Program features and developmental experiences at a camp for youth with cancer

Purpose

The purpose of this case study was to explore how the program features of a camp for young people with cancer supported participants' developmental experiences.

Methods

This case study examined a one-week residential camp program near a large southern city. Data were collected from semi-structured interviews and focus groups with 22 campers aged 8–14, 19 adult staff members (camp administrators, activity specialists, medical staff, and counselors), four junior counselors aged 18–20 who had previously attended the camp as a camper because they had cancer, and from participant observations. Reliability and validity assurances were met in multiple ways. A constant comparison approach to data analysis indicated consistent themes that converged on the research questions.

Results

Positive developmental experiences reported at camp by campers and staff included a) increased positive attitudes (sociability, perseverance and confidence, and gratitude and appreciation) and b) respite (experiencing freedom, and finding a balance between “just being a kid” and managing difficult cancer issues). The camp supported the aforementioned developmental experiences through several key program features. The program features reflected the themes of full accommodation (integrated and accessible facilities and activities, and opportunities to be physically active) and intentional programming (“a habitat of fun,” proximity to similar others, engaging activities, caring relationships, and opportunities to maintain connection).

Conclusions

The camp contained features that supported developmental experiences, which is especially important because youth with cancer are especially at risk of negative outcomes such as anxiety, depression, and isolation. Findings from this case study illustrate how social support can enhance psychological and physical well-being through the provision of supports for the basic psychological needs of autonomy, relatedness and competence.     

Intentional youth programs: taking theory to practice

Early adolescents benefit most from program opportunities where they can be actively engaged in their own learning and development and where there is a good fit between their developmental needs and the intentional learning opportunities provided by the program. The theoretical framework presented here suggests that the two most important features of an engaging youth program are an intentional ethos of youth development and an intentional strategy to design and implement developmentally appropriate learning experiences. Practical examples from research and community practice are used to illustrate program strategies for early adolescents that emphasize intentional thought, decisions, and actions every step of the way.     

Evaluation of a multi-site program designed to strengthen relational bonds for siblings separated by foster care

Sibling relationships in foster care settings have received increased attention in recent years. Despite growing evidence regarding the protective potential of sibling relationships for youth in care, some sibling groups continue to experience foster care related separation, and few programs exist to address the needs of these youth.This study describes and evaluates Camp To Belong, a multi-site program designed to provide short-term reunification to separated sibling groups through a week-long summer camp experience. Using a pre-test post-test survey design, this paper examines changes in youth ratings of sibling conflict and sibling support across camps located in six geographically distinct regions of the United States. The effects of youth age, number of prior camp exposures, and camp location were tested using multilevel modeling procedures.Findings suggest that participation in Camp To Belong may reduce sibling conflict, and improvements in sibling support are noted for youth who have had prior exposure to the camp’s programming. Camp-level variance in the sibling support outcome highlight the complex nature of relationships for siblings separated by foster care, and suggest the need for additional research. Lessons learned from this multi-site evaluation and future directions are discussed.     

Performing on a Wider Stage: Developing Inner-City Youth Through Play and Performance

This article reports on an ethnographic study of a youth leadership program that utilizes play and performance to support the development of inner-city youth. Participant observation and focus groups were used to learn about young people’s experience participating in the program and how they perceive its effect on their lives. The findings demonstrated that approaching the activities in the program as performances provided participants a way to practice being who they are not, a language for understanding their own development, and a way to become creators of developmental environments for themselves and others.     

Spiritual development: a missing priority in youth development

Addressing the spiritual development of young people has the potential to strengthen youth work and its outcomes. Spiritual development matters because it is an intrinsic part of being human and because young people themselves view it as important. This article reviews the research that points to positive impacts of spiritual development for youth and notes that in an increasingly pluralistic society, everyone needs to build skills for negotiating religious and spiritual diversity. The authors propose that spiritual development involves, in part, the dynamic interplay of three dimensions: belonging and connecting, awareness and awakening, and a way of living. Three initial challenges and opportunities are emerging: empowering youth to explore core developmental issues, motivation and focus, and multisector engagement.     

