A grounded theory of living a life with a physical disability in Taiwan

This study explores the experiences of disability for a number of Taiwanese adults with a physical disability. Using a grounded theory approach, their experiences of living a life with a physical disability were gained through in-depth interviews. The resulting grounded theory ‘it is more than just the impaired body’ presents the dynamic interactions between the participants and the context in which they were living their lives and how they managed their lives within that context. With its inclusion of the cultural dimension, a holistic way of understanding the daily lives of those who experience physical disability in Taiwan is provided.     

Searching for self in a world of labels

Searching for Self is a performance poetry piece that demonstrates the difficulties of identity construction in contemporary life. The author challenges the ‘self’ and ‘other’ dichotomy, and in so doing she attempts to reduce the distance between the ‘client’ and ‘expert’; the researcher and researched; the service provider and service user; and theory and practice. The poems are linked to the authors’ experiences of being labeled with a disability.     

Three Days to Walk: a personal story of life writing and disability consciousness in China

Through a close reading of Three Days to Walk, a memoir of disability by Chinese writer Zhang Yuncheng, this paper develops a new understanding of self-narrated life writing and its intersection with disability consciousness in the contemporary Chinese context. It examines the changing nature of disability life writing since the end of the early 1980s, a time when the images and voices of disabled began to emerge from effective cultural invisibility and silence. In a move away from state-sponsored ‘triumph over tragedy’ biographical narratives typical of the immediate post-Cultural Revolution period, Three Days to Walk is characteristic of a new popular trend to publish self-narrated life stories that reveal unique and intimate histories of disability experience both imbued with and propelled by a burgeoning sense of disability consciousness in the Chinese context.     

The care manager’s dilemma: balancing human rights with risk management under the Intellectual Disability (Compulsory Care and Rehabilitation) Act 2003

In New Zealand, the Intellectual Disability (Compulsory Care and Rehabilitation) Act 2003 provides diversion for persons with an intellectual disability who have been charged with, or convicted of, a criminal offence. This unique Act moves the responsibility for such ‘care recipients’ from the criminal justice system to a disability sector that values a social model of disability and philosophies of autonomy, choice and normalisation. This research identified dilemmas faced by care managers legally responsible for care recipients. Care managers experienced: tension between imperatives of risk management, rehabilitation and human rights; role ambiguity between ‘custodian’ or ‘therapist’; philosophical incongruity within their services; and ethical dilemmas over decisions to lengthen care orders. The changing care recipient population has intensified these dilemmas: services must now adapt to the needs of young, street-wise people with alcohol and drug problems and histories of criminal behaviour. The article makes recommendations about how these dilemmas can be addressed.     

The blurred edges of intellectual disability

The label of ‘intellectual disability’ can be a very blurred concept, because for those on the borders their label often arises from the interaction of the individual with their environment, from their socio-economic status, and from the social role which they choose to undertake. This paper explores the contested notion of intellectual disability in the context of people who have been in trouble with the law in England, and contrasts their situation with that of people who have been protected by best interests decisions under the Mental Capacity Act (England and Wales). People who are on the ‘borderline’ of having an intellectual disability, like any citizens, have a range of intersecting identities. Drawing on the notions of ‘interactional’ disability theory, we reflect on the shifting, relative nature of intellectual disability, and the need for the law to focus on support needs, rather than on impairment.     

The ideology of neuroscience and intellectual disability: reconstituting the ‘disordered’ brain

During the last two or three decades, neuroscience has changed how we understand brain functioning. This shift, which is re-conceptualizing the relationship between the materiality of the brain and consciousness, is bound to have implications for intellectual disability, which is commonly seen as a condition of the brain. At present, examinations of intellectual disability that deploy techniques and concepts from neuroscience constitute a growing research field that has been welcomed in some quarters of the disability research community. The purpose of this article is to urge for caution as regards this development. I argue that the neuroscience of intellectual disability is embodying ideological propositions that need to be problematized. By theorizing the relationship between biology and politics and examining neuroscientific publications on intellectual disability, I argue that this strand of research is underpinned by a discursive division between normal and pathological, that it therefore constitutes a continuation of understanding intellectual disability as a ‘disorder’ and that any firm separation between the ‘nature’ of intellectual disability and processes of power is inherently problematic. To be able to critically approach the neuroscience of intellectual disability, it is vital that disability researchers problematize the relationship between biology and politics.     

Us and them: the influence of discourses of nationalism on media coverage of the Paralympics

Recent research suggests that the mainstream media representation of disabled athletes increasingly fits within the ‘norms’ of sports reporting. This study interrogates this suggestion, using the theoretical tools of cultural studies to compare representations of athletes from ‘our’ nation with athletes from other countries. The results suggest the change may be related primarily to athletes who can be constructed as being more like ‘Us’ through their national affiliation rather than to a revolution in how journalists see disability sport. For those focused on creating progressive images of disability (such as increasing the visibility, depth and complexity of reporting), this finding may offer a way forward. Through understanding the conditions under which athletes might become publicly visible, disability sport organizations gain tools that may enhance their promotional activities.     

