Looking inside the bag of tools: creating research encounters with parents with an intellectual disability

This paper examines the development of fieldwork methodology in a study that investigated the parenting experiences and parent support needs of a group of parents with an intellectual disability. It considers the ways in which the original planning for the project changed as the fieldwork unfolded, requiring adaptations to our methodological expectations and in the process deepening our understanding of the phenomena we were studying and reinforcing for us the importance of relationships in fieldwork‐based research. Three themes in particular are considered that became central to this research: research relationships; safety for participants/positioning of the researcher; suspending assumptions about impairment and disability and influences on life experiences.     

‘Trial by fire’: forms of impairment disclosure and implications for disability identity

This article examines the ways in which people living with non-apparent impairments, sometimes called ‘invisible disabilities,’ choose to disclose their impairments to friends, colleagues, and supervisors. Drawing on life-history narratives conducted with 12 men and women who acquired non-apparent impairment through accident, injury, or illness, this analysis demonstrates that people who have acquired non-apparent impairment use three primary forms of disclosure – confessional, pragmatic, and validating – serving as mechanisms by which individuals internalize the stigma associated with disability, pragmatically acquire accommodations, or resist and challenge ableist views. This analysis shows the ways that disclosure more broadly, and these forms specifically, play important roles in developing and negotiating disability identity.     

Neurocognitive deficits as a barrier to psychosocial function in schizophrenia: effects on learning, coping, & self-concept

Recently, research has linked deficits in neurocognition, which emerge early in schizophrenia, with psychosocial impairments. However, it is uncertain how these deficits lead to sustained dysfunction. In this review, we explore how neurocognitive deficits could disrupt function at three levels: learning, coping preference, and self-concept. We offer a model in which neurocognitive impairment may directly limit skills acquisition and the development of a rich personal narrative. We suggest that both limited skills acquisition and an impoverished narrative may subsequently feed into a habitual style of avoidant coping, leading to a cycle of sustained dysfunction. Implications for cognitive, rehabilitation, and psychotherapeutic interventions are discussed.     

Parenting in poverty: Perspectives of high-risk parents

Parents considered high risk by child protection services commonly are striving to raise children in poverty but are identified as requiring improved parenting skills. Parent perceptions of their own needs are typically not sought or elicited. This longitudinal study of 35 parents over 18 months garnered 115 in-depth interviews focusing on parent views regarding barriers to effective parenting. Analysis indicated that parents uniformly identified poverty as the primary barrier to their capacity to provide adequate care for their children. Themes elicited indicated that financially parents were living precariously close to margins of defeat. Parents accepted personal responsibility for their economic and parental failings, equating no income with bad parenting. Depression and despair associated with poverty were acknowledged to impair parenting and increase self-doubt about parenting capacity. Experiences with social services generally led to low expectations of parenting assistance. The need for improved aid for impoverished parents is discussed.     

‘I accept my son for who he is – he has incredible character and personality’: fathers’ positive experiences of parenting children with autism

Literature in the field of autism is largely deficit driven, with a focus on the inabilities of individuals and the negative experiences of families, often characterised by reductive assumptions and tragedy model interpretations. In addition, family-orientated research has generally overlooked the views and contribution of fathers of disabled children, with positive paternal narratives especially scarce. This study explored 198 father perspectives on perceived benefits of parenting their children with autism, gained in response to an open-ended question in an online survey. Key themes relate to appreciating children’s individual qualities, valuing the strong emotional bond, fathers’ own nurturing role and their associated personal development. Findings will be discussed in relation to models of childhood disability and fatherhood.     

Assessing Prejudice Toward Two-Father Parenting and Two-Mother Parenting: The Beliefs on Same-Sex Parenting Scale

This article describes two interrelated studies that investigated beliefs and stereotypes on two-father parenting and two-mother parenting through the development and validation of the Beliefs on Same-Sex Parenting (BOSSP) scale. The BOSSP captures two beliefs: (1) prejudices toward same-sex couples’ inherent inability to parent and (2) concerns about same-sex parenting that are not necessarily related to homonegativity. In Study 1 (301 heterosexual participants), exploratory factor analysis (EFA) suggested an 11-item scale for attitudes toward both two-father families and two-mother families, with two factors: parenting skills, which evaluates beliefs on same-sex couples’ ability to take care of their children; and parental adjustment, which assesses beliefs on the impact of challenges related to same-sex parenting on children’s well-being. Support for convergent validity between BOSSP factor scores and those of theoretically related measures were provided. In Study 2 (346 heterosexual participants surveyed in two time points), CFA indicated that the two-factor model provided the best fit. Test-retest reliability and longitudinal invariance were documented. Finally, results revealed that more negative attitudes toward same-sex parenting were held by men than by women and were associated with negative opinions on reproductive techniques. The innovative characteristics of the BOSSP and implications for future practice are discussed.     

