Older people's experiences of community life: patterns of neighbouring in three urban areas

This paper examines changes to the community life of older people living in three urban areas of England: Bethnal Green, Wolverhampton and Woodford. All three were the subject of classic community studies in the 1940s and 1950s, these providing rich material about the lives of groups such as elderly people. Using this earlier research as a baseline, the paper presents data on how the experience of living in urban neighbourhoods has changed for older people in the intervening years. The article reviews the relationship between elderly people and their neighbours, drawing on quantitative as well as qualitative data. In conclusion, the paper identifies a number of general arguments pointing to the value of a community and locality perspective for understanding the impact of social changes on later life.     

Role and function: Aspects of quality of life of older people in rural Bangladesh

The aim of this study is to explore the meaning of quality of life (QoL) for elderly people in a rural community in Bangladesh. Data were obtained through in-depth interviews with 11 elderly persons aged 63–86 years. Interview data were analysed using content analysis to determine the conceptual meaning of elderly peoples' experiences of QoL. Two major themes emerged from the data as being of utmost importance in QoL of elderly people in rural Bangladesh. These were: (i) having a role in the family and the community and (ii) being functional, both physically and economically. Results also showed that elderly people in rural Bangladesh prioritise being healthy, having a good social network, social support and a secure financial situation in order to have good QoL. This study is a step towards a better understanding of QoL experienced by the elderly people themselves in a rural Bangladeshi context.     

Status or Access? The Impact of Marriage on Lesbian,Gay, Bisexual,and Queer Community Change

Drawing on interview and survey research with 116 married and unmarried lesbian, gay, bisexual, and queer (LGBQ) individuals, this study offers the first systematic data on the relationship between legal marriage and LGBQ community life. The author distinguishes between marital status—being married—and marital access—gaining access to the institution of marriage—as distinct drivers of community change. In contrast to research with heterosexuals, the findings suggest that marital access plays a primary role in LGBQ community change. The different life course trajectories of LGBQ people and their prior experiences of social exclusion alter the relationship between marriage and community. The findings push family scholarship beyond a one‐model‐fits‐all approach to understanding the impact of marriage on community engagement. Taken together, they expand literature on marriage as greedy, the deinstitutionalization of marriage, and marriage and social inclusion as well as offer insights into how LGBQ people understand and enact marriage.     

Consumer-operated self-help services

To create a mental health system focused on recovery, consumer-operated services, for which an evidence base is emerging, should be promoted. Consumer-operated services have become a viable, cost-effective model designed to provide social support and recovery opportunities for people diagnosed with a psychiatric disability who are living in the community. This article describes the consumer-operated services model and uses a self-help center as an example. The core components of consumer-operated self-help centers are outlined. Qualitative data gathered through a larger study of self-help centers is presented. The article highlights the benefits of and areas for improving this innovative resource, which offers many advantages and opportunities for people living with a psychiatric disability in the community.     

Borders, margins and bridges: Possibilities for change for marginalized young women

This paper interrogates the notion of exclusion with a particularfocus upon the experiences of young women. It focuses on thepotential that community processes hold for drawing marginalizedyoung people back into mainstream life. It considers two examplesthat were each concerned with the development of community facilities.One sought to remove young people from an inner city area, theother was intended to provide community facilities for youngpeople. Each adopted a different approach to the participationof young people and had different outcomes. The discussion exploresthe potential that public planning processes hold for encouragingthe participation of young people and for providing effectiveavenues for the diverse realities of young people to be validatedand to contribute to decision-making. The successful participationof young people in public life is a challenge, yet they arerarely encouraged to participate in defining solutions to theproblems they are identified as causing. The experiences reportedin this paper therefore offer insights into effective strategiesfor engaging young people in the resolution of community issues.     

