Reflexive Research Ethics for Environmental Health and Justice: Academics and Movement-Building

Community-engaged research on environmental problems has reshaped researcher-participant relationships, academic-community interaction, and the role of community partners in human subjects protection and ethical oversight. We draw on our own and others' research collaborations with environmental health and justice social movement organizations to discuss the ethical concerns that emerge in community-engaged research. In this paper we introduce the concept of reflexive research ethics: ethical guidelines and decision-making principles that depend on continual reflexivity concerning the relationships between researchers and participants. Seeing ethics in this way can help scientists conduct research that simultaneously achieves a high level of professional conduct and protects the rights, well-being, and autonomy of both researchers and the multiple publics affected by research. We highlight our research with community-based organizations in Massachusetts, California, and Alaska, and discuss the potential impacts of the community or social movement on the research process and the potential impacts of research on community or social movement goals. We conclude by discussing ways in which the ethical concerns that surface in community-engaged research have led to advances in ethical research practices. This type of work raises ethical questions whose answers are broadly relevant for social movement, environmental, and public health scholars.     

Navigating the ethical maze in disability research: ethical contestations in an African context

Despite changes in how disability is viewed, ethical requirements for disability research have hardly changed. Some ethical clearance procedures, processes and practices still consider persons with disabilities as not able, creating unease among researchers and research participants with disabilities themselves. This paper considers five ethical contestations arising from research in the area of disability in an African context: positionality, vulnerability, signed consent, anonymity, and research committee composition. We argue that ethical requirements in practice are still largely based on a medical model of disability and propose that culturally sensitive social and human rights models should influence disability research ethics.     

Linked and Situated: Grounded Knowledge

Local knowledge registers prominently in scholarly efforts to resolve environmental problems, ushering in widespread use of participatory practices of deliberation. Without the incorporation of local knowledge, many scholars contend that environmental science and planning remain beholden to the unbridled reign of the expert, and the daunting complexity of environmental problems remains seemingly impossible to penetrate. Following in this vein of work, we formed our participatory research project on nonpoint water pollution in two watersheds around four action clusters. On the local side, we included a cluster of farmers and farmland owners and a cluster of general community members. On the expert side, we included a cluster of researchers and another of government officials. However, we found in our research that the development of democratic deliberation depended more on whether participants situated and linked their knowledge than whether it was local or expert in origin. We suggest grounded knowledge, situating one's experiences in a way that enables participants to actively link with other knowledge, as a concept useful for scholars to better understand which ways of knowing enable deliberation in the participatory processes.     

The bad and the ugly: ethical concerns in participatory photographic methods with children living and working on the streets of Lima,Peru

Visual methods are particularly well suited for getting at the ways in which children living and working on the street understand their socio-spatial environment, and can bridge gaps between researcher and researched. In this study, adolescents who live and work on the streets of Lima are asked to take photographs, documenting their lives and their socio-spatial environments. While participatory methods such as photovoice can bring children and adolescents into the research process and can provide significant benefits to research and its participants, the introduction of photographic methods with marginalised populations carries with it important ethical concerns. This article explores the various critiques of documentary photography, and ethical concerns that arise when using visual methods, including issues of exploitation and intrusion in research with adolescents living on the streets. It also examines the ways in which researchers must continuously reassess their methodological practices in order to protect the best interests of the participants involved.     

For the greater good? Ethical reflections on interviewing the ‘rich’ and ‘poor’ in qualitative research

ABSTRACT

There is increasing emphasis on understanding economic advantage alongside disadvantage – on studying both ‘poverty’ and ‘riches’. This trend prompts and requires new ethical reflection. I argue that in qualitative interview research, a clearer distinction needs to be drawn between ethical commitments to individual research participants, and the group(s) to which they belong. This distinction is often elided in ethics guidelines and when researchers discuss their own work. Attending to the distinction highlights a symmetrical ethical dilemma: researchers studying disadvantage are often motivated to further the interests of the wider group to which their participants belong, yet the study itself risks eliciting or exacerbating negative experiences or identities amongst participants themselves. Conversely, the process of studying advantage frequently bolsters the positive identities or experiences of individual study participants, even as the research findings challenge or subvert the interests of their group.     

