‘Weightless?’: disrupting relations of power in/through photographic imagery of persons with intellectual disabilities

Missing in discussions of visual representations of people with intellectual disabilities are their own perspectives. Rooted in Derrida’s concern with the ‘right of inspection’ over visual representations, participatory arts-informed methodologies were used in research with people with intellectual disabilities. They critiqued and then used Photoshop to transform public photographs of labeled people. Responding to visual constructions of labeled persons as ‘weightless’/powerless, they revealed personal experiences of being denied control over their lives and representations. Yet their critiques and transformations reveal possibilities for their re-conceptualization as powerful, subverting stereotypes of labeled people and disrupting relations of power in disability imagery.     

‘He was a secret’: family narratives and the institutionalization of people with intellectual disabilities

This article examines family narratives concerning the existence of an institutionalized family member with an intellectual disability. A research study investigating the experiences of institutional survivors and members of their families in post-World War II Ontario, Canada reveals ambiguous family narratives in which the story of an institutionalized family member with an intellectual disability was absent or uncertain. Secretive family narratives and their impact on family life are discussed from the perspectives of siblings of institutional survivors. Drawing from narrative enquiry literature, the potential repercussions of false or ambiguous narratives on the lives of people with intellectual disabilities are also examined.     

‘The silence is roaring’: sterilization,reproductive rights and women with intellectual disabilities

This paper reviews the history of sterilization of women with intellectual disabilities, and considers its relevance to current practice regarding reproductive choice and futures. The paper provides an overview of published research on historical practices, focusing on the United Kingdom, the United States, Canada and the Nordic countries. Most of this research draws upon written records, centring on eugenics debates. However, emerging oral history testimonies gathered by the authors suggest that sterilization procedures were also conducted in the community, the result of private negotiations between parents and medical practitioners. The article presents these accounts and calls for an end to a ‘roaring silence’ on this issue. More empirical studies are needed to recover the experiences of women who have been sterilized and to explore how decisions about reproductive choice and capacity were made in the past and continue to be made today.     

‘I walk from trouble’: exploring safeguards with adults with intellectual disabilities – an Australian qualitative study

People living with intellectual disabilities have a right to be safe from abuse and neglect and have a right to be included in the decision-making process determining safeguards that will affect them. However, the research evidence that could underpin good professional practice in terms of co-producing safeguards against abuse and neglect directly involving people with intellectual disabilities is largely missing. This article, based on qualitative research involving semi-structured interviews conducted during the first half of 2014, seeks to strengthen this evidence base. It reports on the prevention strategies identified by 12 adults with intellectual disabilities about how to stay safe and compares these with the findings of similar research. The article suggests that a comprehensive safeguarding approach comprises both life course-focused safety training and access to assisted decision-making. The article argues that given the plethora of risk situations encountered by people living with intellectual disability, assisted decision-making should take the form of a co-creation process that is situation specific and grounded in everyday life.     

‘The seal of approval’: referring adults with intellectual disabilities and challenging behaviour to community learning disability teams

This article describes a study that involved interviewing eight managers of residential services, who have made referrals to community learning disability teams (CLDTs) for challenging behaviour. Thematic analysis and a critical perspective are combined to analyse and interpret what referrers said about the process of the referral. The study found that managers referred people with intellectual disabilities to the CLDT primarily in order to manage organisational problems rather than to directly manage challenging behaviour. The referrals enlisted the services of professionals to legitimise the residential services, to confirm their practices and to provide credibility to existing decisions by managers. In referring a man or woman with intellectual disabilities to the CLDT, the managers submit themselves, their staff and the person with the intellectual disabilities to the power of the health and psy-complex professionals.     

‘Some people are not allowed to love’: intimate citizenship in the lives of people labelled with intellectual disabilities

Disability helps us think differently about the ‘ideal’ neoliberal-able citizen who may not equate to ideas of productive, sexual, ‘normal’. Intimate citizenship – our rights and access to intimacy – is often ignored by those working with people labelled with intellectual disabilities and in research. In this article, we discuss the outcome of a dialogue between self-advocates labelled with intellectual disabilities, academics, service providers, Aboriginal leaders, students and artists about intimate citizenship through love, intimate work and consumption.     

‘We are not anything alike’: marginalization of health professionals with disabilities

Despite inclusive rhetoric, disabled peoples’ participation in the Health and Human Service (HHS) professions remains limited. This study explores the perspectives of individuals in the HHS sector regarding inclusion-related barriers and facilitators. We found three mechanisms that marginalize disabled people in HHS education and professions: dominant disabling discourses; discriminatory design within programmes and universities; and oppressive interactions. The inclusion of disabled individuals is vital for ensuring HHS professionals represent the populations they serve. By challenging the views of educators, professionals, and scholars, these findings may become part of the foundation upon which change can be created.     

