Social work field education: believing in supervisors who are living with disabilities

Much of what is written by non-disabled authors about living with disabilities does not mirror people’s experiences or opportunities. Literature is often written about people’s abilities (or disabilities) rather than by or with people. Discourse about supervision of social work students can risk assuming that supervisors are people who do not identify as living with disabilities. This research is a co-operative inquiry into the experience of being an Australian social work student supervisor who is living with disabilities. The article extends the literature about being a social work field educator to include ability, and values the practice wisdom of experienced social workers including a current student supervisor who is living with a disability.     

Independent living and community care: a disempowering framework

The British disability movement has had significant achievements in its struggle for independent living. However, the current community care framework contains many barriers to independent living. This article sets out a conceptual framework for an understanding of independent living and provides an analysis of the barriers posed by the social care system. These range from financial incentives for placing disabled people in residential care, to a failure to address needs relating to employment, parenting and leisure. Disabling attitudes held by social services professionals about 'risk' and 'capacity' are also major barriers. It is clear that, unless the legislative framework is amended to include an entitlement to independent living, disabled people will continue to be denied their full human and civil rights.     

Custodial Citizenship in the Omnibus Autism Proceeding

In contemporary processes of citizenship, parents and other caregivers often must make claims to the state on behalf of children with disabilities. In this article, we draw from data on the Omnibus Autism Proceedings (OAP), which were a series of hearings in 2007 and 2008 in which parents of children with autism attempted to receive compensation from a federal program for vaccine injury. During these hearings, parents and their attorneys obfuscated the children's subjectivity and instead showcased the children's physical suffering in order to claim that their children had suffered a legitimate injury from vaccines that warranted compensation. We develop the concept of custodial citizenship to account for the process by which a legible rights‐bearing subject appropriates the bodily suffering of the injured party in order to gain citizenship rights on behalf of that individual. In doing so, we trace the slippages of harm that occur in the lived experience of disability among family members and caregivers, in contrast to the individualizing rights‐granting framework of the court system.     

Poverty and disability in Eastern and Western Cape Provinces,South Africa

The impact of disability on the living conditions of people living in specifically resource‐poor areas in South Africa has not previously been addressed. This paper presents a comparison of people with a disability and their non‐disabled peers with respect to some key poverty indicators among a sample of Xhosa speaking individuals in resource‐poor areas of Eastern and Western Cape Provinces. A questionnaire on the level of living conditions (household composition and socio‐economic characteristics) and a detailed disability questionnaire that captured more specific details of the disability experience of the individual with a disability were adapted to the South African context and utilised. Despite the improved situation of households with a disabled family member in terms of financial resources (due primarily to the allocation of disability grants), other measures of poverty (education and employment) remain divisive for those with disabilities.     

The unemployment of women with physical disabilities in Ghana: issues and recommendations

Unemployment among persons with disabilities is high. The situation is worse for women with disabilities as they experience multiple disadvantages on account of gender and disability. The condition for women with disabilities in Ghana could be more complicated, given the intersection of disability, gender, poverty, cultural beliefs and practices. As employment provides not only income for women with disabilities but opportunities for social participation and increases psychological well-being as well as self-esteem, it is imperative to remove barriers that hinder their employment. The current study examines issues associted with the unemployment of women with physical disabilities in Tamale, Ghana, and makes recommendations to policy-makers and practitioners in order to improve the condition of persons with disabilities in general, and particularly women with disabilities.     

Transition secured? A follow-up study of adolescents who have left secure residential care

Many adolescents who make the transition to adulthood experience problems after their departure from secure residential care. Research suggests that these young people are often in need of support after they have left secure care. Little is known about the experiences and perceptions of adolescents during and after this transition. The aim of this article is to assess these experiences for a group of 24 adolescents in the Netherlands that have left secure residential care. The results show, in line with previous studies, that many adolescents experience problems during their transition from secure care, especially with regard to finances, school and employment, and living arrangements. In contrast to other studies, a majority of the adolescents reports to have received support in the year following their departure. Relatively few adolescents move to independence after their departure, which suggests that many adolescents are not ready for making a true transition into adulthood yet.     

A Contextual Analysis of Caregivers of Children With Disabilities

When a child is born with a disability, the caregiver's life is altered. With the numerous challenges caring for a child with disability brings, caregivers may feel devastated. These challenges often result in increased stress on the caregiver, which, in many cases, places the child at risk for maltreatment. The purpose of this study is to explore issues a caregiver faces when caring for his or her child. In this contextual analysis, seven caregivers of children with moderate-to-severe disabilities completed a questionnaire, were interviewed individually, and assisted the researcher in constructing an ecomap of their current living environment. Content from the interviews was analyzed and several themes developed from the data. Implications for clinical practice and future research ideas are discussed.     

