Citation analysis and discoverability: a critical challenge for disability studies

Disability is an identity, a culture/community/cause/power struggle; a rights movement demanding civil, ethical, political and social positions at tables of power, equality and social justice. This perspective forms the core of changes in the past 50 years in legal, social and political arenas that have taken place and is essential to understanding the growth, depth and nature of Disability Studies as a separate and legitimate field of inquiry. This study focuses primarily on studying the evolving literature in the core aspects of Disability Studies, using citation and text analyses to study trends in publishing patterns and the field’s impact on the wider academic enterprise. Lack of thorough indexing to key journals made traditional citation analysis impossible, leading to the use of dissertations as a means to tease out useful information on the state of Disability Studies today. The most significant finding of the study is the lack of adequate indexing of key journals in standard scholarly databases, which can only limit the potential development of both the field and its impact/influence on related disciplines and professions. The study also found the significant role that dissertations can play in tracking new research directions.     

Acquired disability in young women: a challenge for identity?

ABSTRACT

Youth can be described as a transitional phase for the formation of identity. As young people often hold taken-for-granted assumptions regarding their future, disability may pose a challenge for their identity development. This paper analyses the retrospectively written autobiographical narratives by three young women who became disabled during their adolescence. The structure of the narratives is approached with sociologist Arthur Frank’s typology of illness narratives and identity through data-driven content analysis. This paper suggests that chaotic stories may hinder the development of identity, as the identity is described as delayed, hidden, silenced or neglected.     

From Adolescence to Young Adulthood: the partnership challenge for learning disability services in England

The transition from adolescence to young adulthood is acknowledged to be difficult for all young people, but the problems facing those with a learning disability will tend to be greater. This article identifies these additional difficulties, and considers the extent to which new policy requirements and expectations in England can address them. At the heart of this new approach is the need for partnership working between a complex range of agencies and professionals. What is at stake is not only a better system of support for some vulnerable young people, but also—in microcosm—the viability of partnership working as a policy tool for addressing complex issues.     

Unravelling Mr President’s nomad lands: travelling to interdisciplinary frontiers of knowledge in disability studies

In this article the aim is to challenge essentialist ontological assumptions surrounding the impairment category of ‘learning difficulties’ as it was previously conceptualized in social theory and practice. I ground my knowledge production in self‐advocates connected to the self‐advocacy movement in Flanders (Belgium) and in critical feminist disability studies. Drawing upon the post‐structuralist feminist Rosi Braidotti, who introduced nomadology as a new figuration of layered, embedded and embodied subjectivity, I bring the illustrative nomadic subjectivity of the president of the self‐advocacy network to the public eye. In order to allow disability scholars and activists re‐inscribe new scenarios in our contemporary discourse and shared culture, I appeal for an interpretation of the impaired body and mind as a socio‐political field.     

Children's experiences of disability: pointers to a social model of childhood disability

The social model of disability has paid little attention to disabled children, with few attempts to explore how far it provides an adequate explanatory framework for their experiences. This paper reports findings from a two-year study exploring the lived experiences of 26 disabled children aged 7-15. They experienced disability in four ways—in terms of impairment, difference, other people's behaviour towards them, and material barriers. Most young people presented themselves as similar to non-disabled children: it is suggested they may have lacked a positive language with which to discuss difference. It is further argued that Thomas's (1999) social relational model of disability can help inform understandings of children's experiences, with 'barriers to being' having particular significance.     

Ambivalences: a challenge to permanency for children

A key to determining a permanent plan for children in placement lies in determining and working with the history and relative intensity of parental ambivalence in the parent-child relationship as it is acted out in the placement experience. A study of cases in a public department disclosed not only indicators of parental ambivalence but also the reinforcement of that ambivalence by agency policy, working conditions, and lack of resources.     