Public Research, Private Concerns: ethical issues in the use of open-ended interviews with people who have learning difficulties

This paper is an exploration of the ethical dilemmas in open-ended interview research with people with learning difficulties. We address the possibility that research which gives voice to the experience of abuse, from the viewpoint of the victim, can itself be abusive. Such research is justified in terms of empowering, illuminating and disseminating the meaning that participants give to their lives. Yet every stage of the process raises complex ethical issues when research participants are drawn from vulnerable and powerless groups in society, and the focus for investigation can be deemed private. As a vehicle for our exploration, we reflect on our ethical dilemmas in researching the story of a young woman who has learning difficulties and has been the victim of various forms of abuse. We argue that ethical dilemmas cannot be overcome solely by Ethical Codes or even predetermined 'good practice'. They are integral to the whole research process and necessitate continuous explicit examination of decision making processes within research.     

An evaluation of the use of diaries in a study of medication in later life

This paper is based upon our experience of commissioning diaries to be kept by research subjects. First the paper reviews some previous research based on diaries, then it outlines the aims of our research and the method of data collection. Then the paper goes on to evaluate the design and use of a diary that participants in our research completed. In particular we consider the ways in which the diary may have biased our sample, caused the participants difficulties and generated poor data. There is also a discussion on how it may have affected behaviour and on the ethical issues that are raised by commissioned diaries. In conclusion, observations are made about the strengths and weaknesses of diaries as an investigative tool with a wider applicability. The diary proved particularly revealing and we recommend that other researchers consider diaries as a method of investigating everyday life.     

Ethical implications of network data in business and management settings

Reflecting on the compilation and analysis of a range of network datasets drawn from our own work and some prominent examples, we consider the ethical challenges in dealing with network data in business and management settings. We argue that the managerial processes that characterize such settings introduce particular ethical sensitivities in the stages of commissioning and research design, and when collecting, analyzing and reporting network data. These sensitivities arise from the imperatives of business, motivations for commissioning network analyses and the legal authority that managers have over employees. We argue that ethical considerations are much more pervasive in business and management network research than in many other fields.In this contribution, we present a range of ethical challenges in network research in business and management settings that arise at several stages of the research process. For each issue identified, we describe the ethical problem and propose mitigation remedies. From this reflection, we suggest guidelines for other researchers to consider when designing research projects in this application area.     

The presentation of the networked self: Ethics and epistemology in social network analysis

Drawing on the seminal work of Goffman, Krackhardt and others, this paper argues that there is a crucial step in between participants’ perceptions and the collection and visualisation of data – i.e. what we call the presentation of the networked self. We employ examples from our own empirical work in the UK to argue that the presentation of the networked self requires researchers to adopt a highly reflexive approach. Framing our analysis within the context of contemporary society – including the impact of social media on a ‘networking mindset’ – we explore the range of ethical dilemmas which can emerge during a research encounter.     

Decentering Power in Research with Criminalized Women: A Case for Photo-Elicitation Interviewing

ABSTRACT

This article contributes to the project of developing a visual criminology that reclaims social relationships and the humanity and visibility of criminalized people and strives to disrupt the ideological and political underpinnings of mass incarceration and the state’s reliance on punitive responses to social inequality. Using photo-elicitation interviewing (PEI), I draw on qualitative research with 36 formerly incarcerated women living in Chicago. I review PEI’s potential to disrupt the power differential between researchers and participants and to include research participants as collaborators in knowledge production. I examine how limitations imposed by an Institutional Review Board created ethical concerns about representing women’s images and constrained women’s role in the coproduction of knowledge. I argue that PEI based on participant-generated images can help to overcome some of the ethical and methodological tensions encountered in visual criminology.     

