Upping the ante: relative caregivers' perceptions of changes in child welfare policies

Thirty-five caregivers of related children who were in the custody of the child welfare system were interviewed individually or in focus groups as the state child welfare system implemented new federal and state policies encouraging these caregivers to adopt or assume guardianship of the children in their care. Interviews were transcribed and analyzed using qualitative methods. Issues of concern included emergency entrance into caregiving; the simultaneous satisfaction and burden of caregiving; obstacles to caregiving, adoption, or guardianship; complex changes in family dynamics following placement of children; sources of support; and caution regarding adoption or guardianship. The caregivers also offered recommendations for the child welfare system. Policy, practice, and research implications are discussed.     

Challenges of Using Secondary Data to Study Rural Caregiving within the United States

When health fails, rural residents often turn to informal caregivers for assistance and are more likely to do so than those living in urban areas. Scholarship is clear in demonstrating the many burdens that accrue to those providing informal care. Furthermore, caregivers in rural areas face amplified health disparities and stressors, and limited access to resources and formalized supports. Yet, the study of informal caregiving within geographic context is made difficult by the limitations inherent in existing secondary data sources. In this report, we discuss three available data sources that provide information about US caregivers: the National Family Alliance Caregiving in the US Survey; Health and Retirement Survey; and National Survey of Midlife Development in the United States. These datasets illustrate common challenges of studying rural caregiving, including how to define rural residence, issues with data access, and difficulties attaining an adequate sample size. After reviewing these methodological issues, we identify two additional data sources that while promising, suffer from challenges of their own. We conclude by offering suggestions about how to capture the unique experiences of rural caregivers beyond the use of secondary data.     

The genetic connections of Alzheimer's disease: An emerging source of caregiver stress

The purpose of this study was to expand and refine current theoretical conceptualization of dementia caregiving by identifying and analyzing new potential sources of stress. A qualitative analysis of unsolicited letters (N=51) written by family caregivers of persons diagnosed with Alzheimer's disease (AD) was conducted. Content analysis of the data confirmed that providing care for persons diagnosed with AD could impart emotional, physiological, and financial stress on caregivers. The data also revealed an emerging source of stress for family caregivers—fears and uncertainties regarding possible genetic connections between family caregivers and relatives suffering from AD. These results strongly suggest that concerns with genetic connections should be included in theoretical models of stress and dementia caregiving. Implications include the need for increased dissemination of information regarding genetic connections and AD, as well as increased support for family members if and when genetic connections are discovered.     

Perceived overload as a predictor of physical strain among spousal and adult child caregivers of frail elders in the community

ABSTRACT

Family caregivers of frail elders can experience physical strain associated with caregiving. Identifying correlates of caregiver strain can provide an important impetus for tackling the causes and providing effective interventions. Utilizing data from the 1999 National Long-Term Care Survey, the current study examined correlates of caregiver physical strain among 956 family caregivers, using the stress process model. As multiple regression analyses indicated, the caregiver’s perceived overload predicted greater strain for both spousal and adult child caregivers. For both groups, common correlates of physical strain were caregiving demands, the caregiver’s perceived overload, and limitations placed on the caregiver’s life. The results demonstrate that the family relationship of the caregiver (spouse or adult child) leads to variations and dynamics in caregiver strains, due to qualitatively different relationships.     

Rural Arab Families Coping with Caregiving

SUMMARY

This research examines the coping patterns of the rural Arab family in caring for a chronically ill elderly relative. The Arab community in Israel is in transition as a result of modernization with changes occurring in the traditional family structure, family norms and living arrangements. This study was conceptualized within the framework of intergenerational solidarity versus ambivalence and utilized a qualitative approach based on the phenomenological paradigm. Data were collected from 10 family units with a chronically ill homebound elder, by means of in-depth interviews. Four people were selected from each unit including the elder, his/her spouse-the primary caregiver-and two other secondary caregivers, usually sons and daughters-in-law. The data indicate the uniqueness of coping patterns among these caregivers in regard to two main components, which are contradictory to findings in the family caregiving literature: differences in the gender of child caregivers and the family readiness to use assistance from formal support systems.     

