Crip theory and the disabled identity: why disability politics needs impairment

This article highlights the importance of recognizing both the ontology of impairment as it relates to the creation of the disabled identity as well as why articulations of the disabled identity being ‘crip’ obfuscate potential politics. Examining how the disabled identity has been cast as a coherent social and political category, rather than the messy and complicated identity it truly is, I argue the adoption of a post-structuralist orientation by activists and advocates is bad for disability politics. Providing two examples, the first focusing on a publicized rape case of a person with an intellectual disability and the second on the importance of disability rights claims based on visibility of impairment, I show how articulations like those made in crip theory can have serious, negative implications for the lived experience of people with disabilities. I conclude with a call for disability studies scholars to engage disability politics in their work.     

The transnational sphere of justice: disability praxis and the politics of impairment

In this paper, my aim is to elaborate disability movement praxis so that transnational struggles for justice over the production of impairment emerging from the Global South can be represented within the transnational frame of disability politics. The paper seeks to explore the potential of deepening socio-political understandings of impairment as a means to radically democratize disability movement politics at the transnational scale to encompass pluralist, yet subaltern, collective claims for justice. I am guided by the question: if impairment is the place that makes visible invisible debts, can the global disability rights movement begin a process of re-identification to open the boundaries of disability justice claims and develop a strategic orientation which recognizes those collective justice claims for geopolitically produced impairments?     

Conceptualising the psycho‐emotional aspects of disability and impairment: the distortion of personal and psychic boundaries

Recent feminist critics of the social model of disability have pointed towards a danger that disability studies may give relatively little attention to personal and emotional aspects of disablist oppression and impairment. We argue for consideration of the centrality of the distortion of personal and psychic boundaries as a key aspect of oppressive relational dynamics surrounding disability. Within the observer the disturbing psychic evocations of disability, and related defences, are connected to the maintenance of dynamics of unreal, collusory and alienating modes of relating, which may deprive disabled people of the recognition of subjective experience and personhood. Skewed socialisation of disabled people, involving inter alia the protection of the emotional lives of others, as well as the reality of inaccessible material resources, contributes to the internalisation of disablism and the ideological recruitment of disabled people as complicit in their marginalisation.     

Exploring how the social model of disability can be re-invigorated for autism: in response to Jonathan Levitt

Levitt argues that the social model of disability needs to be re-invigorated, potentially by adapting the tool for separate countries. The social model has been successfully applied for some disabled groups in the United Kingdom. However, the social model is not implemented for neurodivergent labels such as autism, through the negative language of autism, causing severe problems for autistic individuals’ daily lives. The social model can be re-invigorated for autism, removing social barriers by changing non-autistic people’s attitudes towards autism through ensuring positive language of autism, preventing the categorisation of autism and fully enacting The Autism Act 2009 and The Equality Act 2010.     

Comparing housing affordability and quality among disability households: The United States and its regions

Two national data sets (the Panel Study of Income Dynamics and the Survey of Income and Program Participation) are analyzed to compare housing afford-ability and quality between U.S. disability households and other households and by region. The researchers conclude that disability households in the United States are at risk of inability to afford housing. In addition to higher housing-income ratios, these households are more likely to be older, in poverty, in poor or fair health, and on public assistance than other U.S. households. They are also more likely to carry severe housing cost burdens, to be in housing poverty, and to be receiving housing assistance. Regional differences among disability households and their housing seem to echo geographic economic and population trends, as well as regional variances in the housing stock. The data, which did not address housing accessibility, are less clear about disability households' risks relative to housing quality. Her research interests include housing for special needs populations, community housing needs assessment, and housing policy. She received her Ph.D. from Virginia Polytechnic Institute and State University. His research interests include professional practice and the housing needs of special needs populations, particularly the homeless. He received his Master's degree from California State University at Chico. He is a Housing Extension Specialist with the Cooperative Extension Service. His research interests include environmental issues, housing at-risk populations, and international housing. He received his Ph.D. from Cornell University.     

From leprosy to The Willow Tree: decoding disability and Islamic spirituality in Iranian film

The lack of attention in academic discourse to representations of disability in films from the Middle East has led to an incomplete picture of representations of disability in global cinema. For instance, the diverse meanings of disability in Iranian cinema and the influence of disability on the emergence of Iranian New Wave cinema have been almost completely ignored by scholars. A number of award-winning films from Iran have featured disability as central to their narratives – such as The House is Black (1963), Taste of Cherry (1997), The Color of Paradise (1999), The Willow Tree (2005), and The Painting Pool (2013). Disability in these films serves alternatively as a symbol of spiritual possibility, a mark of marginalization, and a covert social critique. These films examine the emotional, physical, and social implications of disability, while celebrating the cultural power of film to challenge social, religious, and artistic barriers.     

