The ‘compliant’, the ‘pacified’ and the ‘rebel’: experiences with Swiss disability insurance

Switzerland’s social policies in the field of disability have been significantly reshaped over the last two decades by reducing the number of allowances awarded and by increasing the recourse to vocational rehabilitation measures. What stances do individuals who experience the implementation of these policies adopt? What kind of tests are they subjected to? How can we explain the posture they adopt – be it ‘compliant’, ‘pacified’ or ‘rebellious’ – when facing the (re)assignations of their identity and professional status? Drawing on interviews conducted with individuals who have recently been involved in programmes set up by Swiss disability insurance, we highlight their uncertainties and concerns relating to their place in society, as well as their reactions to disability insurance’s interventions.     

Disability studies after the ontological turn: a return to the material world and material bodies without a return to essentialism

Over recent decades, poststructuralist theories have allowed critical disability scholars to challenge essentialist understandings of the human species and to contest discourses which divide humans into ‘normal’/‘impaired’ subjects with respect to a wide – and ever expanding – range of corporeal and cognitive traits. For critics, however, these theories are deeply flawed. By focusing primarily on language, poststructuralism shifts our critical attention away from the often harsh material realities of life for disabled people. This has led some to turn to critical realism and to effectively re-essentialise impairment. In this article, I wish to consider an alternative approach. I suggest that the recent ‘ontological turn’ in social theory has seen the emergence of new-materialist approaches – including Deleuze and Guattari’s ontology of assemblage and methodology of assemblage analysis – which allow us to consider disability as a material phenomenon without a return to essentialism.     

The evolving construction and conceptualisation of ‘disability’ in Bhutan

This study – a year-long ethnographic exploration of disability and education in Bhutan – finds that two dominant discourses around ‘disability’ are entering Bhutan simultaneously: the discourse of the medical model of disability and the discourse of the social or human rights model of disability. In this paper, I argue that these two discourses are especially exposed in the Bhutanese context to be opposing forces in shaping local conceptualisation and construction of ‘disability’. By examining the Bhutan case, it can be seen that these kinds of disparate and contentious exogenous constructions of ‘disability’ occur everywhere in the world and negotiate with local constructions of ‘disability’ uneasily. Understanding the interactions of disability discourses in the Bhutanese context can help to understand the interactions of disability discourses writ large.     

Getting to know reality and breaking stereotypes: the experience of two generations of working disabled women

This paper sets out the results of a Spanish study of the experience and meaning of work among disabled women of two generations, with three types of disability (physical, visual and hearing). Performing a socially recognised activity such as a job is a source of emotional welfare and self‐esteem. Moreover, it confers a certain social status. For the participants in this study the kind of work involved, whether productive, paid and ‘extra‐domestic’ or ‘reproductive’, unpaid and done at home, acquires different meanings, since for disabled women, sexist stereotypes – already more or less accentuated in the culture – social attitudes towards disability and personal factors introduce relevant differences, while leading to conflicts and dilemmas that these women have to solve. At any rate, their sense of responsibility in performing all types of work should be emphasised as evidence of their sense of independence and personal competence, forming a keystone in their construction of a sense of identity and social integration.     

Postmodern synergistic knowledge creation: extending the boundaries of disability studies

The tensions between the competing discourses of the medical and the social models of disability have traditionally provided a platform for discussion and research in the fields of disability studies and special needs education. Over the last 30 years a wealth of literature has consolidated the debate and produced particular knowledge of impairment and disability. In this paper we argue that by privileging notions of ‘deficit’ within these medical or social model perspectives the richness of the lived experience of people with impairments is denied. The individual becomes lost within a framework of medical symptoms or social inequalities. This paper considers alternative approaches which reveal a fuller picture of the lives of people with impairments. The authors conducted two separate empirical studies, one employing a Deleuzo‐Guattarian perspective, the other a Bourdieusian perspective. In this paper we illustrate how these theories of practice can reveal situated understandings of the individual with impairments and his/her daily life. By embracing new understandings and different theoretical perspectives we show how new knowledge can emerge to illuminate the fluid and ever‐changing notions of ‘disability’, ‘inclusion’ and ‘exclusion’, which form elements of the individual lived experience of the research participants.     

