Brain–Computer Interface Devices: Risks and Canadian Regulations

Implantable Brain–Computer Interface (BCI) devices are currently in clinical trials in the U.S., and their introduction into the Canada could follow in the next few years. This article provides an overview of the research, developments, design issues, and risks in BCIs and an analysis of the adequacy of the regulatory framework in place for the approval of medical devices in Canada, emphasizing device investigational testing. The article concludes that until better safeguards are in place, to best protect potential research subjects, BCIs should not be approved for investigational testing in Canada.     

Powerful Youth: Determining Successful Participation in an HIV Support Group for Youth

In this article, the authors report on a qualitative study that explored the use of narrative therapy with a diverse group of older adults dealing with mental health and substance misuse issues. Narrative therapy supports individuals to critically assess their lives and develop alternative and empowering life stories that aim to keep the problem in its place. Although the literature suggests this is a promising intervention for individuals, there is a lack of research on narrative therapy and group work. Aiming to address this gap, the authors developed and researched a narrative therapy group for older adults coping with mental health and substance misuse issues in Toronto, Canada. Taking an ethnographic approach, field notes and interviews provided rich data on how, when, and for whom, such a group could be beneficial. Findings contribute to the literature on group work, older adults, and narrative therapy.     

(Not) Taking Account of Precarious Employment: Workfare Policies and Lone Mothers in Ontario and the UK

Workfare is, at least in part, a policy response to changing labour markets and the expansion taking place in jobs that are low‐paid, irregular and insecure. For lone mothers, increasingly the focus of workfare policies, precarious employment creates special challenges. However, the nature of the jobs that are available to women on social assistance has received relatively little attention in the workfare literature, which focuses more on individual characteristics, supports to employment, and programme impacts. Drawing upon both primary and secondary sources and using Ontario, the province with the most developed workfare programme in Canada, this article examines the ways in which policies support and enforce precarious employment. The article also considers the implications of precarious employment for UK policy, which has not (yet) adopted workfare for lone mothers, although incremental steps in that direction are taking place as employment is increasingly viewed as the appropriate objective of income support programmes for lone mothers.     

Building the case for the study of the middle class: shifting our gaze from margins to centre

This article argues for the study of the middle class in Canada, an overlooked dimension of the scholarly works and public debates on income polarisation. The article includes four sections: (i) original empirical research, sharing snapshots into the status of Canada's middle class emphasising its changing economic performance; (ii) an exploration of the sociological and political functions of the middle class; (iii) an articulation of the avenues through which the middle class can be operationalised for study; and (iv) the implications of a deteriorating middle class, which suggests both a deepening of destructive effects of neo-liberalism yet also highlights opportunities for resistance. Recommendations for social movements are highlighted. While the context of this article is the Canadian experience, the political consequences for this study spread beyond its borders, particularly in the north where the benefits of neo-liberalism are accruing.     

Unheard voices,unmapped terrain: Care work in long‐term residential care for older people in Canada and Sweden

Daly T, Szebehely M. Unheard voices, unmapped terrain: care work in long‐term residential care for older people in Canada and Sweden This article aims to contribute to comparative welfare state research by analysing the everyday work life of long‐term care facility workers in Canada and Sweden. The study's empirical base was a survey of fixed and open‐ended questions. The article presents results from a subset of respondents (care aides and assistant nurses) working in facilities in three Canadian provinces (n= 557) and across Sweden (n= 292). The workers' experiences were linked to the broader economic and organisational contexts of residential care in the two jurisdictions. We found a high degree of country‐specific differentiation of work organisation: Canada follows a model of highly differentiated task‐oriented work, whereas Sweden represents an integrated relational care work model. Reflecting differences in the vertical division of labour, the Canadian care aides had more demanding working conditions than their Swedish colleagues. The consequences of these models for care workers, for older people and for their families are discussed.     

Unfinished business: ongoing ethical exceptionalism in the oversight of human pluripotent stem cell research in Canada

In this article, we critically examine the arguments for and against the exceptional status given human pluripotent stem cell research in Canada (through the latest [December 2010] revision of the Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans), and conclude that this exceptionalism is unwarranted and ethically unsound. In our view, the three federal research granting agencies should honor their longstanding commitment that researchers, research sponsors, and Research Ethics Boards in Canada have access to "a single reference document for all research involving humans conducted under the auspices of institutions eligible for Agency funding." As well, responsibility for the development, interpretation, and implementation of Canada's research ethics guidelines should be under the authority of a single oversight body that is independent of the federal research granting Agencies.     

