Disabled People in a Newly Industrialising Economy: opportunities and challenges in Malaysia

Malaysia is one of the fastest developing countries in the world and by the year 2020 it will become an industrialised nation according to the Malaysian government's strategic plans. This dynamic situation poses numerous opportunities and challenges for disabled people in Malaysia. Two positive outcomes are opportunities in the employment sector as well as infrastructure developments. However, there are new challenges especially with regards to mainstreaming of educational and vocational training along with the need for a dynamic placement service. The rise in industrial accidents creates a new challenge, along with the changing demographic trends which could have a negative impact on disabled people. What is striking is that disabled people and their organisations are beginning to articulate these changes and making a claim for inclusion in Malaysian society.     

The Portuguese Disabled People’s Movement: development,demands and outcomes

The increased variety of social conflicts in the post-1960?years resulted in the extension of the individual’s participation in the state’s activity. This change was mirrored by the emergence of new social movements and the related expansion of the notion of citizenship. New groups of people, including disabled people, have emerged claiming citizenship rights. In order to do this, disabled people started to coalesce into uni-impairment and multi-impairment groups and organisations to denounce social exclusion and legal oppression, as well as to demand rights as citizens. Partially based on my research about social citizenship and the Disabled People’s Movement, this article investigates, firstly, the seeds and development of the Portuguese Disabled People’s Movement, secondly, its aims, demands and action strategies and, finally, its impact in the lives of disabled people in Portugal.     

Tensions and unity in the struggle for citizenship: Swedish disability rights activists claim ‘Full Participation! Now!’

This article analyses the claims of contemporary disability rights activists mobilising in a context where de facto second-class citizenship co-exists with legal and political declarations about the rights of disabled people. As an empirical case, it focuses on the blog ‘Full Participation.Now’, which was initiated by disability rights activists in Sweden. Drawing upon citizenship research, the article points to the tensions and dilemmas featuring the bloggers’ demand for participation and equality, as well as the challenges relative to their struggle. Although the bloggers formulate contrasting arguments, the article highlights that the activists share a common aspiration for ‘full citizenship’.     

The struggle for citizenship: the case of disabled people

The notion of 'citizenship' has become a popular slogan of governments who espouse a commitment to democratic ideals. Such discourse tends to emphasise responsibilities with little serious significance being given to the question of rights. In this paper we explore the continual discrimination which disabled people experience and which militates against the realisation of meaningful citizenship. The struggle for citizenship is viewed as an affirmation of the value of choice, independent and control which disabled people conceive in terms of human rights.     

Citizenship: reflections on a relevant but ambivalent concept for persons with disabilities

This article examines the significance of citizenship with respect to disability. The article first highlights the idea of citizenship as ‘social contract’. This means the possession of civil, political, economic, cultural and social rights as well as the exercise of duties in society. Due to societal barriers, many disabled persons have difficulties fulfilling citizenship roles. Further, this article draws on citizenship theories; it examines three types of citizenship participation – the social citizen, the autonomous citizen and the political citizen – and discusses their promises and ableist implications. To counterbalance the exclusionary aspects of citizenship, we argue that human rights prove important. At the same time, human rights are more easily proclaimed than enforced and citizenship remains a precondition for effectively implementing human rights. The article concludes that citizenship is a relevant but also ambivalent concept when it comes to disability; it calls for a critical understanding of citizenship in Disability Studies.     

Citizenship and inequality in a global age

Although the notion of national citizenship has long held the promise of equal membership, it has proved less useful in a world of circulating cultures, people, and loyalties through money, media, and migration. The increasing mobility of capital and people across national borders compels us to conceptualize welfare and inequality at the global level. Although the enforcement of citizen rights remains within the purview of the nation‐state, the source of these rights can no longer be firmly placed within the national framework. From cosmopolitan imaginations to postnational research, contemporary configurations of citizenship trace their legitimacy to global discourses that increasingly challenge the national order of citizenship. Yet current transformations in citizenship also point to the possibility of new inequalities, particularly, when nation‐states are increasingly able to modulate the rights they make available to immigrants, and differentiate among refugees, professionals, and investors among many other categories of people.     

'Talking to Top People': Some Issues Relating to the Citizenship of People with Learning Difficulties

The author discusses the citizenship of people with learning difficulties (mental handicap). Whilst there is evidence that people with learning difficulties can develop the skills required of 'active citizens', there are many socio-structural and ideological barriers to the exercise of full citizenship rights by people with learning difficulties. In addition, the citizenship claims of other groups, particularly women, are likely to be in conflict with the citizenship claims of people with learning difficulties. These issues are discussed. Finally some suggestions are made for policy changes which can promote the citizenship of people with learning difficulties.     

