Unmet service needs of families of young children with chronic illnesses and disabilities

Data about health and educational services were collected from 187 families with young children (under two years) who have chronic illnesses and disabilities. The purpose was to assess parents' satisfaction with services their families received and to identify families' unmet service needs as well as the reasons for these unmet needs. Although families' ratings of the adequacy of services are relatively high, 28% of the families report unmet service needs. The unmet needs most often reported are occupational, physical, or speech therapy; respite care/child care; and special education. Lack of funding is the most commonly given reason for unmet needs. Children with multiple impairments are at highest risk for unmet needs. Only 22% of unmet needs reported at the initial interview have been met by the time of the six-month follow-up. Increased coordination and monitoring of services across service sectors are indicated. Her research interests include the effects of disability on family identity and families' responses to minority stress. She received her Ph.D. from the University of Minnesota. She gratefully acknowledges Shelley Blazis and Nadav Casuto for statistical consulting. Her research interests focus on the impact of chronic illness and disability on families. She received her Ph.D. from the University of Minnesota. Her research interests include families and health and chronic illness and disability in children. She received her Ph.D. in Family Social Science at the University of Minnesota. His areas of interest include neurodevelopmental outcomes of low birth weight infants and training in developmental pediatrics. He was graduated from the University of Minnesota Medical School. His areas of interest include adolescents with chronic illness and disabilities, adolescent sexual decision making, and international adolescent health care issues. He was graduated from Howard University College of Medicine was awarded his earned doctorate in Health Policy from the University of Minnesota. Preparation of this article was supported by the National Institute on Disability and Rehabilitation Research Grant #H133890012.     

The determinants of worry over chronic health condition for rural couples

This study investigates the determinants of chronic health conditions that worry the member of rural couples who serves as the household financial manager. A sample of 1,115 rural couples from the NC-182 regional research project Family Resource Utilization as a Factor in Determining Economic Well-Being of Rural Families is used. The logit analysis finds that the probability of having a condition that worries the financial manager increases if she or he is middle aged or older, is not employed, and has external Locus of Control. This probability also increases when the dissatisfaction with the resources available to handle a financial emergency increases and the more often the financial manager does not have money to pay for the doctor.Preparation of this research was supported in part by the Minnesota Agricultural Experiment Station project 52–056 and the Minnesota Extension Service. Data were collected in conjunction with the cooperative regional research project NC-182, Family Resource Utilization as a Factor in Determining Economic Well-Being of Rural Families. Cooperating states are Arizona, California, Illinois, Indiana, Iowa, Kansas, Michigan, and Minnesota.Her current research interests include the economic well-being of various family forms. She received her Ph.D. from University of Illinois.Her current research interests include family financial management and consumer bankruptcy. She received her Ph.D. from the University of Missouri.Her current research interests include issues concerned with family stress management including financial stress. She received her Ph.D. at Michigan State University.Her current research interests include economic and environmental well-being for families and individuals with emphasis on the impact of environmental regulations on economic well-being. She received her Ph.D. from University of Illinois.His current interests include economic well-being of rural families. He was a research assistant for Dr. Bauer before receiving his Ph.D. degree in Agriculture and Applied Economics, University of Minnesota, St. Paul, MN.     

Using psychometric analysis to evaluate the construct validity and reliability of the Coping Response Indices

The Coping Response Indices developed by Billings and Moos (1984a) are frequently used in stress research in the social science and clinical fields. These indices were originally developed in a clinical setting using a conceptual process rather than psychometric methods. This study investigates the factorial structure of the Coping Response Indices scale using a nonclinical sample. Principal components analysis with varimax rotation yields three distinct dimensions within the scale. Considerable support is found for the conceptualization of the Coping Response Indices, as proposed by Billings and Moos. There is also some indication, however, that the conceptualization and measurement of the indices need further revision and testing, especially if they are to be used in social science research. Her research interests include economic strain, stress and coping, and child functioning in diverse family structures. She received her Ph.D. from Oregon State University. Her research focuses on vulnerable children and families, life-span caregiving issues, intergenerational relations, and prevention of child abuse and neglect. She received her Ph.D. from Oregon State University. Her research focuses on family resource management, work, stress, and families, and multiple role management. She received her Ed.D. from Utah State University.     