Family support in late life: A review of the literature on aging,disability, and family caregiving

ABSTRACT

For older adults and people with disabilities in the United States, family caregiving is an important part of remaining at home and in the community. As care recipients and caregivers age, family dynamics change, and the health, social, and financial impacts of this (largely unremunerated) work have implications for individuals, families, and social policy. In this review, the authors map the literature across multiple fields related to disability and aging to understand caregiving in late life, what it means to be an older caregiver and/or to care for older people. The authors summarize the findings of 97 articles to address the care, services, and supports family caregivers provide for older adults; negative and positive impacts for caregivers serving in this role; supports that family members use or need; and societal impact of family caregiving. Much of the literature describes the work family caregivers provide and negative impacts of caregiving. Less attention is devoted to caregiving benefits, supports used by family caregivers, and societal impacts. The authors conclude with an agenda for future research that attends to the need for research that includes: more diverse samples, new types of caregivers, longitudinal data, qualitative data and analysis, and comparative research.     

Farm persistence and adaptation at the rural–urban interface: Succession and farm adjustment

Despite assumptions that agriculture will automatically go into a mode of decline at the Rural Urban Interface (RUI), official statistics suggest that agriculture as a whole remains a strong (and in some cases a growing) industry in many U.S. RUI counties. RUI scholars have acknowledged internal family dynamics can significantly influence farm persistence and adaptation strategies, however, few studies have sought to document the specific role succession has on farm structure at the RUI. Building off rural geography models of farm organization at the RUI and succession research embedded in rural studies we analyze interviews from 33 U.S. farm families to 1) explore the relationship between farm adaptation and succession at the RUI, and 2) examine how succession is related to the different types of enterprises found at the RUI (direct marketers vs. commodity producers) and the types of growth strategies these farm families implement. We find that families who can not identify an heir either disinvest or enter a static management mode. Among farm families who can identify an heir we identify a variety of horizontal and vertical growth strategies (expanding, intensifying, and entrepreneurial stacking) designed to achieve farm reproduction goals. We discuss the theoretical and policy related implications of this research.     

At‐Home Father Families in the United States: Gender Ideology,Human Capital,and Unemployment

The rising population of stay‐at‐home fathers is driven by economic conditions, human capital, and changing gender ideology. When unemployment rates increase, women become breadwinners in these families. The growing gender education gap is a crucial factor in spousal work and caregiving arrangements. The authors test these propositions by tracking individuals using data from the National Longitudinal Surveys of Youth and the Current Population Survey. They find that unemployment rates are associated with having both caregiving and unable‐to‐work stay‐at‐home father families and that the probability that households choose stay‐at‐home father arrangements is greater when mothers have more education than fathers. Finally, individual differences in gender ideology have strong effects on the probability that families choose a caregiving stay‐at‐home father family structure.     

Caring for a demented relative at home: Effects on parent–adolescent relationships and family dynamics

Informed by a family systems perspective, the main purpose of this study was to identify changes in parent–adolescent relationships and in family dynamics when a family member with Alzheimer's or similar dementia moves into the household. The data, based on in-depth interviews with 17 adolescents, revealed that the care situation induces both positive and negative changes in family relationships. On the one hand, adolescents showed considerable empathy and respect for the parent who is the primary caregiver and reported that joint involvement in caregiving enhances adolescent–parent bonds. On the other hand, the adolescents lamented restrictions on their own and the family unit's activities due to the care situation. They also complained about spillover of caregiver stress on other family relationships and about parent-caregivers' focus of attention on the care recipient. These negative features strongly influenced adolescents' adaptation to the care situation. Overall, the results confirm the importance of a family systems perspective for understanding of and intervention in family caregiving for demented relatives. Family life educators should convey the importance of family dynamics in caregiving situations to their audiences, and family practitioners should be aware that an exclusive focus on the primary caregiver's problems may hamper adaptation of other family members (and especially adolescents) who are involved in the care situation.     

Not all experiences of precarious work lead to precarity: the case study of young people at university and their welfare mixes

The concept of precarity has gained momentum and challenges social scientists to consider the effects of labour-market insecurity across classes and welfare arrangements. This article discusses the varieties of experiences of precarious work by young people in university and identifies in which cases they are also experiences precarity. It is one of the first studies of its kind to investigate the material triggers of inequality by comparing young people’s experiences across countries (England, Italy and Sweden) and by looking at the welfare mixes available to young people who are working at university. Through a comparative qualitative research involving young people from different socio-economic backgrounds and ‘welfare mixes’, the article shows that experiences of precarity concern a minority of young people who have an absolute necessity to rely on labour-market sources, due to the lack or insufficiency of state support and family sources. It also identifies: a group of young people who feel pressure to get precarious jobs to fill a decline in family resources; and a convenient use of precarious jobs suiting the circumstances of young people with abundant family resources. Overall, the research found that precarity is deeply connected to young people’s welfare mixes.     