How Poor Were Quebec and Canada During the 1840s?

This article uses the censuses of 1842 of Canada East (modern-day Quebec) and Canada West (modern-day Ontario) to help explain the historical differences in living standards between Canada and the United States. The wage and price data contained in the censuses suggest a gap of 42 percent between Canada East and Canada West. We argue that Canada East was substantially poorer than the rest of Canada and, as it represented such a large proportion of the total population of the initial four Canadian provinces (over 35 percent), that relative poverty weighed heavily in determining the extent of differences in living standards between Canada and the United States. These findings change the perspective on the roots of the differences between the two countries. We propose that any research agenda trying to explain those differences should focus heavily on Quebec.     

The Immigration Dilemma: The Role of Perceived Group Competition, Ethnic Prejudice, and National Identity

In this article, we discuss the role of perceived competition for resources in determining negative attitudes toward immigrants and immigration in North America. We first provide background information on immigration policies and levels of immigration to Canada and the United States. Following an overview of our theoretical perspective, we then describe the research we have conducted in Canada and the United States indicating that perceived zero-sum competition between groups, whether situationally induced or a function of chronic belief in zero-sum relations among groups, is strongly implicated in negative immigration attitudes. In addition, we describe our recent attempts to improve attitudes toward immigrants and immigration through the targeting of zero-sum beliefs and through manipulations of the inclusiveness of national identity.     

Centralized and non-centralized ethics review: a five nation study

The research ethics review process is now an inherent part of conducting research and a topic of much discussion. On the negative side it has been presented as cumbersome, expensive, time consuming, and potentially a system that does not adequately deal with the concerns it was set up to address. One common, but often controversial, proposal to address some of these concerns has been the institutionalization of centralized systems of review. This paper uses data on the review systems in place in five countries (Australia, Canada, New Zealand, the USA and the U.K.), some with and some without versions of centralized review, to explore issues related to centralization of the review process. It suggests that there are at least three types of systems (fully centralized, dual, and decentralized or multicommittee) in place; all are made up of two, interrelated components (the administrative and ethics review). We suggest that both components need to be considered in discussions about centralized review. Serious consideration of centralization of the administrative component may address many concerns. Centralization of the ethics review may provide a context that deals with other issues and may encourage reviews that more effectively focus on the ethical issues involved.     

From blank spaces to flows of life: transforming community engagement in environmental decision-making and its implications for localism

Localism advocates the participation of ‘local’ groups in governmental decision-making processes. While making policy more context/place specific is a progressive goal, this paper suggests that the processes through which this occurs, and underlying conceptual approaches to scale and place, require a careful analysis. Although often side-lined, Indigenous experiences of localism are key to seeing these issues as critical responses to place and politics, rather than relegating them to an ‘Aboriginal’-specific issue. This paper outlines two practical implementations of Aboriginal inclusion in environmental decision-making, in Canada and Australia. These case studies demonstrate both the failings of current framings of localism and ‘environment’ in policy-making and the inadequate responses of governments to the complexities of place making. These challenges are illustrative and symptomatic of wider issues about how environmental policy and place are currently envisaged. This paper suggests a new methodological framing of these issues that positions the current framing as one view among many, offers a non-relativist frame of communication for moving beyond inclusion and outlines the implications of this reframing for localism.     

