Support and Access in Sports and Leisure Provision

This paper will look at different ways of enabling people with learning difficulties to engage in leisure opportunities: the Support Model and the Access Model. These models will be put in their social context and then critiqued.

The support model will be be contextualised in the theory of normalisation, access in disability theory. The support worker role will be shown to be useful in motivating people with learning difficlties into new activities, as well as having a protecting element, and unwittingly, disguise the level of discrimination people with learning difficulties are subject to.

The access worker role will be shown to have strengths in understanding discrimi nation. With this analysis, it has the potential to dismantle disabling practices. However, the needs of people with learning difficulties have ramifications for disability theory. In practice, that means that ideas of self-advocacy need to be taken on board.

Through interviews with sports personnel, social workers and people with learning difficulties, the implications of creating fully comprehensive access will be examined. I will conclude that both effective support and comprehensive access must be in place before people with learning difficulties are able to make a meaningful choice as to how they are enabled to participate in sports. It is only at that point of choice that the two models become complementary rather than competing discourses of provision.     

Changes in Medical Practice Towards the Child with Spina Bifida: Implications for Schools

Up to 15 years ago, Spina Bifida Cystica and its complications was the second most common physical handicap in childhood, but has declined in incidence, occurring about 5.9/10,000 births in the UK. Similar reductions have been noted in other parts of the world. Several different causes are responsible for the fewer numbers of children, but changes of surgical management known as selective treatment is particularly important.

The small number of children initially denied surgery tend to be severely physically handicapped and often intellectually impaired, but most children treated without delay are physically less disabled and often within the normal range of intelligence. Such improvements in status has resulted in more children attending ordinary schools though some may have subtle learning difficulties which should be systematically sought for. There will be a corresponding decrease in the number attending special schools.     

Women with Disabilities: Abortion and Liberation

In this, the United Nations Decade of the Disabled, much is being done to improve the lives of those with disabilities, and to enable them to participate as equals in the everyday life of their communities.

At the same time, however, more and more technological 'advances' are being deployed to detect handicap in the unborn, with the aim of killing as many of them as possible before birth.

Feminists, though accustomed to fighting for the emancipation of women, are failing to address this incongruous situation, and the double discrimination faced by women with disabilities. This is partly due to the fact that they tend to regard abortion as an unequivocal 'right'.

I will argue that far from being a right, abortion underlines women's oppression and is counter-productive to women in general, and to disabled women in particular.     

No African renaissance without disabled women: a communal approach to human development in Cape Town South Africa

The African Renaissance is upon us. Those who have eyes to see, let them see.

Disabled women who live in wooden shacks in the peri-urban areas of Khayelitsha in Cape Town, South Africa, participated in storytelling workshops over a two-and-a-half-year period. They shared experiences of what helped or hindered their social and economic development since becoming disabled. The workshops were part of a participatory action research (PAR) study of the Division of Occupational Therapy, University of Cape Town, together with Disabled People South Africa (DPSA) and the Zanempilo Health Trust [formerly South African Christian Leadership Assembly (SACLA) Primary Health Care Project].

The findings revealed the struggles and sadness, as well as the strengths and spirit that the women experienced within their every day context at an individual, family and community level. The women spoke strongly about meeting physical, emotional, and spiritual needs (human development) as the means to social and economic development.

The discussion reflects on the many paradoxes of disability encapsulated in the essence of interdependence of Ubuntu. Three themes discussed are building emotional resourcefulness: nurturing children and families in disability issues; and renewing spirituality and Ubuntu in disability and development programmes. In conclusion, managing the paradoxes of disability, the creation of a new individual and collective identity, and the capacity to change are proposed as the way forward.     

The Curriculum to Meet Special Educational Needs

The development of objectives-based curricula in special education has brought considerable benefits to the education of children with special educational needs. Schools can look to even greater successes as they become more experienced in using and modifying their curricula. In the integrationist climate, provision for children with special educational needs has become increasingly flexible.

