Assessment as the Site of Power: A Bourdieusian Interrogation of Service User and Carer Involvement in the Assessments of Social Work Students

The centrality of service user and carer involvement in social work education in England is now well established, both in policy and practice. However, research evidence suggests their involvement in student assessments is underdeveloped and under researched. This study focused on the positioning of service users and carers in relation to other stakeholders involved in the assessments of social work students in England. Using narrative research methodology, 21 participants, including service users, carers, social work students, social work employers and social work educators, were offered a semi-structured individual interview. Participants’ narratives revealed different power relations among those involved in social work students’ assessments and a lack of confidence among service users and carers in making failed assessment recommendations. The paper concludes by arguing the case for social work educators and service user organisations to provide joint training to support service users and carers in their role as assessors of social work students.     

Barriers to inclusive education in Greece,Spain and Lithuania: results from emancipatory disability research

Inclusive education is a key aspect of the European Disability Strategy 2010–2020. The aim of this study is to give voice to three local organisations of people with disability and for people with disability in Spain, Lithuania and Greece, discussing the EU policy for inclusive education in relation to personal experiences and national policies, as part of the Able’20 European project. The points of view of 58 young people with disabilities were collected through the ‘theatre of the oppressed’ approach as an emancipatory disability research tool, aiming at the empowerment of young people with disabilities and their organisations. The voices of young people show the presence of physical barriers alongside more challenging cultural and institutional barriers, which strongly limit access to inclusive education, showing an opposite trend to the EU policy, and overshadowing the social model of disability.     

Developing practice-near social work research to explore the emotional worlds of severely learning disabled adolescents in ‘transition’ and their families

This paper aims to make a contribution to the development of practice-near research through discussion of a project which explores the experiences of a socially marginalized group — young people with severe learning disabilities. Psychoanalytically informed infant observation is adapted as a research method for observing these young people in the family home. The paper discusses the rationale for the development and adaption of the research method in the process of observing. The discussion focuses on the key themes of understanding the quality of developing subjectivity and the ways that young people, adults and siblings coped with the often stressful aspects in the home. The article concludes with the implications for policy and practice and proposes that methodologies such as this are needed to capture the complexity of the lives and experiences of these service users and their families.     

In favour of online counselling?

Abstract

A ‘surf on the net’ reveals that internationally, many organisations are providing a range of counselling services online including counselling via email, interactive ‘chat rooms’ and teleconferencing. Online counselling appears to be offered primarily as a ‘fee for service’ and many online practitioners work in the area of mental health. In Australia, KIDS Help Line offers ‘free’ counselling for young people using both email and chat rooms. Meanwhile, other organisations/professional groups are struggling to come to terms with this new form of service delivery. This paper begins with a brief explanation of where Relationships Australia (Queensland) is placed in terms of online counselling followed by some of the advantages and disadvantages of online counselling based on a literature search. Concluding statements lean towards favouring online counselling as it offers a new form of intervention that may suit many clients and organisations. The term ‘online’ counselling refers herein to e.counselling or email counselling     

Challenging the Image: the involvement of young people with disabilities in volunteering and campaigning

Much of the debate about young people with disabilities focuses on the difficulties these young people experience and their needs in terms of service provision. Rarely is there a focus on the positive contribution that disabled young people themselves make to society. The paper describes research which aimed to highlight the contribution that young people with disabilities make to their communities, by focusing on their participation in volunteering and campaigning. A national survey of disabled young people's participation was undertaken, as well as two case studies of particular projects. The paper describes the range of voluntary and campaigning activities being undertaken by young people with disabilities, highlights the effects of participation on the young people and those around them, and identifies issues for organisations wishing to enable more young people with disabilities to participate in this way.     

Young people negotiating and maintaining boundaries in youth work relationships: findings from an ethnographic study of youth clubs

‘Professional boundaries’ set limits on appropriate behaviours in the relationship between the service users and practitioners. The professional literature often assumes boundaries are maintained by the practitioners, occupational bodies, or organisational policy. However in youth work this is under-researched. An ethnographic study of four youth clubs in the North East of England into ethical practice revealed that young people were surprisingly adept at maintaining boundaries with the youth workers. These boundaries were negotiated and maintained through the young people's use of space, their willingness to interact with the workers, the way they shared information with the workers, and their inclusion of youth workers into their social networking. Young people also showed a sophisticated awareness of the organisational boundaries youth workers were operating within, and often cooperated in maintaining them with the worker. The article concludes by arguing youth workers should take seriously young people's ability and willingness to set and work within boundaries, and see their negotiation and maintenance as a mutual endeavour. However, this may provide a challenge to organisations with rigid policy-defined boundaries.     

'The more things change…': Barriers to community services utilisation in Queensland

Community services are central to the lives of many elderly Australians or Australians with disabilities if they are to remain in the community. Over the past two decades, significant advances have been made in policy and associated programs, significantly improving the standards of service delivery. This research reports on the perceptions of service providers in community services for people with disabilities in six communities in Queensland. It illustrates that significant barriers to service utilisation remain, despite reform. It suggests that continuous efforts to promote service access need to be built in at the program level.     

