Does She Boil Eggs? Towards a Feminist Model of Disability

The Social Model of Disability is increasingly recognised as the theoretical and ideological underpinning for the collectivisation and politicisation of disabled people. This paper examines the Social Model from the perspective of disabled women. It then considers the position of disabled women in relation to both the women's movement and the disability movement. It argues that the former is oriented towards non-disabled women and the latter towards disabled men, with a consequent further marginalisation and disempowering of disabled women. Drawing on the history of black feminism, the author (who is a white non-disabled woman, and who teaches anti-discriminatory social work practice based on an integrated theoretical model) concludes by offering to disabled women a reframing of the analysis in which to explore their simultaneous experiencing of their gender and disability.     

Combining Dyslexia and Mothering: Perceived Impacts on Work

Previous studies have provided an insight into the lives of disabled mothers, but little attention has been paid to disabled working mothers. This paper draws on interviews with women who had a formal diagnosis of dyslexia, to discuss: particular difficulties when combining work and mothering; the perceived positive impacts on work and education, of becoming a mother; unsupportive managers; what some mothers found helpful in order to maintain work; and the diversity between experiences. We conclude that for those already on a career path before having children, some of their experiences could have been seen as an amplification of what other working mothers face. However, a difference was that the added time taken up with mothering meant they became more vulnerable to ‘exposing’ their impairment at work. In contrast, for dyslexic women who were yet to attain a high status in education and work, motherhood encouraged them to initiate their career.     

Who Cares Wins? Women,Caring and Disability

This article is an attempt to open up some of the unexplored issues in the 'carer's debate'. The interest in carers started receiving Government funding in the early 1970s as a response to community care policies. It also received interest from carers themselves and from feminist researchers concerned with the position of women in the family and the labour market. However, in wanting to show the difficult and often unrecognised work of the carer, the debate, in both academic and popular presentation, has often emphasised the public's perception of disabled people as passive, helpless and demanding. Feminist research on carers, it is argued, has ignored women who may need care and the principle of the 'personal is political' has failed to identify with the lives of disabled people. It is both unhelpful and unproductive to polarise the needs of disabled people and their carers and treat them as if they are mutually exclusive. We need research which does not alienate disabled people by defining concepts like rights, independence and power in ways which exclude, making disabled people the problem rather than the focus of the research. We need to move forward in the debate, making sure that we give a voice to all those involved in the giving and receiving of personal care. The concept of citizenship with its association with universal human rights may be a way to look concurrently at these needs.     

"Women and disability don't mix]" Double discrimination and disabled women's rights

Oxfam's experience with groups of disabled people has revealed that gender affects how disabled people are treated in various cultures. This experience runs counter to the often voiced (even by a consultant hired by Oxfam) assumption that gender analysis serves only to confuse any analysis undertaken of disability-based circumstances. This assumption is echoed in the disability movement itself where activists fear fragmentation through the introduction of gender analysis. Thus, gender is not yet understood as a factor which affects every aspect of life including race, class, ethnicity, caste, and disability. Because 75% of the 250 million disabled women in the world live in developing countries, development programs must consider the specific needs and rights of disabled women who suffer from double discrimination and are more likely than disabled men to live impoverished and isolated lives which lead to depression and despair. In many societies, disabled women, but not disabled men, lose their rights to marriage, family life, education, and health care. Mothers of disabled children are stigmatized, and fathers tend to "blame" defective genes on the mothers and to ignore their disabled offspring. These factors combine to make it difficult to improve the status and livelihoods of disabled women through development work. Disabled women activists have also voiced complaints about their lack of access to the preparatory meetings for the Fourth UN Women's Conference, but disabled women intend to use the Conference to lobby for their rights and to call for scrutiny of health policies which discriminate against the disabled.     

