‘Su guagua no escucha nada’: Ecuadorian families confronting the deafness of a child

In accordance with the social model of disability, this study proceeded from the assumption that parents’ experiences of a child’s hearing impairment reflect the circumstances of their lives rather than anything innate in the impairment itself. Few studies have explored the influence both of culture and social structure and of families’ economic and social resources. We studied families’ experiences of the diagnosis of hearing loss in Ecuador, a multicultural country in which family ties are strong but where pronounced social and economic inequalities persist and where many people have no access to health care. The study shows how inequality – and in particular the experience of poverty – shapes families’ experiences of acquiring a diagnosis and of trying to accommodate a child with special needs.     

Perpetual Silence,Not Silence for Moments: Hearing Loss of Children as Perceived by Hearing Bedouin Mothers

The Negev Bedouin population in southern Israel, a minority undergoing great social change, has a higher incidence of hearing loss than that reported elsewhere but has hardly been studied. Caring for a child with hearing loss often engenders parental stress because of the many tasks involved. Difficulty in accessing information and services, the lack of public transportation nearby, and other aspects of the living conditions of Negev Bedouin parents present additional challenges. These difficulties are further compounded by the unique socio-demographic and cultural characteristics of this indigenous population. This article presents the parenting experience of 20 hearing Bedouin mothers of children with hearing loss, explored in a qualitative phenomenological study. The findings indicate that the mothers’ perceptions of the child’s hearing loss affect how they cope with the birth and rearing of the child, their view of the child, and their attitude toward medical interventions. These findings, which portray an experience that is unique in many ways, contribute to the understanding of how an underserved, indigenous, and traditional population responds to congenital hearing loss. The findings also reveal the importance of the terminology with which parents describe their child’s hearing loss and the unique meanings it may have. Such knowledge is of particular importance for culturally sensitive and effective provision of social services and therapeutic interventions.     

Parental Linguistic Input and Its Relation to Toddlers’ Visual Attention in Joint Object Play: A Comparison Between Children with Normal Hearing and Children With Hearing Loss

Parent–child interactions are multimodal, often involving coordinated exchanges of visual and auditory information between the two partners. The current work focuses on the effect of children's hearing loss on parent–child interactions when parents and their toddlers jointly played with a set of toy objects. We compared the linguistic input received by toddlers with hearing loss (HL) and their chronological age‐matched (CA) and hearing age‐matched (HA) normal‐hearing peers. Moreover, we used head‐mounted eye trackers to examine how different parental linguistic input affected children's visual attention on objects when parents either led or followed children's attention during joint object play. Overall, parents of children with HL provided comparable amount of linguistic input as parents of the two normal‐hearing groups. However, the types of linguistic input produced by parents of children with HL were similar to the CA group in some ways and similar to the HA group in other ways. Interestingly, the effects of different types of linguistic input on extending the attention of children with HL qualitatively resembled the patterns seen in the CA group, even though the effects were less pronounced in the HL group. We discuss the implications of these results for our understanding of the reciprocal, dynamic, and multi‐factored nature of parent–child interactions.     

Temporary care foster parents: Motives and issues of separation and loss

Temporary care foster parents, that is, foster parents who specialize in the care of infants, provide an invaluable service to child welfare agencies. They are a unique group among foster parents, and it is important to understand what motivates them to care exclusively for infants. In infant care, separation and loss experiences are repeated more often than in any other kind of foster care. The article identifies five motives most often seen in temporary care foster parents and explores as well the impact of repeatel separation and loss on the foster family. Implications for practice are suggested.     

Knowledge,Attitude and Practice of Child Sexual Abuse Prevention among Parents of Children with Hearing Loss: A Pilot Study in Beijing and Hebei Province,China

ABSTRACT

This study aimed to examine the knowledge, attitude, and practice (KAP) of child sexual abuse (CSA) prevention among parents of children with hearing loss. The study involved 127 pairs of parents with deaf and hard of hearing children from three special education schools in Beijing and Hebei province, China. The findings revealed that the parents lacked knowledge about CSA prevention, such as the character of perpetrators and child victims. Parents were supportive about potential CSA prevention education in schools. Most parents told children much about personal safety, but topics on CSA prevention were still insufficient. The study also found that education level was significantly associated with knowledge and attitude. Elder parents knew more and talked more about CSA prevention. Mothers and girls’ parents were more willing to communicate with children about CSA prevention. The conclusion of the study was that parents appeared to have gained a positive attitude, but poor knowledge and practice. Their knowledge and skills of effective communication should be strengthened to promote CSA prevention practice.     