Camp experiences in the lives of adolescents with serious illnesses

This study explored the experiences of a summer camp for adolescents with serious illnesses and included interview responses from campers with different types of serious illnesses. Twenty-four youth aged 14–15 with cancer, sickle cell disease, HIV/AIDS, or metabolic diseases provided videotaped interviews that were analyzed using an interpretative phenomenological approach, and frequencies of responses per theme and diagnosis were computed. Camp experiences varied across diagnostic groups and featured: a sense of belonging, enjoyment, being myself, positive affect, camp programming, adult staff, personal growth, and escape. Some qualitative variations existed between diagnosis groups. Campers with cancer perceived camp as a place for sense of belonging, personal growth, and escape. Campers with HIV/AIDS perceived camp as an opportunity for a sense of belonging, being myself, camp programming, and escape. Campers with sickle cell disease perceived camp as a place for enjoyment, adult staff, being myself, personal growth, and escape. Campers with metabolic diseases perceived camp as a place for personal growth and positive affect. Professionals caring for youth with serious illnesses should consider adding camp to the list of interventions to promote children's well-being. Future research should include more youth and illness types.     

Growing with youth: A lifewide and lifelong perspective on youth-adult partnership in youth programs

Youth-adult partnership (Y-AP) shows promise for positive youth development, yet research seldom examines how youth programs employ Y-AP as a developmental practice. This paper provides a developmental ecological perspective on Y-AP in programs and communities with data collected across a mid-sized city. In Study 1, interview data suggest adult practitioners hold three distinct goals for Y-AP: voice, decisionmaking, and leadership. We identify program practices for carrying out YAP including building positive adult-youth relationships, engaging youth in first-hand learning, and addressing developmental progression; i.e., gradually increasing opportunities and responsibilities as youth age. In Study 2 we investigate this practice of supporting developmental progression with a case study focused on adolescent opportunities and supports in a multi-age program. Study 2 findings present a picture of YAP opportunities highly integrated into program operations; in particular, integrated into the multiage context. These studies offer insight into strengthening program and community capacity for Y-AP.     

Adventure-based programming: exemplary youth development practice

Despite functioning on the periphery of academic scholarship, theory development, and rigorous science, the better adventure-based programs are functioning at the forefront of professional youth practices. This article links the core elements and processes of adventure programs to the literature on positive youth development and quality youth programming. Contemporary work on developmental systems theory, developmental cascades, and initiative are well aligned with the historical, philosophical, and pro-grammatic roots of adventure education. In addition, adventure programs afford some powerful experiences by way of distinct features such as isolation, dosage, different physical environments, holistic approaches, social experiences, and program novelty. This combination of features often provides a microcosm for youth to live, learn, experiment, and grow. Despite the strengths in prototypical adventure programs, they remain less accessible and are not easily delivered to many youth. Although there are clearly differences in adventure program and other youth activities, many of the qualities of adventure programs can be included in a broader and more accessible spectrum of youth opportunities. This article thus explains the congruency between the literature on positive youth development and adventure programs and generalizes current tenets of adventure programs to the broader context of youth practice. It is time to recognize the important role that adventure programs play for many youth and fully embrace what these diverse and successful programs can teach the general field of positive youth development.     

An Evaluation of the Positive Action Program for Youth Violence Prevention: From Schools to Summer Camps

New Orleans has experienced some of the highest per capita rates of homicide in the nation. In response, the City of New Orleans developed the NOLA FOR LIFE murder reduction strategy, one aspect of which is the implementation of Positive Action, a character building program for youth. The Positive Action program has offered promising results for curbing youth violence when implemented in school-based settings. However, given the city’s mostly charter-based school system, summer camps are among the few entry points available through which to implement city-wide youth initiatives. During the 2016 summer camp session, an evaluation was conducted to determine whether incorporating the Positive Action curriculum into a 6-week summer camp results in youth experiencing positive changes in peer self-esteem, the ability to get along with others, bullying behavior, and normative beliefs about aggression. This evaluation compares youth that received the Positive Action curriculum during summer camp with those that received the traditional summer camp curriculum. A multi-method approach of quantitative pre-and post-surveys of youth and focus group interviews with camp teachers were employed. Results from the quantitative data suggest few statistically significant findings, while qualitative data suggests that Positive Action may be effective at reducing violent norms and behavior. Implications for social workers and the need for adapting school-based violence reduction interventions for non-traditional settings are discussed.     

Leisure, recreation, and play from a developmental context

Participation in activities and experiences defined as play, recreation,and leisure has important developmental implications for youth. Elements and characteristics of leisure experiences contribute directly to the development of identity, autonomy, competence,initiative, civic duty, and social connections. Whether in informal or formal, appropriately structured and organized programs,leisure experiences can help facilitate adolescent development in these areas. For example, one of the defining elements of leisure is that it is characterized by free choice and self-determination. Programs that promote leadership, choice, autonomy, and initiative can help adolescents deal with developmental challenges associated with this age group. Leisure experiences can also promote civic engagement and provide important peer-to-peer, peer to-adult, and peer-to-community connections. The social context of leisure is important to adolescent development in that it provides opportunities to learn empathy, loyalty, and intimacy in their group activities, as well as to negotiate with peers, resolve conflict,and work together for communal goals. In addition, adolescents often report positive emotional experiences in leisure, which can serve as a relief from the stress they feel in other areas of their lives and contribute to positive psychological adjustment and well-being. A case study is used to show how planned, purposive programs can be used as critical components of efforts to contribute to adolescent development.     

