Capabilities,human value and profound disability: capability theory and its application to theatre,music and the use of humour

According to capability theory, we can identify everything that is of fundamental importance in the lives of people with profound and multiple learning difficulties and disabilities if we take full account of their human capabilities. In this paper I both acknowledge the contribution of capability theory to our understanding of the condition of profoundly disabled people and express some scepticism about the extent of that contribution, suggesting that there is more to the value of a human being than an audit of their capabilities might reveal. I explore human capabilities as discussed by Martha Nussbaum, and in connection with theatre, music and the use of humour.     

"Women and disability don't mix]" Double discrimination and disabled women's rights

Oxfam's experience with groups of disabled people has revealed that gender affects how disabled people are treated in various cultures. This experience runs counter to the often voiced (even by a consultant hired by Oxfam) assumption that gender analysis serves only to confuse any analysis undertaken of disability-based circumstances. This assumption is echoed in the disability movement itself where activists fear fragmentation through the introduction of gender analysis. Thus, gender is not yet understood as a factor which affects every aspect of life including race, class, ethnicity, caste, and disability. Because 75% of the 250 million disabled women in the world live in developing countries, development programs must consider the specific needs and rights of disabled women who suffer from double discrimination and are more likely than disabled men to live impoverished and isolated lives which lead to depression and despair. In many societies, disabled women, but not disabled men, lose their rights to marriage, family life, education, and health care. Mothers of disabled children are stigmatized, and fathers tend to "blame" defective genes on the mothers and to ignore their disabled offspring. These factors combine to make it difficult to improve the status and livelihoods of disabled women through development work. Disabled women activists have also voiced complaints about their lack of access to the preparatory meetings for the Fourth UN Women's Conference, but disabled women intend to use the Conference to lobby for their rights and to call for scrutiny of health policies which discriminate against the disabled.     

Disability Culture and Cultural Competency in Social Work

Despite recognition of the importance of cultural and social diversity in social work education and practice there is a dearth of social work literature related to disability culture. A review of disability studies literature indicates that the disabled people's movement already affirms and celebrates the existence of disability culture as characterized by several agreed upon assumptions: disability culture is cross-cultural; it emerged out of a disability arts movement and its positive portrayal of disabled people; it is not just a shared experience of oppression but includes art, humour, history, evolving language and beliefs, values and strategies for surviving and thriving. Essentialist concepts of culture, as represented in assimilationist and pluralist social work approaches, provide social workers with the false belief that there are cultural competencies that one can develop that are sufficient to become more culturally sensitive. However, analysis of the critical theory underpinning disability culture demonstrates that an understanding of cultural politics is fundamental to social work education if it is to support the work of the disabled people's movement in demystifying and deconstructing the norms, discourses and practices of dominant culture which are represented as neutral and universal.     

The Role of Access Groups in Facilitating Accessible Environments for Disabled People

This paper considers the contrasting ways in which disabled people seek to overturn socio-attitudinal, political and physical barriers to their mobility and access requirements in the built environment. In particular, the paper documents how disabled people are attempting to influence the form and content of local authority access practices and policies in the UK, through the context and contours of access groups. I begin by briefly outlining some of the key factors inhibiting and facilitating disabled people organising as effective political groupings, relating the material to access issues in the built environment. Then, using case studies of two contrasting access groups, the paper explores some of the practical barriers, problems and opportunities connected to disabled people's activities in seeking to influence local authority access policies and practices. I conclude by discussing how some of the wider structural and agency-level constraints on disabled people's political and policy interventions in access issues might be removed.     