From leisure and disability to disability leisure: developing data, definitions and discourses

Although both disability studies and leisure studies have grown to become influential subject fields in their own right, there has been little discursive exchange between the two fields. This article seeks to address these equally significant gaps in disability research within leisure studies and leisure research within disability studies. Empirical data examining the role of leisure in the lives of a group of young people with cerebral palsy are introduced to contextualise definitions and discourses of leisure and disability. The article demonstrates that, for many young disabled people, the role of leisure in tackling social exclusion remains within the realms of policy rhetoric, rather than everyday reality. The dissonance between these agendas and actualities is reviewed in relation to definitions and discourses of disability and leisure evident in wider social policies, and in relation to definitions, discourses and models of disability that remain dominant within leisure provision.     

Life-threatening disability in adolescence: Adjusting to a limited future

This paper describes a medical social worker's efforts over one and a half years to help a client adjust to a neurological disorder. Prior to social work services, the young woman had never discussed her disability, which began in adolescence, with anyone outside the family, and communication within the family was seriously compromised by their perception of disability as a stigma. Lacking the opportunity to mourn the loss of her physical abilities, she became isolated and depressed, and acted out aggressive thoughts and fantasies within the family system. Social work intervention helped the client to re-work the original trauma of diagnosis, which led to the development of a healthier defensive structure and new coping mechanisms.     

Vulnerability and disability: a citizenship perspective

This article discusses vulnerability and disability focusing on inclusion and citizenship, inspired by Martha Nussbaum’s capabilities approach and Martha Fineman’s vulnerability theory. A public speech held at the 200th anniversary of the Norwegian Constitution is used as an exemplary case. The speaker, a woman with Down syndrome, challenges the Norwegian politic of inclusion. By drawing on perspectives from Nussbaum and Fineman, the article argues that a political concept of the person must emphasize individuals as vulnerable together with a recognition of disability as inherent in humanity. Vulnerability and disability are equally important for building future societies characterized by non-discrimination and equal citizenship.     

Feminist disability theory: domestic violence against women with a disability

Women with a disability continue to experience social oppression and domestic violence as a consequence of gender and disability dimensions. Current explanations of domestic violence and disability inadequately explain several features that lead women who have a disability to experience violent situations. This article incorporates both disability and material feminist theory as an alternative explanation to the dominant approaches (psychological and sociological traditions) of conceptualising domestic violence. This paper is informed by a study which was concerned with examining the nature and perceptions of violence against women with a physical impairment. The emerging analytical framework integrating material feminist interpretations and disability theory provided a basis for exploring gender and disability dimensions. Insight was also provided by the women who identified as having a disability in the study and who explained domestic violence in terms of a gendered and disabling experience. The article argues that material feminist interpretations and disability theory, with their emphasis on gender relations, disablism and poverty, should be used as an alternative tool for exploring the nature and consequences of violence against women with a disability.     

Negotiating disability and colonisation: the lived experience of Indigenous Australians with a disability

Disability among Indigenous Australians lies at a nexus between the ongoing impact of European settlement from 1788 and the social effects of living with a disability. Colonisation, with its political, social, economic and cultural concomitants, continues to impact on Indigenous experience, extending to the institutions and services concerned with disability. There is little attention paid to Indigenous Australian disability in general, and the need to decolonise disability has recently been emphasised. Ethnographic research in Brisbane, Australia among Indigenous people with a disability (mostly related to diabetes) confirms the ongoing impact of colonisation. While this experience pervades all aspects of their lives, it also moderates their experience of living with a disability in positive ways. However, while individuals can negotiate their personal experience of disability, the decolonisation of disability services presents challenges that need to be addressed.     

Moral wrongs,disadvantages, and disability: a critique of critical disability studies

Critical disability studies (CDS) has emerged as an approach to the study of disability over the last decade or so and has sought to present a challenge to the predominantly materialist line found in the more conventional disability studies approaches. In much the same way that the original development of the social model resulted in a necessary correction to the overly individualized accounts of disability that prevailed in much of the interpretive accounts which then dominated medical sociology, so too has CDS challenged the materialist line of disability studies. In this paper we review the ideas behind this development and analyse and critique some of its key ideas. The paper starts with a brief overview of the main theorists and approaches contained within CDS and then moves on to normative issues; namely, to the ethical and political applicability of CDS.