Financial management: Development of scales

This study is a contribution to the development of family resource management scales, specifically financial management scales. Principal axis factor analysis, with varimax rotation, is used to assess underlying relationships in 23 family resource management variables related to time and money resources. Reliability and content, construct, and criterion-related validity of the scales are assessed. Two scales that are reliable and have some degree of validity are developed: frequency of financial problems and frequency of financial management. The scales could be used in future research, teaching, or counseling to organize financial management concepts.Preparation of this research was supported in part by the Illinois Agricultural Experiment Station. Data were collected in conjunction with the cooperative regional research project NC-182, Family Resource Utilization as a Factor in Determining Economic Well-Being of Rural Families. Cooperating states are Arizona, California, Illinois, Indiana, Iowa, Kansas, Michigan, and Minnesota.She received her Ph.D. from the University of Illinois; her current research interests include gender roles, family financial management, and economic well-being.Her current research interests include family financial management and consumer bankruptcy. She received her Ph.D. from the University of Missouri.Her current research interests include the economic well-being of various family forms. She received her Ph.D. from the University of Illinois.She received her Ph.D. from the University of Illinois. Her research interests are economic well-being and quality of life.     

Factors associated with expectation of household's future financial condition

Path analysis is used to examine the causal relationships among selected objective and subjective factors associated with a household's expectation of future financial condition. Results indicate that respondents who perceive the effect of changes in the external environment on their own household's financial condition as positive are younger, have higher net worth, perceive more internal control over their situation, and report that most of the changes in the external environment are positive. Respondents who are younger, have higher income, perceive more internal control over their situation, and believe the effect of changes in the external environment on their household's financial condition are positive are more likely to be optimistic about their financial future. It is important that educators and financial advisors recognize the significant role perception of being in control plays in determining expectations of future financial condition.Journal Paper No. J-15256 of the Iowa Agriculture and Home Economics Experiment Station, Project No. 2809. Data were collected in conjunction with the cooperative regional research project NC-182, Family Resource Utilization as a Factor in Determining Economic Well-Being of Rural Families. Cooperating states are Arizona, California, Illinois, Indiana, Iowa, Kansas, Michigan, and Minnesota.Her current research interests include family financial management and consumer bankruptcy; she received her Ph.D. from the University of Missouri.She received her Ph.D. from the University of Illinois; her current research interests include gender roles, family financial management, and economic well-being.She received her Ph.D. from the University of Illinois. Her research interests are economic well-being and quality of life.Her current research interests include the economic well-being of various family forms. She received her Ph.D. from the University of Illinois.     

Perceived risk associated with apparel purchasing in discount stores

Consumer discount store patronage preferences for apparel are investigated using the concept of perceived risk. Apparel items are assigned a type and level of risk: low social, low economic; high social, low economic; and high social, high economic. Females (N=222) responding to a mail survey rate their willingness to purchase each item in a discount store on a scale ofprefer to buy, may buy, ornever buy. Results suggest that consumer preference for purchasing in discount stores declines more sharply when economic risk increases than when social risk increases.Teresa A. Summers is Associate Professor of the School of Human Ecology, Textiles, Apparel Design and Merchandising at Louisiana State University, Baton Rouge, LA 70803. She received her Ph.D. from Texas Woman's University. Her research interest includes rural/urban consumer responses to changes in the marketplace.Frances C. Lawrence is Professor of the School of Human Ecology, Family, Child, and Consumer Sciences at Louisiana State University, Baton Rouge, LA 70803. She received her Ph.D. from Florida State University. Her research interests include family financial decision-making and family time use.Janice L. Haynes is Assistant Professor of the School of Human Ecology, Textiles, Apparel Design and Merchandising at Louisiana State University, Baton Rouge, LA 70803. She received her Ph.D. from Texas Woman's University. Her research interest includes retail patronage of specialized consumer market segments.Patricia J. Wozniak is Associate Professor of the Department of Experimental Statistics at Louisiana State University, Baton Rouge, LA 70803. She received her Ph.D. from the University of Wisconsin-Milwaukee. Her research interests include survey methodology and rural families.     

