Disposable dispositions: reflections upon the work of Iris Marion Young in relation to the social oppression of autistic people

This brief commentary piece looks to apply the theories of Iris Marion Young to the social position and oppression of autistic people, as previously theorised by Milton. The concepts of ‘Asymmetrical symmetry’ and the ‘Five faces of oppression’ are explored in this regard. The article concludes by arguing that autistic people, particularly those who have significant intellectual impairments, can be socially marginalised to the extent of occupying the social position of ‘non-human’ with the staggering consequences for social well-being that this implies.     

Prevalence of clinical autistic traits within a homeless population: barriers to accessing homeless services

ABSTRACT

Recent research suggests a high prevalence rate of Autism Spectrum Conditions (ASC) amongst the homeless population. Although, it is well-documented that autistic people experienced many barriers to accessing health services, little is known about their challenges in accessing homeless services. Thus, the present study aimed to measure prevalence of high levels of autistic traits, and to identify barriers that prevent autistic people accessing homeless services. Participants recruited from homeless services (n?=?65) completed the Autism Quotient-10 (AQ-10) alongside a questionnaire regarding perceived accessibility of homeless services. Results revealed that 18.5% of participants scored Above the Clinical Threshold of the AQ-10 (ACT-AQ). Moreover, the ACT-AQ group reported that encountering big groups in shared accommodation represent a significant barrier to engaging with homeless services. Further research is needed to identify the full degree of ASC representation and the factors that might prevent autistic homeless people accessing homeless services, and thus overcoming homelessness.     

Exploring how the social model of disability can be re-invigorated for autism: in response to Jonathan Levitt

Levitt argues that the social model of disability needs to be re-invigorated, potentially by adapting the tool for separate countries. The social model has been successfully applied for some disabled groups in the United Kingdom. However, the social model is not implemented for neurodivergent labels such as autism, through the negative language of autism, causing severe problems for autistic individuals’ daily lives. The social model can be re-invigorated for autism, removing social barriers by changing non-autistic people’s attitudes towards autism through ensuring positive language of autism, preventing the categorisation of autism and fully enacting The Autism Act 2009 and The Equality Act 2010.     

Tracing the influence of Fernand Deligny on autism studies

In recent years, I have had a growing interest in the work of Deleuze and Guattari, the influence of Fernand Deligny’s work on their own, and the similarities and differences between their respective philosophies and those within my own writings as an autistic academic and activist. Recently a translation of Deligny’s writing became available. Deligny’s writing, even when translated, is not easy to decipher, and perhaps reflects his ‘rhizome-esque’ philosophy and practice. Yet according to Burk there were three main principals which characterised the work of Deligny: the network as a mode of being (called the ‘Arachnean’); the art of acting and doing from which his methodology of ‘mapping’ attempted to trace; and, lastly, the ‘primordial communism’ of a shared common site of living. In this article, these themes will be explored and contrasted with the theoretical writings of the autistic author Jim Sinclair and those of my own, as well as indicating how they influenced the concepts later devised by Deleuze and Guattari.     

Gangsters and wheelchairs: urban teachers’ perceptions of disability,race and gender

This investigation provides inquiry into Disability Critical Race Studies to analyze the intersecting attributes related to race, gender and disability. The application of Disability Critical Race Studies revealed the ways in which race/ethnicity and gender merge to erroneously typecast African-American men who are wheelchair users as reformed ‘gang bangers’ or ‘victims’ of neighborhood gun violence. This investigation examines urban pre-service teachers’ understandings of disability and underscores the challenging intersection of race, gender and disability within urban communities.     

Provocations for Critical Disability Studies

This article posits a number of provocations for scholars and researchers engaged with Critical Disability Studies. We summarise some of the analytical twists and turns occurring over the last few years that create a number of questions and concerns. We begin by introducing Critical Disability Studies; describing it as an interdisciplinary field of scholarship building on foundational disability studies theories. Critical Disability Studies scholarship is being produced at an exponential rate and we assert that we need to take pause for thought. We lay out five provocations to encourage reflection and debate: what is the purpose of Critical Disability Studies; how inclusive is Critical Disability Studies; is disability the object or subject of studies; what matters or gets said about disability; and how can we attend to disability and ability? We conclude by making a case for a reflexive and politicised Critical Disability Studies.     

Theory of mind,perceived intentions and reciprocal behaviour: Evidence from individuals with Autism Spectrum Disorder

Evidence suggests that departures from pure self-interest are due, at least partly, to individuals conditioning their behaviour on the perceived intentions of others. We present a new experiment that refines the study of intention-based other-regarding motives. Using a series of mini-ultimatum games that have been extensively studied in the literature, we compare the behaviour of normally-developing (ND) children to that of children with Autism Spectrum Disorder (ASD), who typically lack the ability to attribute intentions to the observed actions of others. We find that ND children’s rejection behaviour responds systematically to changes in the set of available options, in line with previous findings. ASD children’s rejections are virtually unaffected by the intentions that could be inferred from the games’ strategy space. These differences are mainly driven by ASD children with low mentalising abilities.     