The empowerment of marginals: strategic paradoxes

This article is about the disability movement in the Netherlands and its strategies for empowerment of disabled people. Only since the end of 2003 has the Netherlands enjoyed anti‐discrimination legislation for disabled people. But, how important actually is legislation for the empowerment of disabled people? To answer this question, we take a closer look at social movements and their involvement in empowerment and active citizenship. We criticise the disregard of differences and care in notions of active citizenship and propose instead the idea of a ‘varied society’ based on the notions of diverse and ‘careful citizenship’. One of our main arguments is that empowerment strategies necessary to create this kind of society are above all bottom‐up strategies. However, the highly organised disability movement in the Netherlands is confronted with strategic paradoxes that have ‘de‐powering’ consequences. Based on these paradoxes, five recommendations for the disability movement in the Netherlands are presented.     

Who Cares Wins? Women,Caring and Disability

This article is an attempt to open up some of the unexplored issues in the 'carer's debate'. The interest in carers started receiving Government funding in the early 1970s as a response to community care policies. It also received interest from carers themselves and from feminist researchers concerned with the position of women in the family and the labour market. However, in wanting to show the difficult and often unrecognised work of the carer, the debate, in both academic and popular presentation, has often emphasised the public's perception of disabled people as passive, helpless and demanding. Feminist research on carers, it is argued, has ignored women who may need care and the principle of the 'personal is political' has failed to identify with the lives of disabled people. It is both unhelpful and unproductive to polarise the needs of disabled people and their carers and treat them as if they are mutually exclusive. We need research which does not alienate disabled people by defining concepts like rights, independence and power in ways which exclude, making disabled people the problem rather than the focus of the research. We need to move forward in the debate, making sure that we give a voice to all those involved in the giving and receiving of personal care. The concept of citizenship with its association with universal human rights may be a way to look concurrently at these needs.     

To be a Disabled University Student in Finland

This study describes the learning careers of two people with cerebral palsy, how they got to university and how they are coping with the demands of the Finnish university system. The Law of support for disabled people which came into force in 1988 provides fundamental rights and support for a disabled person to cope as independently as possible in Finnish society. Universities have also opened their doors to disabled persons, though cautiously. The social, judicial and humanistic fields of science are the most popular ones as study targets of disabled students. Today there are students with cerebral palsy handicaps, visual and hearing impairments, and those with various motor handicaps studying in our universities. In addition, there is a great number of people with medical chronics such as anorectics, diabetics, epileptics and those with atrophy.     

Disability Politics, Language Planning and Inclusive Social Policy

Language is one of the primary media through which capitalism and the mobilisation of resistance against capitalism are perpetrated. However, although capitalism is becoming an increasingly global phenomenon, language continues to delineate nationstates and identities—no language is fully translatable. Drawing upon a large body of literature and research concerning minority-majority language relationships and language planning, this paper will, first, interrogate the relationship between bilingualism and proposed policies of inclusive education in the context of current struggles for linguistic minority 'rights' by sign language users. The 'minority rights' agenda is contrasted with disabled people's struggles for the legitimation of 'new' disability discourses within a framework of citizenship, as contextualised by issues of social exclusion. It is argued that language use, language development and their relationship to disability, cannot be adequately addressed within localised interpretations of 'special needs' policy. The paper concludes with the view that in the face of New Labour's rhetoric of 'modernisation', disabled people must address the hegemony implicit to language planning, by acknowledging the centrality of language rights and practices to social policy, political expression, citizenship and the mobilisation for social change.     

The human right to health: exploring disability,migration and health

Across the globe, an estimated one billion people are on the move today, of whom 244 million are international migrants. Not only have global horizons expanded in the realm of work and study; global conflict and exploitation have resulted in forced migration. Migration is a political issue, which raises questions of identity, citizenship, diversity and integration and is utilised to play upon the fear of the stranger, the ‘Other’ and difference in contemporary society. Disabled migrants are a hidden population whose experiences are often overlooked or subsumed within wider debates around disability and ethnicity. This article considers the intersection of disability and migration in contemporary society through the lens of healthcare access. Reflecting on the impact of citizenship rights on the realisation of human rights in the context of contemporary migration, using health as an example, the article considers the implications for disabled migrants, focusing primarily on the European Union.     

Are persons with disabilities included in the Colombian peace process?

This article follows on from our previous one about the armed conflict in Colombia and its relationship with disability. We seek here to explore the ways in which people with disabilities are starting to be involved in the peace process with the Revolutionary Armed Forces of Colombia – People’s Army (FARC-EP), and the avenues there are for representative organizations of disabled people to have a louder voice in Colombia. Currently, while legal and human rights approaches are important, people with disabilities in Colombia do not generally have the resources to fight for their own rights. However, there could be opportunities in the negotiations currently with the National Liberation Army (ELN) to include a specific focus on the rights of people with disabilities.     