What Adolescents Learn in Organized Youth Activities: A Survey of Self‐Reported Developmental Experiences

This research inventoried adolescents' reports on different developmental and negative experiences in organized youth activities, including extracurricular and community‐based activities. High school students' experiences were assessed using a newly developed instrument, the Youth Experiences Survey (YES). These youth reported higher rates of learning experiences in youth activities than in 2 other major contexts of their lives. Youth activities were associated with experiences related to initiative, identity exploration and reflection, emotional learning, developing teamwork skills, and forming ties with community members. The findings also suggest that different youth activities offer distinct patterns of learning experiences. Service, faith‐based, community, and vocational activities were reported to be frequent contexts for experiences related to identity, prosocial norms, and links to adults. Sports were a frequent context for those related to identity work and emotional development.     

Social reproduction and the limitations of protest camps: openness and exclusion of social movements in Japan

This paper investigates how activists conduct participatory democracy and realize prefiguration and horizontality in a protest camp setting. Recently, scholars have shown increasing interest in the internal lives of social movements. Anti-G8 direct action in Japan has provided an opportunity to examine how protesters practise prefiguration and horizontality in everyday experiments in alternative ways of living together. In the protest camp in Japan, participants faced institutional and material limitations. This study discusses the social reproduction processes within protest camps that operate according to these limitations. Three key findings emerged: first, the protest camp shows a great openness towards beginners; they can easily find roles in its social reproduction processes. To accomplish this, they use skills developed in their daily habits outside the protest. Second, the collective practice of social reproduction creates and clearly displays a hierarchical partnership between activists, in the sense that beginners are not only politically socialized, but that they learn the limited cultural codes of anti-globalism movements from other activists. The relationship between teaching and taught serves to create hierarchy and exclusion among participants. The third key finding is related to exclusion. For some activists who have experienced discrimination, the protest camp is a frustrating experience because it forces upon them codes and manners constructed in capitalist society. To them, the camp recreates the cleavage between majority and minority protesters. The paper argues that both exclusive and inclusive sides of the protest camps, particularly when discussing collective lifestyle practices, exhibit ambiguity.     

Voices of former foster youth: Supportive relationships in the transition to adulthood

As the adolescent development literature has recognized the importance of social supports in the transition to adulthood, child welfare research, policies, and programs have turned their attention to the relational needs of youth emancipating from the foster care system. This study builds on the extant literature on social support among transitioning foster care youth; it goes beyond the sole identification of relational networks, to explore how youth actually utilize their network members, and the overall quality of their support system. This study collects data from twenty qualitative interviews with foster youth, ages 18–21. We analyze the data using consensual qualitative research methods in order to develop core themes around shared youth experiences. We found that while foster youth did identify a wide network of both formal and informal supports during their transition to adulthood, there were “holes” in the form of support, especially appraisal and instrumental support, provided by informal network members. Additionally, an unrealistic perception of supportive and permanent relationships may be contributing to poor outcomes in emerging adulthood. Implications for policy and practice are discussed.     

Sibling relationships of youth in foster care: A predictor of resilience

Few empirical investigations have been conducted examining sibling relationships among youth in foster care, and even fewer have explored relationship warmth as a protective factor. With a sample of 246 youth from a non-profit organization's summer camp program, Camp To Belong, this study examined the association between a warm sibling relationship and resilience for youth in foster care. A warm sibling relationship significantly predicted individual resilience for both middle childhood and adolescence developmental periods. Younger youth with poorer sibling relationship warmth had lower resilience. The implications of these findings are important given that resilience is a factor associated with improved outcomes in the face of adversity. The promotion of sibling relationships, a readily available resource, can be drawn upon by those in clinical practice to improve outcomes for youth in foster care.     