Informed Consent and Investigational New Drug Abuses in the U.S. Military

Objective: The focal point of this investigation was to research the ethical issues surrounding the military's requests for informed consent waivers when using investigational drugs, and the recent debate surrounding the anthrax vaccine as an investigational new drug (IND). Design: The military's management of the informed consent process was examined using documents obtained through the Freedom of Information Act, Institutional Review Board (IRB) minutes, consent forms, legal pleadings, and protocols for specific investigational drugs. Results: In December 1990, prior to Operation Desert Storm, the Federal Drug Administration (FDA) granted the Department of Defense (DoD) an unprecedented waiver to the federally mandated informed-consent requirement for the use of investigational drugs. However, the waiver approval was conditional, and the FDA insisted on several safeguards. Partially in response to the subsequent Gulf War Syndrome debate, the FDA recently evaluated the military's use of investigational drugs during the Gulf War. The FDA cited the military for significant deviations from the originally approved protocols. Most notably, the military was found to be abusing the IRB process by convening a second IRB when the first IRB concluded that waiving informed consent was unethical. In addition, there was a gross lack of documentation and no monitoring of adverse reactions. The DoD's plan to use the current anthrax vaccine on all 2.4 million troops against inhalation anthrax has kindled an additional investigational drug controversy. The safety and efficacy of the use of the anthrax vaccine as a prophylactic against inhalation anthrax have been questioned by both military and medical organizations. There have never been any published studies of human efficacy or long-term effects for the anthrax vaccine. In addition, the military is not using the vaccine for its intended purpose, and it is also not adhering to prescribed dosing schedules. There is clear evidence to support the claim that, in fact, the military's use of the anthrax vaccine should be considered experimental. Conclusions: I argue that in medical situations, the military is obligated to treat its troops as autonomous persons entitled to basic rights and protections. The DoD is currently using an approved drug, the anthrax vaccine, for an unapproved purpose and in an unapproved manner. In doing so, the DoD is not only violating the FDA's regulations against such practices, it is also violating an executive order which only allows the president to authorize the use of INDs on service members without their consent.     

Refugee community organizations in Canada: From the margins to the mainstream? A challenge and opportunity for social workers

Various waves of asylum seekers and resettled refugees arriving in Canada since the 1980s reflect the eruption of war and ethnic conflicts in parts of Africa, Central America, and South East Asia. Contrary to long‐established immigrant communities such as the Greeks, Italians, and Portuguese, these newcomers have had to fend for themselves and develop their own support networks, leading to new forms of organizing and to the formation of refugee community organizations (RCOs). This article discusses the findings of a 2008–2011 study on RCOs in Canada, specifically in Montréal and Winnipeg. The objective of the study was to understand the context in which RCOs have developed, the populations they serve, and the role they play in their ethnic communities. Working within the RCO paradigm, we analyze the creation of these organizations, contrast findings with research done in the UK, and raise issues for social work practice. Key Practitioner Message: ● Innovative research in Canada documenting refugee community organizations gives fresh insight regarding community organizing practice; ● Documents the situation of asylum seekers and refugees on an individual and a collective basis in terms of needs; ● Focuses on the necessity of building bridges with refugee organizations to bring them into the mainstream.     

Psychological Aspects of Predictive Genetic-Test Decisions: What Do We Know So Far?

Advances in molecular biology are facilitating the elucidation of the genetic basis of disease at an astonishing rate. Consequently, predictive genetic testing of healthy individuals may soon become a routine component of medical care. How and why is the decision to have a predictive genetic test taken? This article reviews some psychological aspects of predictive genetic-test decisions and discusses the limitations of research to date. A notable limitation is the nontheoretic nature of much of the research. It is argued that theoretical models are needed from which hypotheses about decision making in this context can be derived and tested. Suggestions are offered for future research, and policy implications of research in this area are offered.     

Narrating Significant Experience: Reflective Accounts and the Production of (Self) Knowledge

Notwithstanding the rise of evidence-based practice, other tendencieswithin social work scholarship are also discernible. One ofthese is the study of the everyday, routine accomplishment ofpractice, drawing on microsociological methods and techniques.In this article, I apply techniques drawn from narrative anddiscourse analysis to the study of reflective practice accounts,which hold an important place in social work education. In particular,it is relevant to examine the form that reflective accountstake and the rhetorical and narrative devices deployed withinthem to accomplish a competent professional identity. My argumentis not that such accounts of practice are untruthful, ratherI propose that we would do well to move beyond taking texts(and talk) for granted and treating language as merely the mediumfor expressing inner thoughts and feelings. Social work shouldtake seriously the need to explore its modes of representationand to cultivate a more self-conscious approach to the way professionaland client identities are produced in practice.     

Grannies,Elders, and Friends: Aging Aboriginal Women in Toronto

Based on a research project in Toronto, Canada, this article highlights the strengths and resiliency of 12 female Aboriginal Elders and seniors as they age together. For these women, being actively involved in their families and the Aboriginal community gives them a solid grounding in who they are, what their roles are and how they contribute to the whole. Of particular significance is the support and friendship the women offer each other through their commonalities, activities, and sense of humor.     

