The transnational sphere of justice: disability praxis and the politics of impairment

In this paper, my aim is to elaborate disability movement praxis so that transnational struggles for justice over the production of impairment emerging from the Global South can be represented within the transnational frame of disability politics. The paper seeks to explore the potential of deepening socio-political understandings of impairment as a means to radically democratize disability movement politics at the transnational scale to encompass pluralist, yet subaltern, collective claims for justice. I am guided by the question: if impairment is the place that makes visible invisible debts, can the global disability rights movement begin a process of re-identification to open the boundaries of disability justice claims and develop a strategic orientation which recognizes those collective justice claims for geopolitically produced impairments?     

A lame argument: profoundly disabled embodiment as critical gender politics

In this paper I explore how disabled embodiment offers radical theory and practice for gender politics. I use Adrienne Rich’s classic treaties ‘lesbian existence [and] the lesbian continuum’ and Judith Butler’s twenty-first-century queer interrogation of ‘the category of The Human’ to highlight the exclusion of disablement from gender politics despite its radical potential for theory and praxis. Using a crip ethos I not only explore the consequences of this exclusion for disabled people, but also the resultant limitations of able-bodied perception, theory and practice. A crip ethos facilitates politics and practices where disabled embodiment becomes a profound, severe, and radical challenge to normativity in all its aspects, and a vehicle through which to move beyond such restrictive frameworks.     

Multiculturalism, “political correctness,” and the politics of identity

American society, in the course of its earlier history, was shaped by the competing visions of nativism and cosmopolitan liberalism. The first defined the American identity in restrictive fashion, and sought to curtail naturalization and immigration. The second, taking an expansive view of American identity, pressed opposing policies. In the period following World War II, new visions of American society have developed in the course of the struggles of people of color to overcome their historical exclusion from the American cultural identity. The latest of these visions are expressed in the movements of multiculturalism and political correctness, which are seen here as facets of a new, and morally assertive, view of American society, revolving around the efforts of previously excluded groups to construct new identities. All of these forms of consciousness—nativism, cosmopolitan liberalism, and multiculturalism—now compete on the American scene in the politics of identity.An earlier draft of this paper was presented at the Eastern Sociological Society annual meeting, Arlington, Virginia, March 1992.     

Fatness as a disability: questions of personal and group identity

Both fat people and disabled people share common barriers to full societal participation and acceptance. While there has been a substantial amount of literature relating to these two groups as separate entities, there is a lack of contemporary research that investigates the relationship between fat and disability identity formation. The purpose of this qualitative study was to engage in a dialogue with fat individuals and explore the construction of their identities – whether or not they identified with having a disability and, if so, whether or not they viewed their fatness as a disability. Interviews with a sample size of seven participants who self‐identified as ‘fat’ revealed an unwillingness to adopt a disability identity based on their fatness.     

Aging and identity politics

In this essay, I reflect on multiple identities—woman, lesbian, old—as they interconnect at different life stages. I raise an issue of identity politics (Is “old” as fundamental an identity as “woman”?) and suggest that critical gerontology offers a lens through which to interpret my personal journey from a core feminist identity to a questioning and ambivalent identity as an old woman.     

Contesting Isan‐ness: discourses of politics and identity in Northeast Thailand

This paper discusses the idea of Isan (Northeastern Thai) ethnoregional identity, and its relationship with two major alternative ideas: Thai identity and Lao identity. Drawing on ethnolinguistic research, the paper argues that Isan identity is a problematic political construct, reflecting ambiguous self‐understandings and self‐representations on the part of Northeasterners. Northeasterners are engaged in a negotiation process about their relationships with Thai and Lao identities, relationships fraught with cultural, social and political ramifications. The study suggests a more nuanced appreciation of the ambiguities of Isan identity than has yet been proposed.     

Disability and identity: the challenge of epilepsy

Through examining the case of people with epilepsy (which, as we demonstrate, has an ambiguous status in relation to both popular and academic conceptions of disability) we explore the fluid, negotiable and contingent nature of identity and, in particular, the identification as ‘disabled’. Disability, we argue, cannot be reduced to either biology or social oppression, or even primarily to biological or social factors: it is the outcome of a complex interaction between a multiplicity of factors – biological, environmental, social, psychological, cultural and political – which will interact and be experienced differently by different people, at different times and in different situations. Rather than conceiving of disability in ‘all or nothing’ terms and of differing explanations as competing and mutually exclusive, it would be more productive to see them as partial and potentially complementary contributions to the better understanding of a complex and multifarious reality.     

The additional cost of disability: a new measure and its application to sensory impairment

This article introduces a method using consensual budget standards to estimate additional costs incurred by households that include disabled people with specified impairments. The article reports on a first application of this to UK single adults with sensory impairments. Using the Minimum Income Standard method, the research aims to identify the cost of disability by working with groups of disabled people to agree what additions to minimum budgets for non-disabled people are required for someone with a given impairment. This provides a more tangible account of the cost of disability than economic analysis of living standards achieved by disabled and non-disabled people, and adds to surveys of actual spending on additional items, which do not account for unmet need. The research on vision and hearing impairment yields new insights into costs arising from the way disabled people live their everyday lives, not just from spending on adaptations and equipment.     

The politics of identity: from potential to pitfalls,and symbols to substance

In this public lecture to mark the 25th anniversary of Identities: Global Studies in Culture and Power, award-winning Guardian journalist and author Gary Younge reflects on the potentialities, ambivalences and challenges of ‘identity’ as a basis for political action in the contemporary climate.     

