Differential attrition rates and active parental consent.

Active parental consent in survey research poses ethical and practical concerns. One common argument against the requirement of active consent procedures is its effect on participation rates. There is additional concern that higher risk groups may be underrepresented in the final sample. Empirical support of differential attrition, however, is lacking. In the current multisite longitudinal study, passive consent procedures were approved for the collection of pretest data. For subsequent years of data collection, active parental consent procedures were required. In this article, we use the pretest data to examine demographic, attitudinal, and behavioral differences between those students for whom active consent was provided and those for whom active consent was either denied or for whom no response was received. The results indicate that active consent procedures produce deleterious effects on participation rates and lead to an underrepresentation of at-risk youth in the sample.     

Active parental consent in school-based research: how much is enough and how do we get it?

Active parental consent policies have been blamed for low participation rates and selection bias (i.e., loss of "high-risk" youths) in school-based studies. In this article, the authors describe active consent procedures that produced an overall active consent rate of 79% in a sample of more than 4,500 middle school students attending 29 schools in seven cities across the United States. Consent rates, however, varied considerably both within and between schools. To better understand factors associated with active parental consent rates, the authors examined district-level, school-level, and teacher-specific effects on consent rates.     

A comparison of methods to obtain active parental consent for an international student survey

Many school-based research efforts require active parental consent for student participation. Maximizing rates of consent form return and agreement is an important issue, because sample representativeness may be compromised when these rates are low. This article compares two methods for obtaining active parental consent: return of consent forms in the mail versus return by students to their classrooms. The methods were tested in a pilot study of 46 schools (1,058 students), with half of the schools randomly allocated to each of the alternative methods. A hierarchical nonlinear model of consent form return and agreement rates suggests that the student-delivered method is more successful at producing higher rates of consent form return and agreement to participate in the study, after controlling for school-level characteristics. The authors discuss the findings and their implications for other researchers engaged in school-based research with adolescents.     

Active parental consent in school-based research. An examination of ethical and methodological issues

To date, most school-based research has used passive parental consent. However, the Family Privacy Protection Act of 1995 aims to change these requirements. The proposed legislation requires written parental consent if minors are to be asked "sensitive" questions as part of any program or activity funded in whole or in part by the federal government. This act is representative of a growing trend toward restricting research involving minors. Whether or not this act is passed by Congress, two lines of concern are highlighted by this legislation. The first deals with ethical issues surrounding consent procedures. For instance, are parental rights compromised when active consent is not mandated? A second line of inquiry pertains to the effect of active consent procedures on response rates and sample bias. In this article, the authors discuss ethical issues surrounding passive and active consent procedures and then report response rates from two projects in which active consent procedures were implemented.     

How does active parental consent influence the findings of drug-use surveys in schools?

This study examines the impact of passive and active parental consent procedures on the type of adolescents participating in a school-based survey examining substance use. Schools recruited from a random sample of metropolitan schools were assigned to passive or active parental consent condition. Results showed that participation rates in active consent schools were lower than in passive consent schools for junior students (60% vs. 80%) but not senior students. Although consent condition had limited impact on prevalence estimates among older students, among younger students estimates of cannabis use and ecstasy use were higher in the passive consent condition than the active consent condition. Active consent procedures introduce some degree of selection bias into studies of adolescents' substance use and may compromise the external validity of prevalence estimates produced, especially among younger students.     

Factors influencing middle and high schools' active parental consent return rates

The authors examined factors influencing the return rates for attempting to collect active parental consent forms from 21,123 students in the 7th through 10th grades in 41 middle and high schools. Overall return rates from middle schools were higher than from high schools. Schools that offered high levels of staff support for collecting consent forms had higher return rates. Procedures where the consent form was attached to a school form that parents had to complete and return to the school yielded the highest return rate. Implications for how researchers can obtain a high parent consent form return rate are discussed.     

Characteristics of adolescents who provide neither parental consent nor refusal for participation in school-based survey research

Schools offer a convenient setting for research on adolescents. However, obtaining active written parental consent is difficult. In a 6th-grade smoking study, students were recruited with two consent procedures: active consent (parents must provide written consent for their children to participate) and implied consent (children may participate unless their parents provide written refusal). Of 4,427 invited students, 3,358 (76%) provided active parental consent, 420 (9%) provided active parental refusal, and 649 (15%) provided implied consent (parental nonresponse). The implied consent procedure recruited more boys, African Americans, students with poor grades, and smokers. This dual-consent procedure is useful for collecting some limited data from students who do not provide active consent or refusal.     

Sensitive research with adolescents: just how upsetting are self-report surveys anyway?

