'A Feeling of Being Connected': Friendships between People with and without Learning Difficulties

Recently, programmatic attempts to encourage close ties between people with learning difficulties and typical citizens have increased. It is believed that such relationships will extend the assimilation of people with learning difficulties into society. The researcher presents the perspectives of four pairs of friends about the meaning of their friendships. The informants shared similar ideas and expectations about the characteristics of friendship in general. These included its mutual, exclusive, and voluntary nature; the rights, obligations, and responsibilities of friends to each other; and the positive regard or affection found between friends. Despite efforts on the part of service providers to support the development of friendship between people with and without learning difficulties, the biggest barriers for the individuals in this study were the practices of the human service system, which curtailed opportunities for people which would have promoted the development and maintenance of friendships.     

Disabled Children,Parents and Professionals: Partnership on whose terms?

Taking a parental perspective, this paper explores the experience of partnership between parents of disabled children with learning difficulties and educational professionals. It is argued that until policy, legislation and practice moves from its present perspective of viewing disability as the failure of the individual to that of a perspective embracing equality of value for all, relationships between parents and professionals will be fraught with difficulties. Furthermore, it is argued that until disabled children are centrally and positively placed within the relationship between parents and professionals, the existing prejudice and oppression experienced by disabled children will dominate the relationship.     

The role of self-advocacy in work for people with learning difficulties

This paper explores the relationship between self-advocacy and work for people with learning difficulties [1]. Explorations are based mainly on a participant observation study in which members of a self-advocacy group for people with learning difficulties included the researcher in their regular meetings. Discussions about work, most broadly defined as meaningful activity which makes a contribution to society, emerged as a critical preoccupation. We examine the importance of self-advocacy as a vehicle for people with learning difficulties who want to remove or circumvent barriers which surround their employment. Our research shows that understanding the role of self-advocacy in relation to work creates many development opportunities for both disabled employees and their prospective, or actual, employers. It is suggested that self-advocates can themselves achieve change in employers' attitudes by challenging oppressive images of people with learning difficulties in the workplace. It is hoped the paper will advance recognition of the importance of self-advocacy for maximising the participation of people with learning difficulties in work, and for acceptance of their status as workers.     

Telling stories for a politics of hope

This paper is about listening to voices from an excluded past. The oral history of disabled people challenges accepted, formal history, the history from dominant voices well established in unequal power relations. The paper draws on an oral history project conducted with over 60 visually impaired people who gave detailed accounts, telling stories of their experiences of education. This oral history research was carried out through the medium of the interview. The analysis covers school life, focusing on the recurring themes of abuse and friendships. The paper then turnd to relationships with family and community, and how participants placed schooling within the broader context of their lives. These stories are a small part of the history of disabled individuals' exclusion within which, as we hope to demonstrate, the chinks of collective light were born.     

Quality of Life for People with Learning Difficulties Moving to Community Homes

Research concerning people with learning difficulties who have left institutions has typically investigated how well people 'adapt' to life in the community, and has often ignored users' own perceptions of the changes in their quality of life resulting from the move. In this study, eight people with learning difficulties who moved from a hospital and seven people who moved from parental homes to live in staffed homes in the community were interviewed. Choice, privacy, social life and relationships with their parents and staff emerged as important factors in participants' perception of their quality of life. Their relationships with their parents were found to be close, and in some cases their parents were overprotective. Staff were perceived in some cases as too controlling and in others as providing too little support. The findings indicate that people with learning difficulties moving to community residences have aspirations which encompass far more than a wish to adapt to life in the community, and their relationships with family and staff are a central factor in achieving such aspirations.     

Community Care: Relationships and Control

Analysis of the relationships available to people with learning difficulties has received much attention in recent literature and has also become the focus of work undertaken by service personnel. This paper presents an analysis of networks of people with a learning difficulty in Wales and illustrates the paucity of close relationships in people's lives. It is argued that community care involves the removal of custodial forms of social control and their replacement by mechanisms which place greater emphasis on relationships as a form of imposing sanctions on individuals. In an attempt to assist the move to improve networks the authors argue the need to develop a theoretical understanding of the social processes by which individuals are excluded and as a result inform the means by which individuals may be included.     

Representing the Views of Disabled People in Community Care Planning

The 1990 NHS and Community Care Act requires social services departments in Britain to involve representatives of service users in the preparation of their annual community care plans. This paper gives a critical account of the different ways in which the views of disabled people are sought and represented in community care planning; and of the organisational and practical barriers which disabled people and their organisations are likely to encounter in representing their views to service planners. People with learning disabilities, older disabled people, people with sensory impairments and disabled people from Black and ethnic minority communities are particularly likely to be excluded from current consultation procedures. The paper concludes that present methods of representation place considerable burdens on both individual disabled people and on their organisations. Consequently, disabled people may increasingly question the effectiveness and usefulness of their involvement in community care planning, in the light of the many other issues which are important to them.     