The components of family policy education

The study of family policy in the United States began relatively recently. The academic community increasingly has shown interest in this new policy arena. Much of the conceptual writing on family policy emerged from disciplines such as family studies, social work, political science, economics, and sociology. These academic units have recently modified their course curricula to include more family policy content. These family policy education efforts are discussed in this article. Specific suggestions are made concerning the development and content of family policy education, broader educational training for those who want to pursue a career in family policy, and future goals and directions for family policy education. She received her Ph. D. in Human Development and Family Studies from The Pennsylvania State University. Her research interests are in the family and health policy arenas, with particular focus on ethnically diverse populations. Her most recent research is on homeless children and mothers. She received her Ph.D. in Family Social Science from the University of Minnesota. Her teaching and research interests are workplace and family issues and family policy and impact analysis.     

The relation of economic factors to perceived stress in mobile families

The purpose of this research is to examine the relationship between objective and subjective measures of economic well-being, amount of and satisfaction with control, and perceived stress level of subjects, who have relocated with their families within the past year. Both males and females indicate more stress if their financial condition is worse following the move than before, if their employment status is not satisfying, and when they have little control over their lives and are not satisfied with their level of control. Stress is negatively related to satisfaction with the specific aspects of economic situation studied for both males and females with limited exception.Peggy S. Berger received her Ph.D. from Pennsylvania State University. She is an Associate Professor in the Department of Consumer Sciences, Colorado State University, Fort Collins, CO 80523. Her research interests include socioeconomic issues related to geographic mobility and to gender, and work and family issues.Judith Powell received her Ph.D. from Oklahoma State University. She is a Professor of Child and Family Studies, and Head of the Department of Home Economics, University of Wyoming, Laramie, WY 82071. Her research interests include parent-child relations and effects of relocation on families.Alicia Skinner Cook received her Ph.D. from Arizona State University. She is a Professor in the Department of Human Development and Family Studies at Colorado State University, Fort Collins, CO 80523. Her research interests include grief and loss issues, family stress, and adjustment to relocation.     

Home care reimbursement for technology-dependent children: Its impact on parental distress

The distress of 52 parents with a technology-dependent child at home is measured using a standardized psychological inventory. Fifty-eight percent of these parents report enough symptoms to classify them as needing psychiatric intervention. Cost savings to third-party payers are accelerating the trend toward home care (rather than institutionalized care). Yet, these findings point to an underestimated cost to families in terms of parents' psychological well-being. One factor associated with less distress for mothers is having services reimbursed through the Medicaid Model Waiver Program, which provides a comprehensive plan for home care services. In contrast, services reimbursed by private third-party payers are more variable, placing greater financial strain and uncertainty on parents, which is associated with greater psychological distress. These results suggest the need for further study of the long-term impact on parents caring for technology-dependent children at home.Reprint requests to Barbara J. Leonard, R.N., Ph.D., Maternal and Child Health Major, Division of Human Development and Nutrition, School of Public Health, Box 197 UMHC, University of Minnesota, Minneapolis, MN 55455, (612) 625-3660.This study was supported in part by BRSG Number 2-S07-RR05448-25 awarded to the University of Minnesota, School of Public Health by the Biomedical Research Grant Program, Division of Research and Resources, National Institute of Health. Additional support was provided by the Department of Health and Human Services, State of Minnesota, Academic Computing Services and Systems, University of Minnesota and special project funds from the University of Minnesota School of Public Health.Barbara J. Leonard is an Assistant Professor and Chair of the Maternal and Child Health Major, Division of Human Development and Nutrition, School of Public Health, University of Minnesota, MN 55455. Her research interests include children with developmental disabilities, their parents, and siblings. She received her Ph.D. from the University of Minnesota.Janny Dwyer Brust is a Research Fellow in the Maternal and Child Health Major at the University of Minnesota. Her research interests include issues related to the care of chronically ill children and sexually abused children. She received her M.P.H. from the University of Minnesota.Joan Patterson is an Assistant Professor in the Maternal and Child Health Major and Associate Director of the Center for Children with Chronic Illness and Disability at the University of Minnesota. Her research interests include family adaptation to chronic illness and family stress and coping. She received her Ph.D. from the University of Minnesota.     

