Regranting identity to the outgraced – narratives of persons with learning disabilities: methodological considerations

Good research should be relevant and useful, it may even be enlightening or symbolic, but it can also be emancipatory. Qualitative research can be useful in challenging structures, policies and practices that disempower and marginalize segments of the population. However, could it be that the empowerment of the participant ends where the weakness of the researcher begins? In qualitative studies the researcher seems to have a number of favourite interviews. In a study on the relational and sexual experiences of 46 people with learning disabilities, 12 interviews were withdrawn from the general data on the basis of lack of relevance. It is important to re‐examine why the voice of some people fell out of the in‐depth analysis and whether this was justified. In this article some methodological opportunities and pitfalls to re‐grant identity to these silenced narratives are considered and discussed.     

‘Weightless?’: disrupting relations of power in/through photographic imagery of persons with intellectual disabilities

Missing in discussions of visual representations of people with intellectual disabilities are their own perspectives. Rooted in Derrida’s concern with the ‘right of inspection’ over visual representations, participatory arts-informed methodologies were used in research with people with intellectual disabilities. They critiqued and then used Photoshop to transform public photographs of labeled people. Responding to visual constructions of labeled persons as ‘weightless’/powerless, they revealed personal experiences of being denied control over their lives and representations. Yet their critiques and transformations reveal possibilities for their re-conceptualization as powerful, subverting stereotypes of labeled people and disrupting relations of power in disability imagery.     

Inclusion or outcomes? Tensions in the involvement of people with learning disabilities in strategic planning

Social inclusion is a key principle that underpins the provision of services for people with learning disabilities in England. Learning Disability Partnership Boards, which are responsible for local strategic planning of learning disability services, hold a particular role in promoting inclusion since they are required both to operate inclusively and to achieve inclusive outcomes. This study sought to explore the extent to which these ambitions for inclusion were being achieved. It consisted of three phases: a scoping exercise to elicit the views of key stakeholders; a postal survey of Partnership Boards (response rate 51%); and semi-structured interviews with Partnership Boards members in six local authorities. Findings suggest that Partnership Boards are struggling to fulfil their dual role, with tensions emerging between the desire to operate in fully inclusive ways and the ability to affect strategic change within local services.     

Whose responsibility? Resilience in families of children with developmental disabilities

Families with children with disabilities are at higher risk of stress, financial disadvantage and breakdown. In recent decades, research and policy have shifted focus from these problems to a strengths-based approach, using concepts such as family resilience. By definition, resilience is the ability to cope in adverse circumstances, suggesting a reliance on the individual. If this is the case, then to what extent does ‘family resilience’ place another burden of responsibility onto families? Whose responsibility is family resilience? This paper begins to answer this question using interviews with parents of children with developmental disabilities based in New South Wales, Australia.     

Inclusion of persons with disabilities in mainstream employment: is it really all about the money? A case study of four large companies in Norway and Sweden

This study investigates how large companies respond to public policy measures to ensure the inclusion of persons with disabilities in mainstream employment based on a case study of four companies in Norway and Sweden. The qualitative interviews, which were conducted with company managers, government representatives in Norway, and non-governmental organisations in Sweden, revealed three overarching themes: (1) ‘legitimacy’, (2) ‘financial interests’ and (3) ‘non-financial support’. The results indicate a more proactive response from the Swedish companies, especially regarding persons with intellectual and learning difficulties. The Norwegian companies reveal a high commitment to their own employees. These findings cannot be explained solely using neo-institutional theory, which holds that organisations demonstrate ‘conformity with powerful institutional myths to strengthen support and secure survival'. The results indicate that inclusive targeted corporate policies and programmes, advisory support, and the agency and value choices of the management might matter more.     

Can we empathize with the narrative of our enemy? A personal odyssey in studying peace education

The reader is taken on a journey spanning some 30 years devoted to the author’s involvement in practicing, teaching and studying peace education. The core concept in this journey is active bystandership, which implies the capacity to disengage from our ethnocentric narratives and perceptions and to face the emotional challenges of acknowledging narratives that contradict our collective assumptions about the conflict and accept the moral obligation to address our contribution to violence. The author describes her non-professional as well as her professional activity in academia of participating, initiating, teaching and facilitating peace education projects. She describes inter and intra-group encounters and attempts to identify the limitations and opportunities of each type. Finally, some research methods and results of recent studies in peace education, especially regarding perceptions of collective narratives, are presented and discussed.     

Inclusive curricula in Spanish higher education? Students with disabilities speak out

This paper studies barriers and support affecting access, experience and performance as identified by students with disabilities at the University of Seville. Biographical-narrative research methodology is employed and the study is limited to an analysis of the design and development of subjects across the curriculum. Findings, which give voice to the students themselves, are organized in four topic areas: subject structure, methodology, tutorials, and assessment. The paper concludes with a review and discussion of key findings as well as suggestions for improvement and policy-making.     

Are sex differences in nonverbal and verbal behavior generalizable to mentally retarded persons?

Sex differences in three communication behaviors consistently found to be more common among females than males — smiling, gazing at one's partner, and sentence complexity — were examined through analysis of interviews with 78 institutionalized mentally retarded adults. While females were significantly more likely than males to smile or laugh, and tended to use longer, more complex sentences, the commonly observed sex difference in gazing failed to generalize to a retarded sample. These findings clarify limits on the generalizability of sex differences beyond college students and other normal populations.This research was partially supported by a grant to the Texas Tech University Research and Training Center in Mental Retardation from the Rehabilitation Services Administration, Department of Health Education, and Welfare.     