The politics of joking: narratives of humour and joking among adults with Asperger’s syndrome

The purpose of this article is to analyse how humour and narratives about humour are used in a natural group of adults with Asperger’s syndrome. Narratives about humour and use of humour in the group are analysed from a discursive psychological perspective, informed by insights from both disability studies and critical autism studies. The setting of the research is ethnographic fieldwork in an educational setting in Sweden. In the paper, I show the use of three storylines among a natural group of people with autism (PWA) when talking about humour: the storyline of humourless PWA that dominates within Swedish society; and two alternatives, a storyline of alternative humour among PWA and another storyline in line with the social model of disability, of neurotypical humour or disabling humour. When invoking these two alternative storylines, PWA challenge both the humourlessness storyline and the lack of social accessibility within mainstream neurotypical settings.     

Does She Boil Eggs? Towards a Feminist Model of Disability

The Social Model of Disability is increasingly recognised as the theoretical and ideological underpinning for the collectivisation and politicisation of disabled people. This paper examines the Social Model from the perspective of disabled women. It then considers the position of disabled women in relation to both the women's movement and the disability movement. It argues that the former is oriented towards non-disabled women and the latter towards disabled men, with a consequent further marginalisation and disempowering of disabled women. Drawing on the history of black feminism, the author (who is a white non-disabled woman, and who teaches anti-discriminatory social work practice based on an integrated theoretical model) concludes by offering to disabled women a reframing of the analysis in which to explore their simultaneous experiencing of their gender and disability.     

‘I do like the subtle touch’: interactions between people with learning difficulties and their personal assistants

Disabled people have often been denied choice and control in their lives. Although direct payments promise to deliver autonomy for disabled people, much depends on the way direct payments employers and personal assistants handle their interactions. These matters are particularly important for people with learning difficulties, who have routinely been restricted and controlled by their support staff. This paper presents an analysis, based on video material, of interactions between people with learning difficulties and personal assistants. The paper examines how difficult tasks, such as giving advice, can be accomplished in ways that people with learning difficulties find acceptable. Successful interactions are built on sensitivity to the wishes of the person, on a moment by moment basis. It is important that both parties coordinate their body language, humour and timing to demonstrate a close and friendly relationship, which is both professional and on the terms of the direct payments employer.     

The Dialectics of Multiple Identities and the Disabled People's Movement

This paper explores the issue of commonality and difference in the disabled people's movement in relation to ethnicity, gender sexuality, age and class. Hitherto, disability academics have either ignored or tagged on the experience of disabled black and minority ethnic people, women, older people, and gay men and lesbians. When they are discussed, they have more often than not been discussed separately - for example, disabled black people's experience has always been discussed separately, disabled women, disabled gay men and lesbians and disabled older women. Hence it is not surprising if 'simultaneous oppression' is perceived to be the unique experience of a minority of disabled people. Here, I suggest that it is, in fact, the experience of a majority of disabled people since the majority is not a homogenous mass of disabled white heterosexual middle-class young men, but individuals from diverse backgrounds with a wide range of identities and experiences, and to accept that their only concern is disability is to fall into the same trap as the general population most of whom only see the impairment and not the person. It is imperative to note, however, that the blame does not lie with the social model of disability, as it is sometimes assumed, for that is merely a conceptual tool. The paper discusses the concept 'simultaneous oppression' as applied to the experience of black women and later disabled black people. It is suggested that this is too simplistic an analysis to capture the day to day experience of those who possess negatively labelled multiple identities. An alternative framework is suggested to link the experience of different groups of disabled people and, hence, offer a common ground for unity in the disabled people's movement.     

The Eugenic Transition of 1996 in Japan: from law to personal choice

The Eugenic Protection Law, which regulated sterilisation and abortion in Japan, had two aspects: one was to prevent the birth of people with specific diseases and impairments, and the other was to permit women to have an abortion for specified reasons. This law was criticised by both disabled people and feminists, and finally amended in 1996. Another eugenic practice related to both disabled people and women is prenatal screening. One prenatal diagnostic check, serum screening is a simple blood test carried out on the mother with little risk and no need for sophisticated techniques. It became very widespread in Japan around 1996 and was used with too little thought. As a result, it led to controversy. This paper discusses Japanese eugenics by reference to the Eugenic Protection Law and prenatal screening from the standpoint of both women and disabled people.     