From products to publics? The potential of participatory design for research on youth,safety and well-being

This paper considers how ‘participation’ features as a key concept in contemporary approaches to research, policy and interventions to promote young people's experiences of safety and well-being in digital society. In particular, it examines the potential of participatory design (PD) methodology as a way of expressing, surfacing and supporting engagement with youth perspectives in research and design projects. In doing so, we explore how the language, materials and processes of a PD approach can help reconfigure the aims of research beyond the production of ‘products’ towards fostering ‘youth-inclusive publics’. Drawing on the concept of ‘infrastucturing’ and ‘attachments’ [Le Dantec, C. A., and C. DiSalvo. 2013. “Infrastructuring and the Formation of Publics in Participatory Design.” Social Studies of Science 43 (2): 241–264. doi:10.1177/0306312712471581], the paper reflects on an Australian research project to develop online campaigns to promote youth safety and well-being in digital society. From our analysis emerged three commitments of PD with young people that help articulate, make visible and unpack ‘attachments’ to concepts of youth, technology and well-being and provide new opportunities for engagement with youth experience in research and intervention design. We find that these commitments – the embodiment of context; the enactment of creativity and the emergence of connectivity – offer novel insights on youth participation in complex research projects. Moreover, foregrounding these commitments through PD can build shared vocabularies, artefacts and processes of engagement with young people in research projects focused on youth safety and well-being.     

Perspectives of Youth in Care in Serbia

In the context of evaluating child protection reform in Serbia, we explored the concept of positive youth development as well as how they experienced and understood the experience of placement. We sought to understand how youth perceive their strengths, the role of the care system, their views on how life experiences affect their strengths and how they see their future. Our position is that the way in which children see their situation is equally valuable as any other point of view, and that their doubts, questions and views should be learned in the research process. We used the methodology of semi-structured in-depth interviews conducted with 16 young people in care aged 13–18 years. Results indicate their limited involvement in the process of making decisions related to their life and future. There is a strong need for meaningful involvement of children and young people in order to ensure their positive development.     

Constructions of child and youth advocacy: emerging issues in advocacy practice

The development of child and youth advocacy has been informed by varying theoretical perspectives and in the last decade has been increasingly incorporated into policy and legislation for young people in receipt of welfare services. Through examining the varying perspectives of young people, advocates and commissioners of advocacy services it can be seen that although there is some consensus about how advocacy should be provided, the construction of advocacy by adults may have a significant impact on how it is experienced by young people. This paper draws on material from five advocacy projects to examine how advocacy is constructed by those involved in the provision and receipt of services. It argues that there is a danger that the construction of advocacy in an adult proceduralised way is likely to compromise its potential to challenge the structures that deny young people opportunities to participate in decision making about their lives.     

Afterschool programs that support homeless youth: igniting hope and opportunities in the midst of trauma,uncertainty, and displacement

Across the United States, many afterschool and out-of-school time programs are making constructive and lasting impacts on the lives of homeless children and youth by providing expanded learning opportunities and positive youth development outcomes in a safe space. In this brief, we profile two youth-serving organizations and the After School Division of the California Department of Education to illustrate how afterschool programs can be part of the solution for homeless children and youth. Staff from these organizations shared their practices, successes, challenges, and lessons learned. Most importantly, they shared a message of hope and a vision for what is possible in the midst of trauma, uncertainty, and displacement.     

Is the Education of Local Children Influenced by Living near a Refugee Camp? Evidence from Host Communities in Rwanda

This article studies the extent to which educational services and schooling outcomes of local children are influenced by the presence of a refugee camp in or near their community. Investigating Congolese refugees in Rwanda and relying on a mixed‐method approach, we examine schooling rates and access to school‐based feeding programmes in communities closer to and further away from three refugee camps. We conduct cohort analyses to compare the schooling outcomes of Rwandans residing at different distances from each of these camps. Our results highlight that children residing closer to the camps have better schooling outcomes and that locals residing closer to the camps have mostly positive views regarding the effects of refugees on local education. These results contribute to the literature on the effects of refugees on host communities and inform policy debates on how refugees need not be a “burden” if a long‐term vision shapes educational investments.     

The Community Action Framework in Practice: An Illustration Based on the Ready by 21 Coalition of Austin/Travis County

The field of positive youth development has expanded focus from articulating and measuring desired manifestations of positive well-being to assembling the environmental conditions known to promote these desired outcomes. Evidence of the effectiveness of community-level efforts promoting positive youth development is still emerging, in particular theory-driven examples of community-driven youth development. This study examined the Community Action Framework, one theory-based community youth development model, through the experiences of the Ready by 21 Austin/Travis County coalition (RB21). The coalition connects youth-serving organizations and also regional coalitions, while promoting the positive development of area youth. Participant observation, interviewing, and archival strategies were integrated to capture information related to the complex and dynamic coalition. Results indicated that RB21 represents a practical and meaningful application of the Community Action Framework. Specific examples and recommendations are provided as guidance for other community level youth development efforts.