Workers with disabilities and the challenges of emotional labour

This paper explores the implications of emotional labour for workers with disabilities, drawing on qualitative data from interviews with 59 respondents who had disabilities and who worked in service sector occupations. The analysis illustrates that employer demands for emotional labour may prove difficult for workers with a range of disabilities, including psychiatric diagnoses, learning difficulties and physical impairments. Analysis also points to the ways in which the non‐accommodating nature of many workplaces often forces workers with disabilities to engage in ‘extra’ emotion work in the interests of fitting in and concealing/ downplaying their impairments.     

‘I couldn’t just entirely be her sister’: the relational and social policy implications of care between young adult siblings with and without disabilities

Research has commonly explored siblings of people with disabilities’ roles in care for their brothers or sisters with disabilities. Social policy has also commonly framed young adult siblings of people with disabilities as ‘young carers’. However, there has been less consideration of the implications of care for the relationship shared between young adult siblings with and without disabilities and of what this may mean for social policy. What do different types of care mean for sibling relationships? What are the relational and social policy implications of care between siblings? Drawing on a qualitative study of 25 siblings with disabilities and 21 siblings without disabilities aged 15–29, this article explores how young adult siblings perceive, talk and act with regard to the different types of care enacted between them. The article identifies how, during young adulthood, some types of care can endanger siblings’ capacity to feel like siblings and discusses ways that young adult siblings talk and act in order to – as best they can – keep their role within the bounds of a normative sibling relationship. The findings are discussed in light of implications for social policy, particularly with regard to seeing siblings of people with disabilities as ‘young carers’.     

Introduction

Abstract

The author shares some practice experience and personal reflection on her introduction to working with people with disabilities. Recognizing that the construct of “disability” is in the eye of the beholder, she shares an outline for one approach to an introductory course in working with people with physical, cognitive and developmental, and psychiatric disabilities. Common themes in practice and service delivery are discussed, as well as the unique role social workers can play in interagency collaboration.     

Young people with complex needs meet complex organizations: an interview study with Swedish professionals about sustainable work practices

ABSTRACT

This paper concerns preconditions for the well-being of young people with mental ill-health combined with social vulnerabilities, also referred to as youth with complex needs. Research questions are: What barriers to sustainable work practices for young people labelled as having complex needs do professionals encounter? What do professionals identify as possible ways to overcome these barriers? Sustainable work practices are reflected in three themes: empowerment, relationships and collaboration. The findings are based on semi-structured interviews with 24 professionals, 3 men and 21 women, working in psychiatric care and the social services in two Swedish municipalities in 2016 and 2017. Major barriers are lack of continuity and co-ordination in staff and support, and fragmentation of work practices. As a consequence of the increased specialization of human service organizations, young people have to interact with many different professionals which could cause disparate interventions. Possible ways mentioned to overcome these barriers are supported through good interactional skills, using keyworkers as well therapeutic alliances, wrap-around services and case management. Complexity is linked to organizations and work practices rather than to young people. An often dysfunctional service delivery system in organizations with rigid boundaries may also affect professionals’ aim for sustainable support.     

Can a Unified Service Delivery Philosophy Be Identified in Aging and Disability Organizations? Exploring Competing Service Delivery Models Through the Voices of the Workforce in These Organizations

Services for older adults and younger people with disabilities are increasingly merging, as reflected in the creation of Aging and Disability Resource Centers (ADRCs). Using ADRCs to coordinate services is challenging, primarily because these fields have different service delivery philosophies. Independent Living Centers, which serve people with disabilities, have a philosophy that emphasizes consumer control and peer mentoring. However, the aging service delivery philosophy is based in a case management or medical model in which the role of consumers directing their services is less pronounced. Using institutional logics theory and a qualitative research design, this study explored whether a unified service delivery philosophy for ADRCs was emerging. Based on focus groups and questionnaires with staff from ADRCs, findings revealed that competing service delivery models continue to operate in the aging and disability fields.     

Work functioning: a conceptual framework

Adequate and reliable methods for evaluation of clients with work disabilities are crucial for both the individuals who are assessed and for society as a whole. Sound and precise work assessments are needed to guide clients to suitable interventions using a minimum of rehabilitation resources. Occupational therapy literature contains evidence that work function assessments are complex and that there is confusion over work assessment concepts. Therefore, further development and evaluation of adequate concepts and theoretical models within the area of work assessment is needed. This article proposes a conceptual framework for different dimensions of work functioning and points out important factors for work assessment. The concepts proposed and defined in the article are: work functioning, work participation, work performance, and individual capacity.     