Evidence-based Engagement in the Voluntary Sector: Lessons from Canada

The shift towards governance and greater reliance on third parties in the design, implementation and evaluation of policy has created new pressures to ensure that policies are designed and delivered in a consistent and effective manner. In the interest of improving transparency, accountability, effectiveness and efficiency, governments in Canada and in the UK, as in many industrialized countries, have begun to emphasize the need for evidence‐based policy‐making. As a result, knowledge and research have become key assets in the production of policy. Yet, with their current capacity and knowledge base wanting, governments have increasingly relied on the knowledge and information of external actors and have afforded greater authority to them on this basis. This has created a situation in which evidence‐based inputs are given greater weight. This shift has particular implications for voluntary sector organizations whose basis for intervention has lain historically with the interests that they represent. Already, in the Canadian case many national organizations have seen their focus shift to research activities under the impetus of new funding initiatives explicitly encouraging activities grounded in knowledge and policy analysis. Moreover, policy guidelines have been elaborated in order to enhance the sector's capacity to contribute to the development of policy in a depoliticized manner. Using a series of interviews conducted with representatives from national voluntary organizations in Canada, this article explores the implications of such a shift for the voluntary sector in Canada, and asks whether the Canadian case holds some lessons for voluntary sector–state relations in other jurisdictions.     

Economic decline and voter discontent

Standard economic voting research is too narrowly focused on how economic changes affect the popularity of the governing incumbents, especially with respect to the mainstream opposition party. This approach cannot easily interpret voting behavior as an expression of system wide support. The article seeks to fill this void by using the case of Canada to analyze how long-term economic decline affects election behavior. In particular, the relative success of non-mainstream parties in recent Canadian elections is shown to be connected, at least in part, to long-term economic decline. This is particularly true of those who have borne the brunt of the economic restructuring that has taken place since the 1970s, namely, working-class individuals who lack post-secondary education. Although economic conditions of this group have always been precarious, it has suffered greater economic decline compared to others. This widening gap has led to more negative attitudes towards the political system, which in turn has increasingly led voters from this group to abandon Canada's two mainstream parties, the Liberal and Progressive Conservative, in favor of non-mainstream parties. Analysis is based on a pooled dataset that integrates economic and election survey data from the 1970s to the 1990s.     

Defining autism in Canada: Unfolding the public aspects of neurological disability

Modern disability policy seeks a balance between individual and social responsibility for disability. Striking this balance involves redefining issues related to disability. This article presents an analysis of the issue definition process on autism in Canada. The findings suggest although autism became an increasingly present issue in public discourse in Canada during the last 20 years, no specific aspect of the autism experience became defined as an urgent public problem. Furthermore, public discourse surrounding autism focuses on health care, challenging ongoing development of rights-based disability policy.     

Testing Practice Wisdom

Social workers whose practice models are not empirically based rely on a large store of practice wisdom in treating their clients. Single-system research can be used to begin testing, and perhaps validating, much of this practice wisdom. This article considers why such a research strategy is desirable. It then suggests a generic structure and language for practice that could help practitioners formulate researchable questions. Finally, four examples are given of research questions generated by examining practice wisdom from the psychosocial and generalist models.     

Understanding how globalisation and restructuring affect women's lives: implications for comparative policy analysis

Globalisation and neo–liberal restructuring have transformed social policy and social services in many countries over the past two decades. Among the various impacts on different societies, one commonality is that many of the costs of restructuring are being picked up by women. In the last decade, feminist scholars have developed a critique of the effects of restructuring on the public and private lives of women, effects which are conspicuously absent from many discussions of restructuring. This article presents several conceptual ingredients for a framework that can facilitate a comparative understanding of restructuring and its effects on women at both global and local levels. Canada and China are used to illustrate the utility of such an approach to comparative policy analysis. The article contributes to a growing body of feminist literature on changing regimes of citizenship. It adds to the scholarship on comparative policy analysis by developing a research approach that is grounded in the experiences of women and is attentive to global and local politics. We argue that understanding just how restructuring affects different groups of women is essential for developing analyses that can cross national boundaries and challenge policies that reproduce conditions that oppress women.