highlights that each REC in Malaysia has a different standard operating procedure and ethical review process. Other procedural challenges identified include inadequate membership, poor mechanism for research monitoring after ethical approval, and insufficient resources. Establishments of a national standard of REC and a central ethics committee are suggested to ensure procedural compliance in the oversight of clinical trials in Malaysia. While there is a growing concern that procedural compliance may not have a direct impact on the protection of human subjects, our key point is that an ethical review system compliant with the national standards could serve as a strong framework to support and enhance the ethical quality of decision-making and judgement. We believe that being aware of how influential procedural compliance can be would help committees improve the ethical quality of their research review.     

The role of federal regulations in assuring research integrity

The federal government has a proper interest in research integrity. Regulations have had effects on scientists and institutions; some appear to have been beneficial, such as recent educational efforts; others have augmented bureaucracy and sowed divisiveness. The federal oversight bureaucracy should be subject to the sunset provision.

Participation by the community is essential to the development of effective regulations, but ethical issues should be dealt with by professional standards, not laws. It is argued that the scientific community had begun to respond to public concerns when change was accelerated by regulation, and that change from within is most effective.     

Is failure to raise concerns about misconduct a breach of integrity? Researchers’ reflections on reporting misconduct

This article describes and discusses the views of researchers on the significance of raising concerns about scientific misconduct in their work environment and the reasons or circumstances that might deter them from doing so. In this exploratory qualitative research study, we conducted in-depth interviews with 33 researchers working in life sciences and medicine. They represent three seniority levels and five universities across Switzerland. A large majority of respondents in this research study argued that failure to raise concerns about scientific misconduct compromises research integrity. This is an encouraging result demonstrating that researchers try to adhere to high ethical standards. However, further interaction with respondents highlighted that this correct ethical assessment does not lead researchers to take the consequent action of raising concerns. The factors that discourage researchers from raising concerns need to be addressed at the level of research groups, institutions, and by setting a positive precedent which helps them to believe in the system’s ability to investigate concerns raised in a timely and professional manner. Training of researchers in research integrity related issues will have limited utility unless it is coupled with the creation of research culture where raising concerns is a standard practice of scientific and research activities.     

Development of Two Measures of Climate for Scientific Organizations

The aim of this article is to describe the development of two measures of ethical climate for scientific organizations. The first measure utilizes a traditional climate measurement approach and was developed in order to understand the various ethical and creative aspects of organizational climate, or academic departmental climate in university settings, in organizations where scientific and academic research is conducted. The second measure utilizes a biodata measurement approach, a set of career event scales applicable in university and research settings. Such a measure is intended to identify those experiences unique to scientific work that may influence research climate at the individual, group, and organizational levels. Specifically, these measures will be used to predict integrity in the early part of a scientist's career based on various situational influences that occur in scientific organizations.     

Assessing the educational literature in the responsible conduct of research for core content

To determine core content for RCR instruction, content analysis was conducted using key instructional resources for ORI's nine RCR "core instructional areas". Topics discussed in these key RCR resources were identified and their frequency across resources was tabulated. Topics covered most frequently were judged to be core content. Although key educational resources cited a variety of references, specific topics and issues addressed were generally consistent across the materials examined. Nonetheless, key resources varied in organization and depth of coverage for core instructional areas. Recent resources were more systematic and comprehensive than earlier works. This was particularly evident in materials about human participant research, conflicts of interest, and data management and sharing. Key resources presented additional "non-core" issues, such as scientific values, ethical principles, creativity and objectivity, moral reasoning, genetics, epidemiological issues, and scientists' societal roles, suggesting that ORI's core instructional areas should be reconfigured or expanded. Because educational material available on RCR and professionalism was so comprehensive, we recommend that ORI consider research integrity, not research misconduct, as one core instructional area. We also recommend that compliance with research regulations be restored as a core instructional area to accentuate ethical, financial and legal requirements related to acceptance of federal funding.     

The ethical review of medical research: a social movement to protect the interests of research subjects

This paper is based upon observations made in the United States regarding the operation of the Institutional Review Boards. Institutional Review Boards are an essential part of the American system for the ethical review of human subjects research and it is argued that their importance is due in part to the American approach to the protection of minority groups. It is important to evaluate the effectiveness of the Institutional Review Boards since a similar model is being proposed by the National Health & Medical Research Council as part of the ethical review of medical research projects conducted in Australia.     

Non‐Governmental Organizations' Role for Social Capital and Community Empowerment in Community Development: Experience from Bangladesh

The purpose of this study was to investigate contributions by non‐governmental organizations (NGOs) to social capital and community empowerment that facilitate community development. A multi‐method research approach was conducted, where a number of qualitative data collection methods were employed. Data was collected from two indigenous communities, goldsmith and blacksmith, served by two NGOs—Proshika and Practical Action Bangladesh (PAB). The findings showed that both NGOs played a substantial role in social capital development and community empowerment toward community development. The findings of this study will provide valuable input to the community development field.