Parents and grandparents of deaf children in Ecuador: concerns and expectations

Despite a growing number of anthropological studies of deaf communities, little attention has been paid to how socioeconomic and cultural factors influence the experiences and the concerns of hearing parents of deaf and hearing-impaired (DHI) children. This study draws on interviews with parents (and some grandparents) of DHI children in Ecuador, a country marked by profound inequality but also by considerable recent progress in poverty reduction and enhanced provisions for people with disabilities. Despite progress, many carers are nevertheless critical of the way in which new measures have been implemented, and of the schooling available to their child. They are also worried by their child’s vulnerability, the likelihood of discrimination, and the possibility of abuse.     

Disentangling over-representation of parents with disabilities in the child welfare system: Exploring child maltreatment risk factors of parents with disabilities

The study explores the risk factors for child maltreatment and self-reported child maltreatment among a population-based sample of parents with disabilities. Drawing on a nationally-representative, population-based data file that oversampled people of color, income-adjusted odds ratio tests were conducted to establish population differences among parents with and without limitations in activities of daily living (ADLs). Results suggest that parents with disabilities were more likely to report many of the risk factors associated with child maltreatment than parents without disabilities, including witnessing interpersonal violence as a child; experiencing violence, neglect or a foster care stay as a child; mood or substance use disorders; and engaging in or receiving interpersonal violence as an adult. Before controlling for income, parents with disabilities had only a negligibly higher rate of engaging in violence against their children. After controlling for income, parents with disabilities were 2.5 times more likely to engage in violence against their children. Parents with disabilities who did engage in violence against their children had greater amounts of some of the child maltreatment risk factors in comparison to parents with disabilities who did not engage in violence, particularly their own childhood experiences of maltreatment, witnessing of interpersonal violence as a child, childhood stays in foster care, and experiences with interpersonal violence as an adult. Findings add to the understanding of the risk factors for child maltreatment that are related to the collateral effects of having a disability, and through the use of income-adjusted data, help disentangle why parents with disabilities are over-represented in the child welfare system. The findings highlight the need for the child welfare system to increase its disability competence in working with both children and parents with disabilities.     

WORKING TO EXIT POVERTY WHILE CARING FOR CHILDREN'S HEALTH AND DEVELOPMENT IN VIETNAM

Since the implementation of economic reforms in 1986, levels of urbanization, industrialization, and women's labour force participation have increased in Vietnam. This article focuses on the experiences of parents in Vietnam and how labour and social conditions affect their ability to work and exit poverty while caring for their children's health and development. We interviewed a sample of 147 parents in Ho Chi Minh City using in-depth, semi-structured questionnaires. Sixty-three percent of parents had faced loss of income or promotions or had difficulty retaining jobs because they had to care for children. Fifty-eight percent of parents lost income while caring for their sick children because they had to take unpaid leave from work to care for their children or because they had to decrease productivity if they were able to continue working. Fifty percent of parents with school-age children experienced barriers to helping with homework, to attending meetings, or to participating in other aspects of their children's education. The aftermath of the Vietnamese – American War affected parents through loss of extended family members, limiting access to a major traditional source of support. The war had affected other parents by preventing them from completing their education, which left them with job choices that offer little or no work benefits. Although Vietnam has made significant progress in providing early childhood care and education and legislating labour laws, working families’ experiences demonstrate the need to ensure that paid leave and work flexibility policies are available and implemented in all work sectors and to expand affordable, quality child care in order to help low-income working parents in Vietnam meet work demands and exit poverty while meeting their children's needs.     

Comparing the Effects of Amount of Conflict on Children's Adjustment Following Parental Divorce

This study examined the immediate and short-term effects on children of the conflict (as reflected by the level of court involvement) their family experiences during divorce proceedings. Families going through various levels of divorce (dissolution, divorce with little litigation, moderate litigation, and high levels of litigation) were investigated. Seventy-six parents (31 men and 45 women) between the ages of 22 and 53 who had children ranging in age from 2 to 17 years old participated. The Divorce Adjustment Inventory–Revised was completed by the parents immediately following the divorce hearing and again 6 months later. Results indicated that families experiencing a higher level of conflict (as measured by level of court involvement) displayed more family conflict or maladjustment, less favorable divorce conditions and child coping ability, and less positive divorce resolution. Implications of the study and indications for future research are discussed.     