‘Me too!’: individual empowerment of disabled women in the #MeToo movement in China

This study examines the role of disabled women in the #MeToo movement by analyzing their voices in the movement. Through online participatory observation, we discovered that the movement has individually empowered disabled women on three levels: as women, as disabled people, and as resisters. These disabled women described two ways in which they were empowered at each level, a total of six ways: they realized that they were not guilty, not ashamed, not stereotyped, not going to tolerate abuse, awakened, and united. However, the empowerment of the #MeToo movement only works at an individual level for some disabled women with higher economic and social status through online platforms, with few offline actions being taken and few responses from society to their appeals. There is thus still a long way for disabled women to go in order to be fully included in society.     

Out of touch: local government and disabled people's employment needs

In autumn 2003 we contracted to undertake a study in two district council areas of ways in which they could meet their Local Public Service Agreement (LPSA) targets in respect of disabled people returning to work. We undertook a literature review of barriers to work, interviewed a number of people involved in working with unemployed people and a number of disabled people in these areas. All the employment organisations we had contact with were working to an individual model of disability and the need to change their orientation became the central recommendation of the first phase of this study. This was rejected by those funding the study. At the end of the first year none of the organisations active in this area was able to identify a single disabled person who had returned to work as a result of their help. We conclude that central government policies are doing little to change the perception of the employment needs of disabled people within local government.     

'Doing Motherhood': some experiences of mothers with physical disabilities

In this paper, we discuss the experiences of physically disabled mothers. We interviewed 30 women in the age group 28-49 with medical diagnoses such as: multiple sclerosis, neuromuscular diseases, cerebral palsy and spinal cord injury Becoming a mother implied for many 'capturing' a gender or 'recapturing' a lost gender. They women felt they had to go to great lengths to 'present' themselves and their children as managing 'normally' in order to be accepted as 'ordinary' mothers. Eventually, they feared that their children might be taken away from them if they did not live up to other people's expectations. One possible explanation for what they experienced as other people's scepticism might be that disabled people on the whole are primarily still looked upon as being dependent on other people's help and care. In short, they are often looked upon by professionals and lay people as receivers, and not as carers.     

Physically disabled women and sexual identity: a PhotoVoice study

The issue of sexuality for young disabled women is not often talked about in society. Our study aimed to explore four young physically disabled women’s experiences and perspectives regarding sexuality and disability. We used PhotoVoice, a participatory action research method which uses photographs, to capture and convey our participants’ concerns. Through their photographs they showed that everyday interactions with others, particularly strangers or meeting people for the first time, were made difficult by how they were always seen as having a disability. Other parts of their identity were not recognised. The change the young women wanted was for people to see them as young women and not just as disabled.     

Getting to know reality and breaking stereotypes: the experience of two generations of working disabled women

This paper sets out the results of a Spanish study of the experience and meaning of work among disabled women of two generations, with three types of disability (physical, visual and hearing). Performing a socially recognised activity such as a job is a source of emotional welfare and self‐esteem. Moreover, it confers a certain social status. For the participants in this study the kind of work involved, whether productive, paid and ‘extra‐domestic’ or ‘reproductive’, unpaid and done at home, acquires different meanings, since for disabled women, sexist stereotypes – already more or less accentuated in the culture – social attitudes towards disability and personal factors introduce relevant differences, while leading to conflicts and dilemmas that these women have to solve. At any rate, their sense of responsibility in performing all types of work should be emphasised as evidence of their sense of independence and personal competence, forming a keystone in their construction of a sense of identity and social integration.     

Women who sacrifice themselves for everybody: qualitative research with mothers of disabled children

This study, from a feminist perspective, aimed at examining the experiences of women whose children with cerebral palsy received a treatment at a physiotherapy and rehabilitation center located in Ankara, Turkey. The study intended to reveal the perceptions of in-family roles of women with disabled children, their participation in public life, and their self-concept within the scope of feminist social work. Thus, the objective of the present study was to contribute to the understanding of the fact that non gender-blind services should be developed in this field on the basis of social justice and human rights, which constitutes the fundamental philosophy of social work. Qualitative research method was employed in the study where data were analyzed through content analysis. The findings of the study were interpreted under four main themes: the lives of the women with disabled children after their disabled children were born; being a woman within the scope of family life, participation in decision-making processes, and domestic division of labor; participation in public life and relations with women's associations; the self-sacrifice; and the suggestions of women concerning self-realization within the scope of self-concept.     