The social model of disability as an oppositional device

This article engages with debates about the UK Disabled People’s Movement’s ‘Big Idea’ – the social model of disability – positioning this as an ‘oppositional device’. This concept is adapted from the work of the art theorist and activist Brian Holmes, elaborated using insights from Foucault and others. The model’s primary operation is introducing contingency into the present, facilitating disabled people’s resistance-practices. We recognise, however, that the device can operate in a disciplinary manner when adopted by a machinery of government. Whilst our primary goal is to understand the character and operation of the social model, by providing a more general definition of an oppositional device as the concrete operation of technologies of power, we also propose a concept potentially useful for the analysis of the resistance-practices of activists involved in a wide variety of struggles. This concept may thus have implications for wider social and political analysis.     

Constructing ‘disability’ in Myanmar: teachers,community stakeholders,and the complexity of disability models

This article explores Myanmar teachers’ and community stakeholders’ constructions of disability. We examine how various religious perspectives – particularly Buddhism – inform and shape understandings of impairment and how these beliefs intersect with a strongly medicalised construction of disability. However, in our discussion and exploration of the responses, we also found that the notion of two primary disability ‘models’ – namely the medical model and the social model – lack nuance, complexity, and socio-cultural consideration. Through examining teachers’ and community members’ perspectives of disability in Myanmar, we highlight the importance of socio-cultural variance in understanding local constructions of disability.     

Disability activisms: social model stalwarts and biological citizens

The Disabled People’s Movement (DPM) in the UK rejects the view that disability is an illness. For the DPM it is the social processes of discrimination and oppression that create the material circumstances out of which solidarity and politicisation arise. The DPM has also been shy about impairment, arguing that it is generally irrelevant to the issue of disability and that a clear distinction between impairment and disability is necessary if disability is to be understood as a basis for identity politics. The biological citizens that support embodied health movements use impairment, genetic status, biomedical diagnosis and classification as calling cards that signal their claims to identity. Whilst the DPM has challenged medical hegemony and scientific ideas, many ‘biosocial’ groups embrace the specialised medical and scientific knowledge associated with their ‘condition’, particularly where it might be used to enhance their claims to citizenship. This paper argues that disability activism in the UK is bifurcating. It addresses the difference in perspective and action between the ‘social model stalwarts’ of the DPM and biological citizens that organise politically around particular diagnostic labels.     

The time and space of everyday life

This article argues that everyday life is related to all social relations and activities, including both the ‘official’ practices that are codified and normalized and the ‘unofficial’ practices and articulations of experience. Indeed, everyday day life is seen as the single plane of immanence in which these two forms of practice and articulation interrelate and affect one another. The lived experience of everyday life is multidimensional, composed of various social fields of practice that are articulated, codified and normalized to different degrees and in different ways (either officially or unofficially). Moving through these fields in daily life, we are aware of passing through different zones of time and space. There are aspects of everyday relations and practices more open to government, institutionalization, and official codification, while others are more resistant and provide the basis for opposition and social movements. Everyday life is a mixture of diverse and differentially produced and articulated forms, each combining time and space in a unique way. What we refer to as ‘institutions’ associated with the state or the economy are attempts to fix social practice in time and space – to contain it in specific geographical sites and codify it in official discourses. The relations and practices more often associated with everyday life – such as friendship, love, comradeship and relations of communication – are more fluid, open and dispersed across time and space. However, the two should not be uncoupled in social analysis, as they are necessarily interrelated in processes of social and political change. This is especially so in contemporary capitalism or, as Lefebvre called it, the ‘bureaucratic society of controlled consumption’.     

Denial of disability discrimination by disabled people in China

In contrast to the previous scholarly focus on anti-discrimination, which has long been described as a salient topic in the disability research area, this article discusses evidence to conclude that disabled people in China are inclined to deny social discrimination instead of finding ways to fight for social inclusion. Through interviews and observations, this article generalizes five types of causes – institutional causes, environmental causes, societal causes, familial causes and psychological causes – to explain an ‘observed phenomenon’ of discrimination denial in China. The authors worry that the phenomenon of discrimination denial might represent an even deeper type of discrimination, which might severely hinder the inclusion of disabled people into the mainstream. It is hoped that scholars may pay more attention to the intricate nature and fundamental paradox related to disability discrimination in non-western societies.     

Qualitative inquiry of sibling relationships: reinforcement of disability devaluation through the exclusion of voices

People with disabilities share a history and culture of marginalization and oppression. In disability studies, disability has been re-defined as an inability or limitation in performance of the roles and tasks expected of individuals within society which excludes people from becoming full participants in social, cultural, and political affairs. Disability research has traditionally been ‘on’ rather than ‘with’ people with disabilities. This article examines how qualitative sibling disability research has been conducted, with a particular focus on the exclusion of people with disabilities.     

