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1.
During the last decade, much of political behaviour research has come to be concerned with the impact of the Internet, and more recently social networking sites such as Facebook, on political and civic participation. Although existing research generally finds a modestly positive relationship between social media use and offline and online participation, the majority of contributions rely on cross-sectional data, so the causal impact of social media use remains unclear. The present study examines how Facebook use influences reported political participation using an experiment. We recruited young Greek participants without a Facebook account and randomly assigned a subset to create and maintain a Facebook account for a year. In this paper we examine the effect of having a Facebook account on diverse modes of online and offline participation after six months. We find that maintaining a Facebook account had clearly negative consequences on reports of offline and online forms of political and civic participation.  相似文献   

2.
The methods literature on research with children recognises the challenges of negotiating informed consent with this group. Special ‘child‐friendly’ techniques are advocated to overcome these challenges. We argue that, upon closer inspection, research with children foregrounds more fundamental problems with informed consent that are not easily resolved. Drawing from three ethical texts commonly consulted in our own research fields, we highlight problems of information, understanding, authority, capacity and voluntarity. We conclude that informed consent is more problematic than is generally admitted, and that researchers would benefit from more openly acknowledging its limitations.  相似文献   

3.
ABSTRACT

Activist groups in ethnographic research re-negotiated our Ethics Committee’s expected order of securing consent before data collection, demonstrating the importance of researchers taking time to build relationships first. Although the Ethics Committee expected us to obtain group consent, the literature provides little guidance on how to do this. We developed a Memorandum of Understanding to summarize what forms of participant observation each group agreed to and how we would reciprocate. In this article, we (re)conceptualize consent, using analogies to consent in social contract theory and sexual relations to offer a critical perspective on what constitutes consent. We argue that taking time to build relationships before expecting research participants to consent and replacing informed consent with a negotiated agreement is a more ethical approach. We advocate for Ethics Committees to expand the meaning of ‘informed consent’ and review its timing, especially for ethnographic research with groups.  相似文献   

4.
Consent evolved from judge‐made law in Great Britain in 1767. The term informed consent entered the judicial lexicon in 1957. The first court case to articulate a reasonable person standard adopted by the high courts in Canada and Australia was heard in the U.S. in 1972. Today, informed consent continues to develop in four areas: (i) the court‐based doctrines of consent and informed consent in clinical care in judge‐made law; (ii) federal regulations related to research on human study participants; (iii) shared decision making adopted by care organizations and medical societies in the US, Canada, and Europe; and (iv) areas including decision analysis, discourse analysis, ethics, linguistic analysis, patient–physician communication, risk and evidence communication, and social theory. In this paper, we will focus on consent and informed consent in the first part of the twenty‐first century. We will examine a range of information and decision making frameworks from the oldest court‐established frameworks of consent and informed consent to recent conceptions of information and decision making in evidence‐based decision making and shared decision making in the patient–physician relationship. This paper is divided into three parts: I. What informed consent is, II. What informed consent isn't, and III. Future challenges in informed consent and shared decision making.  相似文献   

5.
Our study explores the adoption of Facebook and Twitter by candidates in the 2013 German Federal elections. Utilizing data from the German Longitudinal Election Study candidate survey fused with data gathered on the Twitter and Facebook use of candidates, we draw a clear distinction between Facebook and Twitter. We show that adoption of both channels is primarily driven by two factors: party and money. But the impact of each plays out differently for Facebook and Twitter. While the influence of money is homogenous for Facebook and Twitter with the more resources candidates have, the more likely they are to adopt, the effect is stronger for Facebook. Conversely, a party’s impact on adoption is heterogeneous across channels, a pattern we suggest is driven by the different audiences Facebook and Twitter attract. We also find candidates’ personality traits only correlate with Twitter adoption, but their impact is minimal. Our findings demonstrate that social media adoption by politicians is far from homogenous, and that there is a need to differentiate social media channels from one another when exploring motivations for their use.  相似文献   

6.
This article draws on field notes and interviews collected during an ethnographic study of the informed‐consent process in HIV/AIDS clinical trials to examine the movement of individuals from the status designation of patient to that of human subject of research. Its theoretical starting points are Glaser and Strauss's (1971) observation of the centrality of interaction to status passage and their conceptualization of status passage as social accomplishment. Insights from conversation and technology studies are applied to show that human subject status passage is facilitated through (1) the enlistment efforts of research professionals and patients, (2) the talk of participants on informed consent and protocol‐related matters, and (3) the placement of signatures on informed‐consent documents. The analysis reveals that human subject status passage is indeterminate, negotiated, and unmarked by ceremony and cultural symbols. The implications of these findings for future studies on status passage and informed consent in human research are considered.  相似文献   