The role of the special school is changing, and is developing a system of 'resource centres' to enable wider provisions for meeting pupils special educational needs in mainstream. Such development has created new and important challenges in the field of special education. The opportunities which objectives-based curricula extend through planned and structured teaching initiatives for pupils with special educational needs, are commensurate with the opportunities provided through integration.

The article draws attention to matters of particular concern for teachers meeting pupils' special educational needs, and highlights the aims and objectives critical to curriculum design.     

The Government of Disability: economics and power in welfare and work

The term government of disability refers to the ways that the lived experiences of people with accredited impairments are contextualised by economics and power in welfare and work. This paper explores how far a multiple perspective that develops a framework of the government of disability and the ontological ambiguity of impairment can take us towards contemporary understandings of disability, impairment and change in the UK.

The term the ontological ambiguity of impairment describes the ways that understandings of impairment have become more ambiguous, contributing to greater insecurities and fragmentation because of key changes in the government of disability. However, I argue that wider explanations of economic and power relationships are also necessary to develop a critical perspective of the contemporary government of disability, economics, and power in welfare and work.     

'Orange in a World of Apples': the voices of albinism

Albinism is a rare genetic condition that affects the pigmentation of the retina, hair and skin. Consequently, people with albinism world-wide experience the stigma and negative repercussions of an unconventional physical appearance, as well as a visual impairment. The medical literature has focused extensively on the genetics of albinism amongst animals, but it has been relatively under-studied and ignored in sociology. People with albinism have rarely had the opportunity to tell their stories; to tell their sorrows and their triumphs. This paper attempts to remedy this failure in social science.

In-depth interviews were conducted with seven women and five men, living in various countries globally. The study is framed around Erving Goffman's theory of stigma and 'spoiled identity', as well as the more recent Disability Studies that stresses 'the normals' as being the 'identity spoilers' or the 'problem'. The participants revealed victimisation from various sources including students, teachers, employers, colleagues, strangers and the medical profession. Focus is placed on the strategies that respondents have devised in coping with these adversities. The results identify eight principal methods of reaction and response to the discrimination against people with albinism.

These eight different strategies of resistance to the stigmatisation of albinism are essential elements of personal change and even, possibly, social change. This paper quotes respondents' own words. Such methodology offers the chance for people with albinism to voice their experiences, and for us researchers to listen and learn.     

Physical Disability in 1986 and Beyond: A Response to Simon Brisenden

The report of the Royal College of Physicians Physical Disability in 1986 and Beyond has been criticised by some disabled people because it deals exclusively with medical aspects of disability and not with the whole range of services and resources that disabled people require. This criticism is unfair since it would be totally inappropriate for a committee composed only of doctors to make recommendations other than of a medical or N.H.S. managerial nature. There are many deficiencies in the medical support of disabled people, particularly those with complex impairments and those with brain damage. Correcting these deficiencies needs a change in medical practice and in the N.H.S. resources devoted to rehabilitation medicine. The College report has defined very clearly the scale of this problem, suggested specific practical solutions and how they should be audited, and provides guidelines which all those concerned with disabled people can use to check on the medical services that should be available and to identify those who are responsible for providing them.     

Stars are not Born: An Interpretive Approach to the Politics of Disability

The politics of disability are usually interpreted as attempts to influence government policy in the direction of reducing the negative effects of impairment. This paper enlarges that conventional notion to include attention to how the disabled subject is produced by the discursive practices within which disability is administered.

A summary of epistemological perspectives represented by contemporary social thought dealing with disability opens the discussion. Foucault's work is presented as the basis for interpreting recent social science literature on disability from a viewpoint which is sensitive to variations in epistemological presuppositions in that literature and to the political implications of each mode of research for the administration and treatment of disability.

A concluding section contains speculation on forms of political action which are relevant to the politics of disability at the constitutive level.     