Using a computer simulation game to teach family time use concepts

A computer simulation game designed to give students insights into family time use concepts has been used in an introductory family resource management class at Ohio State University and other universities. The game allows for planning for time use changes over the family life cycle. The game can give students insights into economic and sociological models of time use. It is possible that future versions of the game could be used in family counseling.His research interests include derivation of optimal decision-making rules for families and family financial management.Her research interests include financial management over the life course including financial ratios, baby boomers, and retirement. She received her Ph.D. in 1993 from The Ohio State University in Family Resource Management.His research interests include the time trade-offs made between couples, financial planning over the life cycle, and the interaction of time and money between families and their home-based businesses. He received his Ph.D. in 1993 from The Ohio State University in Family Resource Management.     

The utilization of child care by households engaged in home-based employment

A logit procedure is used to examine the factors associated with the likelihood of using child care services among a sample of households with both a home-based worker and a child designated as needing care. Being a single-parent, having high family income, and the presence of a two-year old child are positively associated with the likelihood of using child care. Being an older worker, having a child who is one year or less or children who are 11 to 12 years, and having a less professional occupation decreases the likelihood of using child care. Self-employment decreases the likelihood of usage; owning a business that hires employees or services increases the likelihood of usage. The major conclusion is that home-based work may be a coping strategy for some child care needs, but home-based working households often need and use child care.This article reports results from the Cooperative Regional Research Project, NE-167, entitled, At-Home Income Generation: Impact on Management, Productivity and Stability in Rural/Urban Families, partially supported by the Cooperative States Research Service, U. S. Department of Agriculture and the Experiment Stations at the University of Hawaii, Iowa State University, Lincoln University (Missouri), Michigan State University, Cornell University (New York), The Ohio State University, The Pennsylvania State University, Utah State University, and the University of Vermont. Authors are listed in descending order of their contributions to this research paper. Appreciation is expressed to Frank Chiang for the computer assistance needed to complete these analyses. Patsy Sellen was instrumental in formatting and stylizing this article to required guidelines.Her current research interests include household asset and debt formation, working families and employers' benefits, and home-based employment. She received her Ph.D. from Purdue University in 1978.Nancy C. Saltford, has recently been a Visiting Scholar at the Employee Benefit Research Institute, a public policy research organization in Washington D.C. where she specialized in employer policies for working families. Her Ph.D. was received from Purdue University in 1971.Her research interests include the economics of divorce and at-home income generation. She received her Ph.D. from Oregon State University in 1986.Her primary areas of research are rural families, household production, family time use and its meaning, and the interactive aspects of managerial, productive and affective functions of families. She received her Ph.D. from the University of Missouri-Columbia in 1983.     

The roles of role strain,economic resources and time demands in explaining mothers' life satisfaction

Time diary and questionnaire data from mothers who are full-time homemakers, members of dual-earner households, and heads of single-parent households are analyzed to determine the influence of family structure, economic resources, and time demands on their life satisfaction. The multivariate analysis reveals that family structure is moderately related to mothers' satisfaction with progress in life but not to satisfaction with life as a whole. Mothers' satisfaction with life as a whole does vary with their life cycle stage, economic situation, and their use of time.Her research interests include time use of household members and CADD education for interior design students. She received her Ph.D. from Michigan State University.Her research assesses the impact of household composition changes on economic well-being. She received her Ph.D. from Cornell University.     