7.
This article examines the implications of informed consent in organizational ethnographies, where the research site is a bounded and formal institution that has its own sets of rules which govern action and membership. While there is considerable scholarship on the issue of ethics in ethnography in general, very little has been written about informed consent in organizational ethnographies where researchers often simultaneously observe managers, “studying” up according to Nadar, and employees referred to as “studying down”. Organizational researchers tend to discuss ethics in terms of obtaining informed consent for individual interviews or in terms of access to an organization as a research site. This essay examines ethical dilemmas experienced in fieldwork studying participatory work arrangements in a Mexican garment firm. By discussing practical issues of gaining access, problems of maintaining access and consent, and concerns of how gatekeeper consent affects subordinates, I problematize the practice of obtaining informed consent in organizations. I argue that thinking of informed consent as an on-going process that requires an active reflexivity on the part of the ethnographer will help researchers to navigate the ever-shifting web of power dynamics present in organizations.  相似文献   

8.
Researchers are required to provide opportunities for people with intellectual disabilities to be included in research which affects their lives. This paper reports on one research study inclusive of 12 adults with intellectual disabilities. Ethical and methodological realities of recruiting research participants and obtaining informed consent while enlisting a classic grounded theory methodology are discussed. The findings of this paper focus on building and maintaining trusting relationships with relevant gatekeepers and engaging in reasonable accommodations to support decision-making for and with adults with intellectual disabilities. This paper contributes to an understanding of how to apply for ethical approval, negotiate access to potential participants, enlist reasonable accommodations and obtain informed consent in the context of the methodological strictures of classic grounded theory methodology. Research projects need to be carefully planned making space for the development of empathic relationships with both the potential participants and also with the structures and services supports.  相似文献   

9.
Interventions for individuals with schizophrenia often involve helping clients become more aware of their condition so they can make informed decisions about their treatment and recovery. Yet the effect of awareness or admission of schizophrenia has remained elusive. Empirical research has found that awareness of illness is essential for people to make informed decisions about the future, to free themselves from blame for difficulties linked with illness, and to form and sustain bonds with others. However, this awareness has also been linked to depressed mood, lower self-esteem, and a diminished sense of well-being. In this article, we review the evidence and suggest that the effect of awareness on well-being may be mitigated by the meaning clients assign to their illness and whether it disrupts their life story. Evidence linking clients' internalized, stigmatizing beliefs about illness with demoralization is presented, and clinical implications are discussed.  相似文献   

10.
Quality and quantity: Reconstructing feminist methodology   总被引:1,自引:1,他引:0  
Many feminist sociologists have rejected quantitative in favor of qualitative methods, a position which might seem justified by feminist critiques of positivism. This paper examines both quantitative and qualitative methods in light of two major themes in radical feminist epistemology, the critique of objectivity and the politics of the research process, and finds both classes of methods vulnerable. We argue that underlying the argument against quantitative methods is a rejection of abstraction and a dichotomization of methodologies, both of which are inconsistent with feminist insights. We call for a reconstruction of methodology that transforms both quantitative and qualitative techniques in ways informed by feminist epistemology and builds research agendas that integrate both approaches. Her main research interests are in the development of social measures of gender and in the study of the impact of gender and class on consciousness. Her research concerns medical knowledge, social organization, and the health and well-being of women.  相似文献   

11.
This paper reports evidence from the Millennium Cohort Study (MCS) on the relationship between fathers' involvement and the mental well-being of mothers, fathers and children. Drawing on previous research, we use a tripartite definition of father involvement: engagement, accessibility and responsibility. After searching 14 databases and websites, we screened for applicability, coded, quality assessed and synthesised the evidence. The majority of studies focused on ‘accessibility’ in terms of family structure or on ‘responsibility’ in terms of father employment. Overall, the studies suggest that aspects of fathers' involvement can positively influence both maternal and child mental well-being; fathers' mental health was only analysed in relation to one aspect of involvement: parental or father employment was found to influence fathers' mental well-being positively. Further MCS-based research is recommended to examine the impact of fathers' involvement on their own mental well-being, as well as the broader impact of a more active or ‘modern’ fatherhood model encompassing engagement and an understanding of responsibility beyond the breadwinning role.  相似文献   

12.
Intersex or diverse sex development (dsd) can be conceptualized as an aspect of bodily diversity that has particular psychosocial implications. This is a review of psychosocial health care literature, published from 2007 to 2017, focusing on the well-being of people with a diagnosis relating to sex development. The analysis I offer here takes a critical psychological approach, questioning norms and taken-for-granted assumptions. This approach works from the understanding that how we know and how we talk about a phenomenon affects people in material and life-changing ways. This article offers recommendations concerning health care communication, the importance of taking time for emotion, and the process of building supportive relationships. The research reviewed provides clear evidence of psychosocial harm that is done through genital intervention and evidence that parents do not routinely give fully informed consent before their children undergo treatment. Finally, I highlight key points and recommendations for health professionals, indicating how psychosocial professionals can contribute to health care and well-being in the context of dsd when appropriately resourced and trained.  相似文献   