Making the familiar strange and making the strange familiar: understanding Korean children’s experiences of living with an autistic sibling

Based on the findings of a small‐scale study using visual ethnographic techniques with nine South Korean children, this article explores the role of culture in understanding autism. While autism is embedded within the ‘strange’ and ‘unfamiliar’, linked to exclusion and discrimination in Korean society, the children focussed on reframing their experiences of living with autism as ‘ordinary’. Despite the limitations of the small sample, the richness and depth of data generated by children themselves offers new insights into children’s interpretations and experiences of autism and raises interesting questions for cross cultural research in the field of disability.     

The meaning of workplace discrimination for women with disabilities

Studies have found that persons with disabilities who are also members of other minority groups or women encounter dual discrimination. This paper describes how women with disabilities who are in the workplace experience discrimination. In order to determine whether discrimination was a viable issue, theoretical contexts of feminist theory, disability theory, and attribution theory were examined as well as literature examining employment of women with disabilities. For this study, three women with various disabilities were interviewed regarding the effect of their disability on their typical workday, their employment and job seeking history, and employment opportunities. Qualitative data were also provided through mapping by the participants and pictorial data of worksites. Data were grouped into themes of pre-conceived notions of others, attitudes of others, accommodation issues, inclusion issues and exploitation issues. From these themes definitions of discrimination, nondiscrimination in the workplace were developed. Conclusions include the need for more research on workplace experiences of other or more specific populations that experience discrimination as well as the need for ethical reflection on the part of the researcher regarding vulnerable populations.     

Exploring the impact of health inequalities on the health of adults with intellectual disability from their perspective

Across every indicator of health inequality, adults with intellectual disability are disadvantaged. However, first-hand accounts from adults with intellectual disability exploring the impact health inequalities have for their health and are absent from the literature. The research was underpinned by a participatory approach, involving Men with intellectual disability as members of a steering group and through 20 interviews. Thematic analysis revealed how low income and reduced employment had a negative impact on the men’s physical and psychological health. New findings show how living in deprived areas exposed men to constant threats to their safety with an adverse effect on their health.     

Is Disney Disabling?

Abstract

This article discusses ongoing lawsuits against Disney Parks and Resorts U.S., brought by people with autism and their families. These lawsuits illuminate an ethical dilemma about the appropriate scope of disability equality. This article suggests that Disney and the courts have adopted a standard of simple equality where all theme park patrons are treated the same way, regardless of ability. I argue, however, that the standard of equality that should be used moving forward is equal access to advantage – specifically, equal access to opportunities that enable people with disabilities to have an enjoyable theme park experience.     

A Youth Perspective on Life with a Disability

Abstract

A momentous piece of legislation, the Americans With Disabilities Act (ADA) of 1990 provided for the elimination of discrimination against individuals with disabilities and more significantly is aimed toward improving their employment opportunities. There is, however, evidence that the ADA implementation has not moved fast enough in increasing employment opportunities for persons with disabilities. This article reviews the literature on disability and employment barriers, federal statutes, societal attitudes and biases, and human relations misconceptions associated with disabilities. It discusses social work roles, advocacy for social justice, implications for rehabilitation counselors, and issues related to disabilities and employment.     

The essence of being connected: the lived experience of mothers with young children in newer residential areas

Parenthood is a significant life transition and a time of increased social support need. In newer residential areas, a lag in social infrastructure and family relocation can influence potential isolation of families with young children. This qualitative study explored the lived experiences of being connected to local communities for mothers with children aged 0–5 years. Family insights were obtained through in-depth interviews with 12 mothers who were primary caregivers, homeowners and living in newer residential areas in outer suburban Perth, Western Australia. For mothers with young children, being connected to the local community appears to be shaped from their past and present lived experience as well as future aspirations. Connectedness evolves and may develop more slowly in newer communities where social relationships and networks are often recently formed. ‘Interaction’, ‘knowing what's going on’ and ‘help is nearby if you need it’ were identified as the essential themes of connectedness for mothers and families in this study. Belonging was identified as an incidental theme as not all mothers who felt connected felt like they belonged. The findings provide insight for professionals and agencies working with families with young children as well as planners of newer residential areas.     