Narrow bridges: Jewish lesbian feminism,identity politics,and the “hard ground” of alliance

Abstract

The emergence of Jewish feminism in the late twentieth century produced a contradictory site for engagement with the Israeli state and its claims to both Jewish identity and the territory of historic Palestine. While some mobilizations of Jewish feminist identity politics promoted nationalism, others engaged the self-reflexive mode to question the coherence of group identity, to work against its codification in the state-national form, and to engender empathy and solidarity with targets of both U.S. and Israeli racial states. This essay maps two forms of Jewish feminist praxis: one liberal, normatively white, invested in both heteronormativity and Zionism; the other radical, emerging in close collaboration with women of color feminism, attuned to comparative racial relations, lesbian-led, and saturated with discourse and debate on U.S. and Israeli racism, and Zionism’s connection to Jewish identity.     

Conceptualising the psycho‐emotional aspects of disability and impairment: the distortion of personal and psychic boundaries

Recent feminist critics of the social model of disability have pointed towards a danger that disability studies may give relatively little attention to personal and emotional aspects of disablist oppression and impairment. We argue for consideration of the centrality of the distortion of personal and psychic boundaries as a key aspect of oppressive relational dynamics surrounding disability. Within the observer the disturbing psychic evocations of disability, and related defences, are connected to the maintenance of dynamics of unreal, collusory and alienating modes of relating, which may deprive disabled people of the recognition of subjective experience and personhood. Skewed socialisation of disabled people, involving inter alia the protection of the emotional lives of others, as well as the reality of inaccessible material resources, contributes to the internalisation of disablism and the ideological recruitment of disabled people as complicit in their marginalisation.     

Negotiating identities: the lives of Pakistani and Bangladeshi young disabled people

Research has generally amalgamated minority ethnic (all called 'Asian' or 'black') disabled young people's experiences and failed to acknowledge the multiple aspects of Asian and black disabled identities, for example how the combined attributes of race, ethnicity, religion, gender, culture, class and disability shape their perspectives and experiences. In an attempt to address this issue my doctoral research explored the experiences and perspectives of 13 young Pakistani and Bangladeshi disabled people. By drawing on the substantive and theoretical findings which emerged from my analysis in this paper I shall consider how multiple aspects of identity, such as ethnicity, disability and gender, affect this population's identity and self-image and how this makes their experiences different from white disabled young people and other minority groups' experiences.     

Identity,impairment and disablement: exploring the social processes impacting identity change in adults living with acquired neurological impairments

The social model of disability acknowledges the impact of impairments but argues that disablement is socially constructed. Taking a theoretical perspective, underpinned by the social model of disability and elements of social identity theory, we investigated the relationship between impairment, disablement and identity change in adults living with an acquired neurological impairment. Through the thematic analysis, three themes emerged: changing self described the personal factors for identity change in people acquiring impairment; changing communities explored the contextual factors creating both socially constructed disablement and identity change; and influencing identity change considered strategies adopted by individuals to both counter socially constructed disablement and promote exploration of identity. A systemic change towards acknowledgement and valuing a disabled identity may counter socially constructed disablement and support enablement and social inclusivity.     

Repositioning mothers: mothers,disabled children and disability studies

In this article we set out to review the ways in which mothers of disabled children have been portrayed within disability studies and the more broader academic literature. We argue that within disability studies mothers of disabled children occupy a liminal position because they are often not disabled and yet they can experience forms of disablism. Their experiences can differ markedly from the experiences of mothers of non‐disabled children and yet the consequences and outcomes of these experiences, such as developing a ‘special competence’ is largely overlooked. Mothers can work to effect change on behalf of their children and, in some cases, for disabled people more generally, however, this role of activist mother is largely undervalued. The review of literature presented here leads us to conclude that further research needs to be undertaken exploring and highlighting the ways in which mothers of disabled children negotiate, manage and approach their daily lives, operating within what are described by feminist scholars as oppressive mothering ideologies and disabling environments.     

Physically disabled women and sexual identity: a PhotoVoice study

The issue of sexuality for young disabled women is not often talked about in society. Our study aimed to explore four young physically disabled women’s experiences and perspectives regarding sexuality and disability. We used PhotoVoice, a participatory action research method which uses photographs, to capture and convey our participants’ concerns. Through their photographs they showed that everyday interactions with others, particularly strangers or meeting people for the first time, were made difficult by how they were always seen as having a disability. Other parts of their identity were not recognised. The change the young women wanted was for people to see them as young women and not just as disabled.     

Sex and the census: why surveys should not conflate sex and gender identity

ABSTRACT

The UK census authorities have proposed guidance for the 2021 census indicating that the sex question may be answered according to subjective gender identity. This raises issues about the measurement of sex and gender identity which other data collection exercises are also contending with. This paper addresses the questions that have arisen regarding the census, before going on to explain how these questions have emerged more widely. Finally, I address the difficulties of discussing the collection of data on sex in a climate of policy capture and silencing.     

Physical and social barriers to social relationships: voices of rural disabled women in the USA

Through exploring the lived experiences of disabled women, this study investigates how physical and social barriers affect their social relationships. In‐depth tape‐recorded interviews investigating a variety of social and interpersonal issues were conducted with 24 women with physical or visual impairments who lived in a rural region of the midwestern USA. Using content analysis, the researchers examined interview data for common themes and patterns relating to social relationships. The findings indicate that physical barriers, related to the physical environment and personal physicality, along with social barriers, involving preconceptions of others about impairment and restrictions in personal networks, hamper the initiation and maintenance of social relationships. Further, the experiences of this group of disabled women corresponded most closely with the premises of a social relational understanding of disability.