‘She will know that her mother’s doing something for her’: women with intellectual disabilities assuming the mother identity

This article explores the experiences of women with intellectual disabilities in becoming a mother. The presented findings are from a grounded theory research study with 19 women with intellectual disabilities from the Czech Republic. The findings are organised around external and internal factors affecting the women’s assumption of the mother identity, with the most prominent being poverty of the participating mothers, negative attitudes towards their motherhood, and a lack of preparation for motherhood. There is a need for systemic support for mothers with intellectual disabilities, starting in adolescence with sexual education, and continued throughout adulthood, including programmes focused on skills development.     

Solicitors’ experiences of representing parents with intellectual disabilities in care proceedings: attitudes,influence and legal processes

This paper reports on an exploratory study of the role of solicitors acting for parents with intellectual disabilities (ID) in public law proceedings. The paper draws on in-depth interviews with 11 solicitors and a subsequent focus group in which the interview findings were presented and reflected on by six of the eleven participants. Two of the five themes that emerged will be discussed here. They are entitled ‘Attitudes and Influence’ and ‘Legal Processes’ and concern the attitudes and influence of those involved in assessing, supporting and representing parents with ID and the care proceedings processes encountered by parents with ID.     

Regranting identity to the outgraced – narratives of persons with learning disabilities: methodological considerations

Good research should be relevant and useful, it may even be enlightening or symbolic, but it can also be emancipatory. Qualitative research can be useful in challenging structures, policies and practices that disempower and marginalize segments of the population. However, could it be that the empowerment of the participant ends where the weakness of the researcher begins? In qualitative studies the researcher seems to have a number of favourite interviews. In a study on the relational and sexual experiences of 46 people with learning disabilities, 12 interviews were withdrawn from the general data on the basis of lack of relevance. It is important to re‐examine why the voice of some people fell out of the in‐depth analysis and whether this was justified. In this article some methodological opportunities and pitfalls to re‐grant identity to these silenced narratives are considered and discussed.     

‘It’s not my problem’: exploring lecturers’ distancing behaviour towards students with disabilities

While conducting a qualitative study on the e-learning needs of students with disabilities at a South African university, the responses from some of the lecturers indicated that they distanced themselves from the responsibility of providing learner support to students with disabilities. These participants displayed a lack of involvement with the students and tended to transfer their responsibilities to support services on campus, such as the Unit for Students with Disabilities. In essence, this means that the creation of an inclusive learning environment at this campus remains elusive, thus frustrating the learning of students with disabilities in particular. Although the necessity of institutional policies is not refuted, we argue that personal responsibility is essential in bringing about inclusive campuses. Factors contributing to the shifting of responsibility will consequently be explored and ways in which lecturers can be supported to provide enriching learning experiences for all students will be suggested.     

‘The performative surprise’: parody,documentary and critique

Can parody help us to ‘re‐imagine’ the organizations and institutions we live with (Du Gay 2007 Du Gay, Paul. 2007. Organizing identity: Persons and organizations after theory, London: Sage.  [Google Scholar], 13)? Or, like many forms of critique, does parody risk being incorporated: becoming part of the power it aims to make fun of? In this paper, drawing on Judith Butler’s work, I argue that certain circumstances enable parody to destabilize hegemonic, taken‐for‐granted institutions (Butler 1990 Butler, Judith. 1990. Gender trouble: Feminism and the subversion of identity, London: Routledge.  [Google Scholar]). I explore these ideas through a reading of the Yes Men documentary (Tartan Video 2005 Yes Men. 2005. “Directed by Chris Smith, Dan Ollman and Sarah Price”. Tartan Video.  [Google Scholar]). This film features a series of humorous representations of the World Trade Organization (WTO). I show how these act to denaturalize and effectively critique this dominant force in global trade. This paper discusses the value of parody for helping us to re‐think and re‐make particular institutions and organizations. In doing so, I point to the importance of creating a spectacle in which parody can travel beyond its immediate location, so that it can reach ever newer audiences with its ‘performative surprise’ (Butler 1990 Butler, Judith. 1990. Gender trouble: Feminism and the subversion of identity, London: Routledge.  [Google Scholar], xxvi). I suggest that the rise of the Internet and inexpensive documentary techniques offer interesting new ways for achieving this.     