Family policy in Korea

In Korea, family policy as a public policy gained interest in the 1980s, when the Ministry of Health and Social Affairs (since January 1995 the Ministry of Health and Welfare) renamed the Maternal and Child Bureau the Family Welfare Bureau. This paper first presents a brief overview of the traditional family system and values in Korea and examines changes in economic and social indicators, changes in family functions and roles, and changes in attitudes toward family that have occurred following industrialization and urbanization. The paper then briefly explains some of the problems Korean families face today. It next examines the Family Planning Program and its results. Finally, it turns to an examination and critique of the policies and programs administered by the Family Welfare Bureau.Yeonoak Baik is a Family Advocacy Therapist for the 8th U.S. Army c/o Commander, 43rd Surgical Hospital (MA), ATTN: EAMC-SH-FAP, Room D-108, Unit #15190, APO AP, 96271-0126. She works in Korea with U.S. military soldiers and their dependents. Her research interests include child welfare, single-parent families, and domestic violence. Her MSW was received from the School of Social Work, University of Michigan, Ann Arbor.Her research interests include children of divorced families, social welfare policy, and social work administration in Korea. She received her Ph.D. in Social Welfare at Seoul National University in Korea.     

Home-based employment: Historical and current considerations

The purposes of this article are threefold. First, there is a brief review of current and historical research on home-based business with special emphasis on female home-based employment and the impact of such employment on family life. Second, a conceptual model for family work activities is advanced. Finally, concepts related to home-based employment that could be used to frame and describe the empirical study are specified.This article reports results from the Cooperative Regional Research Project, NE-167, entitled At-Home Income Generation: Impact on Management, Productivity and Stability in Rural/Urban Families, partially supported by the Cooperative States Research Service, U. S. Department of Agriculture and the Experiment Stations at the University of Hawaii, Iowa State University, Lincoln University (Missouri), Michigan State University, Cornell University (New York), The Ohio State University, The Pennsylvania State University, Utah State University, and the University of Vermont.Her research interests include measuring household production, at-home income generation, and rural families. She received her Ph.D. in Family and Consumer Economics from the University of Missouri-Columbia.Her research interests include home-based business and consumer behavior. She received her Ph.D from Virginia Polytechnic Institute and State University.Her research interests include consumer behavior and family economic issues. She received her Ph.D. from Virginia Polytechnic Institute and State University.     

Individual and relationship capital: Implications for theory and research on families

It is proposed that the concept of human capital should include both individual and relationship capital. A conceptual model illustrating the investment of human capital in individuals, marriages, and families is presented. Indicators of individual, marital, and familial capital are proposed. Implications of the concepts of individual, marital, and familial capital for theory and research on family processes are discussed. It is suggested that family economists should employ a broader range of measures of human capital and use the concept of relationship capital and that family scientists should use the concepts of individual and relationship capital in theory and research on families. Defining human capital in this manner creates new ways of applying the human capital concept to families.This article is a revised version of a paper presented at the 17th Annual South-eastern Regional Family Economics/Home Management Conference, held at the University of Georgia-Athens, February 4–6, 1988. The authors would like to thank two anonymous reviewers for helpful comments and suggestions.His research interests include transmission of values in families, family routines, and family stress and coping. He received his Ph.D. from the University of Minnesota.Her research interests include family resource management and the relationship between conflict among family members and perception of resources. She received her Ph.D. from the University of Minnesota.     

Time demands on families: Is there a bottom line?

As families continue to adapt to interpersonal and marketplace pressures, time available for household production is becoming scarce. The purpose of the study reported here is to explore the utility of regional economic analyses in determining minimal levels of household production as measured in terms of time. The results provide a minimum family time required in the long term of approximately 35 hours per week and a short term requirement of 2 hours per week. Theoretical frameworks used in family science are integrated in the discussion to explain these findings.Pamela N. Olson is an Assistant Professor in the Department of Counseling and Family Studies, University of New Mexico, Albuquerque, NM 87131. Her current research interests are family member time-use and families in debt. She completed her Ph.D. at Oregon State University.James J. Ponzetti, Jr. received his Ph.D. from Oregon State University. He is currently an Assistant Professor in Family Studies in the Department of Home Economics, Central Washington University, Ellensburg, WA 98926. His current research interests include divorce, loneliness, and family planning.Geraldine I. Olson is Associate Professor and Graduate Program Director, Family Resource Management, College of Home Economics, Oregon State University, Corvallis, OR 97131. She completed her Ph.D. at The Ohio State University and current research interests include family member time-use, assessing managerial activities, and factors which influence the substitution of marketplace goods with household production.     