Social capital and older people in farming communities

This study draws on data from interviews with older people aged 65 to 85 (n = 65) to assess the extent to which the concept of social capital can be used to inform our understanding of social networks in farming families. Findings indicate that key indicators of social capital such as trust, reciprocity and co-operation strongly influence and determine social relations. Interestingly, though contrary to much of the literature on social capital, a strong community spirit can exist where associational activities are extremely limited. Older people in this community have few opportunities for social interaction, yet this did not affect their perception of being part of a close knit community. Significantly this work challenges the assumption that older people are simply recipients of social capital and demonstrates that they are also important producers of social capital. The article contends that the relevance of this concept to older people in these rural communities has not been fully explored and is poorly understood.     

Community Care in Taiwan

SUMMARY

This article explores the policy definitions and the funder roles of central and local governments in community care in Taiwan. The notion of community care has been adopted in Taiwan following the model of Hong Kong but the main question of the article is whether this has resulted in actual service provisions at the community level, forming an alternative to institutional care. The data has been collected from several sources: policy documents, official statistics, surveys, general reports, funding provision reports, and empirical studies. The results show that neither central nor local authorities are seriously involved in caring for elderly people or persons with disabilities in Taiwan's communities. In Taiwan, community care for these groups of people still means, in practice, informal care provided by female family members without any support from public policies.     

Deaf identity construction in Malaysia

This paper focuses on the identity creation processes of Deaf people in Malaysian society using an intersectionality approach to issues of identity, disability, and Deaf studies. Deaf people belong to a marginalized community and typically experience stereotyped, prejudiced, and stigmatized treatment from the hearing community, which has a serious impact on their social and personal identity development. Without sufficient information about the process of identity creation for Deaf people, the hearing community cannot reduce inequality nor can it increase social integration and stability for the Deaf community. There is a paucity of research about this identity creation process in Malaysia, and few studies have used identity-related theories and Deaf studies to examine the issue. This study uses a constructivist point of view, employing an interpretive phenomenological epistemology in order to construct insightful accounts of participants’ personal and interpersonal experience in mainstream society. The data was analyzed using methods associated with grounded theory and constant comparative analysis in order to reveal the extent to which they identify themselves, that is linguistic minority or PWD. The findings suggest that, on the one hand, mainstream society categorizes Deaf people as Persons with Disabilities rather than as a linguistic minority; on the other hand, without realizing it, Deaf people typically accept society's evaluation by identifying with it and playing the expected roles of PWD.     

“Multiplicity,Race, and Resilience: Transgender and Non-Binary People Building Community”

Scholars theorize that the development of community is an important part of resilience. In this mixed-methods study, we argue that race informs the experiences that transgender and non-binary (TNB) people have in seeking community. Using the Strengthening Colors of Pride Phase I and Phase II research, we argue that in a Latino-majority city, Latinx and Anglo TNB people connected with the transgender and broader lesbian, gay, bisexual, transgender, and queer (LGBTQ+) community, although Anglo TNB people reported more transphobia in the LGBTQ+ community. Black and American Indian TNB people connected with LGBTQ+ communities of color specifically and struggled more to find in-person community. Anglo TNB people used their own White racial networks to connect with supportive hobby and interest groups. In general, TNB people connected more with communities that resonated with the multiplicities of their own lives, such as commonalities of economic precarity and immigration status. This research is an important contribution to understanding the development of community for resilience, and the way race and gender identity inform community experiences for TNB people.     

Social and Health Factors Affecting Community Service Use by Vulnerable Older People

Abstract

This article reports on Outcomes for older people with complex or chronic care needs, a study undertaken by the Brotherhood of St Laurence and La Trobe University, examining older Victorians’ use of community services following Aged Care Assessment Service (ACAS) recommendations that they remain living at home. The paper reports on interviews with older people and carers undertaken at three-monthly intervals, over 12 months. This paper contributes to understanding the factors that impede or facilitate uptake of community aged care services that are critical to meeting the needs of older people and their carers. The study found that among other factors social isolation, high carer burden, and the older person reporting low mood were important barriers to service uptake. Cost, waiting lists, and service satisfaction were also identified in qualitative data as influencing factors. The study concludes there is a need for better means of identifying and supporting older people and carers at risk to improve community service uptake.     