Globalising accessibility: drawing on the experiences of developed countries to enable the participation of disabled people in Zambia

This paper explores the accessibility situation in a developing country such as Zambia. The global view of accessibility for disabled people is provided to examine the accessibility situation in developed and developing countries, highlighting the role of the environment in achieving rights for disabled people. Recognition of disability rights relating to accessible built environments is a necessary element to ensure their participation. Limited disability research, lack of disability policies and systems, evaluation of disability rights and support from developed countries have been cited as contributing to the non-recognition of disability rights and low participation by disabled people in Africa. An international perspective of disability, accessibility and participation and the experiences of developed countries are examined and their potential for advancing accessible built environments for participation in developing countries considered. However, accessibility concepts, having been developed in western countries, are presented with caution acknowledging the geographical, social–cultural and economic differences that exist.     

Autonomy in long‐term care: a need,a right or a luxury?

Doyal and Gough’s theory of human need highlighted that personal autonomy is a universal need and human right, essential for well‐being. In applying their theory to older disabled people in the UK the author suggests that their ‘minimally autonomous’ threshold would exclude some older people in long‐term care who still have a fundamental need for autonomy or, alternatively, extant autonomy. The disability movement has highlighted that independent living is fundamental to achieving self‐determination for disabled people and debate on equality and caregiving emphasises the autonomy of carers. However, there is a lack of recognition in both academic research and government policy of autonomy as a need and right of older disabled people. The author argues that autonomy is a human right of older people living in long‐term care settings, but that social rights are necessary to facilitate their autonomy.     

Mainstreaming community based rehabilitation in primary health care in Bosnia‐Herzegovina

There are over 600 million disabled people and over 20% of the world population is impacted by disability. However, the strategies for including disabled people in the process of reform of developing countries have been rarely considered. The paucity of research is striking. Mainstreaming Community Based Rehabilitation (CBR) in Bosnia‐Herzegovina is one example where the needs of disabled people were a development priority and research was conducted to evaluate this experience. The research demonstrated that unlike the pre‐war environment, disabled people are increasingly active members of the community. The significance is that the needs of disabled people were ‘targeted’ and CBR was ‘mainstreamed’ in the primary health care system creating opportunities for sustained development. CBR is contributing to the citizenship of disabled people. This partnership project set the stage for the continued development of disability policies. These are important lessons.     

Nothing to be had 'off the peg': consumption, identity and the immobilization of young disabled people

Contemporary sociology makes the case that the concepts of society and social structure are past their sell-by dates. Our world is marked by impermanence and social life is characterised by mobilities. Even self-identity has become liquid. Social actors use consumption artefacts and services to re-design themselves in ways that are commensurate with their deepest desires. However, we argue that disabled people are unlikely to recognise themselves in these debates. Young disabled people, in their quest for identity and consumer citizenship, meet with ubiquitous barriers and closed markets. In their experience choice and mobility are rhetorical. They encounter immobilization and exclusion from the kinds of consumer lifestyles that their non-disabled peers take for granted. Furthermore, we argue, that at the heart of consumer culture is an aesthetic of youthfulness that is profoundly alien to 'the anomaly'. The signifiers of 'youth' and disability are in profound tension. Cultures of consumption are constituted in ways that mark young disabled people off as outsiders who need not apply for entry.     

Cosmopolitanism: The Foundational Ground for a More Inclusive Understanding of Belonging to Protect the Human Rights of North Korean Stateless Women

In this article, I will examine the use of the notion of cosmopolitanism to address the exclusionary nature of citizenship. Citizenship is a contemporary social norm that privileges citizens and discriminates against others, leading to consequent human rights violations experienced by stateless populations. I will use the case study of North Korean stateless women who reside in China and who are victims of human trafficking as an example of stateless people who lack legal guarantees for human rights. By uncovering the way citizenship operates as a social structure that deprives people of their human rights, I will argue for Seyla Benhabib's notion of cosmopolitanism, which pursues a more inclusive notion of belonging and necessitates institutional changes. These include the juridical implementation of improved immigration policy and citizenship law, involving the cooperation of the global society, to recognize the dignity of the stateless and protect their human rights.     

Ethnic Chinese in Malaysian citizenship: gridlocked in historical formation and political hierarchy

The ethnic Chinese in Malaysia are a significant minority who call for a critical assessment as far as their cultural identity and political positioning are concerned. Appropriating the concept of ‘multicultural citizenship’, this article attempts to dissect various demands and aspirations of the ethnic Chinese in Malaysia’s multiracial hierarchy. It suggests that using the lens of multicultural citizenship can help shed light on Malaysian Chinese as well as the entire nation, where ethnicity and citizenship are gridlocked in historical formation and political hierarchy. In recent times, Malaysian Chinese have articulated their political desires and demands in order to get rid of the disgrace of racial constraints, and also to envisage a more inclusive multicultural citizenship for Malaysia as a nation-state. This article also compares and contrasts three Chinese public figures who have taken disparate stands and approaches with regard to language, culture, race, nation, and party politics.