Housing affordability among elderly female heads of household in nonmetropolitan areas

This study investigates the extent and nature of housing affordability for elderly nonmetropolitan female heads of household using data from the Panel Study of Income Dynamics. The results indicate that over one-third of elderly nonmetropolitan female heads of household experience housing poverty and that those who rent, who have fair to poor health, and who are minorities are particularly vulnerable. Housing affordability, measured by the concept of housing poverty, identifies households struggling to meet basic needs while the conventional 25% of income for housing expenditures ratio identifies a larger population. The findings suggest the need for multifaceted public policies to address the problem of housing poverty. Her research interests include housing affordability, housing and community vitality, and decision making. She received her Ph.D. from Purdue University. Sooyoun Park is in the same department as a Project Assistant on a USDA-funded research project entitled “Housing Affordability in Rural Areas,” which is a joint project between Nebraska and Wisconsin. Her research interests focus on housing management behavior in relation to housing expenditure burden. She received her Ph.D. from the University of Nebraska-Lincoln.     

Child support guidelines: Economic theory and policy considerations

Federal legislation has mandated that all states develop numeric guidelines for child support awards in divorce and paternity suits. The purpose of this article is to review the theoretical models currently used in guidelines development and to present an analysis of issues pertinent to the development and use of guidelines. A familiarity with the principles underlying child support guidelines will assist family scientists who may be called upon to provide expertise on this public policy issue.Barbara R. Rowe is Family Resource Management Extension Specialist, College of Family Life, Utah State University, Logan, UT 84322-2949. Her research interests include the economics of divorce and at-home-income-generation. She received her Ph.D. from Oregon State University.     

The importance of selected housing features at various stages of the life cycle

The spatial environment of the home is an important factor in the consideration of satisfactory housing for families. With the increasing demand for housing, it has become common to simply provide the basic structure without addressing the various wants and needs of individuals and families. It is the purpose of the study reported here to evaluate the importance of specific housing features based on stage in the family lifecycle. Results show that those features with the highest importance involve low maintenance, aesthetics, and environmental quality. Implications for home designers, educators, and consumers are discussed.Kathleen Ann Lodl is an Instructor in the Department of Consumer Science and Education, 128 Home Economics, University of Nebraska-Lincoln, Lincoln, NE 68583-0801. Her research interests include housing design, residential alterations, and female-headed households. She is currently working on a Ph.D. from the University of Nebraska.Betsy S. Gabb is an Assistant Professor in the Department of Textiles, Clothing and Design, 226 Home Economics, University of Nebraska-Lincoln, NE 68583-0802. Her research interests include housing design and residential space use. She received her Ed.D. from the University of Nebraska.E. Raedene Combs is a Professor in the Department of Consumer Science and Education, 134 Home Economics, University of Nebraska-Lincoln, Lincoln, NE 68583-0801. Her research interests include housing designs for special populations and families at risk. She received her Ph.D. from Purdue University.     

Building family functioning scales into the study of at-home income generation

This article describes testing of scales designed to measure the ways family members interact in a personal subsystem. The scales are intended to complement data about the managerial subsystem of a family and are to be used in conjunction with a regional research project focused on home-based work. The article includes conceptual underpinnings, construction of measures, and results of factor analysis of the measures administered. Suggestions for use of a family functioning scale in the context of a household that has a member working at home are explored in the final section.This article reports results from the Cooperative Regional Research Project, NE-167, entitled, At-Home Income Generation: Impact on Management, Productivity and Stability in Rural and Urban Families, partially supported by Cooperative States Research Service, U.S. Department of Agriculture, and the Experiment Stations at the University of Hawaii, Iowa State University, Lincoln University (Missouri), Michigan State University, Cornell University (New York), The Ohio State University, The Pennsylvania State University, Utah State University, and the University of Vermont.Her research interests include measuring household production, at-home income generation and rural families. She received her Ph.D. in Family and Consumer Economics from the University of Missouri-Columbia.Her research is primarily in poverty and divorce and the economic well-being of women and children. She received her Ph.D. from Oregon State University.Her research interests include entrepreneurship, especially as it relates to women and to international development. Her Ph.D. is from Cornell University.