Definitions of Need: Can disabled people and care professionals agree?

This paper attempts to examine the ideological frames of reference that inform the definitions of need that are used by disabled and non-disabled people. The main aim of the research upon which this paper is based being to test the degree of congruence of the non-disableds view of need with that of disabled people. Central to this is an exploration of the differences that exist in the perception of disability held by disabled people and nondisabled people. It investigates this through the use of a staged vignette based around a fictitious character (Mr Arthur Angus) and his family. The paper seeks to explore the multidimensional contexts in which individuals operate based upon a deconstruction of the medical/social locus of control model.     

Disability and Adult Education - the consumer view

Developments in recent years have shown an increasing interest in the educational needs and aspirations of disabled adults. There is still, however, limited research information representing the disabled person's voice. This paper describes the outcomes from a survey of the educational experiences of 44 physically disabled adults in the North West of England. The findings indicated that, usually, the earlier someone had acquired a disability, the less likely they were, as adults, to have achieved professional or higher qualifications, and that the level of qualifications reached among women being surveyed was particularly low. Barriers to course attendance reflect both attitudinal and practical access issues, with underachievement often the result of oppression from a variety of sources. Both positive and negative experiences from disabled adults form the basis of recommendations for an equal opportunities approach to adult education for disabled people around the themes of integration, self worth, empowerment and consultation.     

Physically disabled women and sexual identity: a PhotoVoice study

The issue of sexuality for young disabled women is not often talked about in society. Our study aimed to explore four young physically disabled women’s experiences and perspectives regarding sexuality and disability. We used PhotoVoice, a participatory action research method which uses photographs, to capture and convey our participants’ concerns. Through their photographs they showed that everyday interactions with others, particularly strangers or meeting people for the first time, were made difficult by how they were always seen as having a disability. Other parts of their identity were not recognised. The change the young women wanted was for people to see them as young women and not just as disabled.     

Screening Networks: shared agendas in feminist and disability movement challenges to antenatal screening and abortion

This paper identifies common ground in feminist and disability movement concerns with the social and ethical implications of antenatal screening and abortion. By examining the frameworks used by particular authors within each area, I argue that they both can and do have a shared agenda, which is focused on the social values that are embedded in antenatal screening and promote abortion as the obvious choice to the diagnosis of a congenital condition. It is important to develop some kind of shared agenda in order to construct theoretical and methodological approaches, which pay equal attention to pregnant women (disabled and non-disabled) and disabled people. To aid the development of such an agenda I draw on Actor Network Theory (ANT), which focuses on analysing the role of sociotechnical networks in securing particular social values and moral worlds. The issue for both disability studies and feminism is what kind of screening networks produce moral worlds that promote abortion, shape women's choices and express discrimination against disabled people?     

Special Education, Inclusion and Globalisation: a few considerations inspired in the Brazilian case

This article analyses contradictory aspects of globalisation in emergent countries and its reflections on special education taking the Brazilian context as reference. It argues that globalisation can only be positive if understood in its humanitarian sense which is in tune with the proposal of an inclusive education and the Education for All movement. The paper points out some key-terms used together with 'globalisation' and raises aspects related to the way(s) in which they affect the education of disabled people in Brazil. It suggests that understanding the new roles of education within the globalised world is imperative for inclusion to take place effectively.     

Personal and Political: A Feminist Perspective on Researching Physical Disability

Feminist theory and methodology have much to offer in understanding how disability research has been experienced as alienated research by disabled people. However, feminist research has failed to apply its principles to disability and disabled women's subjective reality has found no place in mainstream feminist work. The paper identifies the challenges for feminism in addressing the interests and reality of disabled women, asserting that it is not helpful to focus on 'double disadvantage'. Disability research itself has much to learn from feminist methodology, in particular the principle of making the personal political. The role of non-disabled researchers as allies of disabled people is discussed, and the importance of research which turns the spotlight on the way in which non-disabled society oppresses disabled people. Finally, it is asserted that disability research and politics are of general relevance because the experience of disability is an integral part of a society characterised by fundamental inequalities and ideologies which divide people against each other.     