Claiming loss in disability

Pervasive representations of disability carry associations with the idea of loss. These have been strongly rejected by the social model movement as stereotyping, which may perpetuate views of disabled people as ‘incomplete’, ‘vulnerable’ or needing rehabilitation. Discourses of ‘loss’, ‘acceptance’ and ‘denial’ remain a lens through which disabled persons are misknown. It is posited that ascribed notions of ‘loss’ serve to maintain feelings of control and mastery within the observer, quieting the destablising psychic threat which disability poses. Further, disabled people positioned as having to ‘deny’ imputed loss may be at risk of suffering self‐alienation relating to a mode of being which is (necessarily, understandably) preoccupied with ‘not being’ the personification of stereotype, at the expense of exploring aspects of identity and self; such an orientation embodies unstable foundations for an entitled, articulate disability movement. Conceptual ideas are based on the author’s experience as a disabled group psychotherapist working with severely physically impaired adults.     

Responsive expression in living bodies: The power of invisible ‘real presences’ within our everyday lives together

In the past, in our talk of meanings, we have been used to thinking of them as working in terms of inner mental representations, and to thinking of such representations as passive objects of thought requiring interpretation in terms of shared rules, conventions or principles if their meaning is to be understood. This view of communication and understanding as ‘information processing’ has been hegemonic in social theory now for quite some time. Here, however, this paper will explore an alternative to it: the realm of expressive-responsive bodily activities occurring spontaneously between people in their meetings with each other. The spontaneous understandings occurring in this sphere ‘pre-date’, so to speak, the more self-conscious understandings we have as autonomous individuals. In this realm, in such meetings, direct and immediate, non-interpretational physiognomic or gestural forms of understanding can occur. Indeed, central to activities occurring between us in this sphere, is the emergence of dynamically unfolding structures of activity – ‘real presences’ in Steiner’s terms – in which all involved participate in ‘shaping’, and to all involved must be responsive in giving shape to their own actions. It is the agentic influence of these invisible but nonetheless felt presences that is explored in the paper. Their influence can be felt as acting upon us in a way similar to the expressions of more visible, and authoritative beings – in that they can directly ‘call’ us into action, issue us with ‘action guiding advisories’ and judge our subsequent actions accordingly with their ‘facial’ expressions or ‘tones’ of voice. This paper will explore how this form of participatory thought and understanding can help us to understand the ‘inner’ nature of our social lives together and the part played by our expressive-responsive activities in their creation.     

Disabled people and dirty work

Based on a longitudinal case study of the work offered by a Swedish sheltered work organization that can be regarded as ‘dirty’, in the sense that it stigmatizes those people that do it, in this paper I analyze how ‘dirty work’ can be seen as an important yet so far neglected source of the social construction of disability. Specifically, the aim of the paper is to suggest how an individual can become a ‘disabled person’ by doing dirty work. By working on ‘tainted tasks’ people (irrespective of their mental or physical condition) may come to be regarded and even officially labeled as ‘disabled’, i.e. incapacitated and impaired for any ‘normal’ and ‘clean’ character of work.     

‘Resistance: Which Way the Future?’ A dual-screen installation related to the theme of disability and eugenics

This paper reports the part findings of an evaluation of a dual-screen installation entitled ‘Resistance: Which Way the Future?’ by the writer and director Liz Crow. Central to the installation is the experience of disabled people during the Holocaust period, the values underpinning this neglected period of history and how this relates to understanding the experiences of disabled people today. Simultaneously, this paper raises issue with a previous comment which suggested that disabled people and eugenics are a form of ‘emotive rhetoric’. On the contrary, this paper asserts that the link between eugenics and disability cannot be overstated, and is a significant moment in history where the lived experiences of disabled people – people described as having ‘learning difficulties’, surviving artefacts, and recorded testimonies – have still yet to be explored.     

