Self-efficacy and social support for psychological well-being of family caregivers of care recipients with dementia with Lewy bodies,Parkinson’s disease dementia,or Alzheimer’s disease

The study identified factors associated with depressive symptoms in family caregivers of persons with dementia with Lewy bodies, Alzheimer’s disease, or Parkinson’s disease dementia. An Internet-based survey generated 606 response sets. Regression analysis indicated that care recipients’ memory and behavioral problems, caregivers’ self-efficacy, grief, and tangible, emotional, and affectionate support were significantly associated with caregivers’ depressive symptoms. Self-efficacy mediated caregiver burden to improve psychological well-being. Social support mediated the association between caregiver grief and psychological well-being. Social workers can provide psychoeducational interventions to help caregivers to manage emotional distress and improve capacity to manage tasks related to the dementia.     

Eight Years of Data on Residents in Small Dementia-Care Settings Suggest Functional Performance Is Maintained

Eight years of data analysis on residents’ status from three small Alzheimer care centers suggest notable stability in function. Individuals’ functional ability was best in their first year, but their year-to-year decline was mostly not significant. Cognitive abilities also were best in the resident's first year, but first-, second-, and third-year cognitive scores were not significantly different. We compared the residents’ dementia progression rate to the true rate of natural disease progression. This study, like others on small homelike settings, suggests that appropriate homelike environments maintain persons with dementia at an optimum level longer.     

Alzheimer's Disease:

Alzheimer's disease and other dementias are increasingly being recognized as important problems for older persons and their caregivers, but these disorders are rarely discussed in the context of elder abuse and neglect. This paper reviews information on the prevalence and clinical characteristics of Alzheimer's and other dementias and on the unique stresses experienced by Alzheimer's caregivers. Patients with Alzheimer's are often misdiagnosed and not accurately identified within medical and social service systems, and the special problems faced by caregivers and patients are not sufficiently addressed. Recommendations that would make clinicians and policy makers more responsive to Alzheimer's patients and their families are discussed.     

Spousal caregiving and crossing gender boundaries: Maintaining gendered identities

This study gathered in-depth interview data from a mostly rural sample (N = 22) of primary spousal caregivers for non-institutionalized persons with Alzheimer's disease (AD) and related dementias. In exploring the ways gender might influence caregiving, we find that husbands and wives both cross gender boundaries in order to give care to their spouses; and such traversing presents different challenges to each. Not only must they take on responsibilities that their spouses used to perform, but we also point to a generally invisible but important form of crossing gender boundaries — the maintenance of the gender identities of their spouses. Doing so involves more than simply performing tasks; it involves an implicit recognition of the other as a gendered being and the importance of masculinity or femininity to personal identity. Uncovering this latter dimension, and understanding how men and women approach their new tasks has important implications for theory and policy, including intervention strategies.     

Alzheimer’s disease: psychiatric or neurological disorder?

The aim of this contribution is to provide a few historical and conceptual insights on the question of the impact of current developments in the neurosciences on the concept of psychiatric disease. Alzheimer’s disease is a good example when considering this important question. On the one hand, Alzheimer’s disease has a somewhat ambiguous status in terms of disorders affecting the mind or the psyche. This ambiguous status is illustrated by the fact that one commonly qualifies Alzheimer’s disease as a ‘neuropsychiatric’ disorder, because it cannot easily be classified as either a ‘neurological’ or ‘psychiatric’ disorder. On the other hand, the concept of Alzheimer’s disease was created at the beginning of the twentieth century, as the neurosciences were beginning to take shape themselves as scientific disciplines. To compare Alzheimer’s original ideas with current conceptions may thus help us to precisely specify current developments in the neurosciences.     

Mothers with Physical Disabilities Caring for Young Children

Seventy-one U.S. mothers with a physical disability who had a child aged 0 to 3 years responded to a survey about the system of care used for their child. Results indicated that mothers participated in all different types of care (physical, comforting, playing, limit setting, and taking the child outside the home). Partners and participants’ mothers provided the most assistance with care. Mothers were generally satisfied with assistance received from others. This article explores how mothers remain central to their children with others assisting with the child’s care and the impact of such assistance on mothers’ relationships with partners and children.     

This Is What Democracy Sounds Like: Protest Performances of the Citizenship Movement in Wisconsin and Beyond

This article is a case study of an ongoing singing protest in Wisconsin, the group that calls itself Solidarity Sing Along (SSA). An offshoot of the 2011 Wisconsin Uprising, for the first 15 months of its existence SSA was an important nexus of local activists working to recall Republican state senators and the governor. After the recall's failure the group not only continued to carry on but quite effortlessly reoriented its claim making and centered its protests on the freedom to assemble and petition the government, which had been an important cause from early on. Maintaining its pro-labor orientation, SSA has become part of a broader movement for democratic citizenship rights. Situating the group in musical practices of the Wisconsin protests and social movements more generally, I show that how SSA makes and performs its music makes it a part of the citizenship movement. This case study reveals a novel form of claim making within the repertoire of contention practiced by social movements: SSA is a ‘part-time occupation’ and as such has potential to be more resilient and durable than ‘permanent’ occupations à la Occupy Wall Street.     