The use of Information and Communication Technology (ICT) in the rehabilitation of individuals with severe functional impairments in a municipal care service system

This article explores the development of a scheme to use Information and Communication Technology (ICT) in the training of individuals with severe functional impairments. Computers were used as an integral part of a rehabilitation programme for training, and the authors found that the resource was a useful addition to other treatment methods. This article describes the development and subsequent setting up of computers for training and how the study progressed. The study used a somewhat unique bottom up approach that first trained care-giving staff in computer skills. The caregivers in turn worked with and trained some of those they served. This learning strategy drew upon the concept of learning, empowerment and the motivation of all involved in a system and process. The study found that by using ICT all involved felt a greater sense of empowerment and improvement in the quality of life. That caregivers were involved at all stages was valuable in that they felt an ownership of the process and that they also benefited from being involved because they also learned new skills.     

The added impact of parenting education in early childhood education programs: A meta-analysis

Many early childhood education (ECE) programs seek to enhance parents' capacities to support their children's development. Using a meta-analytic database of 46 studies of ECE programs that served children age three to five-years-old, we examine the benefits to children's cognitive and pre-academic skills of adding parenting education to ECE programs for children and consider the differential impacts of: 1) parenting education programs of any type; 2) parenting education programs that provided parents with modeling of or opportunities to practice stimulating behaviors and 3) parenting education programs that were delivered through intensive home visiting. The results of the study call into question some general longstanding assertions regarding the benefits of including parenting education in early childhood programs. We find no differences in program impacts between ECE programs that did and did not provide some form of parenting education. We find some suggestive evidence that among ECE programs that provided parenting education, those that provided parents with opportunities to practice parenting skills were associated with greater short-term impacts on children's pre-academic skills. Among ECE programs that provided parenting education, those that did so through one or more home visits a month yielded effect sizes for cognitive outcomes that were significantly larger than programs that provided lower dosages of home visits.     

Improving service approaches and outcomes for people with complex needs through consultation and involvement

Services have not always catered well for people with complex needs. The term 'complex needs' is used here to signify people who have cognitive impairments and communication difficulties that present major challenges for getting one's views and preferences heard and understood, and/or who may not fit into traditional categories of service provision. Current developments in policy and practice, such as the single shared assessment process, emphasise inclusion through user involvement. There is a danger, however, that people with complex needs will be seen as too difficult to involve, and will therefore remain effectively excluded from the decision-making process and from the opportunity to influence service provision. This article explores the current situation in relation to ensuring genuine involvement for people with complex needs, highlights obstacles to progress and examples of good practice, and identifies future directions for research and practice.     

Sexism,Heterosexism, and Attributions About Undesirable Behavior in Children of Gay,Lesbian, and Heterosexual Parents

SUMMARY

Existing research on heterosexuals' attitudes toward gay and lesbian parenting typically focuses on heterosexuals' views about whether or not gay men and lesbians should be parents. Although a significant literature describes positive outcomes for actual gay and lesbian parenting, research has not specifically examined the effect of these attitudes on heterosexuals' evaluations of parenting skills, competency in parenting situations, or attributions about behavior in children of lesbian and gay parents. Two hundred twenty participants responded to a series of vignettes describing a restaurant scene in which two parents respond to their child's public tantrum. Sexual orientation and gender of the active parent in the heterosexual condition were varied. Heterosexism, evaluation of parenting skills, and attributions for child's behavior were assessed. Unexpectedly, gay male parenting skills were rated most positively, and heterosexual parenting skills (where a woman was the active parent) most negatively. Both traditional and modern heterosexism predicted negative evaluations in the same-sex parenting conditions with modern heterosexism (denial of continued discrimination) explaining a larger portion of the variance in several outcome measures. It is suggested that differences in gender role expectations for men and women encourage excessive praise for men who interact with children and condemnation of women who disappoint unrealistic expectations.     

Genetic Moderation of the Impact of Parenting on Hostility Toward Romantic Partners

Although gene × environment studies are typically based on the assumption that some individuals possess genetic variants that enhance their vulnerability to environmental adversity, the differential susceptibility model posits that these individuals are simply more sensitive to social context, whether that context be adverse or supportive. Thus, those persons most vulnerable to adversity are the same ones who reap the most benefit from support. This idea was tested using longitudinal data from a sample of several hundred African Americans. The findings indicated that relatively common variants of the GABRA2 gene interact with parenting to predict hostility toward romantic partners in a manner consonant with the differential susceptibility hypothesis. Individuals with these genetic variants displayed more aggression toward their partner than those with other genotypes when they had been subjected to harsh parenting, but they exhibited less aggression toward their partner than other genotypes if their parents had avoided harsh parenting practices.     

Parents with a Learning Disability: research issues and informed practice

This paper commences with an examination of the concept of parenting and then applies its findings to parents who have a learning disability. It is argued that views on parenting, drawn from mainstream developmental psychology from parents who do not have a learning disability can inform our thinking about parents who do have a learning disability and provide an agenda for future research. In particular, we look at skills-based approaches to parenting, parenting as a motivated activity, cultural and historical factors influencing parenting, and lay views on children and childhood. The conclusion was reached that, although an audit of what people with a learning disability believe and expect about children is valuable research, the critical issue is how this knowledge is applied in parenting practice.     