A genealogy of the disabled identity in relation to work and sexuality

That 'disability' has been central to the formation of the ideal liberal citizen in the modern era can be effectively illuminated by focusing on two prime modes of subjectification, work and sexuality. This paper seeks to demonstrate that a better understanding of their historical involvement in the creation of the disabled identity and their manifestation in recent times in the form of welfare reform and sexual rehabilitation can pave the way for the development of more effective pathways of liberation.

The purpose of history, guided by genealogy, is not to discover the roots of our identity but to commit itself to its dissipation. (Foucault, 1977a, p. 162)

     

Focusing on Disability and Access in the Built Environment

This paper provides a documentation and discussion of the diverse experiences that different disabled people have with regards to access in the built environment. It begins by outlining the various ways in which disabled people's access needs and requirements are articulated in public policies and practices towards the development and regulation of the built environment. As the material indicates, disabled people's needs are poorly articulated and/or represented in the design and development of the built environment while the regulatory controls which oversee disabled people's access are weak. In the second part of the paper, disabled people's values, attitudes and practices towards access in the built environment are discussed by referring to the findings of focus group research. The material shows that many disabled people feel estranged and oppressed by facets of the built environment and generally feel powerless to do anything about it. We conclude by suggesting a number of ways of interconnecting the design and implementation of public policy towards the built environment with the daily lived experiences of disabled people.     

Time, Place and Competence: Society and History in the Writings of Robert Edgerton

This is an article by an historian about the work of an American anthropologist and social scientist who has for many years observed, recorded and participated in the lives of the mentally handicapped. It had its origins in a dissatisfaction with existing histories of retardation and a desire to seek out twentieth century sociological perspectives with relevance to and resonances for earlier periods.

The paper falls into three sections. The first describes and analyses the polarity-social competence and incompetence within given cultures-which is central to Edgerton's conception of what he terms 'socio-cultural retardation'. This is followed by an evaluation of The Cloak of Competence [1], which concentrates on the interactions between deinstitutionalisation, stigma and passing for normal. A concluding section returns, by means of an examination of the validity of the notion of a 'retarded community', to a final interrogation of the causes as well as the meanings and contradictions implicit in 'socio-cultural retardation'. Attention is also briefly given to the ways in which historians, and explicitly historical methodologies, can contribute to further research within the general paradigm which Edgerton has pioneered.     

International guidelines and the inclusion of disabled people. The Ugandan story

Uganda has made much progress towards including disabled people in its mainstream development, particularly in the political agenda. The exact process by which this has been achieved and the relationship between this and international guidelines and legislation are not known. This study undertakes to examine this from two specific perspectives: (1) How do international documents relevant to disabled people relate to national legislation in Uganda? (2) What can this comparison, together with the perceptions of stakeholders, tell us about how the legislation and services could improve? International legislation and Ugandan legislation is reviewed and compared. Data from 5 semi‐structured key informant interviews and 6 focus group discussions involving a total of 38 people are collected and analysed. The themes arising from the data are related to the documents, legislation, policies and other relevant literature. The results examine the barriers to service provision; the role of change; the importance of representation; policy and legislation issues; and the effects of devolution. Five specific findings relate to how legislation and services can improve: more resources to increase access for disabled people; strong leadership and collaboration between Disabled People’s Organisations (DPOs) funding bodies and governments; awareness raising and training; representation from all impairment groups; and raising the profile of disabled people through further legislation.     

Application of the International classification of functioning,disability and health in Taiwan: victory of the medical model

Since July 2012, eligibility for disability benefits and services in Taiwan has been assessed based on the International Classification of Functioning, Disability and Health. This study examines disabled people’s experiences of this new assessment system: does it incorporate the social model or a multidimensional understanding of disability and assess the needs of disabled people adequately? In-depth interviews were employed with 24 disabled persons to answer these questions from the perspective of disabled people. The findings show that the new assessment model is still medicalised: social roles and social participation are not considered, the assessment process is dominated by professionals, users’ perspectives are not included and only those who are assessed to have a high level of disability are satisfied with the new system while many others would prefer the old assessment system. These findings have relevance for the analysis of needs assessments of disabled people in different countries.     