Social Return on Investment of an Innovative Employment Option for Persons with Developmental Disabilities

Common Ground Co‐operative (CGC) provides training, administrative, and job coach support to five social enterprises for which persons with developmental disabilities are the non‐share‐capital partners. This study examines the use of social return on investment (SROI) as a means of determining the value of program impacts related to quality‐of‐life changes for enterprise partners and their families. The process of conducting this SROI analysis is described and analyzed in terms of its utility in employment services for persons with developmental disabilities.     

Application of mixed-methods design in community-engaged research: Lessons learned from an evidence-based intervention for Latinos with chronic illness and minor depression

The purpose of this paper is to share lessons learned from a collaborative, community-informed mixed-methods approach to adapting an evidence-based intervention to meet the needs of Latinos with chronic disease and minor depression and their family members. Mixed-methods informed by community-based participatory research (CBPR) were employed to triangulate multiple stakeholders’ perceptions of facilitators and barriers of implementing the adapted intervention in community settings. Community partners provided an insider perspective to overcome methodological challenges. The study’s community informed mixed-methods: research approach offered advantages to a single research methodology by expanding or confirming research findings and engaging multiple stakeholders in data collection. This approach also allowed community partners to collaborate with academic partners in key research decisions.     

Dual life of seafarers’ families: descriptive study of perspectives of seafarers’ partners

ABSTRACT

Although the dual life of a seafarer’s family is recognized as a unique life, a systematic approach to the perspectives of seafarers’ partners is lacking, especially in the case of long-term separation. Therefore, we have adopted a qualitative approach to gain systematic and deeper insight into the features of the seafarers’ occupation which are reflected positively or negatively in their partners’ lives. By means of an online survey, we collected data from 647 partners of Croatian seafarers. The data obtained, relating to open-ended questions, were analysed by thematic analysis. Negative effects of separation emerged as the most strongly-represented theme, wherein a range of different aspects relating to separation is identified (loneliness, overload with domestic duties and care for children, etc.). Other negative aspects relate to fear caused by risks and stressors in seafaring, subordination of one’s own job/career, and lack of understanding and support from family and friends. Still, participants reported a range of positive aspects of the dual life, such as financial security, growth of the loving relationship, full commitment from their partner during days off, the benefits of the seafarer's job satisfaction for the relationship, and having time for one’s own growth during the partner’s absence.     

Cross-sectoral collaboration working with perinatal women who use substances: outcomes and lessons from HerWay Home

ABSTRACT

HerWay Home is a multi-service drop-in and outreach program women for with substance use issues and who also may be affected by mental illness, trauma, and/or violence. Philosophical foundations of the program include harm reduction and being relationship-based and trauma-informed. This article presents the program’s evaluation findings related to cross-sectoral service collaborations and outcomes for service partners as well as for women and families, including prevention of children going into care. For service partners, HerWay Home provided peace of mind, knowing that vulnerable women’s needs would be met and also led to increased understanding about substance-using women and best practice approaches.     

‘It’s the way they do it’: Expressions of Agency in Child–Adult Relations at Home and School

This article examines children's (8–9 years) and young people’s (14–15 years) views about their own participation in decision‐making processes with adults, within the context of home and school in Norway. A difference‐centred theoretical perspective is used to identify children’s participation as expressions of agency embedded in intricate child–adult relations, in which children and adults are positioned differently. It is argued that children not necessarily ask for increased independence from adults, but rather to be recognised as ‘differently equal’ partners in shared decision‐making processes, where children are being treated with dignity and respect as valuable persons.     

Women Caring for Our Aging in Place Seniors Will Lose Out because of U.S. Immigration Policies

Most older people experiencing chronic health problems, physical disabilities, and memory losses are still able to age in place in their own homes. However, they often need help from others to enjoy healthy, active, and independent lives. They turn mostly to family members, mainly women and usually their daughters, daughters-in-law or wives. But caring for frail elders has become more demanding and complex, and these family members often feel physically and emotionally overwhelmed and burnt out. They concede that they cannot do it alone. Others find it more difficult to hold full-or even part-time jobs. Hiring home (direct) care workers to assist their loved ones can be an effective solution to ease their caregiving responsibilities. However, these personal care aides, home health aides, and nursing assistants are already in short supply. Moreover, going forward the aging of the baby boomer population will result in an even greater demand for their services even as these jobs are often unattractive to American-born workers and turnover is high. This country’s immigration policies will make it even more difficult for women caring for older persons to hire these workers. Over 25 percent of home care workers are low-skilled immigrants or foreign-born. However, the Trump administration’s policies reduce the number of immigrants entering the U.S. and specifically choke off the various pathways that enable low-skilled persons to be hirable in the home care sector. Female caregivers seeking relief from their caregiving responsibilities will lose out unless we remove these immigration barriers.     