Beginnings and endings; Is there a way out of psychiatric services?

An historical and conceptual overview of psychiatric rehabilitation services is presented as a challenge to the appropriateness of traditional community based psychiatric services which isolate people from the community. The position is taken that the goal of psychiatric rehabilitation services should be to link people to normal community services and support systems. The problems which can arise from treating people in a separate psychiatric system are illustrated by tracing the development of a supported employment program through periods of high employment and high unemployment.     

Quality of life of older people in Israel: a comparison between older people living at home who are members of a ‘supportive community’ and nursing home residents

The supportive community is a program that was developed in Israel for older people who live at home. The program provides its members with a service package that includes medical and social services, emergency call-button, cultural activities, and a ‘community parent’ who is responsible for the members. Using quantitative method, this study compared the level of quality of life between 55 older people living in their homes who are members of a supportive community (average age = 74.7) and 60 elderly people living in nursing homes (average age = 75.8). As expected, results indicate that quality of life among the older people living at their homes who are members of a supportive community was higher than among the older people living in a nursing home. In addition, the quality of life of married, educated, functionally independent older people in good health and with a good economic situation was higher. Predictor variables of quality of life were: the place of residence, health status, and age. In light of increased life expectancy and the growing need to care for the older population, the practical application of the study focused on a recommendation for the social services to continue the support community development program.     

Schizophrenia,Community Integration,and Recovery

Abstract

Rooted in deinstitutionalization policy, the community inclusion required by the Olmstead case, and the grass roots recovery movement, community integration for those who have diagnoses of serious mental illnesses has become an increasingly important policy goal. The purpose of this project was to examine empirical evidence describing experiences with social or community integration for people with psychiatric disabilities, with a particular interest in the schizophrenias. Studies chosen for review all involved direct survey or interview data from people with psychiatric disabilities and examined subjective experiences with social relationships or linked social participation with clinical, functional, or quality of life outcomes. Experiences involving the dynamics of social stigma, the achievement of personal agency, and innovative pathways to satisfying social inclusion are core themes found that are highly relevant for practitioners. Social work, with its ecological perspective, is well suited to address the complexities of conflicting interests and objectives that have arisen in mental health care in the pursuit of community integration. Suggestions for fruitful responses are presented.     

Arts policy and practice for disabled children and young people: towards a ‘practice spectrum’ approach

This article argues for an approach to the evaluation of arts policy and practice for disabled children and young people that goes beyond the dialogic antagonism between Disability Arts and community arts, and towards a ‘practice spectrum’. Little is known about the extent to which a Disability Arts perspective has extended into arts policy and practice for disabled children and young people. The article aims to redress this knowledge gap. It is based upon two sets of data collected in relation to the East Midlands region of England during 2014. First, a critical evaluation was conducted of official and institutional attitudes to arts practice with disabled children and young people. Second, interviews exploring contemporary practice were conducted with 24 arts organisations. Their practice represents a diverse range of art forms and programmes undertaken in the region, and a range of attitudes and positions taken towards disabled children and young people. We argue that the best way to conceive of current practice is as a spectrum, as opposed to an antagonism between community arts and Disability Arts perspectives. There is, however, little evidence of the penetration of a Disability Arts perspective into policy and practice for children and young people.     

Enabling careers, autonomy, and prosperity: Using community organizing and building approaches to improve the educational outcomes of people with mental illness

Objectives: The objective of this regional initiative was to develop access to educational opportunities for people with mental illness with a view to ultimately advancing their career prospects. Participants: The initiative engaged a broad range of community stakeholders including people with mental illness, their families, educators, mental health service providers and, policy analysts. Methods: The initiative used community organizing and development strategies to develop solutions to problems related to access to education. Results: The initiative was successful in mobilizing community participation, identifying priorities, and translating these priorities into action plans. Working groups of community stakeholders engaged in initiatives related to improving access to resources to support education, developing training for teachers in secondary schools, creating peer support systems, and developing a pilot supported education program as a partnership between a college and mental health service. Conclusion: Organized community building provided a foundation for a broad range of initiatives meant to improve access to educational opportunities for people with mental illness. Evaluation efforts will need to focus on the extent to which these initiatives ultimately ledto positive changes in the careers of people with mental illness.     

