All Aboard

Abstract

Social workers in all practice areas have the potential to contribute to the National Agenda for Social Work Research in Palliative and End-of-Life Care. The purpose of this article is to invite social work practitioners and researchers to identify research needs and work with others to address them. We offer a conceptualization of the broad scope of social work's involvement in end-of-life issues, and articulate the difference between end-of-life care and end-of-life issues in social work. Suggestions are offered to advance the national research agenda.     

Professional social work education in end-of-life care: contributions of the Project on Death in America's Social Work Leadership Development program

Social work education in both BSW and MSW level courses is missing vital content about end-of-life care, palliative care, and bereavement. End-of-life care training opportunities through continuing education programs have also been limited. This deficit is significant because a vast number of social workers are already confronted with end-of-life issues on a daily basis in a variety of practice settings. Through the Project on Death in America, Social Work Leadership Development Awards initiative, many programs and models for professional social work education and training in end-of-life care have been developed and are presented in this article. These include: end-of-life care courses, symposia, training manuals, certificate programs and fellowships. Although the curricula continue to be refined, many of these programs are available to practitioners to advance their knowledge and skills and their curricular models are available to social work educators for possible replication.     

Professional Social Work Education in End-of-Life Care

Abstract

Social work education in both BSW and MSW level courses is missing vital content about end-of-life care, palliative care, and bereavement. End-of-life care training opportunities through continuing education programs have also been limited. This deficit is significant because a vast number of social workers are already confronted with end-of-life issues on a daily basis in a variety of practice settings. Through the Project on Death in America, Social Work Leadership Development Awards initiative, many programs and models for professional social work education and training in end-of-life care have been developed and are presented in this article. These include: end-of-life care courses, symposia, training manuals, certificate programs and fellowships. Although the curricula continue to be refined, many of these programs are available to practitioners to advance their knowledge and skills and their curricular models are available to social work educators for possible replication.     

End-of-life care and social work education: what do students need to know?

Social workers are major service providers to people who are facing end-of-life issues including the terminally ill and their families. Yet, exemplary models for social work education and intervention methods are limited in rural states. A statewide survey conducted in Kentucky found only two social work courses dedicated to end-of-life care currently being offered by accredited undergraduate and graduate institutions. Another statewide survey found that many hospice social workers are relatively inexperienced and have a need and desire for more education on death, dying and loss. Also, unique cultural, economic and geographic areas, such as Appalachia are enigmas when it comes to the provision of end-of-life care. This partnership provides a varied perspective on delivery of end-of-life care services with an emphasis on social work interventions and education.     

End-of-Life Care and Social Work Education

Summary

Social workers are major service providers to people who are facing end-of-life issues including the terminally ill and their families. Yet, exemplary models for social work education and intervention methods are limited in rural states. A statewide survey conducted in Kentucky found only two social work courses dedicated to end-of-life care currently being offered by accredited undergraduate and graduate institutions. Another statewide survey found that many hospice social workers are relatively inexperienced and have a need and desire for more education on death, dying and loss. Also, unique cultural, economic and geographic areas, such as Appalachia are enigmas when it comes to the provision of end-of-life care. This partnership provides a varied perspective on delivery of end-of-life care services with an emphasis on social work interventions and education.     

Setting an agenda for social work in end-of-life and palliative care: an overview of leadership and organizational initiatives

This article describes leadership efforts within social work to promote, enhance, and shape the future of social work practice, education, and research in end-of-life and palliative care. The background and outcomes of the Project on Death in America, Open Society Institute's Social Work Leadership Development Award Program, and the 2002 Social Work Leadership Summit on End-of-Life and Palliative Care are reviewed.     

Setting an Agenda for Social Work in End-of-Life and Palliative Care

Abstract

This article describes leadership efforts within social work to promote, enhance, and shape the future of social work practice, education, and research in end-of-life and palliative care. The background and outcomes of the Project on Death in America, Open Society Institute's Social Work Leadership Development Award Program, and the 2002 Social Work Leadership Summit on End-of-Life and Palliative Care are reviewed.     

Developing a Palliative Radiation Oncology Service Line: The Integration of Advance Care Planning in Subspecialty Oncologic Care

Within radiation oncology, there is often minimal attention on radiotherapy with palliative benefits due to the overlying focus on curative treatments. Historically at the University of Pennsylvania, advanced-stage patients are cared for by cancer site-specific teams rather than a more rapid treatment service model that focuses on patients’ symptom needs and larger clinical issues within a palliative framework. Thus, the University of Pennsylvania created a designated palliative radiation oncology team to focus on the complex medical and relational issues of metastatic cancer patients. Social workers play a critical role in patient and family conversations about advance directives, care needs, and end-of-life goals and fears as treatment regimens and outcomes continue to unfold. The palliative radiation oncology social worker developed and instituted a new, formalized assessment tool called the “palliative radiation oncology psychosocial care plan” in the electronic medical record. A retrospective analysis of 26 palliative radiation oncology patients under treatment between February and August 2016 was conducted. Of these patients treated with palliative radiation, 19% completed an advance directive after the social work intervention. This model highlights advance care planning as a best practice and encourages end-of-life discussions as a routine part of the oncology workflow.     

The Changing Nature and Context of Social Work Research

Summary Social work research is constantly diversifying and expandingand this article explores its changing nature; including changesto epistemology and practice; and the critical influence ofthe wider economic, political, theoretical and practice changesoccurring to social work itself. The author discusses a numberof issues facing social work research: the enduring conflictsof ways of knowing, doing and valuing social work research;the role of practitioners as researchers; and the challengeto empower service users as self-determining researchers.     