Listening to Hidden Voices: Power, Domination, Resistance and Pleasure within Huronia Regional Centre

A great deal of material has been written regarding the effects of institutional living on people with learning difficulties. Much of this literature focuses on the negative aspects of institutionalization and views the individual as 'products' of these experiences. This paper argues that adults with learning difficulties are active participants in creating their own sense of cultural identity and community. Stories of four adults with learning difficulties, who have grown up in an institution in Ontario are used to explore how they envision a sense of their community through their shared experiences.     

‘I do like the subtle touch’: interactions between people with learning difficulties and their personal assistants

Disabled people have often been denied choice and control in their lives. Although direct payments promise to deliver autonomy for disabled people, much depends on the way direct payments employers and personal assistants handle their interactions. These matters are particularly important for people with learning difficulties, who have routinely been restricted and controlled by their support staff. This paper presents an analysis, based on video material, of interactions between people with learning difficulties and personal assistants. The paper examines how difficult tasks, such as giving advice, can be accomplished in ways that people with learning difficulties find acceptable. Successful interactions are built on sensitivity to the wishes of the person, on a moment by moment basis. It is important that both parties coordinate their body language, humour and timing to demonstrate a close and friendly relationship, which is both professional and on the terms of the direct payments employer.     

Developing Wellbeing as a Critical Tool in Social Work Education: An Example from the Field of Learning Disability

This paper will explore how ‘wellbeing’ is used in social work education to develop a critical understanding of the current English personalisation agenda, in relation to people with ‘moderate to severe’ learning disabilities. Drawing upon a short thematic analysis of policy for Learning Disability and Social Work Education, the paper will develop the argument that social wellbeing is an important factor for critical engagement and practice with this service-user group. Based upon teaching – incorporating service user and care views, as well as current research-in-progress, Schalock's (2004) taxonomy of wellbeing is developed to focus upon three themes: friendships and relationships; community engagement and structural factors. The importance for social workers of exploring aspects of community, in its widest sense, is emphasised, contrasting with a narrower view presented in policy implementation. The application of wellbeing as a practice and analytical concept therefore provides a framework for a critically reflective and engaged practice.     

Human capital, social capital, entrepreneurship and disability: an examination of some current educational trends in the UK

Influenced by European policy, human capital and social capital are currently of interest in UK education policy and practice, expressed particularly in the concepts of lifelong learning and entrepreneurship. Human capital and social capital ideas are shown to be flawed by not taking disability into account. The characteristics of entrepreneurship and entrepreneurship education are examined for relevance to young people with disabilities or learning difficulties and it is concluded that more could be done to develop opportunities for entrepreneurship. The position of people when work is not an option is considered, leading to the question of whether there is a 'disability industry', and an acknowledgement of the importance to the economy of disabled people as consumers and producers. A wider definition of entrepreneurship, which includes people with disabilities and learning difficulties, is sought and the paper concludes by discussing the wider implications for the learning community.     

People with learning difficulties share views on their involvement in a performing arts group

DIY is a workshop and performance-based theatre company. All of the members are people with learning difficulties. Members of the group had a discussion about their work with researcher Danny Goodley as part of an on-going project exploring the benefits of participation in performing arts. The group's reflections surface many issues around work and the power of involvement for disabled people in high-profile community arts-based projects.     

Who am I? Concepts of disability and their implications for people with learning difficulties

The relationship between concepts of disability, group membership and self-concept was examined. It was argued that people with learning difficulties have been categorised, by non-disabled people, as 'belonging' to a devalued social group with a rigid boundary based on IQ level. Findings from studies of self-concept have shown little evidence of a sense of belonging. It was suggested that people with learning difficulties may prefer not to identify with this social group because of the negative effect it may have on their self-esteem. The analysis based on intergroup and social identity theories proposed that people with learning difficulties may be encouraged in creating a positive self-concept by abandoning the IQ criterion for social categorisation; softening the boundaries between disabled and non-disabled people; and adopting collective rather than individual strategies for social change.     

Precarious lives and resistant possibilities: the labour of people with learning disabilities in times of austerity

This paper draws on feminist and queer philosophers? discussions of precarity and employment, too often absent from disability studies, to explore the working lives of people with learning disabilities in England in a time of austerity. Recent policy shifts from welfare to work welcome more disabled people into the job market. The reality is that disabled people remain under-represented in labour statistics and are conspicuously absent in cultures of work. We live in neoliberal-able times where we all find ourselves precarious. But, people with learning disabilities experience high levels of uncertainty in every aspect of their lives, including work, relationships and community living. Our research reveals an important analytical finding: that when people with learning disabilities are supported in imaginative and novel ways they are able to work effectively and cohesively participate in their local communities (even in a time of cuts to welfare). We conclude by acknowledging that we are witnessing a global politics of precarity and austerity. Our urgent task is to redress the unequal spread of precaritization across our society that risks leaving people with learning disabilities experiencing disproportionately perilous lives. One of our key recommendations is that it makes no economic sense (never mind moral sense) to pull funding from organisations that support people with intellectual disabilities to work.     

