The Ethics of Research With Men who Have Learning Disabilities and Abusive Sexual Behaviour: a minefield in a vacuum

In the wake of the recent awareness of the sexual abuse of people with learning disabilities is the recognition that a small number of men with learning disabilities are themselves sexually abusing. The need to understand the men's behaviour and provide effective responses is pressing yet the search for an ethical course of enquiry appears illusory. The two conflicting dilemmas which make this task so difficult are whether the men's learning disabilities preclude their giving informed consent to the research process, and/or whether men who are sexually abusing have lost some rights to exclude themselves from research which is intended to prevent further abuse. This paper explores in depth these dilemmas and describes the authors' attempts to resolve them as they attempted to devise a protocol for consent to involvement in a qualitative study of men with learning disabilities who sexually abuse. Issues raised in this particular context have relevance to many other issues in learning disability services where robust ethical debate is needed, but often glossed over.     

Studying Postmodern Families: A Feminist Analysis of Ethical Tensions in Work and Family Research

Through dialogue and reflexivity, feminist researchers aim to create knowledge that is emergent from people in relationship with one another. Reflexivity is a process whereby researchers place themselves and their practices under scrutiny, acknowledging the ethical dilemmas that permeate the research process and impinge on the creation of knowledge. Guided by these tenets, we analyzed the relations among our research practices, our participants, and ourselves to understand and reduce the ethical tensions we encountered in a multimethod research project designed to investigate work and family processes. Our reflective efforts underscore both the active nature of research participants and the importance of the sociopolitical contexts within and around the research process. We make suggestions for more ethical research.     

Some Ethical and Methodological Issues in Research with People with Learning Difficulties

This paper discusses some ethical and methodological issues which arose in a recent study examining the exercise of choice by people with learning difficulties. The research aimed to examine in detail the choice-making process, and to explore ways of involving people with learning difficulties both as respondents and as contributors to the study design. Various dilemmas were encountered-including how to gain informed consent from people with profound impairment, the risk of intrusion when conducting research in people's own homes, and the dangers of raising expectations of continuing friendship. The importance of accountability when analysing data and disseminating findings is highlighted. A Research Advisory Group, including two people with learning difficulties, was set up to give guidance on the study. Steps were taken, but not enough, to facilitate their involvement in the meetings. Reflecting on experience gained in this study and on research reported elsewhere, a number of pointers for future research are drawn. These include the need to consider the potential implications of intellectual impairment for involvement in the research process.     

Perceptions of domestic abuse in same-sex relationships and implications for criminal justice and mental health responses

Male and female university students (N = 171) read scenarios describing a domestic abuse incident that systematically varied the sex of victim and perpetrator to produce four between-participants conditions. Results were consistent with and extended previous findings about perceptions of heterosexual domestic abuse to include gay and lesbian domestic abuse. Findings suggest that participant perceptions of abuse in same-sex and heterosexual relationships are similar. Where they differ, the differences have significant implications: (a) participants considered male against female abuse to be more serious than same-sex domestic abuse, (b) participants were more likely to recommend that the victim press charges in male against female abuse than in same-sex domestic abuse, (c) participants perceived same-sex victims to be less believable than heterosexual victims, and (d) victim believability was correlated with sentencing recommendations. Implications for criminal justice and mental health intervention are considered. Directions for future research are outlined.     

Staying safe: strategies for qualitative child abuse researchers

Undertaking interview‐based research with victim/survivors of child abuse can be difficult and challenging for researchers. Much has been written about the impact of research on participants, but researcher effects are less explored. This paper reviews the literature on sensitive interview‐based research and child abuse research. The theoretical underpinnings of researcher trauma are outlined and challenges identified and related to child abuse research using researcher reflections from the authors' interview‐based research with children who have been abused and young mothers who were sexually abused in childhood. Strategies and recommendations are developed to minimise child abuse researcher trauma. Copyright © 2009 John Wiley & Sons, Ltd.     