Zen and the art of aut-ethnography: a tribute to Robert M. Pirsig

With the passing of Robert M. Pirsig, I felt that it was an appropriate time to write a tribute to his work and the influence it has had on my own theorising in regard to autistic ways of being. This reflection utilises the concept of an ‘aut-ethnography’ to examine passages that I had highlighted word by word when I first read Pirsig’s book: Zen and the Art of Motorcycle Maintenance. These fragments contain links to a number of theoretical ‘lines of flight’ within my own work and that of others, from his concepts of dynamic ‘quality’ to his discussion on the tension between scientific method and lived experience.     

Parenting a child with Autism Spectrum disorder: parental work context

This research contributes to the literature on work-related factors for parents raising a child with a disability. Specifically, we used questionnaire methodology to compare two parent families raising a child with Autism Spectrum (AS) with similar families raising ‘typical’ children. Our findings suggested that parents raising a child with AS self-report higher parenting stress and more mental health symptomatology, as well as lower overall job satisfaction, less satisfaction with supervisors and less workplace contentment. In addition, our findings suggested that parents raising a child with a disability self-report similarly to parents raising ‘typical’ children with respect to work interest, commitment and quality, as well as time missed. In conclusion, our results appear to suggested that despite increased parental stress related to parenting a child with AS, with respect to several work-related factors, there are more similarities than differences among these parenting groups.     

Doing it differently: emancipatory autism studies within a neurodiverse academic space

Abstract

In the current research climate, in which many autistic and autism communities are increasingly calling for a move towards collaborative forms of research, we consider how a loosely formed epistemological community may serve to challenge ‘business as usual’ in the academy. Mindful of the need to move beyond theory, we use this experience to concretely consider how knowledge about autism and neurotypicality can be meaningfully (co)-produced, and made available both to the research community and also to autistic and autism communities. Here, we use our own co-production of this article to explore how autistic experience may trouble normative meanings of academic knowledge production. We also consider the limits and possibilities of a neurodiverse research collaboration to reflect on ways in which a loose epistemological space may serve to contribute to knowledge about both autism and neurotypicality, adding to debate around collaborative research.     

The use of email‐facilitated interviewing with higher functioning autistic people participating in a grounded theory study

This paper explores the inclusive potential of computer‐mediated communication (CMC) for a ‘hard to reach’ group of research participants, specifically people at the higher functioning end of the autistic spectrum. Drawing on the literature pertaining to the fields of autism, CMC and research methods, as well as the first author’s experience of using email as a means of conducting interviews, the paper will discuss the epistemological, methodological and practical issues raised by the use of this method of collecting data from higher functioning autistic people, as well as its suitability in the context of a study guided by grounded theory.     

An Empowerment Approach in Teaching a Class about Autism for Social Work Students

Social workers are being asked to respond to the rapidly increasing number of individuals and families affected by Autism Spectrum Disorders (ASD). However, the curricula in schools of social work have limited content on disabilities. This article describes a course which prepares social work students for work with individuals with ASD through an empowerment approach in an ever-changing socio-cultural and political environment. This approach changes the focus of disabilities from a narrow perspective on particular services and rehabilitation to a broader concern with human rights, social inclusion and quality of life. The article describes the development of the course in collaboration with a university disability program, the areas of emphasis for the course (family focused, interdisciplinary, lifespan) and the multiple modes of delivery. The implications of teaching the course as an elective or as integrating it further into the curriculum are discussed.     

The Glocal and Global Studies

Abstract

This article offers an overview of engagements with the glocal and traces the consequences of this research agenda for Global Studies. First, it compares the emergence of the global and the glocal in the literature. It tracks the uneven impact of the business use of the glocal and argues that this genealogy has obscured alternative accounts. Second, it offers a thematic overview of the uses of glocalization in the literature. It highlights publication clusters in specific areas of interdisciplinary interest. It further addresses key criticisms against glocalization. Finally, it explores the vicissitudes of research on glocalization on the scope and definition of Global Studies. Trends in Global Studies appear to move in an opposite direction from the one suggested by glocalization. This could lead to the emergence of a separate field of Glocal Studies, causing further fragmentation in the field.     

Reconceptualizing Autism: An Alternative Paradigm for Social Work Practice

Autism is a complex, often misunderstood condition. More than a neurological disorder, autism can also be viewed as a different cognitive style or an alternative way of perceiving and reacting to the world. As more individuals on the autism spectrum are making themselves known, social workers must be open to using new paradigms to meet the needs of this unique population. This article explores how horizontal diversity and neurodiversity can be used to expand the ways social workers conceptualize autism and, consequently, how they work with persons on the autism spectrum and their families.     