Notions of self: lived realities of children with disabilities

To research children’s notions of self, semi‐structured interviews, drawings and focused group discussions were used with 14 children with mobility ‘impairments’ aged 11–16 years. The objective was to capture children’s ‘lived realities’. Findings illuminated immense variation and fluidity in children’s understanding of ‘disability’. Children desired to appear similar to ‘non‐disabled’ children. Most attributed ‘disability’ to existential causes. Parents’ ambivalent attitudes and societal reactions to ‘disabled’ children are discussed. The study points out the unremitting hope and potential of these children, which is often silenced by the overarching ‘negativism’ that surrounds ‘disability’.     

Women’s perceptions of how their dyslexia impacts on their mothering

Women with children have been depicted as struggling to justify themselves in the shadow of intensive mothering ideology. However, little is said about women who have a disability such as dyslexia, and how disability may intersect with intensive mothering ideology to present additional challenges. In this paper, life-story interviews are drawn upon to start to unpack the ways in which mothering and dyslexia may intersect. The themes discussed include: fear and perceived challenges of having a child with dyslexia; how mothers perceived their impairments manifest in their mothering, including poor organisational skills, short-term memory, reading and spelling; and how mothers may attempt to reframe the apparent contradiction between a ‘good’ mother and a mother with dyslexia by, for example, portraying themselves as a positive role-model for their child and better able to identify and cater for their child’s needs.     

Inclusions and exclusions in law: experiences of women with disability in rural and war-affected areas in Sri Lanka

Broad and inter-disciplinary inquiry into disability is at a nascent stage in Sri Lanka. This paper looks at the intersectionality of disability and gender in the specific contexts of ‘the rural’ and the armed conflict-affected areas of the country, particularly the interaction with the law. In-depth interviews and focus group discussions were conducted among rural women with disabilities in the North Central and Eastern provinces, including women who acquired disabilities resulting from the internal conflict. Legal literacy, administrative discretion in disability-related welfare programmes, and transitional justice and reconciliation emerged as the most prominent themes in the interviews. We analyse these issues using a rights framework in an attempt to highlight some of the vulnerabilities of women with disability in the rural and war-affected contexts. The paper also reflects on a few instances where those vulnerabilities have been overcome through collective action.     

Policy,citizenship and governance: the case of disability and employment policy in Australia

Current discussions regarding the relationship between welfare governance systems and employment promotion in disability policy appeal to a rejuvenated neo-liberal and paternalistic understanding of welfare governance. At the core of this rationality is the argument that people with disabilities not only have rights, but also duties, in relation to the State. In the Australia welfare system, policy tools are deployed to produce a form of self-discipline, whereby the State emphasises personal responsibility via assessment tools, ‘mutual obligation’ policy, and motivational strategies. Drawing on a two-year semi-longitudinal study with 80 people with a disability accessing welfare benefits, we examine how welfare governance subject recipients to strategies to produce productive citizens who are able to contribute to the national goal of maintaining competitiveness in the global economy. Participants’ interviews reveal the intended and unintended effects of this activation policy, including some acceptance of the logic of welfare-to-work and counter-hegemonic resistance to de-valued social identities.     

‘Trial by fire’: forms of impairment disclosure and implications for disability identity

This article examines the ways in which people living with non-apparent impairments, sometimes called ‘invisible disabilities,’ choose to disclose their impairments to friends, colleagues, and supervisors. Drawing on life-history narratives conducted with 12 men and women who acquired non-apparent impairment through accident, injury, or illness, this analysis demonstrates that people who have acquired non-apparent impairment use three primary forms of disclosure – confessional, pragmatic, and validating – serving as mechanisms by which individuals internalize the stigma associated with disability, pragmatically acquire accommodations, or resist and challenge ableist views. This analysis shows the ways that disclosure more broadly, and these forms specifically, play important roles in developing and negotiating disability identity.     

It takes a sister: sisterhood and Black womanhood in families of people with intellectual and developmental disabilities

This study explores the sibling relationships of Black women with sisters who have intellectual and developmental disabilities in the southeast United States including Georgia, South Carolina, Florida, and Louisiana. The researchers used disability/critical race theory to understand the perceptions and stigmas associated with disability relating to social, cultural, and psychological structures within sibling relationships. Results were captured in four themes: cultural perceptions of family and extended kin; sibling relationships; beliefs about the self as a sister; and siblings’ identities. The findings from this study will contribute to research in disability studies by providing a better understanding of the intersections of identities and the familial experiences of diverse families.     

