Gender‐Sensitive Research in a Chinese Community

The aim of this article is to foster an awareness of the need for gender‐sensitive research in the context of the methodological and ethical challenges posed by such research. We trace the development of gender sensitivity and masculinity in social work practice and research and connect this to an overview of the issues posed by research on sensitive topics. Reflecting on a research project involving Chinese male sexual abuse survivors, we draw conclusions illustrating and proposing a range of methodological practices and ethical safeguards. We underscore the importance of gender‐sensitivity in performing research on sensitive topics with men in a Chinese community.     

Methodological Challenges of Studying Asian Gangs in Canada

This paper discusses the methodological challenges encountered in a research study on Asian gangs in Canada with reference to (a) defining Asian gangs; (b) seeking external funding; (c) securing support from ethnic communities; (d) getting approval for ethical research with human subjects; (e) recruiting research participants; (f) ensuring safety of the researcher; and (g) protecting the identity of research participants. The issues discussed would be relevant to those who are interested to examine the same phenomenon in countries with large Asian populations in Western counties (e.g., the United States and the United Kingdom) and in the Asia-Pacific Region such as Australia, Singapore, and Malaysia.     

Improving utilisation of Māori land: Challenges and successes in the application of a participatory approach

Abstract

The limited impact of traditional extension techniques has resulted in the increasing use of participatory approaches to support interaction between Māori communities and scientists. This paper draws on the experience of a 5 year case study of such an approach among scientists and Māori on the East Cape. While supporting the value of a participatory approach, the paper argues that the adoption and use of such an approach must be viewed as an iterative process and one that challenges all participants, not only on operational detail, but on the ethical issues posed by such work. This paper highlights the value of a collaborative approach but questions the appropriateness of branding all such approaches as participatory research when used to support national policy initiatives. It concludes that participatory approaches challenge the scientists involved as much as the communities concerned and questions the validity of conventional measures of success in any evaluation of such work.     

Environmental Disasters and Disastrous Policies: An Overview from India

Though disasters have been important recurring events in South Asia, the policy framework for addressing the issues arising from disaster has been weak. Taking an alternative perspective on the definition of disaster itself, this article attempts to address the cause of the increasing numbers of disasters in India. I posit that the nation‐state still understands disasters as a natural phenomenon, rather than as an intersection between conditions of vulnerability and actual hazards. This is to be observed in the disaster policies adopted. Hence, this article emphasizes the inclusion of ‘vulnerability’ as paramount.     

中国应对全球气候变化的伦理责任评估

应对气候变化是一项全球性的任务,中国承担着不可推卸的责任。从《伦理维度应对气候的变化》（EDCC）白皮书提出的八个伦理维度分析了中国应对全球气候变化需承担的伦理责任,指出了中国特例下履行责任所面临的赔偿责任、开发新技术与新能源、国际国内参与、程序公平与正义等重大挑战,构建了中国政府、国内其他参与者及境外参与机构组成的多层次气候治理框架,提供了决策参考和建议。     

Ethical and Regulatory Challenges in Psychophysiology and Neuroscience-Based Technology for Determining Behavior

In the past three decades, there has been an explosion in research to understand the mechanisms of brain function. Recent advances in psychophysiology and neuroscience, while still limited, have sparked great interest in developing technologies that could peer into the brain and be used to identify or indicate certain behaviors. The polygraph (lie detector) represents an old technology used for discerning clues to the human brain; functional magnetic resonance imaging (fMRI) represents one of the newest efforts. The use of these technologies in intelligence and counterintelligence in the field without validation represents a major concern about its usefulness. Both research on this new technology and subsequent use on public raise ethical challenges. This article will address the overall ethical issues associated with these new technologies. The report identifies the ethical and cultural challenges in conducting research on these new tools, explores the possibility of using current U.S. regulatory requirements regarding drugs and devices as a model for regulating these new technologies, and suggests approaches for the future.     

Accessing a hard to reach population: reflections on research with young carers in Ireland

In keeping with developments in children's rights, research is increasingly including the views of children. Accessing a hard to reach population of children can, however, raise significant ethical and methodological challenges for researchers. Negotiating access through gatekeepers, securing parental consent and limits on confidentiality are central issues in the recruitment process of children. This paper is based on a qualitative study of young carers in the Irish population. It outlines the methodological approaches employed to access a representative sample of young carers and the measures taken to fulfil ethical obligations. In the recruitment phase of the study, researchers attempted to strike a balance between two sometimes competing requirements, the need to protect children from harm and to respect children's competence. This paper reflects on the success and limitations of the approaches adopted towards achieving this balance, exploring the use of gatekeepers as a method to identify and recruit a hidden population, and revisiting the measures taken to comply with the ethical requirements of parental consent and limits on confidentiality.     