The Dearing Report and Students with Disabilities and Learning Difficulties

The movement to promote improved levels of participation from groups under-represented in higher education which occurred between 1980 and 1990 neglected disabled people. The position has been addressed by the national higher education funding councils since 1992 and progress has been made. Therefore, it was surprising to find that, whilst certain social groups were highlighted, nothing was said about disabled people in the terms of reference of Sir Ron Dearing's National Committee of Inquiry. This paper describes attempts made to inform and influence the Committee. Next, it considers the Report itself. First, the recommendations for future policy which are directed specifically towards disabled people are discussed; secondly, the potential implications for disabled people of the general recommendations are explored; and thirdly, the supplementary report on students with disabilities is reviewed. The conclusion provides a brief overview of developments since the Report's publication.     

'All Doors are Closed to Us': a social model analysis of the experiences of disabled refugees and asylum seekers in Britain

In this article we undertake a social model analysis of the experiences of disabled refugees and asylum seekers, who are among the most socially and economically disadvantaged members of society in the UK today. The statuses of disability, refugee and minority ethnic group are each linked to discrimination and oppression (Oliver, M. (1990) The Politics of Disablement (London, Macmillan Press); Robinson, V. (1999) Journal of Refugee Studies, 12(1), pp. 78-87; Vernon, A. (1996) in: J. Morris (Ed.) Disability Studies: past, present and future (London, Womens Press), yet little consideration has been paid to the particular cumulative constellation of oppressions experienced by disabled refugees and asylum seekers.

In this article, several models are presented that demonstrate that disabled refugees and asylum seekers experience barriers to health and safety in their country of origin, such as impairment-creation through torture and war. Once in the UK barriers to social services, benefits and social contact prove similarly insurmountable.     

Attitudes Towards Disabled Staff and the Effect of the National Minimum Wage: a Delphi survey of employers and disability employment advisors

This Delphi study drew on the expertise of a national sample of 100 employers of disabled people, and a similar number of Disability Employment Advisors (DEAs). It presents their existing attitudes towards disabled employees before analysing the effect of the NMW on these views. Differences between employers and DEAs were found in relation to the perceived costs and obstacles to employers of taking or retaining disabled staff, the problems presented by specific disabilities and the motivation shown by disabled staff. There was general agreement that the NMW has benefited disabled people by making low paid jobs better paid. A minority of respondents thought it had created additional obstacles to employment for disabled people. Some disabled employees appear to have been adversely affected by the interaction of the NMW with the Supported Placement Scheme (SPS, now Workstep) and the benefits system. Understanding employers' perspectives may facilitate the promotion of work opportunities for disabled people.     

Disabled People in a Newly Industrialising Economy: opportunities and challenges in Malaysia

Malaysia is one of the fastest developing countries in the world and by the year 2020 it will become an industrialised nation according to the Malaysian government's strategic plans. This dynamic situation poses numerous opportunities and challenges for disabled people in Malaysia. Two positive outcomes are opportunities in the employment sector as well as infrastructure developments. However, there are new challenges especially with regards to mainstreaming of educational and vocational training along with the need for a dynamic placement service. The rise in industrial accidents creates a new challenge, along with the changing demographic trends which could have a negative impact on disabled people. What is striking is that disabled people and their organisations are beginning to articulate these changes and making a claim for inclusion in Malaysian society.     

Definitions of Need: Can disabled people and care professionals agree?

This paper attempts to examine the ideological frames of reference that inform the definitions of need that are used by disabled and non-disabled people. The main aim of the research upon which this paper is based being to test the degree of congruence of the non-disableds view of need with that of disabled people. Central to this is an exploration of the differences that exist in the perception of disability held by disabled people and nondisabled people. It investigates this through the use of a staged vignette based around a fictitious character (Mr Arthur Angus) and his family. The paper seeks to explore the multidimensional contexts in which individuals operate based upon a deconstruction of the medical/social locus of control model.