Accommodating ‘foreigners’: narrative accounts of Berlin's German-born Turkish Ausländer

This paper examines the discursive messages conveyed through everyday encounters among German-born Turkish Ausländer (foreigners) and ethnic Germans in Berlin. Using narrative analysis, I explore how these messages operate to maintain a series of separate and unequal social relations based on gender, ethnicity, religion, and skin colour. The personal experiences of local residents illustrate how these discourses serve to mark some Ausländer as less threatening than others, some as preferable, and others as undesirable. Some Ausländer are also considered more valuable than others, and the status of one often depends on the superior or subordinate status of the other. Through exploring these complexities as experienced by local informants, this paper shows the importance of certain interactive processes that construct Ausländerness in varying ways, while still defining people's identities in relation to norms that privilege the dominant subjects.     

Interrogating ‘acquiescent’ behavior of adults with developmental disabilities in interactions with caregiving family members: an instrumental case study

In this article, we adopt a Critical Disability Studies orientation to interrogate ‘acquiescent’ behavior of one adult diagnosed with developmental disabilities – Suzanne – in interaction with her caregiving parents. We conduct conversation analysis of interactions and offer themes of Speaking over/capping it off, Speaking for/giving it over and Correcting/redirecting as evidence of Suzanne acquiescing as part of ‘orchestrating’ input from her parents to get what she wants. We discuss adults diagnosed with developmental disabilities navigating daily life amidst shifting powerplay by strategically steering conversations in ways that serve them and we argue such navigations as vital to understanding ‘acquiescence.’     

‘Falling through the cracks’: recognising sitting disabilities

This article attempts to ‘give voice’ to those with sitting disabilities, in order to raise awareness and enable constructive dialogue amongst stakeholders. These voices were collected through interviews and conversational email correspondence, with participants recruited via support websites and hailing from across Europe, Australia and North America. Numerous themes emerged in our participants’ accounts and were largely framed around an inability to fit the deeply-rooted prevailing norms of a sitting society. Necessary shifts in relationships, an inability to travel, difficulties with retaining employment and feelings of distrust and inauthenticity in relation to official knowledges all emerged as a result of this. After an account of the participants’ stories, we offer a preliminary analysis via Nancy Fraser’s understanding of social justice, where these experiences can be understood through the categories of recognition and distribution. In doing so, we develop some recommendations for change.     

Withdrawn,strong, kind,but de-gendered: non-disabled South Africans’ stereotypes concerning persons with physical disabilities

Abstract

The present paper examines stereotyping in relation to physical disability and gender in the South Africa. Cross-sectional data for the present study were gathered using free response items in a large survey (n = 1990) examining the attitudes of people without disability towards different facetsof sexuality and disability. The most prominent stereotypes found in thepresent study were those which characterised PWPD as withdrawn and shy, SuperCrips, or happy, funny, and kind. The findings in the present papersuggest that stereotypes of PWPD are not overwhelmingly de-sexualising, but are undifferentiated by gender.     

The ideology of neuroscience and intellectual disability: reconstituting the ‘disordered’ brain

During the last two or three decades, neuroscience has changed how we understand brain functioning. This shift, which is re-conceptualizing the relationship between the materiality of the brain and consciousness, is bound to have implications for intellectual disability, which is commonly seen as a condition of the brain. At present, examinations of intellectual disability that deploy techniques and concepts from neuroscience constitute a growing research field that has been welcomed in some quarters of the disability research community. The purpose of this article is to urge for caution as regards this development. I argue that the neuroscience of intellectual disability is embodying ideological propositions that need to be problematized. By theorizing the relationship between biology and politics and examining neuroscientific publications on intellectual disability, I argue that this strand of research is underpinned by a discursive division between normal and pathological, that it therefore constitutes a continuation of understanding intellectual disability as a ‘disorder’ and that any firm separation between the ‘nature’ of intellectual disability and processes of power is inherently problematic. To be able to critically approach the neuroscience of intellectual disability, it is vital that disability researchers problematize the relationship between biology and politics.     

‘What kind of abuse is him spitting in my food?’: reflections on the similarities between disability hate crime,so-called ‘mate’ crime and domestic violence against women with intellectual disabilities

Domestic violence against women with learning disabilities is a wholly under-researched topic. A recent study indicated that there are strong parallels between domestic violence, disability hate crime and ‘mate’ crime. This article explores these similarities and argues that rather than treating them as discrete phenomena, we need to make the connections and re-affirm the commitment that feminist scholars and activists made long ago, namely to take violence committed in private as seriously as that committed in public.     

From a ‘builder of socialism’ to ‘free floating intellectual’: My politically incorrect career in sociology

Conclusion In the final analysis, despite the reservations expressed earlier, I do not regret having become a sociologist because it has allowed me to write a few books and express ideas on some subjects of importance, modest as their impact might have been.15 I also found academic life generally congenial espe-cially given the abundance of leisure that goes with it.