Appreciating the world of autism through the lens of video interaction guidance: an exploration of a parent’s perceptions,experiences and emerging narratives on autism

This study seeks to identify understandings and narratives around autism spectrum disorder (ASD) through the application of video interaction guidance (VIG). In adopting a social constructionist approach, the case study used a person-centred model to explore a parent’s experiences and emerging narratives of ASD through the lens of VIG. Findings of the current study suggest that VIG offers an effective tool for in-depth exploration of complex, multi-storied understandings of ASD and the perceived parental role. The intervention was perceived to promote greater awareness of the child’s communication skills, beyond the ‘common’ understandings of ASD, by providing a novel outsider perspective on interactions. The intervention also promoted parental efficacy through recognition of parenting skills in supporting the development of strength-based narratives. VIG was seen to provide a platform for an exploration of existing narratives and the construction of new, preferred realities.     

Socioeconomic determinants of the need for personal assistance reported by community-dwelling elderly: Empirical evidence from a French national health survey

A bivariate probit model with sample selection is used to estimate the conditional probability of reporting a need for personal assistance (NPA) with at least one activity of daily living among French community-dwelling elderly. 71.8% of men and 77.3% of women reported impairments and among those who reported impairments, 7.5% of men and 10.8% of women reported NPA. NPA is associated not only with age (i.e., the oldest individuals, for women only) and health status (such as a specific type of impairment), but also with socioeconomic (living with intermediate income; living with someone, partner or other) and environmental factors (having and using assistive technologies).     

Intellectual property protection and development: The case of sustainable sea transport in Pacific Island countries

This paper is concerned with the impact of intellectual property laws on development in small island developing states. Much of the literature on intellectual property and development proceeds on the basis that there is only one model of each, namely the global model of intellectual property underpinned by the Agreement on Trade Related Aspects of Intellectual Property Rights and a neoliberal development framework. This paper argues, conversely, that there are multiple models of both. Exposing this plurality should enable a far more creative approach to intellectual property policy, particularly in countries whose levels of technological development and social structures are very different to those in the global North. This argument is explored through focusing on the example of sea transport.     

‘Some kids climb up; some kids climb down’: culturally constructed play-worlds of children with impairments

In this paper, the author explores how children with impairments can act as self-monitoring, autonomous individuals in their play in a community playground. In addition, the notion of children with impairments as creative agents in their play is examined. The evidence presented in this paper is derived from the views and perspectives of children with impairments as playground users, and was collected from the children’s photographic scrapbooks and the researcher’s own observations of children’s play in a naturalistic playground setting. The theoretical perspective for this paper draws on the emerging ‘social model of childhood disability’ and provides scope to attempt to understand the culturally constructed play-worlds of children with impairments.     

Childhood Career Development in Mainland China: A Research and Practice Agenda

Career development in adolescence and adulthood has been widely researched; however, less is known about childhood career development, particularly in non‐Western cultures. This is especially the case in mainland China, where children grow up in a unique context. The Confucian tradition of emphasizing education as an important social ladder and parents' role in their children's development may restrict children's development of career‐planning skills. By contrast, the shift from a planned economy to a market economy enables individuals to choose careers and demands that individuals have career‐planning skills. The elementary school years could be a starting point to develop such skills by providing career guidance for children. This article considers childhood career development in mainland China, discusses the status quo of childhood career development research and practice, and considers an agenda for future research and practice.     

Families with Children with Disabilities - Inequalities and the Social Model

This article suggests that families with children with disabilities experience a range of inequalities that families with children without disabilities do not suffer. It draws on a recent qualitative study to illustrate the way in which it is not just disabled people, but in the case of disabled children, whole families that suffer from unequal opportunities and outcomes. We draw on the social model of disability to show that the lives of these families are often characterised by financial hardship, stress and anxiety as a result of social barriers, prejudices and poorly conceived service provision. The social model of disability is usually drawn upon to illustrate the way in which social organisation disables people with impairments. In this instance, we illustrate the way in which social organisation disables not just the family member who has an impairment but the whole family unit. By applying this model of disability, new ways of creating practices and policies for these families can be developed which incorporate their views into the heart of the policy-making process.     

A Multi-Outcome Evaluation of an Independent Living Program

This study evaluated an Independent Living (IL) program targeting foster youths in Florida. The IL group composed of 49 young adults, and the comparison group of 18 young adults was utilized. Data were collected via a mailed survey and case record reviews. Results suggest that IL program participation is associated with better educational, employment, income, housing, early parenting-prevention, transportation, anger control, criminal-prevention, and self-evaluation outcomes. However, IL participation is not associated with better social support, perceived parenting competence, substance abuse-prevention, sexual risk-prevention outcomes, increased knowledge in money management skills, job seeking and job maintenance skills, interpersonal skills, or lower depression. Implications are discussed for program design and future research. Savas Georgiades is an Assistant Professor at the St. Ambrose University, Davenport, IA.