Ethical challenges in researching in group homes for people with severe learning difficulties: shifting the balance of power

Our aim in this paper is to open up debate about informed consent. We do this by presenting stories from group homes where staff have frustrated our research efforts and marginalised the interests of people with severe learning difficulties. We problematise normative ethics and argue that in some circumstances the basic principle of informed consent should be waived for employees of human service organisations. We maintain that, in such circumstances, researchers and an organisation’s senior managers can still act in a manner that is consistent with the broad aims of ethical regulation. We consider the role of Research Ethics Committees and suggest that in order to fully consider the conflicting interests of multiple stakeholders, the application of different ethical theories is required. A requirement for making balanced ethical judgements is to see outside the extant dominant view of ethical research standards and behaviour.     

Professional Decision Making on Elder Abuse: Systematic Narrative Review

Social work and health care professionals internationally are recognizing the need to understand and respond to the abuse of older people. Policy and guidance have identified processes but definitions of key concepts remain problematic, and the literature suggests that practitioners and agencies have little insight or guidance for decision making. Nine bibliographic databases were searched for studies on professional decision making regarding abuse of older people. Relevant studies retrieved were appraised for quality using explicit criteria. The findings of the 19 articles meeting the inclusion criteria were synthesised using a structured narrative approach. Common themes identified were abuse factors, situational factors, and broader contextual factors. Abuse factors relating to risk levels and client vulnerability were central; age, gender, and health status were considered as key indicators of vulnerability. The opinion of adult protection workers about the potential effectiveness of their intervention was a factor in deciding about responding to alleged or suspected abuse. Professionals struggled with complex ethical dilemmas created by elder abuse, particularly when the victim did not want an investigation. Making objective judgements was difficult when faced with complex family and contextual factors. A structured approach to narrative synthesis of a diverse range of studies retrieved through an explicit search and inclusion process provided a useful summary of key issues for practice and identified gaps in the research literature.     

The presentation of the networked self: Ethics and epistemology in social network analysis

Drawing on the seminal work of Goffman, Krackhardt and others, this paper argues that there is a crucial step in between participants’ perceptions and the collection and visualisation of data – i.e. what we call the presentation of the networked self. We employ examples from our own empirical work in the UK to argue that the presentation of the networked self requires researchers to adopt a highly reflexive approach. Framing our analysis within the context of contemporary society – including the impact of social media on a ‘networking mindset’ – we explore the range of ethical dilemmas which can emerge during a research encounter.     

Researching Elder Abuse in Britian

This article explains the lack of British elder abuse research by focusing upon two aspects of the research process; the methadological difficulties of developing indicators of abuse and the ethical problems of using self-disclosure and victimisation surveys when researching a sensitive topic. As an illustration of these difficulties, the experience of using an American research methodology to determine the prevalence of elder abuse in Britain is described.     

Tales of Hidden Lives: a critical examination of life history research with people who have learning difficulties

This paper explores the use of life history research with people who have learning difficulties. [1] A number of strengths and weaknesses associated with the life history as a method of imparting life experiences are examined. Particular emphasis is given to the dilemmas that researchers may face in explicating the life histories of informants labelled as having learning difficulties. With reference to literature on narrative-based research and by drawing upon my own research experiences, I will argue that life histories reaffirm the personal in social theorising, whilst providing a methodology in which individual and social worlds may be drawn together. In addition, eliciting life histories may promote a vivid sense of the research process, thus demystifying the often over technical and jargonised nature of social scientific study. On the down-side, I will suggest that images of the 'imaginative researcher' and 'articulate informant' portrayed in much life history literature, threaten to stifle researchers' concerns with the inclusion of people with learning difficulties. Furthermore, I will draw attention to dilemmas that arise in making links between an individual's life history and social theory. Finally, problems relating to issues of bias and power are explored. In research involving people with learning difficulties, it is concluded that life histories cogently expose the experiences of people so-labelled and therefore deserve further usage albeit with critical assessment.     