The work of disabled identities in intimate relationships

This article details a thematic analysis of disabled men and women’s accounts of past and present intimate relationships. Drawing upon the sexual stories of 25 disabled people, informants’ intimate relationships are explored as a site of emotional work, and as a site of other forms of (gendered) work. This article critically questions the work carried out by informants and considers the ways in which it was shaped by their lived experiences of gender, sexuality, impairment and disability. The article concludes that the requirement to carry out forms of work within intimate and sexual life constituted a form of psycho-emotional disablism.     

Personal and Political: A Feminist Perspective on Researching Physical Disability

Feminist theory and methodology have much to offer in understanding how disability research has been experienced as alienated research by disabled people. However, feminist research has failed to apply its principles to disability and disabled women's subjective reality has found no place in mainstream feminist work. The paper identifies the challenges for feminism in addressing the interests and reality of disabled women, asserting that it is not helpful to focus on 'double disadvantage'. Disability research itself has much to learn from feminist methodology, in particular the principle of making the personal political. The role of non-disabled researchers as allies of disabled people is discussed, and the importance of research which turns the spotlight on the way in which non-disabled society oppresses disabled people. Finally, it is asserted that disability research and politics are of general relevance because the experience of disability is an integral part of a society characterised by fundamental inequalities and ideologies which divide people against each other.     

Repositioning mothers: mothers,disabled children and disability studies

In this article we set out to review the ways in which mothers of disabled children have been portrayed within disability studies and the more broader academic literature. We argue that within disability studies mothers of disabled children occupy a liminal position because they are often not disabled and yet they can experience forms of disablism. Their experiences can differ markedly from the experiences of mothers of non‐disabled children and yet the consequences and outcomes of these experiences, such as developing a ‘special competence’ is largely overlooked. Mothers can work to effect change on behalf of their children and, in some cases, for disabled people more generally, however, this role of activist mother is largely undervalued. The review of literature presented here leads us to conclude that further research needs to be undertaken exploring and highlighting the ways in which mothers of disabled children negotiate, manage and approach their daily lives, operating within what are described by feminist scholars as oppressive mothering ideologies and disabling environments.     

‘Risky’ representation: the portrayal of women with mobility impairment in twenty-first-century advertising

Representations of disability and gender in advertising have been traditionally confined by narrow ideals surrounding body image. Recently, portrayals of disabled women in advertising have substantially grown in volume and variety. This research applies a feminist disability studies critique to the exploration of women with mobility impairments as ‘risky’ in twenty-first-century advertising. Feminist disability studies recognises culture as a key site in which disabled women have been historically misrepresented. While existing research dominantly focuses on textual analyses of advertisements, this study presents empirical data collected via semi-structured interviews with disabled women. Some women believe that the link between disabled women and riskiness sustains stereotypical attitudes and suggest that women with mobility impairments are included in advertisements as a form of ‘safe quirkiness’. However, others welcome provocative portrayals of women with mobility impairment and suggest that such representations challenge presumptions of disabled women as passive. The results of this research show how disabled women use their life experiences and personal beliefs to explore advertisements that supposedly represent them.     

Emancipating play: dis/abled children,development and deconstruction

This paper reflects critically on the meaning of play, especially as it relates to disabled children and their experiences. We explore the close alliance of play to cognitive and social development, particularly in the case of psychologies of development, and reveal a dominant discourse of the disabled child as a non‐playing object that requires professional therapeutic intervention. We argue that this pathologisation of play on the part of disabled children is closely tied to normalisation of childhood, in which non‐normal bodies are increasingly expected to be governed and corrected not only by professionals but also by parents/carers. In order to rescue more enabling visions of the disabled child and their play we turn to three perspectives – the new sociology of childhood; social oppression theories of disability; critical developmental psychology. These resources, we suggest, allow us to reconfigure what we mean by play and disability in a contemporary climate that celebrates competition and marketisation over the intrinsic potentialities of all children. We argue that how we conceive play will per se undermine or promote forms of inclusive research, policy and practice.     

