Suppressing research data: Methods,context, accountability,and responses

Research data can be suppressed in various ways, including organizational secrecy, defamation law and refusal to reply to queries. In a broader sense, methods of suppression include pressures not to do research in the first place and attacks on scientists who produce unwelcome data. The context of this sort of suppression includes individual self‐interest, vested interests, and paradigms. Suppressing research data can be either compatible with or contrary to accountability, depending on the constituencies involved. Ways to challenge suppression of research data include individual requests, exposés, refusal to suppress, publicity, creating new data, and social movements.     

Dissemination to research subjects: operationalizing investigator accountability

Recent articles have argued from principles of bioethics for the right of research subjects to receive the results of the studies in which they have participated. We argue that accountability is a powerful tool of meso-level analysis appropriate to reasoning about answerability in research ethics, and that it captures the responsibility of researchers to disseminate study results to research subjects. We offer the following features of the research situation as relevant to the manner of dissemination to study subject, in addition to factors already proposed in the literature (risk and impact on health outcome): (a) features of the research subject in relation to identity, personal investment, disease, and community; (b) characteristics of the research study and field of inquiry in relation to certainty and significance; and (c) relationships among the research subjects and the healthcare workers involved in their care and in the research.     

Auditing biochemical research data: A case study

There is little documentation in the literature of how to conduct a data audit of laboratory research. The purpose of such an audit is to verify the extent to which the published data agree with the corresponding laboratory notebook data and whether the data thus examined appear to be sufficient to justify the published conclusions. A case study is presented, which demonstrates a step by step approach towards conducting a data audit of a published research study.     

Editorial: genetic and genomic research-changing patterns of accountability

Debates about genomic science have raised questions about the implications for ethics and accountability. Accountability has external and internal aspects. Whereas ethical review, including attention to appropriate consent procedures, has been central to 'giving an account' externally, there are also issues internal to the practice of science itself. The pursuit of truth is central to the scientific endeavour, but truths can sometimes be 'inconvenient', leading to complex questions of accountability that go beyond the issues of consent. This is illustrated by the case of the Havasupai.     

Family group conferences: context,process and ways forward

This is the first part of a two‐part review of the literature, policy and practice relating to family group conferences (FGCs). This first paper explores the background, the global policy context, the theoretical foundations and the process of undertaking FGCs. The literature is extensive in relation to these elements of FGCs, unlike the limited literature relating to outcomes, which is examined in the second part of this review. In the subsequent review, we examine the issue of outcomes, research findings and explore future challenges in implementing FGCs.     

Child effects in socialization research: Some conceptual and data analysis issues

This paper examines issues associated with the conceptualization of child effects in socialization research and outlines possible data analysis strategies that may be used with contemporaneous correlational data from parents and children. The paper begins with an outline of some recognized prohlems in the studv of child effects. The role of cognitive factors, which complicate efforts to disentangle child effects, is emphasized, in an attempt to clarify further the meaning of child effect, three different types of effect are outlined and then a distinction is made between moderator and mediator variables. In general, a moderator variable specifies when certain outcomes will hold (e.g. for one type of child but not another), whereas a mediator variable indicates how or why the outcome occurs. The distinction between moderator-mediator variables provides the main focus of the paper. It assists in the conceptualization of child effects, as well as having direct implications for data analysis strategies. The relevance of the distinction is illustrated via data from a study of family relationships. The use of correlations, multiple regressions with interaction terms, and latent variable path analysis are examined as ways of investigating moderator and then mediator variables. Conclusions are reached about conceptual and data analysis difficulties associated with attempts to determine child effects.     

Data disclosure and data sharing in scientific research

Data sharing is examined for its bearing on (i) quality assurance and (ii) extensions of results in scientific research as well as (iii) part of a tradition of openness in science. It is suggested that sharing can be accomplished in a simple manner that is also sufficiently flexible to fit varying individual situations by asking authors of data dependent articles and grant proposals to footnote (a) whether they are willing to make their data available to others and, if so, (b) how the data may be accessed. Appendices report results from a survey of current policies and practices in professional societies and in Federal government fund granting agencies. Emphasis is on the social and management sciences.     