Supporting ethical use of electronic monitoring for people living with dementia: Social work’s role in assessment,decision-making,and review

Walking outdoors supports health and well-being, but some people living with dementia are at increased risk of getting lost and of harm while missing. Electronic monitoring can potentially play an important preventative role by enabling the person’s location to be continuously monitored by caregivers. However, there are considerable ethical concerns arising from electronic monitoring. This paper explores these thematically, drawing attention to its implications for autonomy and liberty; privacy; dignity; the rights and needs of caregivers and families; beneficence and nonmaleficence. Following from this, key questions for consideration in social work assessment are identified. The ethical issues necessitate assessment of the person’s unique circumstances and preferences and that of their caregivers, and careful ethical deliberation in decision-making. Social work can play an important role in facilitating inclusive assessment and decision-making, leading to consensus on intervening with electronic monitoring. The need for the ongoing review following implementation is discussed to track whether decisions need modification in light of the experience of usage. In conclusion, while legislative instruments and professional codes of ethics frame social work practice responses, there is need for a nuanced debate about ethical use of electronic monitoring and specific guidance to inform assessment, decision-making, and review.     

Minding the Gap: Positivism, Psychology, and the Politics of Qualitative Methods

This article explores the politics and practices of qualitative research, in particular by interrogating the "gap" between qualitative and quantitative approaches to research. Two main claims are elaborated: first, that despite being recommended on grounds of ethical superiority (such as of nonmanipulation and instrumentality), qualitative research is not immune from such problems and may indeed harbor its own practices of exploitation; second, and correspondingly, that the moral high ground associated with qualitative research arises from the ways it is used rather than from any intrinsic features of the methodology. The argument is made that it is important to maintain this distinction in order to counter the tendency toward methodological fetishism so prevalent in scientistic (i.e., aspiring to "natural" scientific status) disciplines such as psychology. After framing these issues with some comments on the current popularity of qualitative methods, the article illustrates these claims by exploring 5 key ways that the positivist agenda of the discovery and control of a natural world can return in qualitative research, especially when this is mistakenly evaluated according to criteria formulated for quantitative analyses. The article concludes with a consideration of the epistemological and political status of attempts either to bridge or exacerbate the gap between qualitative and quantitative approaches.     

The importance of preservation of the ethical principle of equipoise in the design of clinical trials: relative impact of the methodological quality domains on the treatment effect in randomized controlled trials

Previous research has identified methodological problems in the design and conduct of randomized trials that could, if left unaddressed, lead to biased results. In this report we discuss one such problem, inadequate control intervention, and argue that it can be by far the most important design characteristic of randomized trials in overestimating the effect of new treatments. Current guidelines for the design and reporting of randomized trials, such as the Consolidated Standards of Reporting Trials (CONSORT) statement, do not address the choice of the comparator intervention. We argue that an adequate control intervention can be selected if people designing a trial explicitly take into consideration the ethical principle of equipoise, also known as "the uncertainty principle."     

Mapping responsible conduct in the uncharted field of research-creation: A scoping review

This scoping review addresses the issues of responsible conduct of research (RCR) that can arise in the practice of research-creation (RC), an emergent, interdisciplinary, and heterogeneous field at the interface of academic research and creative activities. Little is yet known about the nature and scope of RCR issues in RC, so our study examined three questions: (1) What are the specific issues in RC in relation to RCR? (2) How does the specificity of RC influence the understanding and practice of RCR? (3) What recommendations could help address the issues highlighted in the literature? To answer these questions, we conducted a scoping review of the academic literature (n = 181 texts) dealing with RCR in RC. We found that researcher-creators faced some very different RCR challenges in comparison with their colleagues in the rest of academia. Addressing these issues is important for both the RCR and RC communities in order to ensure that the rapid development of this field occurs in line with the norms of RCR which, nonetheless, should be adapted to respect the particularities of RC and allow its contributions to the academic world.     

The Importance of the Preservation of the Ethical Principle of Equipoise in the Design of Clinical Trials: Relative Impact of the Methodological Quality Domains on the Treatment Effect in Randomized Controlled Trials

Previous research has identified methodological problems in the design and conduct of randomized trials that could, if left unaddressed, lead to biased results. In this report we discuss one such problem, inadequate control intervention, and argue that it can be by far the most important design characteristic of randomized trials in overestimating the effect of new treatments. Current guidelines for the design and reporting of randomized trials, such as the Consolidated Standards of Reporting Trials (CONSORT) statement, do not address the choice of the comparator intervention. We argue that an adequate control intervention can be selected if people designing a trial explicitly take into consideration the ethical principle of equipoise, also known as "the uncertainty principle."     

Resolving Beecher's Paradox: Getting beyond IRB reform

Protection of persons participating as research subjects is an essential element of ethical research conduct. There is growing concern that the existing system of institutional review boards (IRBs) and informed consent may not be adequate and is in need of reform. When science and medicine are “merged”; in clinical research, confusion of roles and conflicts of interests arise in relationships between patient‐subjects and physician‐investigators. IRBs have always had a primary role in protection of research participants. Their efforts to protect research subjects may make it more difficult for investigators to conduct research. This tension has lead to the development of an adversarial relationship between IRBs and investigators. Investigators and IRBs are also subject to external pressures that could impact efforts to protect research subjects. Efforts are underway to address these concerns. IRB reform, while needed, is not likely to be sufficient. Adoption of a new paradigm in which IRBs, investigators and research sponsors collectively accept protection of research subjects as their primary and shared responsibility may provide a more effective and efficient model that will be better able to deal with difficult ethical and social issues in clinical research.     

