Person-oriented research ethics: integrating relational and everyday ethics in research

Research ethics is often understood by researchers primarily through the regulatory framework reflected in the research ethics review process. This regulatory understanding does not encompass the range of ethical considerations in research, notably those associated with the relational and everyday aspects of human subject research. In order to support researchers in their effort to adopt a broader lens, this article presents a “person-oriented research ethics” approach. Five practical guideposts of person-oriented research ethics are identified, as follows: (1) respect for holistic personhood; (2) acknowledgement of lived world; (3) individualization; (4) focus on researcher-participant relationships; and (5) empowerment in decision-making. These guideposts are defined and illustrated with respect to different aspects of the research process (e.g., research design, recruitment, data collection). The person-oriented research ethics approach provides a toolkit to individual researchers, research groups, and research institutions in both biomedical and social science research wishing to expand their commitment to ethics in research.     

Ethical guidelines for research with children: A review of current research ethics documentation in New Zealand

Abstract

Children's rights to participate in matters affecting them, including research, have gained increasing recognition over recent decades. This recognition, and the growth in research with children as participants, has given rise to greater attention from researchers to ethical issues related to child research. This article reviews the current ethics documentation in New Zealand. The findings indicate that considerable variation exists between ethical codes and guidelines in relation to research with children. The dominant focus is on attending to issues of consent and protection from harm, at the outset of the research, rather than recognition of the ongoing nature of ethical issues throughout the research process. Although the findings indicate an increase in the consideration of ethical issues, the existing documentation is inconsistent and inadequate in attending to specific child‐related issues. Suggestions are made to enhance children's participation in research and demonstrate a respect for their participation rights.     

Research ethics and clinical trials: Fostering collaboration with research participants

Accountability in research is a concept that applies to researchers and study participants alike. Human subjects play an active part in the success or failure of a clinical trial by virtue of their understanding of a study's goals expectations of personal gain, and adherence to study design. Trials must be designed to address patient concerns, offer an improved consent process, and move beyond our narrow conception of “patient rights.”; Problems with protocol adherence may be reduced by conceptualizing clinical research as an endeavor with mutual accountability within a relational ethic.     

Evidence-based intervention and services for high-risk youth: a North American perspective on the challenges of integration for policy, practice and research

This paper explores the cross-national challenges of integrating evidence-based interventions into existing services for high-resource-using children and youth. Using several North American model programme exemplars that have demonstrated efficacy, the paper explores multiple challenges confronting policy-makers, evaluation researchers and practitioners who seek to enhance outcomes for troubled children and youth and improve overall service effectiveness. The paper concludes with practical implications for youth and family professionals, researchers, service agencies and policy–makers, with particular emphasis on possibilities for cross-national collaboration.     

略论社会科学研究中的研究设计

研究设计是指对整个研究工作进行规划,制定出探索特定社会现象或事物的具体策略,确定研究的最佳途径,选择恰当的研究方法。研究设计一般包括选择研究课题,确定研究性质、分析单位和分析层次,选择研究方式和手段,选择资料收集方式,制定具体规划等内容。     

How children experience fostering outcomes: participatory research with children

This paper presents findings from longitudinal research that uses quantitative and qualitative methods to explore children’s perceptions of outcomes of the care experience. Children’s self‐assessments on two occasions reflect a high level of psychosocial need. Important relationships emerged regarding the children’s judgements of their interpersonal skills and attachments. Children who displayed stronger maternal attachment were likely to sustain highly cohesive relationships with the rest of the foster family. Themes emerging from the data are discussed, including the role of foster mothers and fathers in enhancing developmental outcomes for children.     

A code of ethics for social work and social care research

Summary This Critical Commentary is the final product of the Economicand Social Research Council sponsored seminar series, TheorisingSocial Work Research to appear in the BJSW. The special editionof the British Journal of Social Work published in August 2000carried several key papers arising from the seminar series aswell as reports of some of the events themselves. The responsibilityfor drafting the Code of Ethics for Social Work and Social CareResearch fell to me and although discussed at the Luton Seminarand at the final conference in Manchester, the text presentedhere is much as it first appeared. This is simply to reaffirmthat it has no particular status and is reproduced in the Journalas a prompt to further discussion, precisely the purpose itwas to serve for the seminar series. Before reproducing the Code, it might be helpful to revisitsome of the main points which were raised in the paper presentedat the Luton Seminar which set the context for the Code (Butler,2000).     