Significant Family Dynamics Related to Postdivorce Adjustment in Parents and Children

ABSTRACT

This study concentrates on the postdivorce adjustment of parents and children in families with shared parenting time arrangements. Thirty divorcing parents with children aged 12 to 59 months old were interviewed using a semistructured telephone interview regarding their early experiences in the divorce process. Findings showed that work–family balance issues were related to postdivorce parental adjustment for mothers. Interparental hostility was related to child alienation and paternal overnight stays. Length of time since physical separation was related to number of overnight stays. These results shed light on the early experiences of families with young children going through the divorce process.     

The Ties That Bind: Midlife Parents' Daily Experiences With Grown Children

Daily pleasant or stressful experiences with grown children may contribute to parental well‐being. This diary study focused on midlife parents' (N = 247) reports regarding grown children for 7 days. Nearly all parents (96%) had contact with a child that week via phone, text, or in person. Nearly all parents shared laughter or enjoyable interactions with grown children during the study week. More than half of parents experienced stressful encounters (e.g., child got on nerves) or stressful thoughts about grown children (e.g., worrying, fretting about a problem). Pleasant and stressful experiences with grown children were associated with parents' positive and negative daily moods. A pleasant experience with a grown child the same day as a stressful experience mitigated effects of those stressful experiences on negative mood, however. The findings have implications for understanding intergenerational ambivalence and stress buffering in this tie.     

Children's reactions to sibling loss

Loss of a child is a severe trauma to the members of any family. Although the reactions of parents to the loss of a child has received a considerable amount of attention in the literature, relatively little has been written about the impact of such a loss on the remaining sibling(s). The effect of sibling loss on a child is complicated by many factors; among them are the tendency of children to deny the reality of death and the feelings associated with this experience, as well as the manner in which the parents are able to cope with the loss. This article reviews the available literature and calls for more research dealing with the impact of the loss of a child on the entire family system.     

The child as project and the child as being: parents' ideas as frames of reference

SUMMARY: This article discusses the implicit psychological theories of parents, viewed as being related to the culture and analysable in term of ideology and world view. In a study in Sweden, parents of four year old children were interviewed concerning their ideas of child development Contrasting images of the child could be seen, sometimes co-existing in one and the same person. It is argued that parents adopt contrasting ideas of child as a means of dealing with conflicting demands of parenthood - creating a free zone for individuality while helping one's child adapt to the environment.     

Supporting families: Outcomes of placement in voluntary out-of-home care for children and young people with disabilities and their families

Parents caring for children and young people with disabilities typically have extensive additional demands on their time and resources. This added pressure can significantly impact well-being and mental health. In extreme circumstances, parents may seek an out-of-home placement for their child. Previous research has looked into factors that influence decisions for families to place their child into out-of-home care but little is known about outcomes for these young people and their families. The Supporting Families study aimed to explore the impact of a voluntary out-of-home placement on young people with disabilities, and consequences for their families. Fourteen parents/carers, twenty six case managers, six accommodation services' managers, and four young people with disabilities participated in face-to-face and telephone interviews and focus groups. Participants reported a range of outcomes for young people in care. Positive outcomes included increased levels of respect for themselves and others, an improvement in independent living skills, and reductions in challenging behaviours. Negative outcomes centred on their experiences of grief, loss and rejection, as well as behavioural problems. Positive and negative outcomes were also found for families. For many parents/carers there was a reduction in perceived stress and caring load, as well as improved mental health and wellbeing for them and the child's siblings. However, parents/carers often experienced ongoing feelings of guilt, grief and loss. The study adds to knowledge about outcomes of being in voluntary out-of-home care for this small but vulnerable group of young people in care and their families.     

A bereavement model for working with families of handicapped children

SUMMARY. This paper presents a model for counselling families of young handicapped children. It is argued that the process that parents go through following the birth of a handicapped child is akin to bereavement following loss. Therefore, professionals on a wide range of disciplines should be sensitive to the grief that parents are experiencing. The authors have used Le Poidevin s theory of adjustment to loss to structure their own theories and to devise a checklist to aid other professionals. Their experience indicates that the birth of the handicapped child may act as a catalyst for psychological growth in parents—mast particularly mothers.     