Motives for sharing illness experiences on Twitter: conversations of parents with children diagnosed with cancer

A patient- and family-centred approach in paediatric health care is important because parents are involved in making key decisions about their child’s health care and advocating for the best interest of the child. Parents and family members are increasingly turning to the internet to find and actively share information about their child’s health care. Twitter is one of many online platforms used by parents of children diagnosed with cancer to share information related to their child’s cancer experience. Existing research suggests that there is a need to better understand the motives for using Twitter for sharing content about a child’s cancer experience. Furthermore, there is a lack of theoretical frameworks for characterizing those motives. In this paper, we identify key themes of tweets posted by parents of children diagnosed with cancer and align those themes with motives inspired by the well-studied Everyday Life Information Seeking framework. We propose a new motive in addition to those associated with the framework and suggest that information can be shared for endogenous reasons as well as to meet the needs of others. This paper contributes an increased understanding of motives for sharing information about a child’s cancer journey and extends a theoretical framework for building further knowledge in this area.     

Not Always ‘Left-Behind’: Indonesian Adolescent Women Negotiating Transnational Mobility,Filial Piety and Care

In contrast to current research focusing on how migrant parents provide care for their ‘left-behind’ children, this article highlights how Indonesian adolescent women also migrate (or stay) in order to provide care for their families. Drawing from ethnographic research conducted mainly between 2014 and 2015 in Central Javanese migrant-origin villages, this article discusses how opportunities for transnational labour migration affect young unmarried women’s roles as ‘dutiful daughters’ in diverse ways. By analysing how the (im)mobilities of three young women are mutually shaped by diverse expectations to care for their families, I highlight that care is always relational, showing that the distinction between care-givers and care-receivers is less evident than currently assumed in migration studies. Closer examination of how young persons mutually negotiate mobility and parent–child care expectations brings into focus the new forms of agency, power and vulnerability that they encounter in migration and migrant-origin contexts.     

Perceived Need for Home- and Community-Based Services: Experiences of Urban Chinese Older Adults With Functional Impairments

Guided by Cantor’s social care model, this study identified individual, family, and social support factors that influence urban older adults’ need for home- and community-based services, including medical and rehabilitation, instrumental care and support, and psychosocial services. The data were extracted from the Sample Survey on Aged Population in Urban/Rural China conducted by the China Research Center on Aging in 2006. Results from multiple logistic regression show that older adults’ need for medical and rehabilitation services is significantly related to instrumental activities of daily living, depression, not having filial children, friend support networks, and having a confidant. Older adults’ need for instrumental care and support is related to their educational attainment, financial strain, instrumental activities of daily living, not living with children, and friend support networks. Finally, older adults’ need for psychosocial services is significantly related to educational attainment, depression, not being married, friend support networks, and having a confidant. Implications for social service development are discussed.     

Food for feminist thought

Women's relationship with food on a daily basis is contradictory and problematic. Women are expected to deny themselves food in order to remain sexually attractive and, at the same time, they have to feed their partners and children with healthy and nutritious meals. The power of ideologies equating sexual attractiveness with slimness means that most women are not happy with their body image. This dissatisfaction is reinforced by the comments of men, particularly their partners. Food, as well as being a‘fattening’enemy is a comfort and is resorted to at times of emotional stress. Women's‘normal’relationship with food lies on a continuum of which the eating disorders are the extremes and is a product of their structural position in society.     

The Perspectives of Young Men and Their Teenage Partners on Maternity and Health Services During Pregnancy and Early Parenthood

This study discusses young couples’ interactions with maternity and health services paying particular attention to men’s perspectives. Findings are based on research conducted in Scotland with men (aged 16–25) and their teenage partners (aged 16–19). Most young men were very involved in their child’s life and provided support and care to their partner during pregnancy and in early parenthood. Men often felt excluded or judged when accessing services, although positive experiences were reported too. The study discusses ways in which maternity and health services can be better attuned to meet the needs of young couples and be inclusive of men.     

Adolescent daughters’ perceptions of their fathers’ levels of communication and care: How these variables influence female adolescent sexual behaviors

This study examines the relationship between female adolescents’ perceptions of their fathers’ level of communication and care, and the influence of these variables on their adolescent daughters’ sexual behaviors. Data was extracted from the National Longitudinal Study of Adolescent Health from 1994–2008, which consisted of a sample (N=629) of adolescent girls in grades 7–12 in the United States during the 1994–1995 school year. Study results show fathers’ caring as statistically significant at the .05 level. As fathers’ caring increased, the number of sex partners decreased among adolescent girls. Fathers’ communication was not statistically significant at the .055 level. However, as the daughters’ perception of their fathers’ communication improved, the number of daughters’ sex partners decreased. The high rates of unintended pregnancy, unprotected sex, and sexually transmitted infections (STI’s) among U.S. adolescent females show the need for a greater understanding of how fathers contribute to their daughters sexual risk-taking behaviors. Implications for practice and future research is discussed.