To live an ordinary life: resource needs and additional costs for people with a physical impairment

Disabled people face increased risks of living in poverty largely due to lower incomes and extra resource requirements compared to non-disabled people. This study incorporated the social model of disability with an economic approach to costing to estimate the additional costs required by people with a physical impairment to achieve an adequate standard of living in New Zealand. Budgets estimating the additional equipment, modifications, transport, support and time required to achieve an adequate standard of living were developed and validated through focus groups with community members. The findings suggest that reducing barriers involves substantial costs ranging from NZ$645–$2,348 per week.     

The opportunity to contribute: disability and the digital entrepreneur

ABSTRACT

A range of scholarly work in communications, informatics, and media studies has identified ‘entrepreneurs’ as central to an emerging paradigm of digital labor. Drawing on data from a multi-year research project in the virtual world Second Life, I explore disability experiences of entrepreneurism, focusing on intersections of creativity, risk, and inclusion. Since its founding in 2003, Second Life has witnessed significant disability participation. Many such residents engage in forms of entrepreneurship that destabilize dominant understandings of digital labor. Most make little or no profit; some labor at a loss. Something is being articulated through languages and practices of entrepreneurship, something that challenges the ableist paradigms that still deeply structure both digital socialities and conceptions of labor.

Disability is typically assumed to be incompatible with work, an assumption often reinforced by policies that withdraw benefits from disabled persons whose income exceeds a meagre threshold. Responses to such exclusion appear when disabled persons in Second Life frame ‘entrepreneur’ as a selfhood characterized by creativity and contribution, not just initiative and risk. In navigating structural barriers with regard to income and access, including affordances of the virtual world itself, they implicitly contest reconfigurations of personhood under neoliberalism, where the laboring self becomes framed not as a worker earning an hourly wage, but as a business with the ‘ability’ to sell services. This reveals how digital technology reworks the interplay of selfhood, work, and value – but in ways that remain culturally specific and embedded in forms of inequality.     

Moral wrongs,disadvantages, and disability: a critique of critical disability studies

Critical disability studies (CDS) has emerged as an approach to the study of disability over the last decade or so and has sought to present a challenge to the predominantly materialist line found in the more conventional disability studies approaches. In much the same way that the original development of the social model resulted in a necessary correction to the overly individualized accounts of disability that prevailed in much of the interpretive accounts which then dominated medical sociology, so too has CDS challenged the materialist line of disability studies. In this paper we review the ideas behind this development and analyse and critique some of its key ideas. The paper starts with a brief overview of the main theorists and approaches contained within CDS and then moves on to normative issues; namely, to the ethical and political applicability of CDS.     

Enabling everything: scale,disability and the film The Theory of Everything

This article looks at the representation of scale in the 2014 film The Theory of Everything, identifying moments that relate to three concerns: firstly, how disabled people experience scale issues at an all too practical level in daily life; secondly, how Hawking’s experience of scale at the level of both body and mind is (a)typical of the way it is experienced by disabled people generally; and, thirdly, how a focus on the film can prompt some rethinking of perspectives both within disability studies and within the conceptualisation of scale more broadly.     

Intellectual disability and faith communities: perspectives of Catholic religious leaders

Faith communities create community and are important to many individuals with intellectual disability. However, relatively little is known about how intellectual disability is construed among faith leaders and the inclusion of people with intellectual disability in faith communities. To address these gaps in knowledge, we interviewed 12 Catholic priests, parochial vicars, and deacons to explore: their experiences with individuals with intellectual disability; their beliefs towards the involvement of individuals with intellectual disability within faith communities; and how religion informs their understanding of intellectual disability. We identified five religiously-anchored narratives of intellectual disability, and explore implications for individuals with intellectual disability and faith communities.     

Exploring how the social model of disability can be re-invigorated: in response to Mike Oliver

In his 2013 article in Disability & Society, Oliver recommended that the social model should either be replaced or re-invigorated. I argue here that the social model’s current emphasis reflects the social conditions in which it was introduced, and that the model’s impact on disabled people’s lives would increase if its emphasis was to more accurately reflect the current social conditions in the geographical regions in which it is applied. In order to help foster its re-invigoration, I ask five questions for discussion on the way forward for the social model. I identified my questions through examining published writing on the scope of the social model and on the model’s relationship with other models of disability.     