Sex Education Programmes for Students with Severe Learning Difficulties in Further Education and the Problem of Evaluation

This paper is based on a qualitative study of the evaluation of sex education programmes for young people with severe learning difficulties. In an area so fraught with dilemmas and controversies, any such research will be problematic and tentative. The approach to evaluation described here is one which attempts to realise the right of people with learning difficulties to make informed choices. The course aims both to provide students with information which has traditionally been denied to them and to promote greater self-confidence. The evaluation methodology which has been developed embodies principles which seek to empower young people with learning difficulties. The questions which arise reach not only into the lives, feelings and values of individuals, but also confront the oppression of people with learning difficulties in our society.     

Reflexive Research Ethics for Environmental Health and Justice: Academics and Movement-Building

Community-engaged research on environmental problems has reshaped researcher-participant relationships, academic-community interaction, and the role of community partners in human subjects protection and ethical oversight. We draw on our own and others' research collaborations with environmental health and justice social movement organizations to discuss the ethical concerns that emerge in community-engaged research. In this paper we introduce the concept of reflexive research ethics: ethical guidelines and decision-making principles that depend on continual reflexivity concerning the relationships between researchers and participants. Seeing ethics in this way can help scientists conduct research that simultaneously achieves a high level of professional conduct and protects the rights, well-being, and autonomy of both researchers and the multiple publics affected by research. We highlight our research with community-based organizations in Massachusetts, California, and Alaska, and discuss the potential impacts of the community or social movement on the research process and the potential impacts of research on community or social movement goals. We conclude by discussing ways in which the ethical concerns that surface in community-engaged research have led to advances in ethical research practices. This type of work raises ethical questions whose answers are broadly relevant for social movement, environmental, and public health scholars.     

Observing abuse: Professional ethics and personal morality in field research

Based on the author's participant observation research in a state institution for the mentally retarded, this article deals with moral and ethical dilemmas that occur in research at settings characterized by routine human abuse. After a discussion of the choices posed by these dilemmas, the author presents preferred solutions. The importance of anticipating potential moral and ethical dilemmas prior to entering the field and delineating the relation between professional ethics and personal morality are discussed as implications of this problem.The author would like to thank Robert Bogdan and Shulamit Reinharz for their extensive comments on previous drafts of this article.Partial support for this article was provided through cooperative agreement No. G0085C03503 with the National Institute on Disability and Rehabilitation Research. The opinions expressed herein are solely those of the author.     

‘God,she's gonna report me’: the ethics of child protection in poverty research

The ethics of social research with children has been the source of considerable debate. In particular, issues of how to address potential disclosures of child abuse have been highlighted. What ethical implications are raised, however, when children are the indirect focus of the research? This paper explores the ethical dilemmas of conducting research with mothers about their experiences of caring for children. It is based on qualitative research with 30 mothers on low incomes. The paper concludes that strategies to tackle structural disadvantage as well as those that take account of individual risk are key features of future child welfare. Copyright © 2002 John Wiley & Sons, Ltd.     

Impact of Perpetrator Type on Attributions of Mother Fault in Child Sexual Abuse

Blaming nonoffending mothers for child sexual abuse has substantial negative consequences for both the mother and child victim. Although perpetrator type has been shown to influence how much blame and responsibility is placed on nonoffending mothers in child sexual abuse cases, research to date has focused primarily on perpetrators who are strangers to the child or the child’s biological father, ignoring the effect of other father-figure perpetrators. The current study examined how differences in perpetrator’s relationship to the mother impacted blame, responsibility, cause, and prevention as separate constructs. One hundred and eight participants from an online community sample were randomly assigned to read a vignette describing a child sexual abuse situation with a female victim and one of two perpetrators: the victim’s biological father or the mother’s boyfriend. Participants assigned significantly higher levels of fault for CSA to the mother when the perpetrator was the mother’s boyfriend. Implications and future directions are discussed.     