When the research is not reproducible: the importance of author-initiated and institution-driven responses and investigations

Important and potentially useful findings in the sciences are under more intense public scrutiny now more than ever. Other researchers in the field dive into replicating and expanding the findings while the media swamps the community and the public with peripheral reporting and analyses. How should authors and the hosting/funding institutions respond when other workers in the field could not reproduce or replicate their published results? To illustrate the importance of author-initiated and institution-driven investigations in response to outcries of research irreproducibility, I draw on comparisons between three recent and well-publicized cases in the life sciences: betatrophin, Stimulus-Triggered Acquisition of Pluripotency (STAP) cells, and Natronobacterium gregoryi Argonaute (NgAgo). Swift, transparent responses and investigations facilitate activation of the self-correcting mechanism of science and are likely also critical in preserving the community’s resources, public trust, and the reputation of the institutions and individuals concerned. Operational guidelines for “author and institutional responses” towards external reports of irreproducibility should therefore be in place for all research intensive institutions.     

Cultural context and social technology transfer: the case of Canton, China

This research examines social technology transfer by taking into account the role of cultural context – the interplay between geography, maritime trade, role of the state and foreign intercourse. The southern port city of Canton, China is the focus, and provides a case study to examine why Western merchants and missionaries came to this particular location to transfer various social technologies, i.e. hospitals, insane asylums, schools, colleges and homes for the blind. The relevance of these institutions to the development of China's social welfare is considered in terms of Canton's shifting welfare mix. Implications of this case study are considered relevant to critical understanding of international social welfare from an East–West perspective.     

Mixed ethnicity, identity and adoption: research, policy and practice

Mixed ethnicity children are over-represented in the care system and constitute a significant group of those seeking adoption placements. Social workers are presented with a specific set of concerns in seeking to find adoption placements for mixed ethnicity children as they come from two or more cultural backgrounds. Practitioners face uncertain principles concerning how to respond to these issues, especially in light of social and political pressures, and within the realm of existing debates around 'transracial' adoption. There is a danger that among these uncertainties the individuality of the child will be lost as his or her identity needs become viewed narrowly. Social workers may seek to simplify and classify the identities of mixed ethnicity children in the adoption process through pressures that they feel to find 'matched' placements. This paper explores how theories concerning identity can provide some insight into the difficulties practitioners face and may help to inform social work practice in this area.     

Statistics,ethics, and research: An agenda for education and reform

This essay argues that the research community needs to pay more attention to the appropriate use of statistical methods in discussions of research ethics, and proposes some strategies for enhancing discussions of the ethical uses of statistics within investigational, educational, and organizational settings. The essay supports its position by 1) explaining why statistics plays such a key role in research integrity, 2) describing how some common misuses of statistics in research violate ethical standards pertaining to honesty and error avoidance, and 3) reviewing evidence which suggests that the misuse of statistics is more prevalent (and perhaps more significant) than research misconduct (narrowly defined as “fabrication, falsification, or plagiarism").     

Child and family social work: organizational context and identity

In the years since 1948, child and family social work has, to differing degrees at different times, sought to identify itself with a national centrally directed service, with the local service organization, with its clientele and with an independent source of professional regulation. Changes in the organizational context in which the work has been carried out over this period have affected the prospects for the development of a secure identity. The effects of the following are considered: national structures, particularly in relation to children's departments between 1948 and 1971; the corporate local authority; the managerial function in social services departments; social care; specialization; the detailed scrutiny of practice; care management and the Children Act 1989.     

Singapore's policy responses to ageing, inequality and poverty: An assessment

Abstract   Singapore represents an instructive case study in responding to rapid ageing, growing inequalities, and significant relative poverty. Unlike other high-income Asian countries, it has relied on single-tier mandatory savings to finance retirement, housing, and to a lesser extent, healthcare. To address the low fertility rates, it has permitted the share of the non-citizen population to triple between 1990 and 2005 to nearly 30 per cent. This is subtly altering Singapore's socio-political dynamics, while assisting in sustaining growth and competitiveness. The paper argues that Singapore has the fiscal, institutional, and organizational capacities for a modern multi-tier social security system. Singapore is, however, determined to continue with current inadequate and inequitable arrangements, requiring individuals and their families to bear disproportionate risks in financing retirement, healthcare, and short-term income support. This reflects conscious policy choices arising from a Darwinist vision of society, and the need for socio-political control.     

Home and away: the residential care, education and control of children in historical and political context

Children — particularly adolescent boys — may be placed residentially by a variety of agencies in Britain, and there is a strong tradition among the upper middle classes of boarding at private fee-paying schools. The number of children involved, however, is diminishing, though this is as much caused by shorter stays as fewer admissions. The factors influencing this decline in residence vary from sector to sector. However, the emergence of viable alternatives to residence and the increased readiness of potential customers to exercise choice in the placement of their children is a common thread.