The experiences of youth serving as caregivers for mentally ill parents: a background review of the literature

Young caregivers of mentally ill parents are a vulnerable population. These vulnerabilities include risks for developmental issues, poor socialization, and poor school performance. The purpose of this background review of the literature is to explore the experiences of young caregivers of mentally ill parents and detect the gaps in the literature. The guiding research questions were: What is the experience of young caregivers of mentally ill parents? and What is the experience for those who witness or must assist their parent during a crisis? The majority of research has been conducted outside the United States, primarily in the United Kingdom, and studies have focused mostly on young caregivers of parents with physical rather than mental illness. No studies focused on young caregivers who witnessed or assisted their mentally ill parent in crisis. Information gained through this review will add to the body of knowledge for child mental health and build a case for additional research.     

Sources of Double Disadvantage for People with Disabilities Living in Remote and Rural Areas of New South Wales, Australia

This study demonstrates how people with disabilities living in remote and rural areas experience double disadvantage in regard to receipt of services. They tend to experience similar disadvantages to other remote and rural dwellers (as compared with their urban counterparts), but these disadvantages are compounded by those associated with living in an environment which does not cater for the needs of people with disabilities. Findings display how geographical, physical, cultural, social and psychological factors within the external environment create disadvantages for the individual. The project involved data collection from people with disabilities, disability groups, service providers, families and carers through consultations and field trips. Major issues emerging from consultations were concerned with: transport and distance, isolation, the need for more consumer involvement, the nature of service provision (appropriateness, flexibility, co-ordination and location), the need for community and professional disability awareness education, protection of rights, carers and respite care, accommodation and housing, education, employment, information dissemination and access to specialised equipment. Comparison with overseas studies indicates that findings from this Australian study have applicability in other countries which have large remote and rural areas.     

Effects of Caregiving on Employment and Economic Costs of Chinese Family Caregivers in Canada

A telephone survey with 339 randomly selected Chinese Canadian caregivers examined the employment and economic costs of family caregiving for the elderly. Although the Chinese culture places a strong emphasis on filial obligation, caregiving is not without economic consequences. Caregiver’s age, financial adequacy, and employment, caring for an additional care receiver, and levels of assistance in Activities of Daily Living (ADL), were the predictors for economic costs perceived by family caregivers. Caregiver’s age, caring for an additional care receiver, and care receiver’s financial adequacy were significant predictors for male caregivers. Caregiver’s financial adequacy and higher levels of assistance in ADL were the predictors for female caregivers. Policies to support family caregivers should not just focus on the social aspect, but also the financial needs.     

‘Can anything good come out of this mouth?’ Female experiences of disability in Malawi

The aim of this article is to give an overview of the daily life stories of 23 women with disabilities in Malawi. The stories were gained through qualitative interviews that covered aspects of being a woman and living with a disability in Malawi. Recent studies from countries in southern Africa have documented how people with disabilities experience poorer living conditions than people without disabilities. It is generally assumed that the living conditions of women are worse than those of men. There is, however, a large gap in the literature concerning women with disabilities in Africa. The results present a mixed picture. While several of the informants had experienced discrimination and exclusion because of their impairments, most of the women had been well taken care of and were treated equally by their closest family and friends. They had a strong wish to be empowered through education and employment.     

Glorious Work: employment of adults with a learning disability in Guangzhou from the perspective of their parents

Promises and policies in ensuring employment opportunities for disabled people are stipulated in the State Laws and local regulations of the People's Republic of China. It is assumed that having a job implies better integration in society. However, the experience of young adults with learning disability in finding jobs tells a very different story. This article analyses the experience, perceptions and worries of parents of such young adults who are employed or have striven hard to obtain a job, comparing the ideal with a very different reality.     

Der Einfluss der Arbeitslosigkeit und der sozialökologischen Kontexte auf die Bildungschancen von Kindern in Ostdeutschland

The purpose of this paper is to investigate the extent to which the family’s socioecologic contextual factors and parental unemployment influence children’s opportunities for participation in higher education. It is of primary interest how factors of socioecological environment such as living conditions, residential environment, and neighbourhoods in combination with unemployment influence the successful intergenerative transmission of human-capital. For the empirical investigation, data from a postal survey of households conducted in Dresden in autumn 1999 are used. The results show that the influence of socioecologic contextual factors should not be overestimated. The socioecologic contextual factors lose their influence for the educational opportunities of the children as soon as unemployment occurs in the family. Furthermore, the impact of parental professional status on children’s educational achievement is stronger in explaining educational opportunities than socioecologic contextual factors and unemployment.