Distress related to answering personal survey questions about drug use, suicidal behavior, and physical and sexual abuse were examined in multiple convenience samples of adolescents. Samples varied in consent procedures utilized (active vs. passive parental consent), data collection setting (school vs. juvenile justice), developmental level (middle school vs. high school). Participation rates differed across consent procedures (e.g., 93% with passive vs. 62% with active parental consent). Results indicated that small percentages of adolescents in every sample reported frequently feeling upset while completing the survey (range 2.5% to 7.6%). Age, race, gender, and data collection strategy did not emerge as significant predictors of feeling upset. Instead, as hypothesized, adolescents reporting a history of suicidal ideation or attempt, illicit drug use, or experiences of physical or sexual victimization endorsed more frequent feelings of upset while completing the survey than peers without these experiences. Taken together, however, these sensitive event experiences explained only 6.6% of the variance in adolescents' upset ratings. The scientific and ethical implications of these findings are discussed with regard to adolescent participation in survey research about sensitive topics.     

The effect of active parental consent on the ability to generalize the results of an alcohol,tobacco, and other drug prevention trial to rural adolescents

The authors report the effect of active parental consent on sample bias among rural seventh graders participating in a drug abuse prevention trial. Students obtaining active consent from their parents to complete the survey were of higher academic standing, missed fewer days of school, and were less likely to participate in the special education program at their school as compared to students who did not return a parental consent form. However, students with consent were not significantly different from students whose parents actively declined. The sample obtained under active parental consent represents students less at risk for problem behaviors than would have been obtained under passive consent procedures.     

Characteristics of responding-, nonresponding- and refusing-parents in an adolescent lifestyle choice study.

The acquisition of a random sample is one of the many methodological problems that arise when conducting research with adolescent populations. Frequently, due to ethical considerations associated with collecting data from adolescents, active parental consent procedures are required. The current study examined characteristics of parents who consented, refused consent, or did not respond to an active consent request for their children to participate in a large-scale study of adolescent lifestyle behaviors. Results indicated nonresponding-parents were more likely to be employed than consenting-parents. Further, differences were found for a number of attitudinal variables and about the importance of adolescent research. There were significant differences between refusing-parents, and consenting- and nonresponding-parents who were similar in their attitudes toward adolescent research. The findings suggest that nonresponding-parents are characteristically more similar to consenting-parents than to refusing-parents, which supports the use of passive consent procedures as a reasonable alternative to requiring active parental consent in adolescent research.     

Counseling minors without parental consent

Counseling services provided to minors without parental knowledge or consent are based on uncertain and often conflicting policies and procedures. This article examines these services from legal and psychological perspectives, explores current agency policies and practices, and makes recommendations with regard to the counseling needs and rights of minors.     

The impact of child obesity on active parental consent in school-based survey research on healthy eating and physical activity

Previous studies have shown that active consent procedures result in sampling bias in surveys dealing with adolescent risk behaviors such as cigarette smoking and illicit drug use. To examine sampling bias from active consent procedures when the survey topic pertains to childhood obesity and associated health behaviors, the authors pair data obtained from both active and passive consent procedures. The authors find that parents of children who are overweight or at risk for being overweight are significantly less likely to give active consent. In addition, parents of children enrolled in lower grades are more reluctant to consent to participate.     

Obtaining data linkage consent for children: factors influencing outcomes and potential biases

Understanding factors associated with consent for data linkage has largely focussed on adults, but parents or guardians can also be asked to consent on behalf of children for whom they are responsible. A framework for consent decision is presented, and is tested using a large nationally representative survey asking mothers to consent for both themselves and their children for two sets of records. Nearly all mothers give the same consent outcome for all their children. Consent rates are higher for education records than for health records and higher for mothers than children. Multivariate analyses suggest that minorities are generally less likely to consent, while more trust increases chances of consent. Several survey environment factors are important, with harder-to-contact respondents less likely to consent, while the presence of others and higher interviewer-respondent rapport lead to a higher chance of consent. These findings suggest potential methodologies to improve consent rates and possibly minimise bias. This is important given significant demographic differences between children across consent outcomes. However, data from a survey of 10–15 year olds in the study shows fewer differences for several important behaviours and attitudes across consent outcomes.     

Passive versus active parental permission in school-based survey research: does the type of permission affect prevalence estimates of risk behaviors?

This study investigates whether the type of parental permission affects prevalence estimates for risk behaviors from the national 2001 Youth Risk Behavior Survey. Participants were 13,195 students from 143 schools, of which 65% used passive permission and 35% active permission. Student participation rates were 86.7% in passive permission schools and 77.3% in active permission schools. For 24 of 26 behaviors tested, no significant differences were seen in the prevalence of risk behavior by type of parental permission. As long as high response rates are obtained, type of parental permission does not affect prevalence estimates for risk behaviors that are based on self-report.     