‘Now I’d like to sleep with Rachael’ – researching sexuality support in a service agency group home

Many intellectually disabled people living in agency services require significant forms of support to live safe and satisfying sexual lives. Research reveals that despite support personnel working in service systems now holding largely positive attitudes towards sexuality assistance, proactive practice is rarely initiated. This article probes what might lie within this attitude/assistance gap. This investigation reveals a complex picture of practices that rely on intellectually disabled people showing conformation to a ‘couple doing normal’ ideal, so as to be judged capable of being supported. It examines how wider social locations of meaning related to ‘intellectual disability’ and ‘sexuality’ might substantiate these judgement calls. The degree to which it can be said that worker’s own attitudes and values underpin their reluctance to provide support is then explored. Finally, why researchers and practitioners might need to reappraise the complex interactions that shape worker’s practice in this area is discussed.     

Radicalising ‘disability’ in conflict and post-conflict situations

In this article, a radical social model of disability lens is taken to illustrate what counts as ‘disability’ within a neoliberal mindset. The South African and disabled activist Vic Finkelstein describes both an ‘outside-in approach’ that looks at the material conditions of how ‘disability’ is constructed and an ‘idealist’ ‘inside-out’ approach, or how people describe experiences of inequality and disablement. The ‘outside-in’ approach is where the focus of a social model of disability should be in terms of trying to understand how global capitalism or neoliberalism is (dis)ablest and creating impairment. The ‘inside-out’ approach is ‘idealist’ and where the other ‘components’ of the model such as ‘rights’ are located. This article begins with an overview of the relationship between disability and conflict. The article then moves to an inside-out framework to examine how disability is still viewed and created through a medical humanitarianism. Using an outside-in framework, I illustrate how states become disabled through neoliberalism. Lastly, I discuss how ensuring greater participation and rethinking neoliberalism in terms of sustainability may provide us with a way forward in a humanitarian setting and rethinking of disability.     

Wounded/monstrous/abject: a critique of the disabled body in the sociological imaginary

Contemporary sociology has made sense of bodily difference by mobilising a number of tropes. ‘Wounded’ (or vulnerable), ‘monstrous’ and ‘abject’ stand out by virtue of their ubiquity though they do not exhaust the repertoire. These categories highlight the conceptual tensions between the sociology of the body and Disability Studies. In this paper, I will examine the value of these tropes to Disability Studies and suggest that while they can help to clarify the processes that bring about the misrecognition of disabled people, understanding the nature and scope of the lives of disabled people in modernity requires a more embodied language rather than one that has been generated from a sociological imaginary that is strongly influenced by a non‐disabled subject position in which repulsion for the other – which one must become – is never fully resolved. Disability has had little impact on sociological theories of the body and when sociology ventures into disability it has tended to conflate it with an ontology of human frailty or gloss it with tropes that may be instructive about the generic or gendered modernist structure of exclusion but it tells us little about the specific forms of invalidation experienced by disabled people.     

‘It feels right in my heart’: affective accountability in narratives of attachment

This article makes a contribution to discussions around ‘affect’ in the social sciences (Clough and Halley, 2007; Connolly, 1999; Massumi, 2002). It emerges from a research project involving a network of mothers – in London – who breastfeed their children to ‘full term’. Typically, this would be up to the age of three or four, though ranged, in this case, to between one and eight years old. For many women, the most fundamental reasoning in their decision to breastfeed to ‘full term’ is that it simply ‘feels right.’ The article therefore explores anthropological approaches to the ‘feelings’ that embodied experiences generate, as revealed in the accounts and practices of the people we work with (whether at the physiological, emotional or moral levels). It considers various means of describing the feelings experienced by women during of long‐term breastfeeding – such as ‘hormones’, ‘instinct’ and ‘intuition’– but ultimately argues for a theoretical framework of ‘affect’ to incorporate best the combined physiological and moral aspects of ‘doing what feels right in my heart,’ so critical to women's perceptions of themselves as mothers.     

URBAN RENEWAL IN FRANCE

The aim of this article is to deliver a sociological analysis on what is going on in the so called ‘sensitive neighbourhoods’. From at least the last three decades, different policies have tried to improve ‘social cohesion’ which is considered not to be produced ‘naturally’ anymore. As the policies are mainly targeting territorial actions on the housing market structures, we will begin trying to delineate the French housing ‘crisis’. In the second part, we will summarize the urban development policies implemented over time. In the third part we will give an analysis about the stakes social housing sector has to face. Finally, we will discuss how social difficulties can be solved with spatial actions – or not - through resident satisfaction levels. One of the main conclusion is that stakeholders should invest more in dealing with the people already living in the neighbourhoods. Moreover, an excessive faith in the virtues of social mix and local intervention could lead to an aggravation of social exclusion.