Interrogating ‘acquiescent’ behavior of adults with developmental disabilities in interactions with caregiving family members: an instrumental case study

In this article, we adopt a Critical Disability Studies orientation to interrogate ‘acquiescent’ behavior of one adult diagnosed with developmental disabilities – Suzanne – in interaction with her caregiving parents. We conduct conversation analysis of interactions and offer themes of Speaking over/capping it off, Speaking for/giving it over and Correcting/redirecting as evidence of Suzanne acquiescing as part of ‘orchestrating’ input from her parents to get what she wants. We discuss adults diagnosed with developmental disabilities navigating daily life amidst shifting powerplay by strategically steering conversations in ways that serve them and we argue such navigations as vital to understanding ‘acquiescence.’     

Teaching & Learning Guide for ‘The Conflictual Model of Analysis in Studies on the Media Representation of Islam and Muslims: A Critical Review’

‘The Conflictual Model of Analysis in Studies on the Media Representation of Islam and Muslims: A Critical Review’ was published in Sociology Compass 9/5 (2015) pp. 321–335, DOI: 10.1111/soc4.12264 . This Teaching and Learning Guide is designed to accompany this article. In brief, the article examined the extent to which various studies on the media representation of Islam and Muslims use the conflictual model analysis that underpins theoretical frameworks, such as Orientalism, Clash of Civilisations, Cultural Racism and Islamophobia. It argued that in the context of a complex multicultural society, conflictual model of analysis is inadequate because it simply employs a binary way of thinking as clearly indicated in ‘the West versus Islam’ paradigm. In response to the inadequacy of this model of analysis, the article proposed an adoption of an alternative dialogical model of analysis in the light of the political theory of recognition. This guide provides useful information regarding the use of this article for teaching and learning purposes. It includes recommendation of readings, online resources, sample syllabus, focus questions and project idea.     

When the cost has sunk: Measuring and comparing the sunk-cost bias in autistic and neurotypical persons

This paper measures and compares the sunk-cost bias among autistic adults, and neurotypical controls. Frequent influencing personality traits and task factors affecting the sunk-cost bias such as age, gender, and education level, time spent in the decision task, and the level of sunk cost (e.g., very low, low, moderate, and high), are controlled for in the analysis. Results show that both autistic and neurotypical individuals are subject to the sunk-cost bias, however, with autistic individuals being less affected by this bias. Results also show significant differences among subgroups of autistic and neurotypical individuals, with autistic individuals with more autism traits being less subject to the sunk-cost bias. For individuals with autism, time spent in the decision task is found to be negatively associated to the sunk-cost bias.     

阿斯伯格综合症与高功能自闭症青少年患者的差异研究

在广泛性发育障碍的青少年患者中阿斯伯格综合症与高功能自闭症的青少年近年有着增长的趋势．因为症状极为相似,学界对他们之间差异的争议由来已久。在结合现有诊断标准、系统梳理已有实证研究报告的基础上,发现阿斯伯格综合症和高功能自闭症青少年患者之间存在着社会交往、言语及语言交流、兴趣与行为模式等方面的差异。此发现可以在诊断体系的规范性与科学性、区分证据的直观性与整合性上为特殊教育和心理咨询临床鉴别诊断阿斯伯格综合症与高功能自闲症的青少年提供参考,更好地服务于患有此类疾病的青少年及其家庭。     

Defining Women's Global Political Empowerment: Theories and Evidence

Although women's access to political power has increased tremendously, nowhere are women equal to men in their influence over and exercise of political authority. Scholarship on women's political empowerment is uneven and incomplete. This article interrogates ‘women's political empowerment’, considering its definition, measurement, and application. First, we establish that academics and practitioners have not articulated a clear definition of women's political empowerment. To fill this gap, we put forward a new definition that conceptualizes women's political empowerment as a transformative process. We then review existing social science literature on women's political empowerment. We argue that scholars must expand research to develop a broader vision of women's political empowerment and develop measures that capture this breadth.     

How is a sense of well-being and belonging constructed in the accounts of autistic adults?

This small-scale exploratory study sought to develop an understanding of the meaning of well-being and social belonging as represented within the narratives of adults on the autism spectrum. Employing an interpretivist approach facilitated the investigation of potential contributory factors to these lived experiences in order to inform further research regarding both this topic, and service provision for adults on the autism spectrum. The project involved a thematic analysis of issues of the magazine Asperger United (AU). Four broad main themes were identified: meeting personal needs, living with the consequences of an ‘othered’ identity, connection and recognition, and relationships and advocacy. Autistic adults reported many barriers to feeling that they belonged in a number of social spaces and the detrimental effect this had on their wellbeing. Fundamental to positive narratives of wellbeing, were feelings of connection and recognition from others and positive accepting relationships, with autistic-led spaces, particularly the Autscape conference, being frequently cited as of central significance in increasing feelings of wellbeing and belonging. This study has demonstrated a need for less focus on remediation and more on limiting the social isolation of autistic people.