From symptom recognition to services: how South Asian Muslim immigrant families navigate autism

This study examined the experiences of three South Asian Muslim immigrant families who have a young child with autism. It describes the early period of their child’s disability as the families encountered four critical issues in their lives: a complex disability, the culturally diverse conceptualizations of the disability, family‐professional dynamics in cross‐cultural encounters and the search for appropriate services. Analyses were based on interviews with parents, supplemented by 17 months of participant‐observation in homes and community. Parents narrated their experiences beginning with symptom recognition through help seeking, diagnosis and subsequent service provision. Results suggest that for these families the challenging process of diagnosing and ameliorating autism is complicated by their unique positioning within and between diverse meaning systems. Challenges include American health and education professionals’ misunderstandings of their family organization and linguistic practices, and difficulties in cross‐cultural communication with professionals. Implications for professionals are discussed.     

‘It's afforded us a huge flexibility’: the impact of ‘Disabled Children's Access to Childcare Pilots’ on families with a disabled child in England

For many parents of disabled children, finding affordable and suitable childcare that meets their needs is very challenging. Research in the UK has shown that parents with disabled children experience barriers not just with cost, but also accessibility, the attitudes of childcare providers and in getting good information about sources of childcare. The Disabled Children's Access to Childcare (DCATCH) pilots was an initiative designed to improve access to childcare for disabled children in England. As part of an evaluation of DCATCH, qualitative interviews were carried out with 38 members of 22 families who had received support from the initiative. All of the families reported positive outcomes and highlighted: a beneficial impact on the parents' capacity to work; enjoyable experiences for the disabled child; increased confidence and independence for both parents and children; and the creation of time for parents to pursue other activities. The results of the DCATCH initiative support other research which argues that whilst cost is a significant factor around childcare choices for families with a disabled child, having confidence in the childcare provider's ability to meet specific needs (including complex health care needs) and providing positive experiences for the disabled child are also key, determining factors.     

“It's Really a Roller Coaster”: Experience of Parenting Children with Developmental Disabilities

The aim of this research was to explore the experience of parenting a child diagnosed with a developmental disability. The in-depth interviews were semistructured and open-ended, covering topics such as positive and negative experiences and time demand in raising a child with a developmental disability, their effects on family relationship and on physical and mental health of the parents, and the strategies for managing the negative experiences. Overall, the participants indicated that parenting a child with a developmental disability is both challenging and rewarding, depending on the circumstances facing parents in a particular day. The findings are interpreted in five thematic structures: (1) negotiating joys and sorrows, (2) physical and mental exhaustion, (3) negotiating with family matters, (4) social stigma, and (5) hope in the midst of despair, each of which comprised several subthemes/categories. The discussion includes implications of the findings.     

Parents' perspectives on young suicide

Strategies for the prevention of adolescent suicide are frequently designed to identify those young people who represent a high risk in order that services and support can be effectively targeted. This study explored the experiences of parents who had lost a child through suicide. The findings suggest that the range of behaviours perceived by parents was too broad and diverse to allow for a checklist approach to the identification of risk. The parents' responses did produce some valuable reflections on their experiences of professional support as well as some key messages on parenting which could be disseminated to all parents of adolescents.     

New Voices in Iceland. Parents and Adult Children: juggling supports and choices in time and space

This paper deals with parents' perspectives and experiences of bringing up children with a variety of impairments in Iceland, and how they impact the young disabled adults' approach to the status of adulthood. The paper is based on a qualitative study that explored perspectives and experiences of 36 young disabled adults (16-24 years old), their parents, friends and teachers. The purpose of this paper is to share themes related to patterns of parents' reactions and choices when coming to terms with parenting a disabled child, the support they found from their social network and professionals, and their sons or daughters' subsequent views of themselves and their prospects as young adults. The paper includes different perspectives on adulthood and the extent to which the young disabled people expect to reach that status or remain as 'eternal youth' enmeshed in segregated services. Findings show that the type and nature of early support for parents of disabled children is critical for the young adults' approaching adulthood in regular society or expecting to remain in the limbo of 'eternal youth' within segregated settings. Early 'betrayals' may, however, be revisited at each subsequent transition point. Furthermore, parents and their disabled children who struggled for social inclusion could obtain full active membership in society, even against social and physical barriers, and medically defined disability labels.