Pockets of Participation: Revisiting Child‐Centred Participation Research

This article revisits the theme of the clash of interests and power relations at work in participatory research which is prescribed from above. It offers a possible route toward solving conflict between adult‐led research carried out by young researchers, funding requirements and organisational constraints. The article explores issues of participation in child‐centred research in a cross‐cultural context and gives examples from research carried out with young refugees. The author discusses what might be the best way forward for researchers against a backdrop of critical dialogues concerning child participation on the one hand and funders’ frequent calls for participatory methodologies on the other. In doing participatory research with children and young people on the margins of society, issues of power, knowledge, ethical relations, funding processes and research methodologies and practices may seem at odds and difficult to resolve. In this article a methodology of creating pockets of participation that can be owned by the young researchers is suggested as a possible route.     

DILEMMAS IN RESEARCH: ISSUES OF VULNERABILITY AND DISEMPOWERMENT FOR THE SOCIAL WORKER/RESEARCHER

Qualitative research ethics discussions have established a sound knowledge and practice base which advises on the protection and rights of the research informants. This paper, although supporting the primacy of informant safety, will highlight less visible research debates. The potential for vulnerability and harm of the social work researcher will be explored. The value of achieving heightened empathy and emotional resonance with research participants is considered as a process which the author suggests is likely to increase the richness of the research data, but also may accentuate researcher vulnerability or distress. The author's experience of doing personal research with vulnerable informants, and of being a social work research supervisor, will be used to reflect on processes and practices which she claims may make social work researchers particularly vulnerable to conflict and distress. Data from her recent research which explored the experiences of social work researchers will be used to illustrate these issues.     

Hidden boundaries and shared meanings: the roles of researcher characteristics and cultural norms in shaping understandings of sexuality in the unstructured interview setting

This paper examines the role of the research process in shaping the construction of knowledge about sensitive topics in in-depth interviews particularly with regard to researcher identity and cultural influences or norms. We argue that these influences shape all aspects of the research process and that researchers will benefit from reflecting upon them when planning, undertaking and interpreting qualitative studies. Drawing on an empirical study interviewing Australian women aged 55 years and older about sexuality we address differences and similarities between researchers and participants; cultural constructions of sexuality and ageing, and generational influences. Using examples from our interview data we interrogate the contribution of each of these aspects to the interview dynamic and the co-production of meaning. Our analysis draws attention to the fluidity of insider and outsider status and to the existence of hidden boundaries that impact on how certain topics can be discussed in interviews. The paper argues that knowledge about sensitive topics such as older people’s sexuality must be viewed as a situated occurrence shaped by the particularities of the interview and the cultural context. Finally, we discuss the implications of these findings for qualitative inquiries into sensitive topics.     

A Survey of Common Practices in Infancy Research: Description of Policies,Consistency Across and Within Labs,and Suggestions for Improvements

Psychology is currently in a period of unprecedented self‐reflection, with particular attention being paid to research practices and policies. Although infancy researchers have a history of attending to research practice in the form of papers outlining how to best implement various methods and paradigms, less is known about the particular practices currently being used by researchers in the field, making it difficult to identify areas for improvement. To address this issue, we developed an online survey for measuring methodological practices in infancy laboratories around the world. Our results suggest that infancy researchers adopt a range of a priori research practices. Individuals earlier in their training (particularly within the first year) were more likely to report not knowing their lab's policies, especially regarding issues that arise late in the research process. Members of the same lab agreed on lab policies at above‐chance levels; however, improvements could be made. The use of clearly problematic research practices was relatively rare; however, several “risk‐permeable” practices were identified that may, under select circumstances, threaten data integrity. We discuss how our results could be used to improve practice in infant research.     

Decolonizing Sociology Through Collaboration,Co-Learning and Action: A Case for Participatory Action Research1

Despite important efforts by postcolonial scholars to “decolonize” sociology, this endeavor remains limited by the scaffolding of empirical research, or the institutionalized practices and beliefs embedded within data collection and researchers' relationship to research subjects. In its current form, this scaffolding excludes “subaltern” voices from critiquing and extending sociological theory, deriving benefits from the study, or informing social actions that stem from the research. This limits the field's understanding of the multi-faceted impacts of colonialism and retrenches inequalities between scholars and participants. Participatory Action Research (PAR) offers an alternative, decolonial infrastructure. PAR acknowledges the value of knowledge from the periphery and calls for (1) the participation of marginalized research populations in each step of the research process; (2) co-learning between researchers and participants; and (3) collaborative social action that centers the needs of marginalized research populations. Drawing on a case study of PAR in Rio de Janeiro, I demonstrate how PAR allows sociologists, in partnership with historically colonized groups, to decolonize sociology not only in theory, but in the concrete practices of empirical research.     