13.
Over 20 years of research has enhanced our understanding about the methodological and ethical benefits and challenges of involving children and young people in research. Concurrently, the increasing bureaucratisation of research ethics governance within UK universities has reified expectations about the methods used to gain informed consent for research participation. This paper explores how social researchers in the UK are navigating this tension and whether there is any scope for innovation through the use of technologies in how children and young people provide informed consent to take part in research. We conclude there is a need for the co‐creation of research information with children and young people and greater transparency by sharing creative solutions.  相似文献   

14.
The activities of contemporary religious cults cause concern and controversy among parents and mental health practitioners, both because they are perceived as threats to the well-being of their young adult members and because such cults are protected by the First Amendment. The primary issues discussed here are "mind control" and informed consent. Possible bases for legal redress of alleged injuries, as well as possible preventive measures, are suggested.  相似文献   

15.
In some 'covert' participant-observation studies, social researchers defend their omission of informed consent on the basis of a need to protect subjects from apprehension, nervousness, or even criminal prosecution. In other instances, researchers contend that deception is rampant in society, and that their methods are no more immoral than the behaviour that ordinarily prevails. These defenses of covert methods fail to appreciate the range of risks that may be involved, and in the latter case, fail to show that these methods are in fact morally indistinguishable from the 'deception' that people typically engage in. Ultimately, these proposed defenses of covert methods succeed only in arousing greater concern about informed consent in social research, and the researcher's privilege in bypassing it.  相似文献   

16.
This article considers ethical questions and practical challenges arising from the production of video data with young children, and suggests that such considerations are reciprocal and that video data should be seen as constructed collaboratively by all participants. Video data can be a valuable means of eliciting children’s perspectives, but it raises particular issues of consent and confidentiality. Opportunities for young children to use video cameras are helpful in supporting informed consent and active participation, whilst the visual nature of video renders anonymity and confidentiality more difficult, and anonymisation of images may impact upon data quality. Video, like all research data, is influenced by the actions and biases of participants, and young children’s experiences as consumers of television will influence their reading of, and responses to, video data. An advantage of video is that it can provide participants with feedback about their participation. Challenges remain with regard to ownership.  相似文献   

17.
This study examined measures of placement stability and social–emotional well-being for a federally-funded demonstration project of inhome Parent Management Training-Oregon model (PMTO) for children in foster care with serious emotional disturbance (SED). Following a cultural exchange framework for translational research and a tollgate approach to evaluation, this formative study tested these measures prior to further investment in summative evaluation. The research aim was to observe whether measures of social–emotional well-being and placement stability performed as expected. Using a pretest–posttest randomized consent trial, children identified as SED within six months of entering foster care were randomly assigned to PMTO or to a services-as-usual comparison group (N = 121). A multi-group structural equation model was tested to observe the relationship of baseline social–emotional wellbeing and placement stability on post-test social–emotional well-being. Results showed that post-test well-being was significantly predicted by baseline well-being for both groups and, importantly, only the intervention group demonstrated significant effects of placement stability on post-test well-being. For the intervention group, as placement stability increased, post-test social skills significantly improved, demonstrating an association between well-being and placement stability that was not evident in the comparison group. Overall, wellbeing measures performed as expected and detected relationships between variables and variation as hypothesized. Additionally, placement stability may have been mediated by the PMTO intervention. In conclusion, by using a real world example of the translational research concept of cultural exchange between university-based researchers and agency-based practitioners, this study shows that formative evaluation offers an important opportunity to test ad hoc research questions inspired by the process of implementation itself.  相似文献   

18.
When performing data linkage, survey respondents need to provide their informed consent. Since not all respondents agree to this request, the linked data-set will have fewer observations than the survey data-set alone and bias may be introduced. By focusing on the role that survey design features play in gaining respondents’ consent, this paper provides an innovative contribution to the studies in this field. Analysing experimental data collected in a nationally representative household panel survey of the British population, we find that interview features such as question format (dependent/independent questions) and placement of the consent question within the questionnaire have an impact on consent rates.  相似文献   

19.
Abstract

When a psychotherapist and patient meet for the first time, there may be a multiplicity of assumptions on both sides about expectations and goals. This paper describes that crucial relationship and the work that must take place in order that a patient gives a relatively informed consent about the therapeutic process. Due to the many variables and unknowns, there is no such thing as an absolute informed consent in psychotherapy. A relatively informed patient, however, is one who is better prepared to enter into a therapeutic alliance. These important concepts are illustrated with case examples.  相似文献   

20.
As participant recruitment and data collection over the Internet have become more common, numerous observers have expressed concern regarding the validity of research conducted in this fashion. One growing method of conducting research over the Internet involves recruiting participants and administering questionnaires over Facebook, the world’s largest social networking service. If Facebook is to be considered a viable platform for social research, it is necessary to demonstrate that Facebook users are sufficiently heterogeneous and that research conducted through Facebook is likely to produce results that can be generalized to a larger population. The present study examines these questions by comparing demographic and personality data collected over Facebook with data collected through a standalone website, and data collected from college undergraduates at two universities. Results indicate that statistically significant differences exist between Facebook data and the comparison data-sets, but since 80% of analyses exhibited partial η2?相似文献   

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