Elder Abuse: Clinical,Ethical, and Legal Considerations in Social Work Practice

As a consequence of the steadily growing older population, and increased demands on family for community based care of elderly, elder abuse is an issue to be considered in all domains of social work practice. Intervention in cases of elder abuse is often fraught with ambiguity and ethical dilemmas as the application of professional principles is less than straightforward, bringing to the fore personal, legal, and ethical concerns in the management of the client’s safety and well-being. This article addresses challenges which arise from the complexity of elder abuse cases and reviews clinical, ethical, and legal obligations to inform ethical decision-making.     

Adult protection and ‘intimate citizenship’ for people with learning difficulties: empowering and protecting in light of the No Secrets review

The government are consulting on the introduction of legislation to give professionals powers to enter the homes of ‘vulnerable adults’ where abuse is suspected and remove the ‘victim’ without their consent . This article considers the consequences of such legislation for the ‘intimate citizenship’ of people with learning difficulties who have capacity to consent to sexual relationships. Proposals of the consultation are considered in terms of their practical relevance, finding that changes can be made with better guidance, resources, policy implementation and a sound evidence base for adult protection. A case is made that proposals contravene human rights, mental capacity laws and the ethos of personalisation, increasing the focus on risk in practice. An ecological model of vulnerability is supported, which offers an approach that can prevent sexual abuse through empowerment without the need for new legislation.     

Ethical and legal challenges of mandated child abuse reporters

Background

Mandated reporters inconsistently report child abuse cases. Ethical dilemmas and legal challenges to reporting arise creating barriers to assist abused children and their families.

Purpose

The purpose of this study was to describe professionals' ethical dilemmas and legal challenges to reporting child abuse.

Method

A qualitative study was conducted to explore the ethical and legal challenges of mandated reporters when reporting child abuse. Individual interviews between 60 and 100 min were conducted with a purposive sample of 18 mandated reporters including physicians, nurses, social workers, and teachers. Grounded theory methodology was used to develop categorical themes that reflected mandated reporters' experiences and challenges.

Result

Three themes emerged from the data: conflicts, time, and law as refuge. Professionals described challenges in balancing autonomy, beneficence, nonmaleficence, and justice. There was no best solution to do no harm. The associated stigma and pressure of cultural and secular norms of child abuse inhibit professionals' action based on legal and ethical requirements. The theme of time included limited time and an uncertain future. The law provides security and refuge for professionals to find a solution to the challenges of reporting child abuse.

Conclusion

The ethical and legal challenges of reporting child abuse create complex dilemmas for mandated reporters. Ethical principles are in constant opposition when negotiating rights of children and rights of parents. Supportive structures and education are needed to assist professionals in meeting their reporting obligation and solving their dilemmas.     

Making child abuse victims aware of their victimization: a treatment issue

Recent research has identified abuse victims who lack a perception of themselves as having been abused. It is common among professionals to heighten the awareness of abuse victims as either a goal or a byproduct of the investigation-treatment process. Implications of this practice are explored in light of knowledge regarding psychological aftereffects of abuse, particularly in relation to the self-image of the victim. Guidelines are suggested for when it may be advisable to heighten awareness during treatment, and when it should be avoided.     

The trickle‐down effect of ethical leadership in nonprofit soccer clubs

Nonprofit soccer clubs are currently facing many ethical challenges, such as abuse, doping and match fixing. While research suggests that organizational (board) ethical leadership may be effective to tackle these ethical issues, empirical support in the context of sport remains limited. Drawing on the perceptions of a sample of nonprofit soccer players (n = 438) and coaches (n = 106), we indicate that the coaches play an important mediating role regarding the associations between board ethical leadership and ethical climate. The theoretical underpinnings of ethical leadership—formed by social learning theory and social exchange theory—and the social distance between the board and the players in nonprofit soccer clubs provide support in this regard. In sum, our results demonstrate that the influence of board ethical leadership in nonprofit soccer clubs partly trickles down to the players via coach ethical leadership. Finally, practical implications for nonprofit soccer club management are discussed.