Representing the Views of Disabled People in Community Care Planning

The 1990 NHS and Community Care Act requires social services departments in Britain to involve representatives of service users in the preparation of their annual community care plans. This paper gives a critical account of the different ways in which the views of disabled people are sought and represented in community care planning; and of the organisational and practical barriers which disabled people and their organisations are likely to encounter in representing their views to service planners. People with learning disabilities, older disabled people, people with sensory impairments and disabled people from Black and ethnic minority communities are particularly likely to be excluded from current consultation procedures. The paper concludes that present methods of representation place considerable burdens on both individual disabled people and on their organisations. Consequently, disabled people may increasingly question the effectiveness and usefulness of their involvement in community care planning, in the light of the many other issues which are important to them.     

Racial and Ethnic Differences in Experiences of Discrimination in Accessing Social Services Among Transgender/Gender-Nonconforming People

Members of the transgender/gender-nonconforming (GNC) community experience higher rates of discrimination based on their gender compared to their cisgender counterparts. Similarly, people of color experience higher rates of discrimination than White people. This study examines the difference in experiences of discrimination among transgender/GNC individuals in accessing social services providers by race/ethnicity (White and people of color). The data collected in a national cross-sectional survey (N = 6,451) and analyzed via chi-square test of independence and binary logistic regression demonstrate the disproportionate prevalence of discrimination based on race/ethnicity within the transgender/GNC population when accessing social services such as drug treatment centers, mental health clinics, domestic violence shelters, and rape crisis centers. Social workers are the most common provider of social services to the community, and have an ethical commitment to provision of services without discrimination. High rates of discrimination in accessing social services among transgender/GNC people, with even higher rates of discrimination for transgender/GNC people of color, highlight the need for improvement in social work education and practice.     

Involving People with Disabilities in Volunteer Roles

Abstract

According to the 2002 National Health Interview Survey, 33.7 million non-institutionalized Americans have limitations in usual activities. A recent poll on community participation found that, overall, people with disabilities have lower rates of community participation compared to those without disabilities. An analysis of that same poll concluded that people with disabilities continue to be treated as second class citizens by being excluded from the mainstream of everyday life. Social role valorization theory proposes creating and supporting socially valued roles for people who are kept at a social distance. It is through these valued social roles that they gain equal access to other opportunities that society has to offer. One such socially valued role is that of a community volunteer. Volunteer activities can foster a social environment where people with disabilities are seen as credible coping individuals. This paper reports the results of a survey of twenty-six community agencies which regularly use volunteers. The purpose of the survey was to identify barriers to volunteer opportunities for people with disabilities and to explore openness to methods to remove the barriers through community collaborations.     

Quality of Life for People with Learning Difficulties Moving to Community Homes

Research concerning people with learning difficulties who have left institutions has typically investigated how well people 'adapt' to life in the community, and has often ignored users' own perceptions of the changes in their quality of life resulting from the move. In this study, eight people with learning difficulties who moved from a hospital and seven people who moved from parental homes to live in staffed homes in the community were interviewed. Choice, privacy, social life and relationships with their parents and staff emerged as important factors in participants' perception of their quality of life. Their relationships with their parents were found to be close, and in some cases their parents were overprotective. Staff were perceived in some cases as too controlling and in others as providing too little support. The findings indicate that people with learning difficulties moving to community residences have aspirations which encompass far more than a wish to adapt to life in the community, and their relationships with family and staff are a central factor in achieving such aspirations.