An Ecological Framework for Contextual Risk Factors in Elder Abuse by Adult Children

ABSTRACT

Future trends suggest both a continued growth of the elderly population, as well as the likelihood of increased demand for family caregiving which may, in turn, be associated with increasing rates of elder abuse. It is important to consider issues related to such caregiving, including potential abuse from an ecological perspective which, in turn, provides a fruitful basis for framing the problem of abuse as a set of contextually-based risk factors. This paper focuses on the contextual risk factors using an applied ecological model, a useful framework for understanding the intergenerational character of elder abuse in families, for developing recommendations for empirically-based action research, and for the development of community-based prevention and intervention strategies.     

Examining the trajectories of children providing care for adults in rural Kenya: Implications for service delivery

Research on caregiving children tends to be limited to children's caregiving experiences of parents with a specific disease or disability. This has led to a common perception that children's caregiving is a single, uniform and often long-term experience. Whilst this is most certainly the case for many children in economically more advanced countries, this may not hold true in rural Africa, where poverty and AIDS can have significant knock-on effects on entire families and communities. This paper seeks to develop a more complex understanding of children's caring experiences by asking children whom they have cared for over time and explore the different pathways that lead to their caregiving at different stages of their lives. The study reports on qualitative data collected from 48 caregiving children and 10 adults in the Bondo district of western Kenya in 2007. A multi-method approach was adapted, with historical profiles, Photovoice and draw-and-write essays complementing 34 individual interviews and 2 group discussions. A thematic network analysis revealed that children's caregiving was not confined to a single experience. Children were observed to provide care for a number of different family and community members for varying periods of time and intensities. Although their living arrangements and life circumstances often gave them little choice but to care, a social recognition of children's capacity to provide care for fragile adults, helped the children construct an identity, which both children and adults drew on to rationalise children's continued and multiple caring experiences. The study concludes that agencies and community members looking to support caregiving children need to consider their care trajectories — including whom they care for as well as the order, intensity, location and duration of their past and likely future caring responsibilities.     

Two generations at risk: child welfare, institutional boundaries, and family violence in grandparent homes

Participation of extended family members, particularly custodial grandparents, has generally resulted in better outcomes for abused children and relief for an overburdened child welfare system. This research explores the risk of adolescent perpetrated violence in custodial grandparent households with data from the Florida Department of Juvenile Justice. Findings suggest that living arrangements with custodial grandparents have a significant and differential impact on rates of violent offending for chronic and serious offenders by race and gender.     

Zoning,Accessory Dwelling Units,and Family Caregiving

Abstract

This article explores the relationship between zoning regulations and co-residential family caregiving in the United States. It first provides an overview of U.S. housing policies, especially zoning. We then describe major changes in family structure and composition in the United States with their implications for caregiving and discuss how multigenerational housing options, particularly accessory dwelling units (ADUs) in single-family homes, can help support family caregiving. After an overview of zoning policies and actions that inhibit ADU production, we document current trends, incorporating information from a small non-random study of ADU activity we conducted in 2004. Finally, we present recommendations for promoting more multigenerational housing as a supplement to other family support programs (e.g., dependent care assistance, family caregiver payments) and as a source of affordable, supportive housing for those families choosing co-residence as their eldercare solution.     

Preparing Students for Public Child Welfare

Summary

Universities across the nation are attempting to increase the number of workers employed in child welfare, but thus far there has not been a systematic evaluation effort of these university/agency partnerships. This article addresses evaluation strategies and issues for preparing students for public child welfare by identifying eight beginning steps for university/agency partnerships to consider in developing an evaluation plan. Following the identification of the eight steps, the authors discuss key issues involved in evaluating university/agency child welfare partnerships and suggest recommendations for the future.     