Disaster Relief Within a Collectivistic Context

Abstract

Until recently, most research on catastrophic events has focused on human outcomes with limited exploration of related adaptational processes. The little knowledge we have is based upon events occurring in the western world, despite the higher frequency of disasters in the nonwestern world. This study examines the cultural context of coping among survivors of the 2004 tsunami in Tamil Nadu, India. A non-probability, purposive sample of ten emergency responders, who represented a broad range of professions and were directly involved with relief efforts along the coast of South India, were interviewed individually one year after the tsunami. Data were collected using a semi-structured interview format with open-ended questions. Consistent with the collectivistic culture in India, content analysis was conducted using the Listening Guide methodology. Interpretive analysis revealed five common ways of coping: (1) returning to routine, (2) rebuilding family structures, (3) communal sharing of resources, (4) emotional expression of grief and loss to a supportive listener, and (5) finding benefits from the disaster experience. While these coping efforts may generally appear to be universal among people experiencing a natural disaster, findings reveal key aspects of the collectivistic cultural context of southern India. Discussion of the findings presents a compelling case for in-depth training of disaster responders in cross-cultural practice in order to effectively address the needs of survivors of mass level trauma.     

Detained and Dying: Ethical Issues Surrounding End-of-Life Care in Prison

Prisons are increasingly being called upon to provide end-of-life (EOL) care within the restrictive correctional environment. Several relatively recent phenomena have brought medical ethics to the forefront of prison EOL care—including aging behind bars, a paradigm shift in prison culture, the increasing rate of in-prison deaths, and the corresponding prison hospice movement. This article examines prominent ethical issues that emerge for prison personnel who are tasked with providing care to terminally ill offenders by presenting three offender composite characters that exemplify dying offenders and emergent ethical issues surrounding their care. Identification and critical analysis of these ethical issues demonstrate the need for strong commitment to ethical practice and highlights specific issues for prisons to examine in their own EOL care practice.     

Researching Homelessness and Rough Sleeping in the Scottish Context

This paper offers some reflections on a number of methodological and personal issues associated with researching homelessness, particularly in the Scottish context. It opens with an examination of the political and social construction of statistics on homelessness. It highlights the limitations of official data sources, and outlines the problems in quantifying (or even estimating) the extent of one of the most extreme manifestations of homelessness—rough sleeping. It identifies some other practical difficulties in conducting research amongst homeless people, such as setting and meeting interview targets, and questions the perceived level of risk in conducting face-to-face work with street homeless people. The second part of the paper considers a range of ethical tensions, posing a series of dilemmas which can arise for an academic researching homelessness. It is suggested that these issues and concerns could be widely applied to social policy research, and are therefore of equal relevance to academic researchers involved with any groups affected by poverty and social exclusion. Drawing on recent controversial practice debates, the paper questions the role of the researcher in perpetuating the so-called 'homelessness industry'. Finally, the paper argues that the researcher should seek opportunities to enhance user-involvement policy development as well as research. The paper suggests that researchers in the field of homelessness occupy a privileged position, providing a link between homeless people, agencies responsible for policy and practice, and politicians. It concludes that research can make a real contribution to understanding and alleviating homelessness. This, it argues, is the only valid justification for making a living out of homelessness research.     

Non-Native scholars doing research in Native American communities: A matter of respect

This paper raises issues involved in doing research in partnership with Native American communities. The paper explores methodological concerns such as: access and cooperation, protocol, culturally appropriate methods, and ineffective methods. Integral to this discussion are the rights of the Native American communities and the responsibilities of the researchers. Specific topics include: getting started on a project, control of the research project, negotiating the release of the information gathered during the project, recognition for involvement in the research, and other ethical issues.     

Editorial: genetic and genomic research-changing patterns of accountability

Debates about genomic science have raised questions about the implications for ethics and accountability. Accountability has external and internal aspects. Whereas ethical review, including attention to appropriate consent procedures, has been central to 'giving an account' externally, there are also issues internal to the practice of science itself. The pursuit of truth is central to the scientific endeavour, but truths can sometimes be 'inconvenient', leading to complex questions of accountability that go beyond the issues of consent. This is illustrated by the case of the Havasupai.     

Problems and Concerns of Welfare Paraprofessionals Working with Refugees

Summary In the present study of job motivation and the special problemsand concerns of 70 German community service workers it was foundthat they saw in their work an opportunity to apply their ownspecial talents, but that they were experiencing increasingdisillusionment and a sense of being manipulated and used bytheir clients. The participants found the opportunity to discussthese issues very helpful and such topics should not be neglectedin initial or in-service education.