Support networks and social support for persons with psychiatric disabilities—a Swedish mixed-methods study

The aim of this study was to explore the structure, interaction, and function of the support networks of women and men with psychiatric disabilities. The study took a mixed-methods approach, using quantitative (n=181) and qualitative (n=42) data from a region in southern Sweden. The quantitative results showed that the respondents received widespread support of different types and from many different sources. However, the qualitative interviews revealed that many of the interviewees did not perceive the received support as supportive. The respondents’ internal resources influenced both their ability to receive support and their perception of the support. The informal and formal support sources formed the external resources of the respondents. Our interviewees often experienced formal support as conditional support, while informal support from the family was experienced as unconditional. There was thus a gap between the structure and function of the social support. This article contributes important knowledge from the perspective of persons with psychiatric disabilities.     

Self-advocacy among people with disabilities in the transition from good will to civil rights: Is it sufficient?

The burdens associated with eliminating discrimination on the basis of disability have been bestowed upon those individuals in our society with the least experience in defending themselves from social and interpersonal bias. Offering people with disabilities training in civil rights, barrier identification, interpersonal communication, and problem solving skills to enhance and empower self-advocacy have been the primary means of government sponsored human service institutions to generate the desired social change. There is evidence that these actions are less than effective. Overt public commitment and outreach efforts are needed to effectively elicit change from those individuals who are directly responsible for discriminatory actions.     

How do adults with intellectual disabilities use Facebook?

Social networking sites have potential to support social relationships and self-determination of people with intellectual disabilities. However, to date, this issue has received little research attention. To help address this need, we conducted an online research survey to reach adults with intellectual disabilities who use Facebook and to include their voices about their online experiences, challenges, and preferences. We used mixed methods for data collection and analysis. Results from 58 respondents indicated that they use Facebook much as non-disabled users do to connect with family members and real-world friends. At the same time, the respondents reported challenges such as privacy setting and literacy demands. We discuss these findings and how to make social networking sites more accessible for users with intellectual disabilities.     

Going with the Grain in African Development?

In view of the disappointing performance of the Good Governance agenda in Africa, policy‐makers are asking whether better results could be obtained with approaches that attempt to ‘work with the grain’ of African societies. This article explores what this might mean. It identifies a core set of beliefs and values – concerning power, accountability and social morality – that have proved extremely durable and remain powerful drivers of behaviour across sub‐Saharan Africa. It finds that, in general, Western institutions sit ill with these traditions. The question is, therefore, how to redirect development efforts so that they stop working against, and start to build upon, the extant notions of moral obligation and interpersonal accountability in the region.     

University gatekeepers’ use of the rhetoric of citizenship to relegate the status of students with disabilities in Canada

Despite affirmation that students with disabilities should have equal access to education, individuals with disabilities are still not participating to the same degree as individuals without disabilities, particularly within postsecondary institutions. Students in Health and Human Service (HHS) programs experience many unique challenges and disadvantages. In-depth focus groups and interviews were conducted with 14 university stakeholders in HHS programs regarding their perceptions and experiences of working with students with disabilities. We found that the rhetoric of citizenship, specifically notions of rationality, autonomy, and productivity, interacts with beliefs about students with disabilities to allow stakeholders to justify their exclusion or limited participation. Our findings demonstrate how taken-for-granted beliefs can limit the inclusion of students with disabilities in ways that seem natural and unproblematic.     

Communication without sender or receiver? On virtualisation in the information process

A communication process can be described in terms of a sender transmitting information to a receiver. What happens if one of the two subject roles in this process is virtualised, i.e. substituted by a machine? Is it still appropriate to refer to this as an information transfer even if its source or target is missing? Can information originate from an unknown sender or be transmitted to a (completely) unknown receiver? Before examining these questions and answering them, one has to clarify what is understood by information. As it turns out, different interpretations of this term lead to considerably different answers to the initially raised questions. We consider these questions particularly important since the continuing dissemination of so called information and virtualisation technologies changes the human communication processes fundamentally. These changes are part of the ongoing formation of an information society and may eventually lead to the formation of a new image of man.     

Community perceptions of people with disabilities in the North West region of Cameroon: what is the impact on their access to services?

Community perceptions of people with disabilities are not uncommon and also have impact on access to services. This article discusses the results from interviews, participant observations as well as field notes with 62 participants (people with disabilities, families of people with disabilities, regular school teachers and principals, community-based rehabilitation personnel, non-governmental organization personnel, traditional leaders, religious leaders and social workers) regarding their perceptions of people with disabilities and the impact on access to services. The findings from the study revealed that community’s perceptions of people with disabilities are both negative and positive and have an impact on their access to schooling, health and rehabilitation services. The discussions/conclusions include difference in perspectives, beliefs and practices, impact of perceptions as non-linear, sensitization/flow of information and context difference.     

Are nonprofit prisons an alternative? Some experiences in the Netherlands

Outsourcing of detention is complex due to quality risks from incomplete contracts, the public responsibility for sentencing and execution, and related social opinions. In the Netherlands, prison services are extensively outsourced—particularly for juvenile detention and internal forensic psychiatric care—to nonprofit organizations. In the Dutch experience, we have not found differences between public and nonprofit execution with respect to the type of contract, costs, performance indicators such as escapes and violence against personnel. The Dutch experience shows that outsourcing to nonprofit organizations can be an alternative to outsourcing to private entrepreneurs.