Disabled students: identity,inclusion and work-based placements

Research about disabled identity reflects diverse perspectives on the merits and challenges associated with such an identity. This paper explores the impact of disabled identity on the inclusion of disabled students in higher education and employment contexts. It considers their experiences of inclusion in a university setting and its associated work-based placements and discusses the extent to which students had to negotiate a range of experiences of disabled identity. The paper suggests that many disabled students, especially those with behaviour-related impairment labels, are subject to continued exclusion in university and, more particularly, work settings, and this contributes to an employment disadvantage compared with their peers. To this end, the paper highlights the importance of enhancing inclusion for disabled students, especially in employment settings, through a focus on reducing destructive identities.     

'Because they have all the power and I have none': state restructuring of income and employment supports and disabled women's lives in Ontario, Canada

We examine the connections between neo-liberal forms of state restructuring and intervention in disabled people's lives, looking in particular at how these have affected disabled women's experiences of an income support program, the Ontario Disability Support Program (ODSP), in Ontario, Canada. We first outline why and how state programs have been re-designed and implemented in increasingly harsh ways as a result of such neo-liberal forms of state restructuring. Even groups formerly considered among the 'deserving poor' have found their access to social assistance diminished. We then argue that this is an outcome of state programs, policies and practices which are re-asserting and more deeply entrenching 'ableness' as a necessary condition of citizenship, inclusion and access to justice. Finally, we illustrate how disabled women's lives and well-being have been altered as a result of changes in the provision of these forms of state assistance using in-depth semi-structured interviews conducted with 10 women in Ontario.     

Navigating uncertainty,employment and women’s safety during COVID-19: Reflections of sexual assault resistance educators

COVID-19 affects women in ways unique to the impacts of structural inequalities related to gender, sexuality, disability, race and socioeconomic status. In this article, we reflect on our own experiences of the pandemic, as feminist students, workers and sexual assault resistance educators located in a Canadian post-secondary setting. Situating ourselves within feminist responses to sexual violence prevention, as facilitators of the Enhanced Assess, Acknowledge, and Act (EAAA) sexual assault resistance education programme for university women, we reflect on the impacts of the COVID-19 pandemic on our work as EAAA facilitators in our Canadian university. We explore the theoretical possibilities that critical disability theory and queer theory present to the EAAA programme, and argue that incorporating concepts from these frameworks will complement the goals of the EAAA programme and improve inclusivity of queer, trans and disabled participants. We conclude with a look into the future by anticipating the impacts of COVID-19 on our future work.     

The Dialectics of Multiple Identities and the Disabled People's Movement

This paper explores the issue of commonality and difference in the disabled people's movement in relation to ethnicity, gender sexuality, age and class. Hitherto, disability academics have either ignored or tagged on the experience of disabled black and minority ethnic people, women, older people, and gay men and lesbians. When they are discussed, they have more often than not been discussed separately - for example, disabled black people's experience has always been discussed separately, disabled women, disabled gay men and lesbians and disabled older women. Hence it is not surprising if 'simultaneous oppression' is perceived to be the unique experience of a minority of disabled people. Here, I suggest that it is, in fact, the experience of a majority of disabled people since the majority is not a homogenous mass of disabled white heterosexual middle-class young men, but individuals from diverse backgrounds with a wide range of identities and experiences, and to accept that their only concern is disability is to fall into the same trap as the general population most of whom only see the impairment and not the person. It is imperative to note, however, that the blame does not lie with the social model of disability, as it is sometimes assumed, for that is merely a conceptual tool. The paper discusses the concept 'simultaneous oppression' as applied to the experience of black women and later disabled black people. It is suggested that this is too simplistic an analysis to capture the day to day experience of those who possess negatively labelled multiple identities. An alternative framework is suggested to link the experience of different groups of disabled people and, hence, offer a common ground for unity in the disabled people's movement.