Families in Later Life: A Decade in Review

Later-life families encompass the legal, biological, romantic, and kin-like relationships of persons ages 65 and older. Research on older families has flourished over the past decade, as population aging has intensified concerns regarding the capacities of families to care for older adults and the adequacy of public pension systems to provide an acceptable standard of living. Shifting patterns of family formation over the past half-century have created a context in which contemporary older adults' family lives differ markedly from earlier generations. Decreasing numbers of adults are growing old with their first and only spouse, with rising numbers divorcing, remarrying, forming non-marital romantic partnerships, or living single by choice. Remarriage and the formation of stepfamilies pose challenges and opportunities as older adults negotiate complex decisions such as inheritance and caregiving. Family relationships are consequential for older adults' well-being, operating through both biological and psychosocial mechanisms. We synthesize research from the past decade, revealing how innovations in data and methods have refined our understanding of late-life families against a backdrop of demographic change. We show how contemporary research refines classic theoretical frameworks and tests emerging conceptual models. We organize the article around two main types of family relationships: (1) marriage and romantic partnerships and (2) intergenerational relationships. We discuss how family caregiving occurs within these relationships, and offer three promising avenues for future research: ethnic minority and immigrant families; older adults without close kin (“elder orphans”); and the potentials of rapidly evolving technologies for intergenerational relationships and caregiving.     

Social Work Practice with Older Soviet Immigrants

ABSTRACT

With the recent sociopolitical changes in the Former Soviet Union, significant numbers of older Soviets have arrived in the U.S. with their families. Soviet immigrants who enter the U.S. are no longer automatically considered political refugees, which has limited their entitlement to services. Recent changes in public welfare and immigration policy place the responsibility for care of elderly members solely on the family. While caring for older adults is stressful for any family, new immigrants may be especially burdened since they have limited knowledge of services, few coping resources to provide adequate care, and little experience resolving cultural conflicts with their older parent. By using a practice model designed to evaluate late-life caregiving situations, two case scenarios are presented to examine practice and service delivery issues of older Soviet immigrants and their families.     

Instability in patchworks of child care when moving from welfare to work

We use longitudinal, qualitative interview data collected from 38 initially welfare‐reliant women in Cleveland, Ohio to examine the factors driving instability in child‐care arrangements when women transitioned from welfare to work. Grounded theory analysis revealed that decisions about care were circumscribed by scarce social and economic resources, women went to extraordinary lengths to patch together arrangements that typically involved multiple providers, relative care was central to patchworks of care, and patchworks of child care were often highly unstable. These complex arrangements and their instability were influenced by mothers’ desires to find the most suitable arrangements for their children within resource and job constraints, dissatisfaction with providers, difficulties accessing subsidies, and changes in provider availability. Findings suggest that policymakers must consider instability in patchworks of multiple child‐care providers as they consider alternatives for meeting low‐wage working women's and children's needs for safe, affordable, accessible, and enriching nonmaternal child care.     

Ageing,migration infrastructure and multi-generational care dynamics in transnational families

The analysis of transnational family relations from an intergenerational to a multi-generational perspective highlights the significant role migration infrastructure plays in transnational family care arrangements at different family life stages. Changing migration policies and local-bound welfare systems in the host and home countries tend to fixate the role of care-receiver and provider against fluid transnational family care dynamics as the life course of the family unfolds. This paper focuses on Chinese transnational one-child families in which the initial separation between parents and their only-child was motivated by the child's overseas education, and followed by the adult child's employment and family formation in the UK. My findings illustrate how reified definitions of the family and familial roles structure mobile individuals’ access to family rights in a transnational context. They warn of the danger of entrenched injustice embedded in the definitional classification of family migrants.     

How do you solve a problem like Maria? Family complexity and institutional complications in UK social work

ABSTRACT

This paper draws on UK data from an international, comparative project involving eight countries. The study examined how social workers’ conceptions and definitions of family impact on the way they engage with complex families, and how social policies that frame social work context impact on the way social workers engage with families. Focus groups were held in which social workers from four service areas (child welfare, addictions, mental health and migration) were asked to discuss a case vignette. Several factors were embedded in the vignette to represent a realistic situation a social worker may come across in their day-to-day work. Social workers clearly identified the complexity of the family’s situation in terms of the range of issues identified and candidate ‘causes’. However, typical first responses were institutional, looking for triggers that would signify certainty about their, or other agencies’ involvement. This resulted in a complicated story, through which the family was disaggregated into individual problem-service categories. This paper argues that understanding these processes and their consequences is critical for exploring the ways in which we might develop alternative, supportive professional responses with families with complex needs. It also demonstrates how organisational systems manifest themselves in everyday reasoning.