Embracing the new disability rights paradigm: the importance of the Convention on the Rights of Persons with Disabilities

In 2008 the United Nations Convention on the Rights of Persons with Disabilities (CRPD) commenced operation. The CRPD has created a dynamic new disability rights paradigm that empowers disability people’s organizations and creates a new paradigm for disability scholars. This paper analyses the impact of the CRPD and provides practical guidance as to how this convention can be used to drive change. Prior to this convention, persons with disabilities were protected by a range of general human rights conventions. Despite receiving nominal protection under general human rights conventions, persons with disabilities have had many of their human rights denied to them. The CRPD goes further than merely re-stating rights. It creates a new rights discourse, empowers civil society and renders human rights more obtainable for person with disabilities than any time in history.     

Fatness as a disability: questions of personal and group identity

Both fat people and disabled people share common barriers to full societal participation and acceptance. While there has been a substantial amount of literature relating to these two groups as separate entities, there is a lack of contemporary research that investigates the relationship between fat and disability identity formation. The purpose of this qualitative study was to engage in a dialogue with fat individuals and explore the construction of their identities – whether or not they identified with having a disability and, if so, whether or not they viewed their fatness as a disability. Interviews with a sample size of seven participants who self‐identified as ‘fat’ revealed an unwillingness to adopt a disability identity based on their fatness.     

Problems associated with choice and quality of life for an individual with intellectual disability: a personal assistant's reflexive ethnography

A gap exists between research and practice within the field of intellectual disability. In particular, researchers suggest that personal choice enhances quality of life. Following Bourdieu's suggestion to focus on improving the practice of theory rather than the theory of practice, this paper is a reflexive ethnography detailing my struggles to provide choice to an individual who, it turned out, cannot think in the ways necessary to make choices that would improve his subjective quality of life. A narrative is included with the hope of revealing social processes outside and within the field of intellectual disability and to provoke discussion regarding problems with choice and quality of life in the field.     

Vestiges of the medical model: a critical exploration of the Ontario Disability Support Program in Ontario,Canada

Although ample literature exists on workfare in Ontario, Canada, research on the social assistance programme for disabled people, the Ontario Disability Support Program (ODSP), is relatively scant. What we do know points to similar shortcomings. We present a critical disability study considering four policy domains to explore how disabled people are identified and accommodated in Ontario. Discussing the principles of universal design, we argue for policy design that meets the needs of as many individuals as possible, while accounting for significant human variability. We conclude that the ODSP, in failing to adopt a rights-based framework, violates the dignity and rights of disabled people.     

Pretending to be a normal human being: Peep Show,sitcom, and the momentary invocation of disability

This interdisciplinary article presents research about the place of disability in the British sitcom Peep Show, whose 54 episodes span more than a decade in their transmission (2003–2015). The methodology of critical discourse analysis is employed to probe the relationship between casual word choice and broader themes such as normalcy, humour, and social attitudes. This analysis is informed by classic and new work in cultural disability studies, as well as by work in literary studies and television studies. The conclusion is that, despite its apparent irrelevance to disability studies, Peep Show reveals much about conversational invocations of disability.     

Three Days to Walk: a personal story of life writing and disability consciousness in China

Through a close reading of Three Days to Walk, a memoir of disability by Chinese writer Zhang Yuncheng, this paper develops a new understanding of self-narrated life writing and its intersection with disability consciousness in the contemporary Chinese context. It examines the changing nature of disability life writing since the end of the early 1980s, a time when the images and voices of disabled began to emerge from effective cultural invisibility and silence. In a move away from state-sponsored ‘triumph over tragedy’ biographical narratives typical of the immediate post-Cultural Revolution period, Three Days to Walk is characteristic of a new popular trend to publish self-narrated life stories that reveal unique and intimate histories of disability experience both imbued with and propelled by a burgeoning sense of disability consciousness in the Chinese context.     

In defence of disability studies: a response to Forshaw (2007) 'In defence of psychology: a reply to Goodley and Lawthom (2005)'

We welcome Forshaw's reply to our paper because it opens up debate about psychology and its relationship with the development of an emancipatory disability studies. In our paper we aimed to: (1) raise possibilities for disability studies researchers' engagement with psychology (rather than psychology colonizing disability studies); (2) trace some of the epistemological journeys we underwent in carrying out disability research and community psychology research; (3) consider these possibilities and journeys in relation to previous literature on emancipatory disability research. Forshaw's reply appears to ignore aims (2) and (3) and instead focuses on the ways in which we (mis)represent psychology. He suggests that we: present an inaccurate account of qualitative research in contemporary psychology; make a divisive argument for a 'breakaway group' of community psychologists; epistemologically contradict ourselves because of our concern with 'reality' and social constructionism; argue for only adopting participatory action research; not least, adopt 'simplistic' and 'outdated' views of psychology. We will respond to these criticisms.