社会工作研究中的价值介入与社会研究伦理考量

社会工作研究在研究方法、研究手段等方面都受到社会研究多种方法论范式的影响,社会工作研究者无论选择何种社会研究范式进行研究,都会在选题、分析、总结等过程中有不同程度的价值介入,而源于价值观的社会研究伦理又将直接影响研究者的研究选题、方法和结论。本文从社会研究中的价值介入问题入手,探讨社会工作研究中的价值与伦理问题带来的思考。     

Social Work, Sectarianism and Anti-sectarian Practice in Northern Ireland

Correspondence to Dr Jim Campbell, Department of Social Work, The Queen's University of Belfast, 7 Lennoxvale, Belfast BT9 5BY, Northern Ireland. Jim Campbell lectures in the Department of Social Work, The Queen's University of Belfast. His doctoral thesis was on the concept of violence in social and political thought. His current research interests include social policy in Northern Ireland and mental health social work Summary This paper addresses a subject relatively unknown to the Britishand international social work audience—that of trainingfor anti-sectarian practice. In doing so, it points to someof the complex, even dangerous issues raised by such trainingfor social work students and practitioners in Northern Ireland.The paper comments upon the limited but significant ways inwhich social work educators and practitioners have tried tochallenge sectarian discrimination in Northern Ireland, andproposes methods in train ing and research which might facilitatea better understanding of these processes.     

Clinical social work education in palliative and end-of-life care: relational approaches for advanced practitioners

This paper describes the first post-Master's program in the US in end-of-life care for social workers. Developed at the Smith College School for Social Work, this program used innovative relational methods in student recruitment, curricular design, supervision, and leadership development, based upon input from the faculty, students, and field supervisors. Collaborations emerged with funders, agencies, and programs nationally. The program was based on a pedagogical stance that clinical work with dying people requires the capacity to be fully present- in individual, group, and family work; in interdisciplinary meetings; and in advocating for quality and equity of care-while attending to diverse and at-risk populations. Students deepened their clinical skills and took leadership in the field of end-of-life care.     

Recognizing Social Work

There has been little interest until recently in the questionof whether social work has the characteristics of an academicdiscipline. This article offers a synopsis of issues arisingfrom a review of social work and social care research fundedthrough the Social Care Institute for Excellence (SCIE). Followinga brief scene setting, the first main section of the articlegives a synopsis of the social work and social care community’sexperience and judgements regarding their engagement with theresearch council. In the second part of the article, we reviewrelevant policies, structures and trends from an ESRC and socialscience perspective. We focus on the development of researchprogrammes, followed by an outline of the delivery and implementationof programmes. In the final section, we review the issues, themesand directions that emerged from the project. These includejudgements of research relevance, research users, research utilization,the social work contribution to the development of researchmethods, inter-disciplinary research, the question of whetherthere are distinctive attributes of social work research, researchcapacity, career building, priority setting, and the outcomesof social work funding bids. We also reflect on the developmentand delivery of research programmes, and the implications ofthe invisibility of social work research within the ESRC. Disciplineswithin universities are not fixed and abiding realities. ‘Recognizing’social work is a dynamic, socially negotiated process, shapedby the construction and ordering of knowledge claims withinsocial work and social science communities, and reflecting powerdifferentials that are mediated through structural mechanismsthat tend to exclude new ‘claimants’ such as socialwork. We include a number of recommendations, and suggest waysin which the issues may have relevance beyond the UK.     

Developing practice tools for social workers in end-of-life care

This article describes the National Association of Social Workers' (NASW) strategies for providing social workers with important practice and policy information about palliative and end-of-life care. With funding from a Soros Foundation's Project on Death in America grant, NASW developed practice standards, a Web-based continuing education course, and drafted a new policy statement to guide social workers in end-of-life care practice. The article provides an in-depth view of the development and scope of these resources for professional social workers.     

Getting affairs in order: influences of social support and religious coping on end-of-life planning among open-heart surgery patients

Despite growing interest in end-of-life issues, little research has been done concerning end-of-life plans made by patients with cardiovascular disease (CVD), a disease that constitutes the highest mortality in the United States. Even less information is available on patients who undergo major cardiac surgery, a life-altering procedure with some risk of death, in terms of their engagement in end-of-life planning (EOLP). This prospective study enabled the contributors to explore EOLP among 309 middle-aged and older open-heart surgery patients, using survey data from three sequential interviews. A hierarchical logistic regression model shows that older age, higher education, greater social support, and negative religious coping were positively related to the likelihood of engaging in EOLP. Minority race was inversely related to EOLP. Findings suggest the potential role for social workers in helping cardiac patients to access social spiritual resources, and to consider engagement in EOLP.     

Attention to Rural Populations in Social Work's Scholarly Journals

ABSTRACT

Rural populations should be considered a vulnerable group within social work's social justice framework. However, the degree to which social work research and scholarship engage with questions of significance to underserved rural populations remains unknown. This study sought to determine how many articles in highly ranked social work journals give prominent attention to rural populations and issues. A search of the highly ranked social work journals selected from the Journal Citation Reports for the Social Sciences found only 71 articles that explicitly focus on rural populations among a total of 3,004 peer-reviewed articles in 14 top social work journals during the years 2004 through 2008. Possible reasons for the paucity of rural-focused articles within social work journals are posited. We discuss the relative contributions of these journals to development of a comprehensive and useful knowledge base within social work for addressing the needs of rural issues. Future recommendations are made for expanding attention to scholarship in this area.