Overcoming the challenges of researching ‘young offenders’: using assisted questionnaires – a research note

This short research note discusses some of the challenges involved when undertaking qualitative research with ‘young offenders’, a neglected area within the methodological literature. By drawing on previous research with ‘young offenders’, the author discusses how the use of traditional face‐to‐face interviews produced a number of research challenges which are specific to the psychosocial, biographical and institutional contexts of this particular population. In attempting to overcome some of these challenges in her current research, the author developed a specific research tool – the assisted questionnaire (AQ) – and the remainder of this article describes how its use with ‘young offenders’ helped to overcome some of the methodological challenges which had earlier been identified.     

Invisible disabilities,visible Service Dogs: the discrimination of Service Dog handlers

This article examines the social experiences of Service Dog handlers using survey data from adult US Service Dog handlers (N = 482). The main research question examined is how disability visibility impacts the experiences of Service Dog-related discrimination. Analysis reveals that half of all Service Dog handlers report experiencing discrimination but those with invisible disabilities report experiencing significantly more discrimination. For those with invisible disabilities, the decision to use a Service Dog prevents them from ‘passing’ while at the same time opening them up to increased skepticism about the legitimacy of their disability.     

Qualitative inquiry of sibling relationships: reinforcement of disability devaluation through the exclusion of voices

People with disabilities share a history and culture of marginalization and oppression. In disability studies, disability has been re-defined as an inability or limitation in performance of the roles and tasks expected of individuals within society which excludes people from becoming full participants in social, cultural, and political affairs. Disability research has traditionally been ‘on’ rather than ‘with’ people with disabilities. This article examines how qualitative sibling disability research has been conducted, with a particular focus on the exclusion of people with disabilities.     

The ‘compliant’, the ‘pacified’ and the ‘rebel’: experiences with Swiss disability insurance

Switzerland’s social policies in the field of disability have been significantly reshaped over the last two decades by reducing the number of allowances awarded and by increasing the recourse to vocational rehabilitation measures. What stances do individuals who experience the implementation of these policies adopt? What kind of tests are they subjected to? How can we explain the posture they adopt – be it ‘compliant’, ‘pacified’ or ‘rebellious’ – when facing the (re)assignations of their identity and professional status? Drawing on interviews conducted with individuals who have recently been involved in programmes set up by Swiss disability insurance, we highlight their uncertainties and concerns relating to their place in society, as well as their reactions to disability insurance’s interventions.     

The post(hu)man always rings twice: theorising the difference of impairment in the lives of people with ‘mental health problems’

A vital debate in British disability studies concerns the question of how impairment can be theorised, taking place between those who claim a critical realist ontology and those who argue for a critical social ontology. Recently, this discussion on impairment issues seems to merge with the agenda of the newly emerging perspective of critical disability studies. In contrast to the recent claim of Vehmas and Watson in Disability & Society that critical disability theorists only engage in a relativistic deconstruction of impairment, as critical disability scholars we explore the recent work of Braidotti who addresses a difference between a deconstructive anti-humanist stance and an affirmative post-humanist turn. Inspired by our empirical research, we theorise the difference of impairment in the lives of people with ‘mental health problems’ that can imply, in theoretical and in practical real-life terms, both a limitation and a potential that matters.     

The production of disability research in human geography: an introspective examination

The ‘geographies of disability’ is an important and evolving area of scholarship within human geography. Uniting the disparate areas of inquiry in this sub‐discipline are researchers’ shared interests in understanding processes of disablement and socio‐spatial experiences of disability. What drives human geographers to engage with this scholarship? We address this and other introspective questions through presenting an analysis of the findings of an online survey conducted with 30 such disability researchers. The overriding purpose is to understand how and why these researchers do what they do. Our presentation of the survey findings is divided into four organizational categories: (1) the researcher; (2) the inquiry; (3) the research outputs; and (4) the institutions. A key finding is that conducting disability research in human geography is very much about negotiating around or through constraints while identifying and enacting enablers in order to accomplish goals associated with producing disability research.     

Out of the ordinary: research participants’ experiences of sharing the ‘insignificant’

How do research participants feel about having their ‘ordinary’ lives researched? This article focuses on how research participants manage the sharing of details emerging out of their ordinary lives in the context of research – an activity which, for most, is outside of the ordinary. Despite two significant research turns – towards reflexivity and towards the ‘everyday’ – these experiences remain curiously neglected. Drawing on a study of small acts of help and support, I seek to push methodological debate about researching the ordinary beyond the technical challenges of surfacing or capturing the apparently mundane or ‘insignificant’. I do so by arguing that background feelings rooted in the living of, and sharing about, the ordinary are analytically important in their own right; that the ‘ordinary’ itself, therefore, has to be managed by research participants and researchers; and that Goffman’s notion of performance is a useful tool for understanding how this is done.