Research with Children and Young People: The Issue of Parental (Proxy) Consent

This study examines the potential problems with the parental consent requirement, substantiated with examples mainly from healthcare and social research studies. This will illustrate how the parental consent requirement, instead of promoting high ethical standards, may result in some instances of children’s rights and ethical considerations being ignored or receiving cursory attention. The ‘blanket’ requirement of parental consent for all research involving children under the age of 18 years needs to be challenged as it fails to recognise children’s capacities and accord children due respect as persons in their own right. Flexible ethical guidelines should be developed that take cognisance of children’s competence in contemporary society and at the same time protects children from inappropriate research and procedures.     

Children’s consent to child welfare services: Some explorative remarks

In this article, children consenting to a care order proposal is explored as a form of meaningful participation as seen by care-experienced young people. In contrast to health care and research ethics, almost no research exists on children's consent to child welfare measures. The findings suggest that instead of approaching children as individualistic rights-holders, a more relational understanding about consenting is required, both conceptually and in practice, to acknowledge the social, emotional and power relations in which children's consent (or objection) becomes topical in child welfare. Without that recognition, consenting may be far from meaningful participation.     

Variation within households in consent to link survey data to administrative records: evidence from the UK Millennium Cohort Study

This study expands our knowledge of consent in linking survey and administrative data by studying respondents’ behaviour when consenting to link their own records and when consenting to link those of their children. It develops and tests a number of hypothesised mechanisms of consent, some of which were not explored in the past. The hypotheses cover: parental pride, privacy concerns, loyalty to the survey, pre-existing relations with the agency holding the data, and interviewer effects. The study uses data from the longitudinal Millennium Cohort Study to analyse the correlates of consent in multiple domains (i.e. linkage of education, health and economic records). The findings show that respondent’s behaviour vary depending on the consent domain and on the person within the household for whom consent is sought. In particular, the cohort member’s cognitive skills and the main respondent’s privacy concerns have differential effects on consent. On the other hand, loyalty to the survey proxied by the longitudinal response history has a significant and strong impact on consent irrespective of the outcome. The findings also show that interviewers account for a large proportion of variations in consent even after controlling for the characteristics of the interviewer’s assignment area. In total, it is possible to conclude that the significant impact of some of the correlates will lead to sample bias which needs to be accounted for when working with linked survey and administrative data.     

Parental Involvement Laws and Minor and Non-Minor Teen Abortion and Birth Rates

The effects of parental notice and consent laws on abortion and birth rates were analyzed for two groups of teens: those 15 to 17 years old (i.e., minor teens) and those 18 to 19 years old (i.e., non-minor teens). Twelve states report abortion and birth statistics at the county level for these two age groups. The sample consists of 597 counties from these twelve states. Residence county abortion and birth rates were regressed against parental notice laws, parental consent laws, and several control variables (i.e., type of state public funding, population density, education and income levels, unemployment rate, family stability, extent of poverty, church membership, and geographic region).An important finding of this study is that both parental consent and notification laws were related to significantly lower abortion rates and to significantly higher birth rates for both minor and non-minor teens. Three measures (i.e., church membership, family stability, and education level) were related negatively and significantly to minor and non-minor teens' abortion rates and birth rates. One other measure (i.e., restrictive public funding) was related significantly to lower abortion rates and higher birth rates for minor and non-minor teens.     

The impact of a written parental consent policy on estimates from a school-based drug use survey

The authors examine differences between mean, variance, and correlation parameter estimates derived from a full school-based sample and subsamples restricted by the provision of parental consent. A total of 1,607 students at 21 continuation high schools and 1,192 students at 3 traditional high schools completed a survey containing variables related to sociodemographics, drug use, mental health, and violence. The employment of a researcher-initiated home-telephone-call procedure substantially increased the parental response rate over a student-/school-assisted consent method. The subsamples restricted by the written consent criterion showed some small biases in estimates of sociodemographic variables but little or no biases on measures related to mental health, drug use, or violence measures. The augmentation of the written consent samples with verbally consented students reduced observed biases.     

A Comparison of Methods of Increasing Parental Consent Rates in Social Research

Previous research on children requiring written parental consenthas indicated that this requirement reduces samples to halfthe size they might otherwise be and results in overrepresentationof whites and underrepresentation of blacks. Within the courseof a four-year study, four methods were utilized to increaseparental consent rates, particularly for black students. Allmethods increased consent rates. Providing an incentive to theparents increased consent rates significantly more for the whitestudents than for the black students, while communication withthe children and incentives to the children resulted in consentrates which were more similar for the two racial groups. Communicationwith the parents was the most effective method for both blackand white children, but was also the most time consuming.