Impression management in the market for residential care for children and youth in Sweden

In what has become quite a turbulent quasi‐market for residential care for children and youth, providers now compete for public contracts. To create visibility and attract customers, many providers use marketing activities to project the desired impression of themselves to maintain or strengthen their market position. In this article, we analyse how companies that provide residential care for children manage the impressions they project on their websites and in advertisements. The results reveal that residential care providers use a range of impression management strategies to enhance their organizational image and to respond to potentially damaging or threatening images. The information providers choose to disclose leaves customers—in this case, the social workers responsible for choosing and purchasing care on behalf of clients—with rather limited opportunities to evaluate the quality of care. This is a significant problem considering other, more reliable, sources of information are difficult to access.     

Intervention with high-risk infants and toddlers

This early intervention program serves children and parents. It includes a therapeutic infant day care center and a mother-child interaction group. Counseling is also provided for families with children in the center and for families with children under three years of age in the community.     

Statistics,ethics, and research: An agenda for education and reform

This essay argues that the research community needs to pay more attention to the appropriate use of statistical methods in discussions of research ethics, and proposes some strategies for enhancing discussions of the ethical uses of statistics within investigational, educational, and organizational settings. The essay supports its position by 1) explaining why statistics plays such a key role in research integrity, 2) describing how some common misuses of statistics in research violate ethical standards pertaining to honesty and error avoidance, and 3) reviewing evidence which suggests that the misuse of statistics is more prevalent (and perhaps more significant) than research misconduct (narrowly defined as “fabrication, falsification, or plagiarism").     

Multi-system factors impacting youth justice involvement of children in residential out-of-home care

Children placed in residential care are significantly over-represented in youth justice systems. Drawing on interviews and focus groups with service providers, this exploratory study examines practice factors that impact on the criminalization of this group of children across multiple services and systems, including in the residential care environment, police, lawyers, courts and youth justice systems, as well as multi-systems practice with this group in one Australian state. Positive outcomes were observed for children in residential care where well-functioning care teams existed, as well as for children in therapeutic residential care settings. However, clear limitations were identified across all phases of children's youth justice system involvement, including placement with offending peers, the criminalization of behaviours of concern, greater use of remand and detention, limited support to navigate legal and youth justice processes, challenges to service collaboration, and limited applicability of sentencing considerations. The findings indicate a pervasive level of systemic disadvantage for this group of children, and imply that a holistic strategy underpinned by affirmative action across several systems will be necessary to address the ongoing criminalization of children in residential care.     

The gender and race-ethnicity of faculty in top social science research departments

This paper provides a recent profile of the gender and race-ethnicity of faculty in top research departments of economics, political science, and sociology. Most faculty are male, although there appear to be critical masses of women in political science and sociology. Blacks and Hispanics are underrepresented among faculty relative to their shares of the population. Within each racial-ethnic group examined, there are more male than female faculty members, with a smaller gender gap for Blacks than for other racial-ethnic groups. In general, the higher the rank, the greater the proportion of males than females, especially for Whites and Asians.     

Integrating the teaching,learning and assessment of communication with children within the qualifying social work curriculum

Qualifying social work education must provide students with a variety of experiential, personalized, participatory, didactic and critically reflective learning opportunities across both the taught curriculum and in practice placements if deep learning of the capabilities needed for effective communication with children and young people is to be ensured. At present, programmes in England are not consistent in the curriculum structures, content and pedagogical approaches they are employing to teach and assess this topic. This paper discusses first how current proposals for the reform of qualifying education in England do not address the ambiguities and discretion in regulatory guidance, which have meant that the place and relevance of this topic within the curriculum remain uncertain and contested. It then draws on a model of the sequencing of students' learning and development in qualifying training, developed through the author's recent empirical research, to present an integrated and coherent approach to the teaching, learning and assessment of this topic. It is proposed that this strategy will enable students to develop the generic, ‘child‐focused’ and ‘applied child‐specialist’ capabilities they need for the ‘knowing’, ‘being’ and ‘doing’ of effective communication with children.     

Integrating resilience and positive youth development for the promotion of positive health behaviours among ethnic minorities: a conceptual framework

Hong Kong, a traditionally ethnically homogeneous society, seems to fail encouraging positive development of ethnic minority young people. Studying resilient ethnic minority, young adults may provide insights into developing programmes and policies to encourage positive health behaviours. A pilot qualitative study of individual interviews with South Asian young minority adults was conducted to develop a conceptual framework by incorporating resilience and positive youth development. Based on the findings of this study, resilience and positive youth development contribute to young ethnic minorities’ positive health behaviours. This study may benefit culturally tailored research implications for young ethnic minorities.