Female researcher safety: the difficulties of recruiting participants at conventions for people with dwarfism

Disability research often favours the use of disabled researchers carrying out research with disabled participants. It is believed to empower disabled people and create results that are more valid. However, little consideration has been given to the ethical implications of this type of research process, including in relation to female researcher safety. This paper provides an autoethnography of my experience of being sexually assaulted when recruiting participants for my doctoral research, at a convention held by an association for people with dwarfism (The term used to refer to someone with this impairment often differs. In this research project terms participants preferred included; dwarf, person with dwarfism, short stature and restricted growth. I use the term ‘person with dwarfism’ as it fits in with the social model of disability by demonstrating that a person is ‘dwarfed’ by a built environment, which is constructed for the average sized person and is therefore disabled). Focusing on gender, disability and sexuality, situated in space, this paper explores the problems encountered when trying to recruit participants within a particular space. This paper suggests that the safety of the researcher, needs more consideration and offers recommendations to increase researcher safety.     

A common open space or a digital divide? A social model perspective on the online disability community in China

This paper explores the use and impact of the Internet by disabled people in China, informed by the social model of disability. Based on survey data from 122 disabled individuals across 25 provinces in China, study findings suggest that there is an emerging digital divide in the use of Internet amongst the disability community in China. Internet users in our study do not appear to be representative of most disabled people in China. For the minority of disabled people who do have access to the Internet, however, its use can lead to significantly improved frequency and quality of social interaction. Study findings further suggest that the Internet significantly reduced existing social barriers in the physical and social environment for disabled people. Implications for future research, and strategies for increasing reducing the digital divide between the minority of Internet users and the majority of disabled people in China are discussed.     

Domestic violence and women with disabilities: locating the issue on the periphery of social movements

Women with disabilities, like non‐disabled women, are at risk of experiencing abuse perpetrated by those closest to them. This paper reviews what is known about the domestic abuse of disabled women, explores some of the dynamics of that abuse and considers why this issue has not been high on the agenda of either the movement against domestic violence or the disabled people’s movement in the UK, taking into consideration several points that disabled women have raised. In doing so it focuses on the concept of compound oppressions as a potential explanation for the failure of this problem to have widespread recognition as a social issue.     

‘Me too!’: individual empowerment of disabled women in the #MeToo movement in China

This study examines the role of disabled women in the #MeToo movement by analyzing their voices in the movement. Through online participatory observation, we discovered that the movement has individually empowered disabled women on three levels: as women, as disabled people, and as resisters. These disabled women described two ways in which they were empowered at each level, a total of six ways: they realized that they were not guilty, not ashamed, not stereotyped, not going to tolerate abuse, awakened, and united. However, the empowerment of the #MeToo movement only works at an individual level for some disabled women with higher economic and social status through online platforms, with few offline actions being taken and few responses from society to their appeals. There is thus still a long way for disabled women to go in order to be fully included in society.     

Disabled occupational therapists – asset,liability … or ‘watering down’ the profession?

Activists and academics advocate the involvement of disabled people in the education and training of health professionals and it has also been argued that the professions would benefit from including disabled healthcare professionals within their ranks. With increased numbers of disabled people entering all areas of higher education, it is likely that the numbers of disabled healthcare professionals will grow. This paper describes a small-scale study of the experiences of disabled occupational therapists who were asked to recount their journeys and to provide first-hand accounts of the reality of being a disabled health professional. The findings suggest that there is further work to be done before the profession benefits fully from the inclusion of disabled therapists, and the paper concludes by giving possible explanations and making recommendations to help facilitate this inclusion.