Re-evaluating standards of human subjects protection for sensitive health data in social media networks

This study addresses ethical questions about conducting health science research using network data from social media platforms. We provide examples of ethically problematic areas related to participant consent, expectation of privacy, and social media networks. Further, to illustrate how researchers can maintain ethical integrity while leveraging social media networks, we describe a study that demonstrates the ability to use social media to identify individuals affected by cancer. We discuss best practices and ethical guidelines for studying social media network data, including data collection, analysis, and reporting.     

Class matters: interviewing across social class boundaries

In this paper, we explore the methodological implications of conducting qualitative interviews when researchers and participants come from different social classes. Singling out class on its own terms, rather than considering it as an auxiliary structural factor, we examine the unique challenges that arise during cross-class interviews. Such challenges, we contend, require researcher reflexivity about how researcher–participant interactions unfold and the ways in which knowledge is generated during the interview process. In our discussion, we draw on Bourdieu’s cultural view of social class to argue that cross-class dynamics between the researcher and the participant – along with the normalization of middle-class values often inherent in interview questions – create potential obstacles to establishing rapport and facilitating fertile conversation. We use examples from our own field research in a U.S. fast-food chain to illustrate these barriers. We also provide practical recommendations to researchers regarding how they can minimize class-based biases, reduce class saliency, and gain awareness of their own class positions during cross-class interviews.     

Accounting for ethos or programmes for conduct? The brave new world of research ethics committees

This paper examines the operation of power and its consequences arising from the growth of new ethical bureaucracies in universities. We use the UK as a case study to illustrate more general points about the globalised nature and impact of such bureaucratisation. Our focus is on the social sciences as this is where, we argue, the impact is likely to be most marked. The paper is organised in five sections. The first introduces our concerns. Section 2 traces the genealogy of these new regimes of control in the UK. We then problematise the new ethical bureaucracies, making an analysis in terms of the shift in the locus of power away from researchers to becoming centralised in bureaucratic structures. In section 4 we explore some of the ways in which researchers might respond to the changing regimes of ethical control. Finally, we offer considerations of the ways in which ethical governance of research might be differently conducted so as to avoid the adverse consequences of new regimes of control on research practice. Our aim is to provoke debate and thereby contribute to a platform from which to reassert ways to ensure that research is ethical and that do not interfere with the production and consumption of critical social science.     

Into the Dark Heart of Ethnography: The Lived Ethics and Inequality of Intimate Field Relationships

In response to critiques from feminist, existential, and postmodern qualitative researchers, the idea of maintaining objective and distant relationships with research subjects gave way to the belief that researchers could and, in some cases, should become intimately connected to research participants. These traditions opened the door for contemporary field workers to unapologetically forge close relationships to setting members. Several ethical evaluations have emerged from this intimate literature warning researchers of the harm that can come when we “go to far” in the quest for intimate familiarity. In this paper, I reflect on some of the debates regarding intimacy and exploitation by examining my experiences of dating, marrying, and eventually divorcing my key informant. I trace the way that, despite my attempts to follow the existing ethical guides, I reinforced several larger inequalities in my intimate stance. Using my failure to avoid or mitigate harm, I argue that our discussions of intimate methods and immersion in the field have failed to accurately note how we reinforce or resist structure in our research endeavors. Viewing ourselves as “doing structure” in the field would lead us to stop debating whether intimacy is better than objectivity, celibacy is better than sex, disclosure is better than silence, or conventional behavior is better than deviance in the field. Instead, we should locate how our behaviors, research roles, or discursive choices enact structures and the effect this enactment has on the people who we research.