'She Has Different Fits to Me': how people with learning difficulties see themselves

People with learning difficulties often appear to experience significant incongruence between their categorical identity as someone with learning difficulties and their self-identity. This paper draws on research undertaken with 60 young adults, and their parents or carers to examine the nature of that incongruence. We conclude that it is based almost entirely in discursive relationships, whereas experiential and power relationships promote incorporation of categorical identity into self-identity. We call for more careful consideration and open discussion of the ways in which the categorical identity of people with learning difficulties is handled in discursive relations with them.     

‘Resistance: Which Way the Future?’ A dual-screen installation related to the theme of disability and eugenics

This paper reports the part findings of an evaluation of a dual-screen installation entitled ‘Resistance: Which Way the Future?’ by the writer and director Liz Crow. Central to the installation is the experience of disabled people during the Holocaust period, the values underpinning this neglected period of history and how this relates to understanding the experiences of disabled people today. Simultaneously, this paper raises issue with a previous comment which suggested that disabled people and eugenics are a form of ‘emotive rhetoric’. On the contrary, this paper asserts that the link between eugenics and disability cannot be overstated, and is a significant moment in history where the lived experiences of disabled people – people described as having ‘learning difficulties’, surviving artefacts, and recorded testimonies – have still yet to be explored.     

Capabilities,human value and profound disability: capability theory and its application to theatre,music and the use of humour

According to capability theory, we can identify everything that is of fundamental importance in the lives of people with profound and multiple learning difficulties and disabilities if we take full account of their human capabilities. In this paper I both acknowledge the contribution of capability theory to our understanding of the condition of profoundly disabled people and express some scepticism about the extent of that contribution, suggesting that there is more to the value of a human being than an audit of their capabilities might reveal. I explore human capabilities as discussed by Martha Nussbaum, and in connection with theatre, music and the use of humour.     

Trying to Get it Right: undertaking research involving people with learning difficulties

This paper uses criteria defined by Zarb to describe research undertaken with people with learning difficulties, in the context of an emerging emancipatory paradigm. First, the paper addresses the question: Who controlled the research and what it was about? It considers consultation with people with learning difficulties, the influence of public service organisations and the ethical committee. Secondly, the paper evaluates how far disabled people were involved in the research process, and discusses issues relating to the inclusion of people with learning difficulties as respondents, obtaining informed consent and the involvement of carers in interviews. Finally, the paper discusses the questions: What opportunities existed for disabled people to criticise the research and influence its future direction? What happened to the products of the research? The role of a pilot study, opportunities to provide feedback and dissemination strategies are described.     

Tales of Hidden Lives: a critical examination of life history research with people who have learning difficulties

This paper explores the use of life history research with people who have learning difficulties. [1] A number of strengths and weaknesses associated with the life history as a method of imparting life experiences are examined. Particular emphasis is given to the dilemmas that researchers may face in explicating the life histories of informants labelled as having learning difficulties. With reference to literature on narrative-based research and by drawing upon my own research experiences, I will argue that life histories reaffirm the personal in social theorising, whilst providing a methodology in which individual and social worlds may be drawn together. In addition, eliciting life histories may promote a vivid sense of the research process, thus demystifying the often over technical and jargonised nature of social scientific study. On the down-side, I will suggest that images of the 'imaginative researcher' and 'articulate informant' portrayed in much life history literature, threaten to stifle researchers' concerns with the inclusion of people with learning difficulties. Furthermore, I will draw attention to dilemmas that arise in making links between an individual's life history and social theory. Finally, problems relating to issues of bias and power are explored. In research involving people with learning difficulties, it is concluded that life histories cogently expose the experiences of people so-labelled and therefore deserve further usage albeit with critical assessment.     

Disability,politics and poverty in a majority world context

This paper argues that the spread of free market economics throughout the world has generated unprecedented inequalities within and between nation states. This has led to the systematic exclusion of people with perceived impairments from the mainstream of economic and community life in almost all societies, the generation of an international disabled people’s movement, and their demand for legal frameworks with which to address the multiple deprivations encountered by people viewed as ‘disabled’. It is argued that the poverty and exclusion encountered by disabled people and other oppressed groups in all societies will not be eliminated without fundamental structural change at the international level.