Public Documents and Legislation: The South Australian Juvenile Courts Act, 1971, and Community Welfare Act, 1972

Abstract

This study of social work practice and disability follows the history of two fields of disability: mental illness and intellectual disability. Of particular interest are two key policy influences in the disability sector, deinstitutionalisation and normalisation. The extent to which deinstitutionalisation and normalisation have brought real benefit to people with disabilities is examined from social workers' perspectives. The implementation of these policies and practices on the daily work of social workers is discussed. This research indicates that social work practice in these two fields involves significantly different foci and approach. The study found that the similarities and differences between the two fields of practice are influenced by the historical and contemporary developments in the care and control of people with disabilities.     

Order of selection in vocational rehabilitation: implications for the transition from school to adult outcomes for youths with learning disabilities

Interagency cooperation between special education and vocational rehabilitation (VR) is central to ensuring the continuity of services to young adults with disabilities who are in transition from school to adult living. However, the interface between special education and VR may be complicated by order of selection, an equally binding mandate in federal VR policy to provide priority services to individuals with the most severe disabilities. Because students with learning disabilities are typically perceived as having mild rather than severe disabilities, these youths are most at risk for falling through the cracks in the service landscape once they leave the school setting in states where the VR agency is implementing an order of selection procedure. This article identifies and discusses common impediments to collaborative transition planning for students with learning disabilities that may be intensified when the state VR agency is operating under an order of selection plan. Recommendations are provided to facilitate greater interagency cooperation among schools and VR agencies so that transition planning and implementation for students with learning disabilities is not subverted as a result of the order of selection mandate.     

Beneficiary Work: The Hidden Labor of Medicaid Users Pursuing Cross-State Moves

For users of Medicaid personal care assistance (PCA) services and their families, interstate variation in eligibility and service availability act as structural barriers to cross-state movement. However, program users desire and pursue cross-state moves. In this article, we provide a grounded theory analysis of 18 interviews with Medicaid PCA users with physical disabilities who expressed desire for or pursued cross-state moves. Our analysis identified six forms of previously unnamed and unrecognized work. As PCA users plan or pursue cross-state moves, they are also (1) assessing service ecosystems, (2) finding the right door, (3) persisting through the bureaucratic gauntlet, (4) advocating for systems cooperation, (5) reestablishing networks of support, and (6) responding to service gaps/lapses. Collectively, we describe this hidden labor as beneficiary work, the unremunerated work that program users must do in order to retain access to benefits for which they qualify. Beneficiary work, while hidden, is not optional; it is necessary for continued access to community and broadly, for survival. Identifying and describing beneficiary work expands on Feminist and interactionist perspectives on disability, poverty, and work, and highlights the need for changes to Medicaid policy that address PCA users as mobile citizens.     

“Not in the Same Sandbox”: Cross-Systems Collaborations Between Early Intervention and Child Welfare Systems

Maltreatment and disability often coexist in the lives of young children, as children who are maltreated are at a higher risk for developing a disability, and, conversely, children with a disability are at a higher risk of being maltreated. Despite being supported by multiple service systems, young children with disabilities who have experienced maltreatment are often not optimally supported by these service systems. We utilized a mixed methods design to explore how early intervention and child welfare collaborate to support young children with disabilities who have experienced maltreatment. Implications and future directions for research, policy and practice are discussed.     

Dads care too! Participation in paid employment and experiences of workplace flexibility for Australian fathers caring for children and young adults with disabilities

This study uses Australian survey data to explore whether caring for children and young people with disabilities affects paid employment participation of fathers who identify as the secondary caregiver. More fathers in the study were in full-time employment than those in the general Australian population, but they worked fewer hours, often in jobs they did not enjoy or roles with less responsibility. Over one third of fathers reported that caring had impacted on their job opportunities or career progression, particularly those whose children had more severe disabilities. The financial costs of raising a child with disabilities and their caring obligations informed many of the decisions fathers made in relation to employment. Fixed hours of work, lack of understanding from their employer, an income tied to hours worked and staff resources were cited as reasons why almost half of the fathers felt they were unable to access flexible working conditions to assist with their child’s care. Self-employment was seen by many fathers as desirable, but the perceived increase in flexibility may be accompanied by an increase in work hours. Implications for paternal well-being are discussed, along with the lifelong implications of caring on employment and financial security for families in the Australian context.     

Identity and everyday experiences of homelessness: Some implications for social work

It is important for the complexities of homelessness to be considered when constructing policy or practice relating to people who are without safe and stable accommodation. These complexities can be loosely categorised around the definitions, causes and experiences of homelessness. While definitions and causes are topics of current debates, study of the lived-experiences of homelessness remains an area that is largely under-researched. This paper explores some of the implications for social work and social workers when the individual's understanding and experience of her/his identity as a ‘homeless person’ and consequent relationships with service providers are not factored into policy and practice. This article draws on the findings of a study of homeless adults in inner city Adelaide to illustrate the author's arguments. It outlines the importance of listening to service users' perspectives in order to assess whether dominant constructions of social work, homelessness and ‘homeless people’ are meeting the needs of and improving outcomes for individual clients. More broadly, it is hoped that making these perspectives visible will assist in the development of ‘client-focused’ practice and policy.